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paxton18064

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Member Since: July 28, 2007
Last Login: November 13, 2008
Location: MN
Occupation: Home Health

Biography

35 yo from Minnesota

Diagnosis

Diagnosis: Dx 7/19/2007, IDC, 2cm, Stage II, Grade 3, 0/1 nodes, ER-/PR-, HER2-
Diagnosed: July 19, 2007
Type: Invasive or Infiltrating Ductal Carcinoma
Recurrent? No recurrence
Metastatic? No
Stage: Stage II
Lymph Nodes Removed: 1
Positive Lymph Nodes: 0
Tumor Size: 2cm-2.9cm
Tumor Grade: Grade 3 or high grade
Hormone Receptor Status: Tumor does not have estrogen or progesterone receptors
HER2/neu Status: Tumor does not have an excess of HER2/neu receptors or genes

Recent Posts by paxton18064

Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Nov 12, 2008 09:40 pm

Starting Chemo in September?? where are you ladies

Even though we are trying to move on, I do agree that it would be nice to keep in touch.  If anybody has myspace or facebook, I'm on there.  My name is Kristina Schiermeister.  Or my email is paxton18064@hotmail.com

 I went deer hunting and shot my first little buck.  It was pretty exciting.  I hunted in a stand by myself until near dark when bf came up and I got a perfect behind the shoulder shot on a little buck with his grandpa's peep sight 20 gauge.  Bf got a doe and his dad got a nice buck that he's going to let me try and mount.  I'm a little nervous about it, but I'll give it a whirl. 

Take care everybody Laughing


Dx 7/19/2007, IDC, 2cm, Stage II, Grade 3, 0/1 nodes, ER-/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Oct 15, 2008 04:43 pm

Starting Chemo in September?? where are you ladies

I haven't stopped in here since summer.  Thought I'd stop in and say hello.  Doesn't look like others stop in much either, but maybe once in awhile to keep in touch.

I'm feeling a little lost at times, but mostly pretty good.  I haven't lost much weight either, but I gave myself the summer to camp and have fun so I ate lots of camping food.  We're still living in the rented farmhouse.  I'm still working part time at the adult foster care house.  Had my 9 month post chemo appt.  In Jan I'll have another MRI.  I had one done at 6 mos and it showed glowing areas but nothing present so they want to redo it.  If that comes back ok, then I think I'll relax. 

My lumpectomy and SND area is tender at times now, too.  But I'm pretty sure for me its just because the nerves are coming back.  It was numb most of the time which was nice, then I didn't have much pain from the surgeries, etc.  It doesn't bother me too much.  I wish I could get the port out though.  They say in 2 yrs from being done.  I can feel the tubing with my fingers going up into my collar bones.  I guess its not so bad but it creeps me out and having to go back every month to have it flushed.  Bleh!!

Well, we're all past the year mark.  My parents came to visit around my birthday (aug 15).  Seeing Christina Applegate going thru this has been interesting.  She's been brave.

Ok, I'm done. 

ps.  MJ: I shot my first duck and your grandbaby is a honey Laughing


Dx 7/19/2007, IDC, 2cm, Stage II, Grade 3, 0/1 nodes, ER-/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Jul 1, 2008 04:20 pm

Share your Taxol after AC experience?

I had DD AC/Taxol chemo from Sept-Dec 07 followed by 33 tx radiation this spring. 

I was just as scared my 1st taxol tx as I had been going to my 1st AC tx.  I got fairly good hot flashes during the 6 hr tx.  I took my bandana off and rolled my pants up wondering if I was having the reaction they tell you about.  But its just normal I guess.  They give you benadryl usually which makes some people sleep through most of the tx.  I didn't really sleep but it was helpful to be a bit drowsy passing the time. 

I was quite worried about the bone pain that starts afew days after tx.  It came about day 3 and last about 3-4 days.  It made walking difficult and hurt but it wasn't at all like I was imagining.  I did take a vicodin during the night 2 times. 

