Member Since: August 3, 2007
Last Login: August 7, 2008
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| Diagnosis: | Dx 8/14/2006, DCIS, Stage 0, Grade 3, 0/7 nodes, ER-/PR- |
| Diagnosed: | August 14, 2006 |
| Type: | Ductal Carcinoma In Situ |
| Recurrent? | No recurrence |
| Metastatic? | No |
| Stage: | Stage 0 |
| Lymph Nodes Removed: | 7 |
| Positive Lymph Nodes: | 0 |
| Tumor Size: | |
| Tumor Grade: | Grade 3 or high grade |
| Hormone Receptor Status: | Tumor does not have estrogen or progesterone receptors |
| HER2/neu Status: |
Posted in:
Tests, Treatments & Side Effects + Breast Reconstruction, Created: Aug 7, 2008 07:52 pm
Saline implant anyone???No need to wig out. If you don't have a choice, you will be fine. Why did you have your saline imiplants taken out? I'm unilateral, so it was just one. I had some rippling issues, plus my crease was lower and I wanted a higher profile. Also, you could see a round indentation right front and center that was the fill valve. I'm sure the nipple would cover it. After the surgery, one big ripple is still there (he did NOT go up in size and only went from low profile to moderate, I don't know why he didn't use high profile). I no longer have that round indentation. He fixed the crease (which is a pocket thingl) but I went surfing and it dropped a bit againl. I'm done with surgeries like this, so I'm not pushing the ripple, size and crease issue. Did something happen to them or were you just unhappy with the results. If I'm totally honest with myself, I was pissed that he told me he did 5 silicones the same week he did my saline. I wanted silicone too darnit!! I read somewhere that someone thought silicone was steak and saline ground beef - and I bought into it. Plus, I think my expectations of how wonderful silicone would be were way over the top. Did they feel like the "water ballons" described on the info section of the boards, and if so, how soon after your exchange? They do NOT feel like water balloons. I'm sure they feel vastly different out of the body and on the doctor's table, but they truly are not that different from the silicone. Silicone is firmer, but softer. That sounds contradictory, but I can't think of better words. No sloshing. The only other weird thing I can think of is when I ran my finger along the bottom of my boob, I could feel creases in the saline implant. I couldn't see them. But really, who does that? My DH doesn't hardly ever touch it. But that's us, not necessarily you. Maybe it'll change when I get nips? THe silicone one is cold. I don't think the dropping is what you think it is. A lot of gals have their expanders and implants start way up in their collar bone. Usually that settles down into a more natural slope. I did not get a large size (I'm about a B cup), so that didn't even happen to me. I will say, that because of the nature of saline, all the water rests on the bottom, and in silicone, you have more up higher. Not a whole lot, but some. If you nitpik and compare, you can be very unhappy. If you have realistic expectations, you can be very happy. I'm sure I nitpik way too much, and still do. But I'm happy that I have something there and pretty much no one can tel. Stephanie Dx 8/14/2006, DCIS, Stage 0, Grade 3, 0/7 nodes, ER-/PR- |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: Aug 6, 2008 03:13 am
Saline implant anyone???Are you willing to go ahead and post the questions, or do you want to do it privately? I did have a saline implant, but I have silicone now. I can try to help. Stephanie Dx 8/14/2006, DCIS, Stage 0, Grade 3, 0/7 nodes, ER-/PR- |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: Jul 24, 2008 02:19 am
ahem, just how tough is silicone? LOL!So my DH just told me about a show on the Spike channel (the he-man channel) called "Manswers" or something like that. The question was, just how tough are silicone breast implants. They put them through a myriad of tests (including the microwave, being hit with 100mph line-drives, being implant in a man for 5 years, etc). The only test they failed was being shot. Makes me feel better about my choice. I hope it helps others. Or at least gives you a chuckle. (and pardon me if this has already been discussed, I've been off the boards for a couple of months) Stephanie Dx 8/14/2006, DCIS, Stage 0, Grade 3, 0/7 nodes, ER-/PR- |
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Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Jun 3, 2008 02:08 am
Wire Guided LumpectomyBeth, we can only guess, not being medical folk, but while the lump may be palpable, you may have multiple lumps and they want the right one. Plus, from my experience during my core needle biopsy, it seems breast tissue moves very easily. It was a painstakingly slow process chasing the lumps around. You know your boob completely changes shape when you lay down, so that lump moves, and then they've got to cut you and it's probably not as easy as we think to palpate once they've cut you open. Of course, while I say all that, I had a lump on my other side that they biopsied at the same time that they did not put a wire in. It was a much more surface lump, near the nipple. Not deep in the boob. Good luck to you and Rafaela on the surgery. Stephanie Dx 8/14/2006, DCIS, Stage 0, Grade 3, 0/7 nodes, ER-/PR- |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: Jun 1, 2008 09:45 pm
Skinsparing mast. Is this normal?morning - hysterical ninnie - been there!! Breastoid - love the term. I've seen a picture of a gal who had the skin sparing without immediate reconstruction - she looked like what you described. Her after photo looked really good. I wish I could remember where I saw it - it might be reassuring to you... I'll poke around a bit. Hang in there! Stephanie Dx 8/14/2006, DCIS, Stage 0, Grade 3, 0/7 nodes, ER-/PR- |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: May 28, 2008 03:56 pm
