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Eiffel_tower

Member Since: August 26, 2007
Last Login: November 21, 2008
Location: Seattle, WA
Occupation:

Biography

Diagnosis

Diagnosis: Dx 8/3/2007, DCIS, <1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+
Diagnosed: August 3, 2007
Type: Ductal Carcinoma In Situ
Recurrent? No recurrence
Metastatic? No
Stage: Stage 0
Lymph Nodes Removed: 0
Positive Lymph Nodes: 0
Tumor Size: Less than 1cm
Tumor Grade: Grade 2 or medium grade
Hormone Receptor Status: Tumor has both estrogen and progesterone receptors
HER2/neu Status:

Recent Posts by PSK07

Posted in: Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: 23 hours ago

About-to-Start-Hormones Group

Well, I got the scrip for Effexor generic. Will start by taking part of one pill in the morning and work my way up to 1 in the morning and 1 at night.  The Effexor XR is on my formulary, but it would be at least $30/month. If push comes to shove, I will do that, but we decided to go with the lower-cost option first. I have to taper down from the Zoloft first. That could take 3 weeks, then taper up to effective dose of Effexor, then start Tamoxifen. Looks like January. Happy new year?

The doc told me that Tamox does not put us into menopause...some of the SEs are menopause-like, but it doesn't affect fertility. Don't get complacent, she said.  Complacent is no longer in my vocabulary.

Pam - adding LCIS & ALH to the mix, 8/25/08
Dx 8/3/2007, DCIS, <1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+
Posted in: Not Diagnosed but Concerned + High Risk Women, Created: Nov 20, 2008 05:47 pm

MRI scheduling around period... questions

It depends on how long your cycle is. If Day 1 was 10/28, then Day 28 would be 11/24, + 5 to 15 days would be 11/30 - 12/10, so it is right near the end. If your cycle is less than 28 days, that might be a bit late, but if 28 or more days, then right in the target zone. 

You might want to schedule it for the 8th and ask if they can easily move the date forward if need be.

Pam - adding LCIS & ALH to the mix, 8/25/08
Dx 8/3/2007, DCIS, <1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+
Posted in: Not Diagnosed but Concerned + High Risk Women, Created: Nov 20, 2008 09:39 am

Are MRI's common 6 months after lumpectomies?

It's easy to be scared.  

I was put on an alternating schedule of mammograms and MRIs after my DCIS dx last year, I was told this would be the case for 3 years.  My MRI in August (first one since surgery, mammo was ok in March) found enhancement in a spot biopsied and found b9 last year. Found to be "only" LCIS and ALH, but enough to be on the same alternating 6 month schedule for some years to come.

Each one can pick up different things, especially in dense breasts, and it my case it was a good test to have. Try to time the MRI to days 5-10 of your cycle to reduce false positives.  It's all part of the joys of BC and its precursors. 

take care. Odds are good that it will be a big non event.

Pam - adding LCIS & ALH to the mix, 8/25/08
Dx 8/3/2007, DCIS, <1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+
Posted in: Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Nov 19, 2008 07:07 pm

Prozac interfering with Tamoxifen?

I'm taking zoloft & have to switch to something else. I chose Effexor because it's available in a generic and the brand XR is on the formulary so if the gen. doesn't work I can move to the XR for only $30/month.  If that doesn't work, then it is either Celexa or Lexapro.

Pam - adding LCIS & ALH to the mix, 8/25/08
Dx 8/3/2007, DCIS, <1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+
Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Nov 19, 2008 03:23 pm

I'm bitchy, I moan, I groan.....anyway.

Introduce your 15 yo son to my 15 yo daughter. They could obviously rule the world.  She was master of the eye roll by the time she was 8. Something about the age...My 17 yo doesn't want to check books out from the library because "I've read all the good ones."  Yes, and they haven't published anything new in years. 

