Member Since: June 24, 2007
Last Login:
Location:
Occupation:
Posted in:
Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Aug 19, 2007 06:44 am
Anyone starting Chemo in August 07?Hi Kaye & Fellow Chemo-Buddies,
Yep, had Neulasta on Friday... They are not kidding about that joint & bone pain though. My hips are all locked-up and the pain is crawling up my spine. Day 3 so far doesn't hurt as bad as yesterday. I feel o.k. just some mild waves of nausea. As for the pharmaceutical companies - - well I've been in the insurance industry for years, and if you ask me the whole game is a scam... We get stuck holding the bag trying to figure out 'how' to get things covered by our insurance... Mad when we do not win, and the only people who make out like bandits are the pharmaceutical companies. I do not blame insurance for having parameters to prove necessity, I do not blame doctors for pushing the latest drug the pharmaceutical companies have delivered at a discount and with 'fluff' presents... I do blame marketers who could give a rip about what we go thru... In fact I can get pretty angry about the whole thing if I let myself. Of course anger doesn't help any of us - - good thoughts, friendship and lots of squishy hugs seem to be the best medicine of all. Thinking of all of you, Michelle |
Posted in:
Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Aug 17, 2007 11:10 am
Anyone starting Chemo in August 07?Hi Ladies,
Just wanted to check-in. Had my first round yesterday, first was the Bright Red stuff, then Cytoxan, then another in a syringe. Although I didn't have my Port yet, the IV was not as bad as I anticipated. I decided to eat right after chemo, i was STARVING. It didn't sit so well, but some compazine cleared that right up. Slept most of the afternoon and all night (which is a first in a couple of weeks). Today I'm hanging in there, a little nausea, but I'm back at work and pushing through. I will be looking forward to meeting my pillow when I get home - - but all in all this hasn't been anything like what I was anxiously worrying over. Strength & Love to Everyone! Michelle |
Posted in:
Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Aug 9, 2007 04:56 pm
Anyone starting Chemo in August 07?Hi Ladies,
It's been a rough week, and wow has our group grown! Welcome everyone, we will get through this and laugh one day at the obstacles life tried to place in our path. The weekend with Mom wasn't what it was suppose to be. I didn't get to play on the beach, and I lost $$$ at the casino she picked in the middle of Oregon. My husband told me she would do something like this too, so I should have known. She means well - - but shoot, when do I get to take care of ME? This week has been a bowl of cherry pits. My dentist appt., was suppose to be awful - - but shoot, they pulled 4 teeth!! 4 of them!!! I was only suppose to have 2 pulled, and a few fillings. My mouth bled all night, and I had to go back for more stitches. I miss food so much right now. All I can have is pudding, yogurt & jell-o. 1 week until chemo, and I think I'm winding myself up. May be it's time for some more Xanax. All of you are inspiring to me - - I'm coming to believe that getting ready for chemo is actually worse than chemo itself. I'm actually looking forward to the worse thing being throwing-up a few times and some discomfort in my joints... O.K. Pity Party over - - - My hair party is this weekend! Saturday I go for the manicure/pedicure and at 3:30, my family and a couple of friends will join me at the salon to party while my head gets 'buzzed' - - I'm thinking of carving flowers into the side... my friend suggested "PIMP" or a "lightning bolt"... I decided those were a bit much. I think of you all every day - - Take care of yourselves, and remember your strength :-) Enjoy whatever you want - We deserve it! Love, Michelle <font> Let peace be your mind, love be your heart... and you too may shine like the sun... <!--color--></font> |
Posted in:
Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Aug 3, 2007 05:11 pm
Anyone starting Chemo in August 07?Hi Ladies,
Thank you for the welcomes :-) Kidsmom, great news and a wonderful post to read as my mind wanders into the worry mode. Shoot I need a notepad with everybody's names... The peppermint idea I heard from a friend at work who's been b/c free for 3 yrs... I survived these weeks Kidney Scan, Heart Scan and 2 root canals. They found a cyst on my kidney...and I feel so lucky that it wasn't something else. My heart is in fantastic shape to start chemo with, so maybe I'll have the same luck and be just fine from all of this... My mom is taking me to the ocean this weekend, and I should be packing rather than posting! We live near Mt. Rainier, and the ocean is about 2 hours from here, I don't know why we don't go more often. Pointer on the long posts ***ALWAYS COPY THE ENTIRE POST TO YOUR CLIPBOARD*** Then if it loses it, you can go back and paste the post back in and try again :-) Strength & Love . . . Have a Restful Weekend! Michelle |
Posted in:
Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Aug 1, 2007 05:46 pm
Anyone starting Chemo in August 07?Hi ladies,