I started to get the pins and needles in my fingers and toes after the 2nd tx.  It would come and go.  After the 3rd tx, my onc said we wouldn't do the 4th tx because it wasn't worth the risk of permanent neuropathy.  The pins and needles faded away; no pain now.  My fingertips burn a little when I'm out int he cold too long.  I feel alittle more stiff than I used to but its not so bad.

I guess I haven't found anything to be a piece of cake.  It was all tolerable.  The worst part of chemo was decadron withdrawal.  I didn't really find anyone else who had this happen.  I took the decadron at home for 4 or so days after chemo (tx was on mon) and by the weekend when I had quit the decadron, I felt worse than I have ever felt in my whole life.  I liked the decadron when I took it because it gave me energy and helped with the nausea.  But I decided to try only having it in my IV during chemo and I stopped having those horrible spells.

I was hospitalized twice during AC for diarrhea and low white cells.  Make sure you move around enough to keep some strength.  I laid in the hospital bed for a week straight and could barely sit up for the ride home.  I could barely breath walking across the room. 

Good luck ladies.  Pretty soon you'll be done.   


Dx 7/19/2007, IDC, 2cm, Stage II, Grade 3, 0/1 nodes, ER-/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Jun 29, 2008 10:53 pm

weight gain

I gained 30 lbs during tx; finished tx in april.  I wasn't on much steroids so I couldn't blame it on that.  It was frustrating.  I felt guilty that I was so upset about my weight while having "cancer."  You feel like you should be glad to be alive.  But then you realize most of us dealing with this are feeling the same.  So first off, try and be kind to yourself.  Learn to be patient (very hard).  Its a tough road.  I was bald, fat and sick.  How am I, as a woman, suppose to deal with all of that??  Well, you just do.  Keep putting one foot in front of the other and someday you will be farther down the line.  I wanted to lose the weight as soon as I was done with tx.  It felt like it was never going to happen.  So I had to let go and just be stuck with myself.  Funny thing is, once you surrender, things start to change. 

I didn't feel real anger until I started "eating right" and exercising 5 days a week during my radiation despite the fact that I was exhausted.  I didn't lose a pound, my clothes didn't fit any looser.  I was so angry.  But there is hope.  There is always hope.

A friend borrowed me her weight club's packet.  I couldn't afford the meetings so I've just been informally doing the program.  I haven't been die hard about it and I've lost 15 lbs.  Its slow but healing and health aren't an instant wish granted. 

Stick with it, be patient, be angry, laugh, love, live, and good luck to all of you.

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Dx 7/19/2007, IDC, 2cm, Stage II, Grade 3, 0/1 nodes, ER-/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Jun 29, 2008 12:01 pm

Starting Chemo in September?? where are you ladies

I got a job sort of unexpectedly on Friday.  Bf's relative runs adult care down the road from us and needed some part time help.  So I worked friday, Saturday and today.  Now I won't work until next weekend.  I like it so far and its close which is nice.  And its part time so I can keep my disability for the time being.  I don't think bf understand why I don't look for full time.  But if I work part time and keep my disability, I will make the same or more than if I worked the same job but full time.  Why should I kill myself?  I'd rather work part time and get back into the swing of things.  And with this house/moving business I've had an awful lot of stress.  I just don't need any more. 

I'm done with treatment.  I had my ear surgery and now I'm done until 2 years when I get my port out.  I'm not seeing much results from the surgery either.  I've had a day here and there where I could balance pretty good so there is hope.

Thanks for the writing tip.  I never thought of seeing if people would pay for some short stories.  I might check that out.

I saw an ad in the paper for artists to submit stuff for an exhibit this fall on the female form.  I have a few drawings with women in them so I might submit some stuff and see what happens.  It doesn't pay money, but it would be kind of fun.  I'd like to save some skins from trapping next fall and make some craft stuff to sell the following summer.  All kinds of possibilities I guess.

Glad to hear your pain is getting better.  I try and appreciate that I don't have much pain when I'm frustrated with my balance.


