Member Since: July 21, 2007
Last Login: November 22, 2008
Birthday: June 20, 1960
Location: Indian Rocks Beach, FL United States
Occupation: Immigration Media Director
DX @ 46 Just 1 month after marrying my husband. We live on Indian Rocks Beach FL, where I paln to spend a very long time with him my 2 daughters and now 4 grandchildren. I'll be "Dancing In The Moon Light" for a very long time to come!!!!!
Bilateral mastectomy on 10/17/08 without reconstruction. Cathiads@yahoo.com
813-333-1063
| Diagnosis: | Dx 6/25/2006, ILC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+ |
| Diagnosed: | June 25, 2006 |
| Type: | Invasive or Infiltrating Lobular Carcinoma |
| Recurrent? | No recurrence |
| Metastatic? | No |
| Stage: | Stage I |
| Lymph Nodes Removed: | 6 |
| Positive Lymph Nodes: | 0 |
| Tumor Size: | 1cm-1.9cm |
| Tumor Grade: | Grade 1 or low grade |
| Hormone Receptor Status: | Tumor has both estrogen and progesterone receptors |
| HER2/neu Status: |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: 14 minutes ago
Life Insurance QuestionHi Ladies, I was reading the thread and wanted to share something. I left my 8year job (which had a great life policy) 1.5yrs after DX, I was told I could pick-up / continue the same policy (long story short they denied me) there I was W/nothing, I was not and am not Stage IV as so many of your are, however I wanted some sort of policy - as life happens. My husband was just over 50yrs (I was 47 at the time) he looked into joining AARP as they offer a small policy ($15K) no questions asked for a spouse of a member. It is not a huge policy but it is something, my premium is $49/mo. AARP membership is very cheap I think we paid $21 for 2 years. "Sexy is Defined by Attitude" - "Not Bra Size!" **** Bilat Mastectomy 10/17/08 No Recon Dx 6/25/2006, ILC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+ |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: 4 hours ago
BILAT MAST-NO REGRETSHi Pinky, I was reading your post again and I just wanted to say don't be to hard on yourself, don't expect to be 100% ok with all of this -all of the time. As I said I am very-very ok with my choice for bilat no reconstruction but that does not mean that I have not had a few moments when I was sad, but my sadness did not come from having my breasts gone so much as it came from the fact that I was mad that I was in this position, I had to make such a choice. When I made my choice I knew I would be completely altering the body I had known for 48 years, recon or no recon I was never going to have the same look or feel to my chest, I had to realize that the big picture was my health and life. So am I 100% happy with my new look all of the time -No - but it is at about 98% all of the time. Am I 100% happy with the choice I made to protect my health -YES!!!! YES YES!!!!! A personal choice is just that PERSONAL- what works for some -may not for others, but sharing these feelings is what helps. "Sexy is Defined by Attitude" - "Not Bra Size!" **** Bilat Mastectomy 10/17/08 No Recon Dx 6/25/2006, ILC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+ |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: 21 hours ago
BILAT MAST-NO REGRETSI think Kim (Like I) was just expressing her own personal opinions regarding mastectomy, we share are ups and downs, our goods and bads. I didn't for one second think that anyone was suggesting bilat was the way to go for every woman with BC. You are so right Bessie -it is a personal choice and we all must choose what is best for US. And sharing our happiness over those choices is always welcome. "Sexy is Defined by Attitude" - "Not Bra Size!" **** Bilat Mastectomy 10/17/08 No Recon Dx 6/25/2006, ILC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+ |
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Tests, Treatments & Side Effects + Just Diagnosed, Created: 21 hours ago
please helpHAVE 2 HAPPY TURKEY DAYS SHELIA, it is unseasonably cold everywhere - we are freezing down this way too, sunny skies but BURRRRRRRRRRRRRR. It is so very, very dry to, have a few fires up north burning, we need rain so badly. "Sexy is Defined by Attitude" - "Not Bra Size!" **** Bilat Mastectomy 10/17/08 No Recon Dx 6/25/2006, ILC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+ |
Posted in:
Day to Day Matters + Healthy Recipes for Everyday Living, Created: 22 hours ago
Need some easy casserole ideas to deliver to a familyThis recipie is good because you can bake it ahead and just reheat in the microwave. It is a Spinich Quiche (without the crust) 1Cup Flour 1tsp Baking Powder 1tsp salt Mix all together ADD IN.. 2 Whipped Eggs 1 Cup Milk 1 Stick Butter Melted 1/2 Cup chopped Onion 1 10oz package frozen spinich (thawed & drained) 1LB Shredded sharp cheese 10 dashes of Tabasco Bake 350 for 1 hour & 15 minutes Cut into squares and serve or store for later warm up . If I make this for my hubby I will ad a 12oz package of chopped ham "Sexy is Defined by Attitude" - "Not Bra Size!" **** Bilat Mastectomy 10/17/08 No Recon Dx 6/25/2006, ILC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+ |