My start date will be August 16th... I just finished this weeks tests, and even got the results today! Next week is filled with dentist appointments, and port placement... Next Saturday I'm cutting my hair and donating it. I hope your treatment goes o.k. you've been on my mind all day! I tried to post yesterday but lost it all (it was good and full of fun stuff too!, wish I was as creative today). Anyway... I'll be taking FEC 4x every 3 weeks, and then TC 4x every 3 weeks. I'm not looking forward to it, but I'm adjusting to the new diet and taking vitamins for the first time in my life... Healthy Choices and Haircutting is the ONLY thing that's in my control, so I'm gonna run with that thought process for now... Strength & Love, Michelle Oh... Triple Neg, 2.5 cm, right mast, no nodes, pending BRCA test to determine left mast after chemo. Can't think of anything else... |
Posted in:
Tests, Treatments & Side Effects + Just Diagnosed, Created: Jul 19, 2007 05:01 pm
Out of work how long????Right mastectomy and back to work in 1 1/2 weeks... Of course my surgeon didn't know, but it is a desk job, no lifting...
Take it slow - - your body will tell you when it's ready to return to work. Strength & Love, Michelle |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + Triple Negative, Created: Jul 15, 2007 02:06 pm
a bad drug !Levaquin is a heavy-duty antibiotic. I've taken it several times for various infections (usually kidney). You really don't know if you will have SE's from this medication until you try it. Usually about 5% of patients have SE issues, and another 5% have allergic reactions.
Like all meds, you only find out you are allergic once you have taken it... Good luck, Don't Panic... Breathe :-) Take care |
Posted in:
Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Jul 14, 2007 04:20 pm
My mastectomy is Wednesday, July 18Ahhhh so many questions in your mind when the surgery is coming up. It's strange that I finally have something to share that's meaningful! Just a couple of weeks ago I felt so lost and confused in all of the information.
So here goes (for what it's worth).... The "blue dye test" - Usually done in the radiology dept. They do 4 injections (usually) one at the 12, 3, 6 & 9 o'clock around the nipple. This dye is so the doctor knows "WHAT" to take out during the mastectomy, as well as highlighting the Nodes that are 1) feeding the tumor, and 2) testing surrounding nodes to ensure the cancer has not spread. The "mastectomy" - The surgery was a walk in the park - - I went to sleep and woke-up lop-sided. I have a high-tolerance for pain, so I was up and walking the same day, but refused to go home... Whenever I tried to move my right side to prop me up or even pull up my pants, there was muscle pain - - - To me it felt like I had lifted weights VERY heavily the day before (and I'm not the type to work-out). The Number of Drains depends on where your body decides to accumulate fluid... If you are fast healer and your insides only show one place, then you get 1 drain. If your armpit is not so happy that the doctor is messing around up there, then you get a 2nd one there. I only had 1 side done, and my armpit was horribly swollen - - so I had 2 drains. I was grateful when those were removed a week later - - - but I think they took them out to early. The next week, the built-up fluid found it's way to the incision and the surgeon had to drain it again, which was not fun. At anyrate... Eat well, ask for Xanax (It Really Does Help), and when you wake-up people bring you presents. Take care, Michelle <font> Let peace be your mind, love be your heart... and you too may shine like the sun... <!--color--></font> |
Posted in:
Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Jul 14, 2007 03:39 pm
Cytoxan and Taxotere ?</font>
<font class="small">Quote:</font><font class="post"> Hi Daphne, Thanks for responding... I too have a nursing background, that makes us very painful patients to our physicians ![]() My report from the onc. shows Stage II... I am still going thru testing to determine if it has metastisized vascularly. I'm just lucky it hadn't reached my nodes yet. The size of the tumor (from what I understand) is what determined the staging. I also copied this from the breastcancer.org site, because there is more than 1 definition to be put into the staging categories. Thought you might find it interesting... Stage II This stage describes invasive breast cancer in which: The tumor measures at least two centimeters, but not more than five centimeters, OR Cancer has spread to the lymph nodes under the arm on the same side as the breast cancer. Affected lymph nodes have not yet stuck to one another or to the surrounding tissues, a sign that the cancer has not yet advanced to stage III. Your feedback regarding the chemo is very helpful. I am staying positive, although I'm a bit ticked off at my body for giving me an infection at my mastectomy incision line... Now the chemo has to wait an extra 2 weeks, ugh. I just want this stuff OUT OF MY BODY... like NOW. On the other hand, I will have better insurance when August rolls around, so maybe it was 'suppose' to happen this way.... Anyway - - thank you all for continuing to post, you are an inspiration to us who have not made it as far down the path yet. Take care, Michelle |
Posted in:
Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Jul 11, 2007 09:16 pm
EW!!!!!!!!!!!!!!!!!!I received the "pre-test" instructions for the PET test today. I dispise being limited in activity by doctors...