tighteningJust to throw out a few more ideas, have you explored alternatives? Like reflexology or acupuncture? And I wonder if they can botox some strategic areas? Massage? Surely someone here has been there/done that and found something other than just time. I guess I just see that the nerve pain and the hardness go hand in hand. The implant itself cannot alternate between hard and soft - it's just a bag of goo. But the muscles sitting on top of the implant are getting hard, probably in reaction to the pain, being stretched by the implant and needing to become more flexible (and it may be brittle due to the radiation). REally, i'm not trying to argue, I just want to help. Hopefully they will be more helpful to you on your Friday appointment. Keep us posted on how that goes. Stephanie Dx 8/14/2006, DCIS, Stage 0, Grade 3, 0/7 nodes, ER-/PR- |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: May 27, 2008 10:59 pm
tighteningmittmott, I haven't been following your progress, so I was wondering if maybe you are babying your arm since you are having so much nerve pain. I know that I would! If so, then that would do it. Ask about getting some physical therapy. I haven't had a flap surgery or radiation, so this may not help you, but walking really has helped me get full range of motion. You have to swing the arms bending at the elbows to get the benefit. FWIW, I don't do strengthening exercises, just stretching. (just being lazy) I hope you find the right cure for you! Stephanie Dx 8/14/2006, DCIS, Stage 0, Grade 3, 0/7 nodes, ER-/PR- |
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Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: May 23, 2008 04:09 am
The Wii and physical fitness?Beth, big brain academy is a game that helps your brain function. There's another game like it for the ps2, it's called brain something, I can't remember, but I like it a little better because it has a little piano test with it. I need to go work that game a little more. Anyway it tests your memory, your recognition skills, calculations - that sort of thing. When I first took the test I scored a C++. What a bummer. I imagine the Wii Fit will call me fat too. My Mii is in her 40's now, but she started in her 80's. LOL! I need to do better on the baseball. Saluki, you know, the teenagers have figured out how to play the games by just barely moving the little remote. It's funny how the generations are different. Teens expending as little effort as possible, while the adults really get into it and play the role. Youth is wasted on the young! LOL! Stephanie Dx 8/14/2006, DCIS, Stage 0, Grade 3, 0/7 nodes, ER-/PR- |
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Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: May 21, 2008 10:58 pm
The Wii and physical fitness?So, did anyone score a Wii Fit? I can't wait! I haven't tried to find one yet, but I think it would be a fun change. I love the boxing and tennis that we already have. Plus I have the Big Brain Academy. Um, I guess I expect Nintendo to solve all my problems. Maybe they can work on my recon issues.
![]() Stephanie Dx 8/14/2006, DCIS, Stage 0, Grade 3, 0/7 nodes, ER-/PR- |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: May 17, 2008 11:47 pm
possible implant ruptureIt was allergan, an inamed implant. Maybe I just got the wrong phone operator. Because she asked the boss, and maybe yours was more willing to just give the information. Who knows? PMS, the vog...
![]() Stephanie Dx 8/14/2006, DCIS, Stage 0, Grade 3, 0/7 nodes, ER-/PR- |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: May 16, 2008 06:24 pm
possible implant ruptureso this thread got me curious and I got on the horn and tried to find out my manufacture date and location. No go. They were not giving out that information and said that I needed to ask my plastic surgeon. I was honest and said I didn't have a problem and was just curious - so I don't know if I had lied would I have received a different response. She did ask her manager (or so she told me) and that was the response I got. I think I was the first person who has ever asked her that. :-) Anybody else try this? You must have better phone skills than me Marian! |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: May 16, 2008 04:01 pm
Longevity of saline implants?Not getting into this argument, but I'm curious about the aspect that was brought up that if you don't get the recommended MRI's then you've broken your warranty. I don't get it. MRI's only check for a leak. It does not prevent leaks or ruptures. It is not like an oil change. An oil change is preventative maintanance. It actually helps the engine. An MRI is just a look into your body. A rupture would happen with or without MRI's. In fact, the first MRI is recommended at year 3. How is it different if you get your first MRI at year 3 or 5 if your rupture was at year 1? The rupture happened regardless of the year of MRI. I'm just a layman and it doesn't make sense. I know that lawyer types can make words mean whatever they want - I'm married to one, I KNOW! I think it would be in the best interest of this entire board if you posted the links to the lawsuits instead of just pm'ing them. Because I'm not the only one whose PS has said "no need" for MRI's and if he doesn't recommend one, then I won't be allowed one. Plus I think these extraneous topics need to be moved to another thread. For the OP, I was told that there is a 10 year warranty on salines (I have a book around here somewhere) and that's about the usual life span. But you don't have to swap it until it leaks, so if it lasts longer, then that's great. This is what I was told. FWIW, an implant swap surgery is an easy surgery with quick recovery. That's not what I would base my decision on, JMO. |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: May 6, 2008 03:56 pm