Posted in:
Tests, Treatments & Side Effects + Radiation Therapy - Before, During and After, Created: 22 hours ago
Chest Wall Radiation and ReconstructionNot to personal at all -thats one of the great things we can talk /ask anything. I had lumpectomy in 06 then rads (33 treatments on L breast). In the past 2 years my right breast has just been a real pain had 9 biopsies (2 were excisional) all B9 but very atypical, after 9/11 biopsies I decided it was time - so I did see a PS per my BS request. I went through radation quite well - a bit of burn w/the boosts, I just really did alot of reserch and talking and reading the threads here, I just wanted to be done with this the thought of more surgery for recon was not what I wanted to do, and I really didn't want the possible complications or failure risk that accompinies many recons after rads. When I was DX in 06 I was very uninformed about BC , did not have the advantage of this sight, so I just blindly followe dDR's orders and did what they said, had I known then what I know now I would have done bilat then and Immediate recon, but I have no regrets, this is my life and I am alive. And yes I have been told I look quite athletic and thinner as well, my hubby says I don't need to look any thinner - but he loves me with or without Cathi "Sexy is Defined by Attitude" - "Not Bra Size!" **** Bilat Mastectomy 10/17/08 No Recon Dx 6/25/2006, ILC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+ |
Posted in:
Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: 22 hours ago
having a down dayDear Shabby & 2Boys - you are in one of the tuffest spots right now with all of this 'THE WAITING MODE" your mind just wonders - and mostly just to "BAD CINERIOS" but even worst case you will get through, and can be long, hard and very sad sometimes but your goa is to win so you will find strength and courage to fight harder than you have ever fought for anything in your life. Shabby don't let your holidays be ruined, 2 years ago I thought for sure 'this is it" my last Thanksgiving my last Christmas -well it wasn't. Now I look back and think -what if it had been, would I have wanted my family to have had their last Holiday memories of me as "sad, miserable, not a fighter" Good days will come again. Prayers are with you both. Cathi
"Sexy is Defined by Attitude" - "Not Bra Size!" **** Bilat Mastectomy 10/17/08 No Recon Dx 6/25/2006, ILC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+ |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: 23 hours ago
BILAT MAST-NO REGRETSHi Kim, I am not doing reconstruction, after much research and speaking with other woman and A PS, I opted not too based on my previous radiation to the Left breast I was not willing to face the possible complicatios/failure rates, many woman do have success after rads but for me it was not the right choice, my right side 5 weeks out is almost 100% my left side still has a few issues with healing so once again I know that I made the very best choice. Thanks for the compliments, I am now 48 and VERY happy with where I am in my life and body, I am very, very happily married but yes I do get some head turns and my hubby thinks that is just great because he is the LUCKY one who gets to always come home with me. "Sexy is Defined by Attitude" - "Not Bra Size!" **** Bilat Mastectomy 10/17/08 No Recon Dx 6/25/2006, ILC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+ |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: 24 hours ago
BILAT MAST-NO REGRETSHi Kim, I echo your thoughts, I had bilat (no recon) 5 weeks ago today, it was however 2 yrs after my ILC DX, so I had a lumpectomy & rads in 06. Many many atypical biopsies finally lead me to my decision, and it has absolutely been the right choice. I have my "new girls" now although not allowed to wear them more than an hour a day as I still have some healing issues on the L rads side. They are good, but being without does not bother me, I am just thankful and happy to finally have the peace of mind that I am really NED NOW. "Sexy is Defined by Attitude" - "Not Bra Size!" **** Bilat Mastectomy 10/17/08 No Recon Dx 6/25/2006, ILC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+ |
Posted in:
Recovery, Renewal, & Hope + Prayers and Spiritual Inspiration, Created: Nov 21, 2008 11:31 am
WING AND A PRAYERI received this from my daughter.... Just sharing.
"Sexy is Defined by Attitude" - "Not Bra Size!" **** Bilat Mastectomy 10/17/08 No Recon Dx 6/25/2006, ILC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+ |
Posted in:
Tests, Treatments & Side Effects + Just Diagnosed, Created: Nov 21, 2008 11:10 am
please helpHi All -I just got this e-mail from my daughter in NY -thought I would share -maybe you have already seen it.
