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Member Since: July 5, 2007
Last Login: November 4, 2008
Birthday: December 7, 1978
Location: Paxton, IL
Occupation: stay at home mom
Homepage URL: janssen311@conxxus.com

Biography

I am a stay at home mother.  I was in school working to become a socail worker.  I have an honest, caring, trusting soul that I was lucky enough to marry.  I have also been blessed with such a smart, beautiful, and persistant soul that is now my three year old daughter Leighan.

 

In May 07 I went to ER after finding a bump over night ( visible ).  I was sent home they said fiberostic change.  After a week or two it grew and I went into my Dr were soon I was getting a bio.

I was told I had stage 3 - ICD.  I had a masc, 16/17 nodes and started chemo.  In late July.  By late August my stage turned into four after Mets to the bone.

 

I dont worry about me.  I know what I am facing now and what the chances are.   I worry about my family.  At times I do wonder if my daughter will forget me or if I'll be blessed enough to watch her grow for a few more decades.  I wonder if my husband will move on and what will happen.

Than I look in the mirror and smile because no matter what happens they will always know me and I'm just thinking silly thoughts

 

Im the most persistant person I have ever met.  My goal is to beat the stats with prayer, doctors, laughter, and common jokes.

 

I was read, " Keep your face to the sun and you will never see the shadows- Helen Keller " , what bright words !!!

Diagnosis

Diagnosis: Dx 7/2/2007, IDC, 6cm+, Stage IV, 16/17 nodes, HER2+
Diagnosed: July 2, 2007
Type: Invasive or Infiltrating Ductal Carcinoma
Recurrent?
Metastatic?
Stage: Stage IV
Lymph Nodes Removed: 17
Positive Lymph Nodes: 16
Tumor Size: 6cm or larger
Tumor Grade:
Hormone Receptor Status:
HER2/neu Status: Tumor has an excess of HER2/neu receptors or genes

Recent Posts by hezzy

Posted in: Day to Day Matters + Family Issues for Those Who Have Breast Cancer, Created: Oct 28, 2008 11:28 am

Caring for young children while going through treatment

Hello,

When I first heard the words I had cancer, my first thought was how I was going to take care of my very young daughter.  I always thought of myself as a good mother and was concerned she would feel my sadness, or we would spend less time at the park.

My husband was very helpful during the few weeks after my masc, and during my first few rounds of chemo.  After that I found my daughter stenghth in my daughter.  When I wanted to just lay and cry she was dragging me out of bed to play.  There were many days and nights I couldn't get off the couch so I would pull a table up to the couch and play playdough, or card games with her.  When my hair started to fall out I went into the bathroom and shaved it, I was worried she wouldnt see mommy anymore she would see someone else.  However, she just looked at me and asked me to do her head ( of course i didnt ) I had a few wigs and we sat for hours playing with them and found it to be a great dress up game.

I do my best to always see the glass half full.  When I started looking at it half empty I called my baby girl into the room and we looked into the mirror making faces, laughing, sometimes I would do my best just to make myself happy.  When my daughter is around its not hard at all with her help I often now forget about having cancer

hugs heatherj

heather j
Dx 7/2/2007, IDC, 6cm+, Stage IV, 16/17 nodes, HER2+
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 13, 2008 11:22 pm

people keep asking

thank you everyone so much, reading this makes me feel great !!!!

and as far as getting out of anything or being asked for anything, i ask others for help collecting blankets, cloth, and food for those in need.....it doesnt have anything to do with cancer it doesnt make me specail it just puts smiles on someone face....most the time i wear my wig i dont want them knowing i have cancer because i dont want them thinking i have other things to worry about....i love what i do and who i am.

i love cracking jokes with familly and friends that can handle it, im still trying to see if i can make it as mr. cleans wife yet or not LOL

 thanks again hugs and love hezzy

heather j
Dx 7/2/2007, IDC, 6cm+, Stage IV, 16/17 nodes, HER2+
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 13, 2008 03:56 pm

people keep asking

I've actually lost count of how many treatments I have had.  Not that I have had as many as most, but I dont seem to care about the number anymore. 

I have bone mets.  The last test showed it was no longer in scabula, but a small amount still in the veterbra.  I no longer have any pain, so I no longer take any pain medication.  I go in every three weeks for herceptin,abrexene, and zometa.  I get home and go about things like nothing happened.