Dx 7/19/2007, IDC, 2cm, Stage II, Grade 3, 0/1 nodes, ER-/PR-, HER2-
Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Jun 25, 2008 01:47 pm

Employment

I finished tx in April and am now ready to figure out what's next.  I've been sick on and off since '05 and only worked part time during parts of that time.  Now I'm good to go and am stressed about getting employement.  Any advice on how to apply with such a sketchy job history?  The other thing I'm worried about is insurance.  I'm thinking of working with disabled people again to create some job history and stability.  But I have a degree in social work and someday would like to have a higher up job. But with my health problems, I'm really concerned about losing my government insurance and going onto other insurance.  If some time has passed by then, will somebody cover me that I could even afford and that would cover anything?  I'm almost scared to try for a better job. 

 Anyone else going through all these problems?

 The other option I'm looking into is going back to school.  Since I'm on disability, I could possibly get schooling paid for.  That would work to my advantage when trying to get a job after that because I would have been in school which shows I've been consistantly working hard and would help with the lack of employment history prior.  And I would hopefully find something that I could get a job in that would give me more of a middle class lifestyle.  And maybe by then if some time has passed without health problems, the insurance wouldn't be as bad as now either.  I don't know.


Dx 7/19/2007, IDC, 2cm, Stage II, Grade 3, 0/1 nodes, ER-/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Jun 25, 2008 01:33 pm

Starting Chemo in September?? where are you ladies

How is everybody?  Check in once in awhile.  This is a weird but great time.  Tx seems a lifetime ago yet not.  I had my ear surgery on the 11th.  Its hard to say if its working.  I've had a few moments of improvement and the doc says recovery will be slow.  Our house deal isn't working out.  Bf has horrible credit so I've had to take over his finances to hopefully get things back in order for him.  I found out he hadn't paid our rent in 6 months.  I called our landlord and had a little chat about what's been going on.  He was real good about it.  We got paid up.  He said we could stay thru July and possilby longer depending on the guy's schedule who will be doing the remodeling.  But I'm sort of hoping that if our landlord sees we'll continue paying our rent on time, that he won't have time to do the remodeling and will let us stay for now.  Then I can have some time to get our finances in order and then work on our house plans.  I really dont need all of this stress. 

I'm also trying to decide what to do for work.  I'm thinking of maybe going back to school.  Lots of decisions to make. 

 Well, hope everybody's doing great!!!!


Dx 7/19/2007, IDC, 2cm, Stage II, Grade 3, 0/1 nodes, ER-/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Jun 3, 2008 10:10 am

Starting Chemo in September?? where are you ladies

Sounds like you have a plate full, SK.  Its such a personal choice, I don't know what feedback I could give.  I've never been in the position where'd I'd consider lap-band or bypass type surgeries.  But I know if I were quite heavy and had mast, it would be tough to deal with.  I'm 34 so just the thought of having masts freaked me out completely when I was dx, but I didn't have to go that way so far.  Good luck with the decisions and the follow-ups. 

We have to be out of our house by the end of June.  I'm spinning in circles trying to finance getting a new one.  With the state of foreclosures, banks are tightening their requirements.  I'm nearly ready to say the hell with it all.  We'll be moving in with his parents for the time being which they're pretty cool, but I want my own space.

I went to the Bluegrass Festival this past weekend.  I REALLY needed that.  I meet up with a bunch of college buddies.  It was so fun.  We've been going the past 7 years and I'm happy to report I felt like this cancer bs never happened.

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Dx 7/19/2007, IDC, 2cm, Stage II, Grade 3, 0/1 nodes, ER-/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: May 22, 2008 06:44 pm

Starting Chemo in September?? where are you ladies

How's everybody doing?  Summer just doesn't want to hit here.  I'm dreading when it jumps right to hot.  I've been informally following weight watchers and its going great.  11 lbs down and starting week 4. 

We're still in the midst of piecing together stuff to buy a house.  I've been weeding through our stuff and trying to get rid of things and organize. 

I have been filming the boys bowfishing since I can't balance to do it but I went down to the lake today and shot a few from the shore.


