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15yrsurvivor

Member Since: August 20, 2007
Last Login: February 22, 2008
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Recent Posts by 15yrsurvivor

Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Jan 5, 2008 11:29 am

What Type of Surgery?

Thank you all so much for the input...i'm sorry it took me so long to come back and look but my husband took ill and was hospitalized...but he's home now...so getting back onto an even keel again.

No, I haven't had any definitive problems with my remaining breast but am starting to develop cysts which was what initially made me ask my onc why I couldn't just go ahead and have the remaining one removed since I've been going every 6 months for mammo's...but since they haven't found anything positively he is very reluctant to say yes about removal. Instead he wants me to do genetic testing and a breast MRI which my insurance company has been so far denying to cover.

I go back to see my onc on the 17th, so I'll let you know what he says this time.

Thanks again for the responses 

Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Dec 24, 2007 10:09 am

What Type of Surgery?

Happy Holidays Everyone,

As you can see by my signature I'm a 15 year Survivor. I had a Modified Radical Mastectomy in 1992 at the age of 37 on my left side with 32 lymph nodes removed.  At that time my surgeon felt my best chance of surving would be not to have reconstruction. Well after 15 years of wearing a prostethis (sp?) I have had enough. I saw my onc last week and told him I wanted to have my other breast removed. He is totally against it. So, now I'm wondering if it's to late to have reconstruction. Since I'm so large breasted with the one that's left I'm wondering if they could divide it up and put half on each side?

I don't know....I just know I'm really tired of wearing a prostethis that shifts and moves all the time not even counting the fact that it is terribly hot in the summer....especially in Arizona where I live and the fact that my bra rolls up into a ball where i'm all caved in under my arm.

Any thoughts?  

Posted in: Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Oct 9, 2007 12:47 pm

Should I biopsy or not?

Aren,

I too had never had a baseline mammo, but 2 months after my 37th birthday, I had swelling of the lymph nodes in my left armpit. They put me on antibiotics thinking it was probably just an infection from shaving. They also scheduled a mammogram just to make sure. When they did my mammo they also did an ultra sound, then tried to do a needle aspiration and couldn't get anything out of it. They scheduled a biopsy. I ended up having atypical medullary carcinoma with multifoci and 4 lymph nodes out of 32 were also malignant.

I'm not trying to scare you....but getting a biopsy is the only way to know for sure...my cancer was so agressive that if I or the doctor's had waited 6 months I probably wouldn't have survived. As it was they told my husband I probably only had a year to survive.

It has been 15 years. I was one of the lucky ones. So don't wait. Better to be safe then sorry. 

Posted in: Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Sep 1, 2007 07:15 am

Well I Waited....did I wait to long?

Well I got to my appointment with the Surgeon with 15 minutes to spare on Thursday and had my CT Scan on Friday.

The Surgeon wants to schedule an ultra sound. He does not think the mass is from my breast nor is it from my thyroid. He told me he really isn't sure what it is but he wants to investigate further.

When they did the CT Scan I asked them afterwards if they got a good picture of the mass in my upper chest. They said "the CT Scan was a chest Scan but wouldn't say anything other then that.

To give you a better idea...the mass is below the base of my neck but actually above my breast...more in the collar bone area.

So now I'm still waiting and still guessing and trying not to worry. My next appointment is not until October 1st unless they call me with appointments for additional testing.

So I still don't know anything and still waiting. I will call on Tuesday and ask about the CT results since Monday is a holiday. I just hope the CT scan actually got the area of concern.
Posted in: Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Aug 27, 2007 03:08 pm

Well I Waited....did I wait to long?

My husband had a Dr's appointment today that ran over. When we got home there was a message on our answering machine informing us I have an appointment with a surgeon on Thursday, Aug. 30th at 1:45 pm, so he can evaluate the "nodule" on my chest. I also have a CT-Scan scheduled for Friday.

So, of course, since Thursday is dialysis day for my hubby, we are going to have to leave straight from dialysis and drive 144 miles and keep our fingers crossed we aren't late for my appointment with the surgeon. We should make it with about 15-30 minutes to spare if everything goes smoothly and my hubby isn't late getting out of dialysis.

So ladies, say a prayer for me and think good thoughts that no matter what it is that the doctor's figure it out and take care of it.

I survived an aggresive BC 15 years ago so it isn't as scary as the first time. I just want it biopsied and to get it the heck out.

So like I said, please say a prayer and I'll post again after I get the results.

Thank you all for being here.

With Warmest Wishes,

15yrsurvivor
Posted in: Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Aug 25, 2007 06:43 am

Well I Waited....did I wait to long?

Happy Saturday Ladies,

Guess what I got in the mail today....my appointment schedule for a CT-Scan. They never called me back. I called every day this week asking to talk to the scheduling department to make sure the CT-Scan wouldn't conflict with any of my husband's up coming appointments and dialysis days.

Luckily it doesn't. My CT-Scan is scheduled for Friday, August 31st. Of course its on a Friday so I can stew all weekend afterwards.

I'm also trying to get an appointment to see the Oncologist again, without having to wait for my Primary Care Doctor to put in a consult.