The good news, I don't have to drink anything. The glucose is radio-active and injected IV... I do however get to practice my new sugar-less diet the day before and drink 24 ounces of water THE MORNING OF the test. I'm sorry but my bladder won't make it from here to there without bursting, even if I go before I leave! lol I'll keep my ears open if she orders a CT scan... No Pina Colada requests from me... Wonder if they have Margarita flavor? Love & Strength, Michelle |
Posted in:
Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Jul 11, 2007 09:12 pm
Cytoxan and Taxotere ?Daphne,
I too am triple neg, no lymph involvement, 2.5 cm, still going thru tests for vascular stuff. In 3 weeks I'll begin my chemo which will include the ACT treatment. I think that will be my second round though - - I don't really understand what all of the acronyms are and if they are given concurrently... I have a HUGE list of questions for my oncologist... I want her to explain why ACT vs. "that other treatment" (wish I had it here to quote to you)... My concern is the long term damage potential to the heart --- I really need her to explain the pro's & con's of each treatment. Keep researching & ask questions. Ladies! Thank you for posting how things are going, I appreciate every post so much as we walk, hide or run thru this journey, not a time goes by that I don't think of each one of us. Hair loss I think I'm coming to grips with, I'm going to buzz cut mine so at least I'll know when it all finally falls out... Not looking forward to hemmoroids - - uck. Oh and hip and bone pain.... Sleeping I might actually enjoy. Anyway, back to making dinner for the kidlet and cooling off from 100 degrees in Seattle. Love & Strength, Michelle |
Posted in:
Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Jul 9, 2007 11:06 pm
EW!!!!!!!!!!!!!!!!!!With all of the tests I'm REALLY confused...
Do I HAVE to drink some yucky stuff for: 1) MRI with Contract (brain) or 2) PET scan ????? I didn't do well way back in pregnancy with the gluclose things they made you drink - - puked it up everywhere! I certainly do NOT want to do that again... Thanks Ladies! Strength & Love, Michelle |
Posted in:
Tests, Treatments & Side Effects + Just Diagnosed, Created: Jul 8, 2007 02:57 pm
Oncotype TestHi Ladies,
Somebody mentioned Cigna, and I used to work from the brokerage side of health insurance. In doing some quick research, especially because I will have to go through this test as well... I found this link: http://www.genomichealth.com/oncotype/about/reimbursement.aspx Hope it helps! Strength & Love |
Posted in:
Tests, Treatments & Side Effects + Just Diagnosed, Created: Jul 8, 2007 02:49 pm
Arm exercises neededLisa,
Thank you for posting these links, i'm two weeks (almost) past rb mast, and my arm is soooooooo stiff. I knew there was 'something' I could do to get it to work the way it used to :-) Yolanda! Great question. Strength & Love, Michelle |
Posted in:
Tests, Treatments & Side Effects + Just Diagnosed, Created: Jul 8, 2007 02:40 pm
Few Important Questions, But First An IntroductionHi Jeremy,
Your wife is a very lucky woman. My husband and you both get the husband of the world awards... I'm 36, diagnosed with IDC and while your wife is triple positive, mine is triple negative. The feedback of holding your wife up and keeping things as normal as possible, taking her out and engaging in life was very important... it's kept me sane. As for treatment, mine is also agressive and had grown over 1 cm in the two weeks from diagnosis to mastectomy. I was hoping to wait 6 weeks before treatment because of insurance coverage issues and was told to NOT WAIT... I was assigned a cancer care coordinator and they have done most of the leg work for me. Such as, surgeon, oncologist, medical imaging appointments for the myriad of additional testing. Do you have access to that type of care through where you she was diagnosed? For me, I am waiting until my chemo is over before the plastic surgeon part... The decision still hasn't been made if they will have to take the other breast - - that will depend on the genetic test thing (I think it's BRCA)...And then it will happen after chemo. Again, I admire you for digging into the details for her and you... Remember to breathe, and know this is survivable, it's just a HUGE left turn in life... Strength & Love, Michelle |
