Member Since: August 14, 2007
Last Login: October 3, 2008
Location: United Kingdom United Kingdom
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Posted in:
Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 2, 2008 08:59 pm
Need Prayers for Our LuAnnThinkinf of you, enjoy vegas |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 2, 2008 08:25 pm
mets/elbow?I thought I had this a couple of years ago but was told it was probably tennis elbow had hip and femur mets at the time). Since you mentioned it I had forgotten about it and have no pain at all and hip bone mets are NED. Hope it;s something simple like tennis elbos for u |
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Tests, Treatments & Side Effects + Alternative, Complementary & Holistic Treatment, Created: Oct 2, 2008 08:07 pm
breastmilk?I've vaguelly heard about drinking human doner breastmilk, can anyone enlighten me? I've had some people offer it to me (really kindly) - I'm a Lactation Consultant! If there is anything in this should I save any donations until i've finished the chemo Xeloda capecetabine from secondary mets to lymph nodes on aorta/paratracheal etc. Thanks p.s. if it's there - how often and how much? |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 2, 2008 07:46 pm
Lets start a Roll CallThanks LuAnn Sorry All - I feel a bit of a fair weather friend and only turn up here when I'm feeling Sh**, then you all give me hope THANK YOU. DX 10/03 left breast mastectomy and axilliary node clearance 8/19 affected 12/03 - 04/04 FEC Chemo 04/04 - 05/04 Radiotherapy to breast/armpit and strange node area on sternum 05/04 Tamoxifen 08/04 Reconstruction free tram flap (plus brill tummy tuck! - there's got to be some bonus!) 03/06 Thought I had swollen neck glands - instead had infected neck nodes - had radiotherapy to neck and sternum area (again) 03/06 switched from tamoxifen to arimadex 08/06 CT scan to check nodes found nodes down but mets to right pelvis and left femua head 08/06 Radiotherapy to pelvis/hips Mets resolved NED 11/06 asked about calicium and bones and placed on ibandronate bones still NED 03/07 - 02/08 sternum nodes unstable plus others paratracheal/pulmo/arterial ??? 05/08 considered for trial (aromasin/faslodex/arimadex) but found out not eligable so was offered trial 'perks' of 3monthly ct and changed arimadex to aromasin(exemestane) 09/08 nodes larger and more extensive causing brethlessness from the pressure on chest, started last week on capecetabine(xeloda) 4600mgs a day for 10 days then 11 days of - last of the 10 days tomorrow. then try next cycle and rescan to see if this ir working and if it is go to 8 cycles if not then it's a rethink. Feel good, still working but VERY tired and breathless I don't hear of hardly anyone to have the node problem - ahy can't they just take them out?? guess I should be pleased that other organs are currently OK and bone bets are still NED. Would love to hear from anyone else with the node issues |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Sep 28, 2007 07:49 am
Arimidex, bone mets, good resultsBrill X |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Aug 29, 2007 05:17 pm
Roll CallHi I'm newish here, I came about a month ago after feeling that all was lost, everyone here has made me perk up and am feeling really good now. Here's my bc history, I feel a bit dum as I haven't a clue about the stages and codes that people seem to be using here, so not even sure where I am!
 I'm now (a young !)52, two sons 29 and 23 and DH. -Oct 03 Found lump (actually found it a few months earlier but was afraid to 'own up') -Oct 03 had mastectomy and axilla node removal 8/16+, clear margins on surgery and 'odd' sternum lymphnode -December - April 04 6 cycles FEC chemo (was offered trial taxol/taxatere but results then weren't too positive and side effects worse - not sure now that I should have declined trial!) -April/May 04 15 doses of radiotherapy to breast and medisternum lymphnode -April 04 started on tamoxifen -Aug 04 free tram flap reconstruction -Dec 04 Liposuction/sculpture/nipple tattoo to complete reconstruction (have to say It's a brilliant job and free tummy tuck into the bargain!) -Mar 06 found lump in neck, 3 weeks of radiotherapy and extra overlap radiotherapy to mediasternum lymphnode -Mar 06 tamoxifen changed to arimadex -Aug 06 scan to confirm that neck node had been 'cured', found bone mets to right hip and left femur ball joint (blood BRC15 at only 23!) -Sept 06 daily for one week radiotherapy to hips and femur both back and front (have now got a loverly rectangular suntan on each butt cheek to match the extra square of suntan on my sternum) -Jan 07 check - I asked questions about the 'floating calcium and am now also on bondronat (Ibanonic acid) plus the arimadex -Jul 07 found this site and feeling very wobbly waiting for xray for a chest infection convinced it was something worse, and booked for bone scan to 'complete the tests for the year' and saw a new onc (assistant to my own, who put scared thoughts on me and had me thinking I had new lump on sternum - since been confirmed by my onc that this is lymphnode that has not changed for over a year, is dead in the middle, and is only a little enlarged and just....sitting. -Aug 07 Bone scan reveals no new mets, and hip/femur mets almost undetectable -Phew ...feeling almost too good and very relieved Thanks everyone <font> <!--color--></font> Pam |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Aug 27, 2007 01:29 am
Just found out mets to lung and Possibly liverSorry, have just read the answer to NED later in thread. Thanks, Pam
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Aug 27, 2007 01:25 am
Just found out mets to lung and Possibly liver</font>
<font class="small">Quote:</font><font class="post"> Sorry what is NED? Thanks Pam |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Aug 27, 2007 01:20 am
met to bonesThank you all. I got my results and almost can't believe it. Not only did the bone scan say that there were no new sites, but that that hip and femur that I had radiotherapy on this time last year, had regressed and were almost unnoticable on the scan!! (Is it really possible that it can virtually go away?). My oncologist said that they always hoped to contained it, but this was better. I am on arimadex and ibandronic acid, so he said stick with it, he was going to stretch my check up for 6 months - but I'm going back in 3 !
There is hope Karen - I was really scared, although I am lucky I'm in really good health (well I think the treatment has taken a bit of a toll or it could be older age!) Thanks Pam p.s. my elbow is probably tennis elbos but almost gone now anywy |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Aug 15, 2007 12:25 am
met to bonesThank you - I will look up those drugs, I'm in the UK so maybe they have a different name. The only ones that I am familiar with are the Arimidex, femara, exemestane and tamoxifen.
In the US you have a much better survival rate than in the UK - we are also one of the worst in Europe - so am seeking more information. Thank you all, the posts i've been reading last night (my first visit to this group) are all so inspiring and upllifting. Thank you |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Aug 14, 2007 03:40 pm
14 years with stage 4 this monthThis is amazing. So many women doing so well! This is my first time to this site and was feeling pretty down and waiting for result of bone scan due on Thursday. This is such good news for you KAthy and evryone else and helping me to feel so mch more positive. Thanks
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Aug 14, 2007 03:06 pm
liver mets..treatment and prognosis?Wow - what stars you all are
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Posted in:
Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Aug 14, 2007 02:42 pm
Getting Scan Results TodaySo sorry. Good luck with your bag ot f tricks.
I'm new here what does NED means#Thanks |
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Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Aug 14, 2007 02:37 pm
met to boneshave had met to bone and had radiotherapy last summer, waiting for results on Thursday of latest bone scan - I thing it's in my elbow now. I'm still on arimadex and ibandronic, any updates from any on anything?
Thanks |