"Sexy is Defined by Attitude" - "Not Bra Size!" **** Bilat Mastectomy 10/17/08 No Recon Dx 6/25/2006, ILC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+ |
Posted in:
Tests, Treatments & Side Effects + Just Diagnosed, Created: Nov 20, 2008 08:22 pm
please helpGREAT-GREAT AWESOME NEWS FOR UB - AND SAYING LOTS OF PRAYERS THAT YOU ARE THE SAME!!!! XOXOXOXOXOXOXO "Sexy is Defined by Attitude" - "Not Bra Size!" **** Bilat Mastectomy 10/17/08 No Recon Dx 6/25/2006, ILC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+ |
Posted in:
Tests, Treatments & Side Effects + Radiation Therapy - Before, During and After, Created: Nov 20, 2008 05:26 pm
Mom starting rads FridayHi Cshamber, As the other ladies have said the truly worst part is just going everyday, I had 33 treatments. She may get abit fatiqued a few weeks in -not sure how old she is, so be sure she eats well and keeps her strength up. Also tell her to take a book if she reads or something to stay busy in the waiting room, SOMETIMES, there are problems with the machines and they fall behind schedule so might have a prolonged wait- but the actually treatments only last a few minutes. GOOD LUCK TO YOU BOTH "Sexy is Defined by Attitude" - "Not Bra Size!" **** Bilat Mastectomy 10/17/08 No Recon Dx 6/25/2006, ILC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+ |
Posted in:
Tests, Treatments & Side Effects + Just Diagnosed, Created: Nov 20, 2008 05:07 pm
please helpWOW Lisa we could be sisters, my daughters to endured to much from my EX espically the oldest, That is my truly one biggest regret in life ALLOWING it, she has been a bit full fiqured since she turned about 13 the 'TEASING" as he called it, crushed her so many times, makes me so sad to think about it now, I was so busy trying to PLEASE him and keep him happy be the good/perfect wife I allowed it. Yup I woke up one day sitting on our back patio alone -looking up into the most beautiful sky that day I spoke to God he spoke to me and I decided I was not spending the rest of my life like I had been. I told him I was gonna leave, but in one last effort suggested counseling or anything that might help - he said try and "F-IN" leave, so for a few weeks I planned my escape and it had to be an escape- On a Monday AM when he left for work I loaded up my Blazer with all that was dear to my heart (things I could not replace) and headed out. I left behind everything - house everything. I didn't even have a dish to my name. Anyway I got an apartment - and there was no looking back, I started from scratch but I didn't care, it was just stuff, WOW I just realized something, Iw as so weak back then, and finally got the strength to do what was right and good for me - and these years later BC and I just got rid of "STUFF" again to do the right thing. I HAVE GOT NEW STUFF AND NEW BOOBS! By the way I have named them Marilyn and Raquel - Ed came home last night I said I took the girls out for a ride today, he is looking at me like ??????????? then I pointed to my chest. HAVE A GREAT NIGHT - XOXOXOXOXOXO "Sexy is Defined by Attitude" - "Not Bra Size!" **** Bilat Mastectomy 10/17/08 No Recon Dx 6/25/2006, ILC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+ |
Posted in:
Tests, Treatments & Side Effects + Radiation Therapy - Before, During and After, Created: Nov 20, 2008 01:05 pm
Chest Wall Radiation and ReconstructionRaye -I was hardly a B before the surgery - I have a Size 4 - when I get the form fit ones done in a few months I might go a bit smaller - The real ones were so messed up from rads to L and 9 biopsies to the R - they were so lop sided and what ever - the prosthesis is much 'PERKIER" looks good. I do not mind going without at all either, my BS won't let me wear them alot yet - and like yours my husband does not mind at all. When it gets really hot down here this summer - it will be a blessing for sure. My daughter tellls me I look very athletic when I am not wearing them. "Sexy is Defined by Attitude" - "Not Bra Size!" **** Bilat Mastectomy 10/17/08 No Recon Dx 6/25/2006, ILC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+ |
Posted in:
Tests, Treatments & Side Effects + Just Diagnosed, Created: Nov 20, 2008 12:55 pm