What is aggrivating me most is everytime I go in for a treatment or I see someone I get this.  Are you taking anti-depression, in group, getting support? Are you still taking pain meds?  I feel like I am doing fine.  I play with my three year old.  I cook dinner for my hubby.  Sometimes I actually forget I have cancer, no hair and have had a masc till someone says something.  However, it seems like when I tell someone Im doing good they get upset that Im not making a big deal or they think that I am in denial. 

There are many nights I sit in worry, but I think its normal.  I dont think that I should have to worry each moment or that I need help.  My close family and friends call me an ispiration because I handle everything well.  How can I tell people that I appriciape their concern but to stop because it aggrivates me

heather j
Dx 7/2/2007, IDC, 6cm+, Stage IV, 16/17 nodes, HER2+
Posted in: Tests, Treatments & Side Effects + Breast Prostheses and Reconstruction Alternatives, Created: Aug 6, 2008 02:46 pm

formal dresses

When going formal for an evening I was worried sick about hiding not only my prostheses, but my scar.  I didn't have tons of money after buying the gown.   I went to a local store and bought a strapless sports bra a size to small so it would be a bit tighter. 

It hid the scars, and held the prosthesis the night threw.   I love dancing and having fun.  Many people came up to me and they were shocked that it wasn't at all noticed.

Hope this helps and Congrads

heather j
Dx 7/2/2007, IDC, 6cm+, Stage IV, 16/17 nodes, HER2+
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Aug 6, 2008 02:41 pm

how to explain baldness to a child?

I was really worried what my daughter who was two at the time would think.  I made a doll and bought several different hair peices for it.  

I shaved my head as soon as I noticed I was losing my hair.  I had already prepared and had a wig or two.  I told my daughter I was playing dress up with my hair.  My daughter often plays dress up and I let her put on wigs or hats and we just play together.

heather j
Dx 7/2/2007, IDC, 6cm+, Stage IV, 16/17 nodes, HER2+
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Jul 22, 2008 04:13 pm

PLEASE DESCRIBE WHAT YOUR PAIN FELT LIKE

I had pain in my shoulder for about two weeks that was constant and wouldnt go away.  I couldnt even describe what it felt like.  My ONC did a test and that was when I was dx with bone mets right there in that shoulder and another spot on the veterbra.

My ONC gave me a prescription for some mild pain killers and they work great.  Since treatment ( 1yr bone mets ) the pain had settled some. 

heather j
Dx 7/2/2007, IDC, 6cm+, Stage IV, 16/17 nodes, HER2+
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Jul 22, 2008 04:07 pm

Dumbest Questions to ask a cancer patient

When I found it was bone mets I was asked...

This _______ cured this person and they sware on it, have you heard about it yet ?  I almost get annoyed by some of these.  If grapes cured cancer no one would have it.  The list goes on and on of items people ask me to try saying they know someone who took this and the cancer was gone.

heather j
Dx 7/2/2007, IDC, 6cm+, Stage IV, 16/17 nodes, HER2+
Posted in: Support & Community Connections + Young Women with Breast Cancer, Created: Jul 22, 2008 03:56 pm

Any other young women with METS?

Hello, I am Heather.  I was 28 when dx a year ago.  I am now 29 years old.  Although there are other sites mainly for younger woman.  I prefer this one.  

heather j
Dx 7/2/2007, IDC, 6cm+, Stage IV, 16/17 nodes, HER2+
Posted in: Support & Community Connections + Young Women with Breast Cancer, Created: Jul 22, 2008 03:53 pm

Did your period come back after chemo?

I started chemo 7-07.  I was first on A/C, than taxol, w/ herceptin, now abraxene and herceptin.

After my first few few rounds of chemo I no longer had a cycle.  My ONC says that I am now going threw menapause which is rough.  Chemo has its up and downs.  This is probably one of the only things I am happy that I no longer have

heather j
Dx 7/2/2007, IDC, 6cm+, Stage IV, 16/17 nodes, HER2+
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Jun 18, 2008 04:14 pm

What are you doing for memories for family members?

I do about everything I can.  My daughter is only three years old and I have the fear that if things got worse she probably wouldnt ever remember what I look like.

 I keep two journals.  One for my battle with cancer and the other just writing anything that comes to mind.  I do silly things like little surveys.  They kids next door to me lost their father and when I talk to them they always wonder the simple things about him.  I do the surveys and print them and hold them in a folder.  Some have deep questions that need explained others are silly answers.

I write her letters constantly.  And write letters to my husband and other family.  Anytime I am feeling so good I cant control it or even the sad times I write it down.

hugs

heatherj

heather j
Dx 7/2/2007, IDC, 6cm+, Stage IV, 16/17 nodes, HER2+
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Jun 18, 2008 04:14 pm

What are you doing for memories for family members?