Dx 7/19/2007, IDC, 2cm, Stage II, Grade 3, 0/1 nodes, ER-/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: May 21, 2008 11:52 am

Anyone starting chemo in June 08

Take a deep breath.

Buy a folder and a calendar to keep track of paperwork, appts and symptoms/side effects.

Educate yourself, but don't overdose.

Get a copy of your pathology report and slowly look up what each thing means so you have a clear picture of what is going on.  The drs tend to give a simplicist view at first because they don't want to overwhelm you.  But once you've digested the first stuff, then move on a bit and learn alittle more. 

Break up how you look at the amount of time for treatment into chunks that make it feel manageable for you (NOT 1 day down, 179 to go, etc). 

Read the tips for getting through chemo thread.  It will give you all the little tricks and heads up for different things that can happen or will help. 

Go to the live chat room if you need immediate support or just to talk.  Its awesome.  And this thread will be your best friend.  You ladies will get through it together.

Much Love

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Dx 7/19/2007, IDC, 2cm, Stage II, Grade 3, 0/1 nodes, ER-/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: May 12, 2008 12:51 pm

Starting Chemo in September?? where are you ladies

How's everybody doing? 

Our landlord wants us out to remodel so we're looking into buying a manufactured home.  Bf's parents are going to give us an acre on their farm to put it.  So I may have a new home soon.  No more frozen plumbing...no more leaking ceiling... I'm so excited.

I'm having ear surgery on June 10th. I really hope this is the problem.  If its not then they can't help me. 

We got out bowfishing a few times even though its still cold as hell here.  I did video since I can't balance well enough to fish right now. 

Well, hope we're all doing well.  I've been doing weight watchers and exercising for a few weeks now.  Pants are starting to slowly fit looser.  So Yay!!  There may be hope yet.

Take care!!!  


Dx 7/19/2007, IDC, 2cm, Stage II, Grade 3, 0/1 nodes, ER-/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: May 2, 2008 04:37 pm

Starting Chemo in September?? where are you ladies

I personally like #35 about being the general manager of the universe.  People in general (self included) take ourselves too seriously sometimes and do kind of have this attitude that the world would collapse if we weren't on the sidelines worrying about things we can't do anything about and telling other people how things ought to be.  I haven't figured out a way to get my brain to understand that clenching my jaw doesn't make me hang onto control.  Maybe I should have a White Russian and chill until this crappy weather passes.  Laughing

Dx 7/19/2007, IDC, 2cm, Stage II, Grade 3, 0/1 nodes, ER-/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Radiation Therapy - Before, During and After, Created: May 1, 2008 11:45 am

Anyone starting Rads in January?

That's hilarious.   

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Dx 7/19/2007, IDC, 2cm, Stage II, Grade 3, 0/1 nodes, ER-/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: May 1, 2008 11:35 am

Starting Chemo in September?? where are you ladies

How's everybody doing these days?  I don't stop in here much.  We got quite a blizzard here last week which feels weird because garden planting time is coming up. 

Somebody gave bf a doe cape for me to practice my taxidermy on.  Its not too bad but I wish I could go to school or get some sort of training. 

Other than that, just getting ready for spring.  I went fishing withthe guys last weekend.  Bowfishing starts today but its suppose to be rainy the next few days.

I'm waiting to here when I'll have my ear surgery.  I want that done and over so I can try and go back to work.  I'm so broke its not even funny.  We ran out of fuel oil so just have the wood burner for this last bit of colder weather.  My govt rebate check will be going to pay for my car insurance. 

Its an interesting transition back to "normal" life.  I feel great, then nervous, then overwhelmed, then scared, then great again.  Well, take care!!!


Dx 7/19/2007, IDC, 2cm, Stage II, Grade 3, 0/1 nodes, ER-/PR-, HER2-
Posted in: Recovery, Renewal, & Hope + Growing our Friendships After Treatment, Created: Apr 23, 2008 12:18 pm

American Idol

I had to play catchup because I've been visiting my parents.  God bless Youtube. 

