neva4

Hi Jill.

When I was dx (it will be 2yrs in Dec) I was told that my bone marrow was packed with cancer cells,then dx with bc stg IV with mets to the bone's.

MY RBC was 4.3 at the time of hosp admit and I did not go to the urgent care center because of feeling sick or any sob.I went because I had an infection on my left leg from a cat scratch that would not heal and giving me a lot of pain.When they did a blood test and the results of the hemoglobin came back 4.3 the doc could not believe I was sitting there in no apparent distress other then my leg.

I was sent to the hosp right from there they would not even let me go home first and I had to call my son to pick my car up.I received 2 pints of blood that night and two more the next night.It took them almost 2wks to dx me after having every test they could think of.They finally did a bone and breast biopsy,the cat scan showed a sm lump almost hidden behind a muscle,which did not show on the bone scan but did also show on the MRI.

I started on Falasodex before leaving the hosp but was changed to Taxol a week after.I had 8 tx'S of that then put on Femara 4 month's ago.I also had blood transfusion(stopped counting at 22 pints).MY RBC is now at 10.1.I go once a month for aredia infusion for the bone's and a shot every 2wks now for the rbc.

MY prayer's are with you
Other then the joint pain and the arthur & osteoporosis I developed,they say I'


m stable.MY hair is growing back so fast,its a steel gray and curly and so thick I can hardly get my hands thru it.

Thank you all for your reply.Yes Dolly I was off to the airport to New York for a friend of 32 years 60th birthday party,had a ball came home and slept the whole weekend,it was worth it. I try and keep busy and stay away from support meetings for now glad I found this site.My onc says that I am stable and to keep on doing what ever I want ,but just listen to your body when you feel the need to rest do it or your body will do it for you.As she said when I first met her "give me a year of your life and I will work my hardest giving you many more to go."I work 3 days a week and some at home.I use to do sleep studies but could not go back to that to much up and down and on my feet.So being lucky enough to have a great boss who offered to let me do sleep study scoring at home and up dating pts charts in the office.Where since it is a sleep lab I have the pleasure of lying down during breaks or reclining in the recliner she had put in a room for me if I needed to take a break.So I say to all those out there that think I'm a hex to be around them then let me be a hex.Love this board.

I just renewed my prescription of Effexor on 7/28/07

Metstobone,

I too am new to this site and have mets of the bone.As you stated that's pretty much the way my tx will be going too I'm glad to have found this group and feel like I finally have some one to talk to.

Thanks for the responds.I am stg 4 breast ca and have been from the 1st diagnosis.I was getting treated for an infection fo the lg(Celleutitis) from a cat scratch which I had been going to the MD for over a month and it was not responding to tx.On one vist a blood test was drawn and came back with a hemoglobin of 4.3 and I was rushed to the hosp No one could believe I was not showing any symptoms from I was admitted and for 2wks given a battery of tests and they saw a sm lump almost hidden behind a muscle(did not show on the mammogram)seen on the cat scan.Had breast biopsy and bone marrow biopsy diagnosis stg 4 with met to bone and bone marrow packed w ca cells.Did chemo(Taxol) and 22 blood Transfusions (Stopped counting there) now on Ferama and go once a month for IV Aredia (Bones).I was asked to go to this support group meeting with some one I got friendly with at The Cancer Center (my 1st) At the meeting after introductions I was asked what I did to keep saneWell isaid bascially from having to take more time out for my self MY life was sitll som what on track Caring for my mom(81) working from home,have a really understanding boss.and my pet project decorating my front and back porch to have a relaxing place with lots fo plants and flowers.Well this women turns to me and says "why your going to die any way".Shocked yes to say the least,but I said calmly that were all going to die some day with or with ca tomorrow is not promised to us,and I thank God every day that he waks me.I wish I could say the meeting ended on a good tone It seems this women had over heard the person I came with tell ing some pne that I was stg 4 and she wanted them to see that I did not look or acy any different then they did.This person had always felt that people with stg4 ca were on ther death beds and always made her feel uncomfortable because thats were she never wanted to be .She says when she met me that her attitude changed because of my attitude and the way I looked.I told her yes I have good days and bad days but I"v learned to listen to my boby whenit says rest I do.There were a few of the ladies ther who felt the same and felt that I might feel better in a group for people with my type of ca.Do i feek slighted not in the least just glad to be albe to go on with my life.

I have been taking Femara for almost 4 months now and having no problems.I started the chemo brain while I was on tne taxol so no change there. Go for it

This is my 1st post so I hope I'm doing it eight
I have been mets for a year and a half now and have just found out that people with mets are not thought of in the same way people who are in the early stages of CA have I been living in a dream world for the last year and half.