Why the government always insists on a ton of paperwork and approval for this and that is beyond my comprehension.

Praying for all of you.

Regards,
15yrsurvivor
Posted in: Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Aug 23, 2007 04:48 pm

Well I Waited....did I wait to long?

I tried calling again today to get my CT Scan appointment and had to leave a message for the scheduling nurse to call me back...which she didn't

So I had the bright idea to email the oncologist I saw back in may. Thank God for business cards with email addresses and God love oncologists who don't make patients wait.

Anyway he emailed me back within 2 hours and told me he had ordered a MRI back in May along with a follow-up visit with him and it was never done.

I am on CHAMPVA which is (for anyone who doesn't know) an insurance for dependents of disabled veterans. So I go to a VA hospital 144 miles away for doctor visits. They didn't feel a MRI was necessary, even with my past history so it was never approved).

So, anyway, the oncologist I saw back in May is going to go to bat for me and get me in asap for a biopsy, MRI and the CT Scan. Like I said, God love caring Oncologists.

I will keep all of you posted.

Thanks for being here. It's hard when there isn't family close by you can talk to about it.
Posted in: Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Aug 23, 2007 06:25 am

Well I Waited....did I wait to long?

I called about the appointment for the CT-Scan the nurse said was ordered. When I called they said, "when was the test ordered?" I told them yesterday (meaning Tuesday) and the response was...oh well that takes at least 3-4 days to get into the system. We will send you a letter letting you know when it is scheduled.



Grrrr....I explained to her...my husband is on dialysis and he goes Tuesday's, Thursday's and Saturday's. I also explained to her that we live 144 miles away so I would need to have it scheduled around his dialysis days and that is why I needed to speak with scheduling before the appointment information was "mailed" to me.

So, I'm going to keep calling daily and make them think I'm a royal pain in the ass until they can give me a day for my appointment.
Posted in: Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Aug 21, 2007 11:12 pm

Well I Waited....did I wait to long?

Well I talked to the nurse today. The x-ray really didn't show anything so I'm suppose to call first thing in the morning to set up an appointment for a CT Scan.

I always thought they used an MRI to check for turmors. Is a CT Scan go to show anything if it's in my breast or my chest area above my breast?

Anyway now I'm wondering if the right tests are being ordered or is this going to take weeks before they order the right tests to be done.

Has anyone else been given a CT Scan to check for cancer and how reliable of a test is it?

Thank you ladies. God I hope they don't make me wait to long.
Posted in: Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Aug 21, 2007 06:41 am

Well I Waited....did I wait to long?

Dear Ladies,

Thank you for your thoughts and kind words. Since I have been through this all before at least I know what may lay ahead. It's the wait and see what happens next. You can deal with anything as long as you know what the "anything is".

I will do what needs to be done. My biggest concern is really not even about me it's more of the....ok who's going to take care of my husband if I'm in the hospital? Who's going to help him shower, fix his meals, do his meds (makes sure he takes his meds), take him to dialysis, 3 times a week?

The closest family members we have are 1400 miles away. I have decided not to tell my mother anything about any of this until after all tests, biopsies and whatever else needs to be done is finished. She is 76 years old and has her own health problems (who doesn't at that age?) and since she was just here for a visit a couple of months ago I know neither she nor my husband and I can afford to have her fly back out. So I'm just going to wait and see. I'm going to give the doctor's office until the end of the week and then start calling to make sure I don't fall through the cracks.

I'm so glad these boards are here. It does give us all place to vent and cry and share our concerns.

With Respect to All of you who have been there, done that and going through it now I salute you you deserve it.
Posted in: Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Aug 20, 2007 06:23 pm

Well I Waited....did I wait to long?

Good Evening Ladies,

I am a 15 year survivor of atypical medullary carcinoma w/multifoci and lymph node involvement. I went in for my yearly mammogram back in March. After reviewing previous years films they decided to do a second mammogram and ultra sound. Had that done and they decided it looked like an oily cyst and to come back in 6 months for a follow-up mammogram.
I didn't like the idea of waiting so made an appointment with an oncologist. He felt no need to be alarmed since the ultra sound didn't see anything.

I was scheduled to go back the second week of September. I called last week and told them I needed to be seen asap. I went today. I found a very large mass just above my right breast (the only one I have) and my skin has sunk in from the mass down to the top of my breast. The nurse practicinor (sp?) said she could see it without even feeling it. There was no sign of this mass at my previous doctor visit w/oncologist in May.

They took a chest x-ray today and she said she would try to get me scheduled with a surgeon within the next 2 weeks to do a biopsy.

Needless to say I'm scared. My husband is already suffering from end stage renal disease along with numerous other life affecting complications. I am his primary care giver.

I'm trying not to worry until they can give me a definite answer from a biopsy. I didn't even have to beg or even ask for one this time. The nurse just said they would get me in asap.

I'm just kind of angry and scared at the moment because they didn't take my concerns seriously back in March and April. So now I'm asking myself in 20/20 hindsight....If I had forced this issue more...would it have avoided this large mass in my chest just above my breast?

Thanks for letting me vent.

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