I did catch last night's show.  I'm not much into musicals so it wasn't the greatest for me. 

It was a twinge painful watching David Cook singing phantom of the opera; though he did an awesome job (sorry to those who like musicals as I'm sure you really enjoyed it).  But David Cook is awesome.  I really hope he puts out a good album when this is done.  Its all about song choice after this because many great singers put out albums that sucked because the songs felt plain and manufactured.

Anyway...

I liked Syesha this week.  She has more stage presence than say Kristi Lee did.  Kristi reminded me of watching someone sing at the county fair.  She never knew what to do with her body during the performances.  If you watch Syesha, she really knows how to work it. 

And Brooke...I like the diversity they have this season.  Brooke reminds me of a folk singer.  She is not a pop star for sure.  And yes her goofy expressions and response to criticism is a put off.  Not to mention she started over again. 

I didn't care for Jason Castro's performance this week.  My bf just hates him (I think guys are jealous when another guy is not the tough guy type yet the ladies love him).   Jason does have a nice smile and puts off a great mellow energy when he performs.

Carly did a good job.  Although I'm having flashbacks to 11th grade english class when we had to watch Jesus Christ Superstar.  "Whats that buzz...tell me what's a happenin..."  Laughing

David A is always a breath of fresh air. 

Since I'm behind, I have to say I think Kristi Lee should have went home before Michael Johns.  He's so damn cute and he was just starting to come out with bigger performances. 

Oh, I did think Kristi Lee did a good job on that Do it Anyway song.  I think if someone worked with her she could be a good country singer.

K, I'm done....


Dx 7/19/2007, IDC, 2cm, Stage II, Grade 3, 0/1 nodes, ER-/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Radiation Therapy - Before, During and After, Created: Apr 21, 2008 12:18 pm

Anyone starting Rads in January?

I made it home from Florida.  I was able to meet up with trigeek from my chemo girls.  I had a really nice time visiting my parents.  I'm slowly starting to feel more like my old self.  I didn't feel so good about having super short hair and the added weight while on vacation (I've been able to hide here in Minnesota).  So today I'm starting my exercise program. 

Hope everyone's doing well and definately praying and thinking of those who aren't.  Take care ladies!!!!!


Dx 7/19/2007, IDC, 2cm, Stage II, Grade 3, 0/1 nodes, ER-/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Radiation Therapy - Before, During and After, Created: Apr 21, 2008 12:14 pm

Anyone starting Rads in January?

Methusala: My prayers are with you. 

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Dx 7/19/2007, IDC, 2cm, Stage II, Grade 3, 0/1 nodes, ER-/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Apr 20, 2008 10:44 am

Starting Chemo in September?? where are you ladies

awww, mj, he's sooooooooo cute!!


Dx 7/19/2007, IDC, 2cm, Stage II, Grade 3, 0/1 nodes, ER-/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Apr 18, 2008 01:40 pm

Starting Chemo in September?? where are you ladies

I am home.  I had a great time down in Florida.  My dad and I went to the Salvador Dali, the Vatican collection, and the John Ringling art museums.  Neither of us are museum type people but it was really cool seeing famous and really old art in person. 

My mom and I drove to Orlando to visit Aylin.  That was really cool.  The weather was nice and Aylin showed us around Orlando (and don't feel bad for my mom...she had a good time).  We drove straight from there to Ana Marie island (your favorite place Aylin) and had supper with the old people who were dancing on the beach.  We watched the sun go down and went home. 

My stamina and my back held up all things considered.  And the weather back here is in the 60's so it feels great to be home, too.

Here's the picture of us.


Dx 7/19/2007, IDC, 2cm, Stage II, Grade 3, 0/1 nodes, ER-/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Apr 18, 2008 01:19 pm

Starting Chemo in September?? where are you ladies

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Congrats to all the ladies who are DONE or near done.  YOU ROCK!!!


Dx 7/19/2007, IDC, 2cm, Stage II, Grade 3, 0/1 nodes, ER-/PR-, HER2-

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