Expanders vs saline implant, how does it feel?I had saline, now I have silicone. There is no real difference in softness - to me. But I don't have big boosoms, so maybe there is more of a difference the larger they are. edited to say: so to answer your question, yes, you get a noticable softness with saline. Very comfortable. |
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Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: May 1, 2008 04:47 pm
Guilty for "just DCIS?"I haven't read all the responses, but wanted to throw in my thoughts. I do feel something similar, but I don't think "guilt" is the right word. I feel bad that when people hear that I had BC, they assume that I had "the works" (chemo, radiation etc) and I can see it on their faces (the sad sympathy face) - and while I did lose a breast, I am fine, really. What I've been through (and I'm still not through with recon) is nothing compared to what it could be like. So that face shouldn't be used on me. I don't want that sympathy. I didn't earn it. KWIM? I'm okay, my prognosis is good, and my treatment was doable. (of course, if you say it was a piece of cake to my face or call it pre-cancer - I'll punch you out!!) Just what ran through my head when I read your OP. |
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Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: May 1, 2008 02:17 am
Please explain "thickening"I'm not sure what others mean by thickening, but in my mind it's what you feel with your hand when you touch yourself. I've always had lumpy breasts, and never knew what a normal breast felt like until after I had my twins. My boobs just totally deflated (after the engorgement was all done) and totally lumpless. Never felt that before - it was fantastic! But eventually some lumps returned. Most of those have a particular size and shape. I would call a thickening a gigantic lump. Like a quarter of your boob. But not a round thing. Just an area. Thick feeling, not squishy. Does that make sense? I'm not sure if that's right, but that's what it is in my mind. |
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Tests, Treatments & Side Effects + Surgery - Before, During, and After, Created: May 1, 2008 02:04 am
Medieval imagery pre masectomy !Jacqui - ouch! That's a painful, and vivid imagination you have there!! In reality, they give you some good drugs, you are asleep while it happens, and the scars fade and can be mostly concealed by a reconstructed nipple when all is said and done (if you go the recon route). Here's another thought to replace your medieval one... that large, beautiful boob is trying to kill you!! Your more homely replacement (be it prosthesis or recon) will have a "nice personality" and let you live a nice, full life. You are not your boobs. All that said, great big hugs out to you! You've come to the right place to vent. We get it. |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: Apr 27, 2008 11:20 pm
brand new tissue expanders what are they supposed to look like??Brenda, I'm glad the pictures helped. I just took another glance at them and wince at how, um, unpretty, it was. I'm not perfect now by any means, but surely much better than at the start. Have hope - you'll get there soon enough. |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: Apr 26, 2008 02:04 am
brand new tissue expanders what are they supposed to look like??do you have access to the picture site? You need to pm a request to timtam if you don't. I have pictures on there from right after my mast. with an empty expander - with my drain still in. It's not a flat surface, kinda hilly - ups and downs. I had my drain in for about 10 days. the last 3 days it began to slow down it's output. I remember being very eager to have that thing out! (my picture is on page 7 of the website) Stephanie |
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Tests, Treatments & Side Effects + Surgery - Before, During, and After, Created: Apr 7, 2008 04:59 pm
Waking up after SurgeryEvery time is slightly different. But it's always," hey, it's over already?, I don't even remember falling asleep." Usually I wake up hungry and thirsty. For some bizarre reason I feel the need to fight to stay awake, I don't know why I don't just allow myself to drowse back off to sleep. I like to know what's going on. And also, after my first biopsy, the nurses were very chipper and talkative and commented about how happy I was. So I also bizzarely have this need to be happy when I wake up. The last surgery I was asking the guy, "does it look okay?" and he was like "I don't know, I wasn't there". LOL! Poor guy. He's just there to push the bed... I've only been sick a couple of times after surgery and realize that every time I do a pre-op I need to tell them about it so that gets taken care of. They have drugs, you know. You don't have to suffer. Just speak up. Right when you wake up, you are still pretty heavily drugged, so the pain won't come until later. Good luck on your surgery. |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: Apr 4, 2008 05:56 pm
revisiting the cold implant topicIn the past I've not paid attention to these posts, so I'm sorry if this is a repeat. I've noticed that when I get home from walking and I'm taking off my soggy jog bra, I can feel my foob is cold. The rest of me is toasty. I have a silicone now, this did not happen with my saline. Okay, the paranoid part of me says that the jog bra is constricting circulation and that's why it's cold. (and of course, when I do my marathon in December, my foob will surely turn black and fall off - I have a wild imagination) The practical side of me says that the wetness of the jog bra has cooled off the skin temperatures. But note that I live in Hawaii. It's not cold here. Sure, the sweat and breeze helps cool you off.... Like I said, I'm paranoid. Set me straight girls! |
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