Please tell me I'm not crazyHi Jasminn - I just had a Bilat on 10/17 (no recon) - I was D in 06 with ILC in my left breast at that time I had lumpectomy , node excision, rads and tamox. I did not opt for the bilat because of a reccurance (well none when I choose to do the procedure) but because over the past 2 years I have had 9 biopsies in my right breast (the good one) every one showing very atypical changes - I was just a matter of time for me to have a recurrance. I began thinking about the bilat a year ago , it took much reading, research and speaking with other woman to make the decision. I opted out of recon based on what I learned of possible failure/complications with my rads to my left breast. While I am just a month out of surgery I am doing what I am my BS say is "GREAT' a few healing issues on L, I had a few teary moments, but very short lived, for the first time in 2 years I feel as though I HAVE FINALLY WON THIS BATTLE- nothing is 100% but I am darn close. This is not an easy choice -do not just JUMP into it - it is a decison you can not reverse once it is done. For me it was completely the RIGHT choice on all accounts. Good Luck -Cathi "Sexy is Defined by Attitude" - "Not Bra Size!" **** Bilat Mastectomy 10/17/08 No Recon Dx 6/25/2006, ILC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+ |
Posted in:
Tests, Treatments & Side Effects + Radiation Therapy - Before, During and After, Created: Nov 19, 2008 09:52 pm
Chest Wall Radiation and ReconstructionNorthstar -that is a very good point you made -my radadtion was prior to mastectomy -that does make a difrence in the PS perception of implants. Raye -thanks for the compliment - I truly believe that statement. I have my "NEW GIRLS" (Marilyn & Raquel - as I call them) but am just as happy /confident if I do not wear them - As I tell my hubby I have Great Assitude Now" "Sexy is Defined by Attitude" - "Not Bra Size!" **** Bilat Mastectomy 10/17/08 No Recon Dx 6/25/2006, ILC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+ |
Posted in:
Tests, Treatments & Side Effects + Just Diagnosed, Created: Nov 19, 2008 09:47 pm
I'm So Frightened!Daer Fifi So sorry to hear of your DX, as it all seems so overwhelming and scary right now , you have come to the right place for support. The road can be long and sometimes dificult, but you will get through ii -there will be a light at the end of the tunnel. I was DX 2 years ago and while I am now recoverying from mastectomy (your journey may very well not be as long) I am stronger, wiser and cancer free. Your day will come. As the others have said have someone with you at appointments if at all possible and come here often, to talk, ask questions, cry and rant - we are all here for you. XOXOXOXOXOXO -Cathi "Sexy is Defined by Attitude" - "Not Bra Size!" **** Bilat Mastectomy 10/17/08 No Recon Dx 6/25/2006, ILC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+ |
Posted in:
Tests, Treatments & Side Effects + Just Diagnosed, Created: Nov 19, 2008 05:11 pm
please helpLisa -isn't love - real love and respect just great, I am so like you - Ed and I have now been together 6 yeras (married 2 this past May) when I finally wised up and kicked "boogie man" (as I now call him) to the curb - I swore off men - 20+yrs of pure hell -was enough for me. Then out of nowhere theres Ed - to good to be true for sure - at the start I will admit I was waiting for "the change", well it has never happened - I can count on one hand how many times we have ever disagreed - and that is not an argument. Not on single day has gone by that he has not said "you look nice, pretty, sexy, hot" or something like that. He was a 49yr bachelor (no children) when he asked me to marry him - EVERYONE was shocked, he has told me - he has told everyone -it took him that long to find the PERFECT ONE. He excepted all the baggage that came with me, 2 daughters who hated me for awhile because I left dad, an EX who was stalking and threating - he took it all in stride and never batted an eye. My daughters love him more than me I think (HA) and the grandchildren can not get enough of their PA-PA. And then BC - we marry in May of 06 - BC in June - My life has come full circle now and I truly am so blessed, He always says we work so well, because we respect, trust and put the other first always. "Sexy is Defined by Attitude" - "Not Bra Size!" **** Bilat Mastectomy 10/17/08 No Recon Dx 6/25/2006, ILC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+ |
Posted in:
Tests, Treatments & Side Effects + Radiation Therapy - Before, During and After, Created: Nov 19, 2008 03:41 pm
Chest Wall Radiation and ReconstructionHi Ninel, We are almost neighbors, I just had Bilat and obted for no reconstruction because of the rads to the same areas. My BS did have me consult wit a PS before the final decision so that I was aware of all options available. The PS said he would have attempted the Implants/expanders how ever he did caution me about the high failure rate/complications. He would have opted over anything Tram - however fter much research and speaking with others I went with no recon and very glad I did, I have not had major healing issues in the rads side but it is healing far slower than the non-side. GOOD LUCK WITH YOUR DECISIONS. "Sexy is Defined by Attitude" - "Not Bra Size!" **** Bilat Mastectomy 10/17/08 No Recon Dx 6/25/2006, ILC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+ |
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