Posted in:
Day to Day Matters + Healthy Recipes for Everyday Living, Created: Jul 8, 2007 12:09 pm
Is sugar good to eat?Hi All,
I'm still wondering if sugar replacements, like SPLENDA are o.k.? It's great for baking with, and sometimes your stuff comes out even sweeter than when cooking with Sugar. Some of our soft-drinks have Splenda in it, and I may hate diet soda right now, but looks like I have to make a change.... Isn't there an in between???? Anybody know? |
Posted in:
Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Jul 8, 2007 11:44 am
Is this neuropathy?Hi Ladies,
Neuropathy is something that I am not looking forward to. I received my chemo-recipe last week, and as the information is slowly sinking in, I now know that I will also have taxotere (sp?) as part of my treatment. Would you recommend I begin with the glucosamine and vitamins now? I'm 3 weeks from beginning chemo, they wanted to wait 4 weeks from the mastectomy to begin... Is that usual? I want this thing out of my body so bad and I'm a bit impatient...But I know I need to do this thing 'right', any recommendations are appreciated :-) Strength & love, Michelle |
Posted in:
Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Jul 4, 2007 11:18 am
Sharing Scars with Children???Dear Lini,
Thank you for your thoughts. I like the idea of science learning... and I do agree with the guys you shared with. Since he's a boy, he will never be scarred for life from all of this! You made me giggle about your 24 yr. old. I'm sure my 19 yr old daughter will probably want to know something about how a reconstruction feels when we get to that point. Strength & Love, Michelle |
Posted in:
Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Jul 4, 2007 03:49 am
Sharing Scars with Children???I had a rb mast last week, and now that the drains are out and technically I do not have to wear the ace bandage wrap except to make 'me' feel o.k. I decided to share with my husband that I am a bit embarassed to have him look at me without the wrap.
He of course was very supportive and said lots of nice things to make me feel better, but then he mentioned it... You know your son wants to know what happened to you. He knows you have cancer, he saw you in the hospital...but he doesn't 'know' what really happened. My mouth dropped...I had not considered explaining or even showing him the scar. I felt so bad that with all of this whirlwind decision making, I had not considered explaining or even wondering what he is feeling about it. So, here's the question. How would you approach your 13 yr. old son about the mastectomy? How much do I share? We have a pretty open household, I mean if I hafta run to pee and only have shorts on, I go running to the bathroom. Boobs bouncing in the wind, cuz peeing on the floor would be ruder than bouncing boobs running through! Anyway - - I'd love to hear what you have shared with your kidlets. Even if you have creative ways of bringing it up with them, I'd appreciate the feedback. Love & Strength, Michelle |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + Triple Negative, Created: Jul 2, 2007 07:54 pm
Just found out yesterday am triple negativeThanks Twink,
I'm still confused though... it's a lot of "if this, than that" stuff.... And now I have a printed pathology report with all kinds of medical-ease on it (and I know some nursing!)... Still so confused! Any idea where I can research the following: "Overall pathologic stagins of this tumor is pT2, pN0 (i-)(sn), pMX" Love to All, Michelle |
© 2008 Breastcancer.org. All rights reserved.