Profile for JoyRebecca

Member Since: August 10, 2007
Last Login: November 22, 2008
Location: St.Pete Beach, Fl
Occupation: RN

Biography

Diagnosis

Recent Posts by JoyRebecca

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: 12 hours ago

Me, too

Lisa,

Your post about your feelings of being a forever patient really struck home with me...it's what's been happening that I couldn't quite put into words. I've had progression ever since dx and nothing seems to stop it and so just today, I've finished my 2nd round of abraxane/avastin. I know it's supposed to be less harsh than the others, but it really kicked my ass. loaded me up with steroids this time and will start oral ones tomorrow. The 1st dose completely wiped out my white count and getting zometa and neuplasta on the same day was probably not a good idea.

Anyhoo, Your positive words following your thoughts(that I share) have really helped me to get my head on straight and think positive. Thank you.

Enjoy the hell out of your hugaghan...I'm jealous!! :-) They are made with love to comfort you when life looks shi**y!! As you said "I am *determined* to respond to treatment and I'm giving this every thing I have, and dammit, I'm determined too. But, yep, those damned thoughts start swirling around....But, I WILL see remission this time, I WILL!!!

Again, thanks for helping this sister through a rough nite. And the boat's still being loaded and can carry as many crew as we want since this is cyberspace. Anchors away!! Let's go!

Joy

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 16, 2008 10:00 am

Me, too

Good luck, Hon. We'll all be praying for you and wishing you the very best on your journey through this new treatment.

Joy

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 16, 2008 09:46 am

A little update...(my hip)

Fitz,

It never ceases to amaze me that time and again, from billing to insurance to Docs, we must be our own advocate. What do poor old people do???

The good news is that they found the reason for your hip pain. Now, what to do about it? Since your ortho is the top of his field, I'm sure you'll be confident with his advise. Take it really easy til you get to see him.

Best thoughts are with you!!

Joy

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 11, 2008 09:13 am

Brain Mets - Me Too #2

CalGal,

I'm glad you have your treatment plan in place. It always makes you feel better to have that first definitive step toward the goal. Hang in there and know that we're all with you!!

Joy

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 11, 2008 09:09 am

Me, too

Lisa,

OK, now you've got the real scoop from your doc. I have a pair of big girl panties that you can borrow for the Gamma knife tx...they work really good and help to kick cancers ass by scaring it to death. I'm with you...no unnecessary hospital time!! Fists up, Hon!!!

The SSDI thing is a pain, but once it's done, it's done and well worth it.

The Captain and crew are standing by for the BoraBora trip. I've started ordering provisions for the ship....they're loading the Pina Coladas now!!

Joy

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 10, 2008 11:00 am

Find A Cure

What a great son...how proud you must be!!! And what a great group of guys! Tears in my eyes too.....thanks for the uplift LuAnn!

Joy

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 10, 2008 10:38 am

AlaskaDeb needs our prayers

I'm thinking of you today Deb!! Hoping that you're doing better and better!!

Joy

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 10, 2008 10:37 am

Told The Kiddies.....Sigh

Kelly,

Your duaghter is adorable!! Hahaha...I've been to a few of those Pink Floyd concerts too!! Love the boots!! (I used to have white ones...egads!!)

Joy

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 10, 2008 10:33 am

Me, too

Hey Lisa,

How's it going today?? Just thinking of you! Yep, we've got a captain....any time you'er erady!! :-)

Joy

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 10, 2008 10:30 am

Chest Pain

Tabitha,

Because chest pain can be caused by so many different things, you need to have it checked out. Call your family dr. He can order the tests necessary to find the cause or at least, rule other causes out. It is always imperative that chest pain be looked at- the sooner the better.

Joy

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 9, 2008 05:53 pm

Happy Birthday Fitztwins!

Happy Birthday,Fitz!!! Party hearty!!!!

Joy

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 9, 2008 05:50 pm

AlaskaDeb needs our prayers

Thanks for the update, Traci! I'm so glad to hear Deb's doing better!!

Joy

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 9, 2008 11:20 am

Me, too

Hey Lisa,

I'll stock up my boat with lots of provisions (read;booze), hire my hubby as Captain, and we'll ALL go to Bora Bora and show em how Sisters party and support each other!! I might need some crew members...any voluteers???

Joy

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 9, 2008 11:17 am

Meningeal carcinomatosis

Jill,

Oh this f@#king disease. I am sending prayers and hugs your way.

Joy

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 9, 2008 12:07 am

Brain Mets - Me Too #2

((((((((((((((((((((((((((CalGal)))))))))))))))))))))))))))))))))

Kick it's ass.

Joy

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 9, 2008 12:05 am

Me, too

Hey...sign me up for Bora Bora too!!!! Lisa, I'm really sorry to hear your news. Let us know what your treatment plan will be.

Sending good vibes your way.

Joy

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 8, 2008 11:59 pm

Told The Kiddies.....Sigh

Kelly,

Why do kids always ask the tough questions when you're in the car? I remember my oldest son (who was 6 at the time) asking from the back seat,"Mom, where do babies come from?"!!:-)

I feel so sad that we have to have this conversation with our kids, and damn angry too.

It sounds like you told them in a loving and caring way. Kids will handle it and adjust.

Joy

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 8, 2008 07:59 am

Social Security Disability

Yep, 2 years...at least that's how it is in Fla.

Joy

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 7, 2008 10:52 pm

Ct scan results

Happy Dance commences.....

Joy

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 7, 2008 10:50 pm

husband called 911

Abby,

How scary...what a way to wake up! Nope, I don't think your body liked that drug very much! Enjoy your time with your family and come back with new strength to fight. I'm sure there is a drug that will work just as well for you and be alot kinder to your body.

Joy