This Post was deleted by hezzy.
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Jun 13, 2008 02:19 pm

Note posted by Slonedeb's husband

Prayers for Deb and her family

heather j
Dx 7/2/2007, IDC, 6cm+, Stage IV, 16/17 nodes, HER2+
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Jun 13, 2008 02:18 pm

Note posted by Slonedeb's husband

This Post was deleted by hezzy.
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Jun 13, 2008 02:15 pm

something good

Over the last few weeks I have worried myself sick.

My hip started to bother me and I wondered if bone mets had spread there.  The ONC sent me in for a bone scan.

Last weekend I noticed that my shoulder ( scabula bone w/ b-mets ) was bruised.  I called my ONC and hadnt heard back from him.  I had an appt Monday so I figured when I saw him Id give it to him for not calling me back and letting me worry all weekend.

(( i had bruising once before there after taking asperin but hadn't had asperin or pain meds for some time and was over worried going nuts ))

When I went in Monday I told him about my concerns and he didnt even seemed shocked.  He than told me that the bone scan showed nothing in the scabula bone or hip.  He said there was a very small amount shown in the lower vertebrae.   

I started screaming, laughing, and crying I was so happy.  Although the bone mets are still showing in the lower back it was still a relief to hear they didnt see them anywhere else.   It was the first time since I was DX that I have recieved good news.

I was scared I'd never see my three year old grow older, or my husband would disappear ( he's not her father but has been there since she was three months and done more than her father could imagine but the thoughts are there that if something went wrong my family would fall apart ))

For over a year I have worried about what the future will hold and cried myself to sleep.

For the first time in over a year.  I cried happy tears.  I will continue to pray and have hope.  Thank you for everyone that has helped me, listened, or prayed with me along the way.

HUGS HEATHER- HEZZY

heather j
Dx 7/2/2007, IDC, 6cm+, Stage IV, 16/17 nodes, HER2+
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: May 13, 2008 03:02 pm

neuropathy???

Hi Everyone,

I have neuropathy in my feet.  I have the whole pins and needles affect.  When I run it feels like my feet have become flip flops.  Most of you would say not to run.  However, I have a three year old and that is IMPOSSIBLE.  I really dont mind the pain when I am playing with her cause I would rather be in pain playing than not playing at all.

I had 2 rounds A/C , 6.2 rounds taxol/herceptin, and now abrexene/herceptin.

A nurse told me that the neuropathy should fade over time but its getting worse.

Has anyone had these side effects? What did you try? What did your ONC give you?

Any advice would be great.  I have never went a summer without flip flops on.  Now im scared to take my sox off.

thanx, heather

heather j
Dx 7/2/2007, IDC, 6cm+, Stage IV, 16/17 nodes, HER2+
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: May 7, 2008 10:58 pm

I'm tired

All of us understand what its like to get tired.   I was dx this last year at 28 yrs old.  I have a young toddler and I constantly worry about her.  I dont come in this chat or bulliten room to often.  There are times  I do my best just to worry about everything but bone mets.

Its hard but keep your faith...there getting closer

heather j
Dx 7/2/2007, IDC, 6cm+, Stage IV, 16/17 nodes, HER2+
Posted in: Day to Day Matters + Humor and Games, Created: Apr 23, 2008 09:42 pm

foods to get in grocery store

nuts

heather j
Dx 7/2/2007, IDC, 6cm+, Stage IV, 16/17 nodes, HER2+
Posted in: Day to Day Matters + Humor and Games, Created: Apr 23, 2008 09:38 pm

This word reminds me of....

salsa party

heather j
Dx 7/2/2007, IDC, 6cm+, Stage IV, 16/17 nodes, HER2+
Posted in: Day to Day Matters + Humor and Games, Created: Apr 23, 2008 09:35 pm

The Next Person Game

True

my daughter and i are singing hannah montana new song LOL

The next person needs a vacation

heather j
Dx 7/2/2007, IDC, 6cm+, Stage IV, 16/17 nodes, HER2+
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Apr 23, 2008 09:28 pm

what type of pain mets are used for bone mets?

Hello,

I take basic tylenal for the pain.  I was taking asperin for awhile and it turned the area around the bone black for days.  I wasnt aware at time that I shouldnt have it, but everyone is different.

The ONC gave me darvocet for when the pain increases or I have really bad days.  Thankfully I hardly use more than half.

Hugs

Heather

heather j
Dx 7/2/2007, IDC, 6cm+, Stage IV, 16/17 nodes, HER2+

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