We can talk to them until we're blue in the face, leave messages written in sharpie on the counter, and the garbage doesn't get taken out, the dishwasher doesn't get emptied, and their laundry is still (clean) in their hampers, until we get home and STAND IN FRONT OF THEM until they do it.

I've spent parent-teacher conferences since they were in pre-school wondering who this angel is of whom they speak.  

Bleh.

Pam - adding LCIS & ALH to the mix, 8/25/08
Dx 8/3/2007, DCIS, <1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+
Posted in: Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Nov 18, 2008 11:40 pm

Almost fainted..

ugh. Ice it, 15-20 minutes on, 15-20 minutes off. If you have a sports bra, wear that for 24 hours. I bruise easily & was told to take baby aspirin (gosh, that dates me) a couple of times a day when there was a huge bruise from the IV.

((((hugs))))

Pam - adding LCIS & ALH to the mix, 8/25/08
Dx 8/3/2007, DCIS, <1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+
Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Nov 18, 2008 11:26 pm

A Crafty Christmas?

My husband's aunt always knitted slippers for the men, women, and girls. We loved 'em. She also crocheted dish scrubbies with heavy cotton yarn - about 6x4" rectangles. Add a cute retro style apron - about $5 worth of fabric, max.

My mom made guitar straps back in the 70's...probably not what you're looking for, though.

Two years ago she knitted felted purses.  Last year we all got scarves knitted with tweedy yarns. She found a huge bag in her closet...thought it was papers for shredding. Turned out to be knitting projects, mostly from when she was going through chemo. She'd start one, get 3/4 of the way through and put it aside. There must be 8 almost complete sweaters...most with the needles still in them. Chemo brain....

I can't believe your nephew wouldn't want flannel pjs, but what do I know, I only have girls.  Maybe a fleece blanket for curling up in front of the TV? (Nice masculine print...)  Oh - just thought of something - those knitted hats with the ear flaps...all of the girls' friends wear them.

For dogs (we don't do cats) - we have two pugs. The older one is about 16 and can't easily get down the one step from the kitchen to the family room. We have a pillow (like a seat cushion) for him to use as an intermediate step. He will also curl up and sleep on it.  There are a few pillows that I made under a corner table for them to lie on as well...they love a cubbie/semi-enclosed space. I've made lightly padded mats - double layer of fleece - to use on hardwood floors or when camping.

Pam - adding LCIS & ALH to the mix, 8/25/08
Dx 8/3/2007, DCIS, <1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+
Posted in: Tests, Treatments & Side Effects + Surgery - Before, During, and After, Created: Nov 18, 2008 10:32 pm

MRSA Staph infections

There's been a very interesting series of articles in my local paper about MRSA in hospitals.

http://www.seattletimes.com/html/localnews/2008396215_mrsaday1.html

Pam - adding LCIS & ALH to the mix, 8/25/08
Dx 8/3/2007, DCIS, <1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+
Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Nov 18, 2008 02:52 pm

I'm bitchy, I moan, I groan.....anyway.

A huge that sux to all.

LuAnn - I don't know, sleeping through a treatment sounds kind of nice. Great news hearing from your son. Hope he stays safe.

Bonnie - hope they're just bone cysts

Wish - you can't win with that boss of your husband's, can you?

I wish we could go back a page, but then I'd lose everything. If I were as good as Traci, I'd be taking notes.

Kathi - first mammo was weird. I didn't know how much it bothered me til it was over and there was a big "whooooooosh and aaaahhhhhh".  Rads didn't firm up my breast much and it didn't hurt as much as anticipated.

Felicia - good job on the kid!  Do you ever hear 'joy to have in class' and wonder just whose kid they're talking about?

Not much going on here. Will be seeing my internist today to get a prescription for Effexor to replace the Zoloft I've been on forever. Once I get the level right, out comes the tamoxifen.

My IOS - the brother of a good family friend died last week of throat cancer. This is the third out of 5 brothers who has died of cancer. A 4th died in a dock accident. All we do is pray that Mike stays healthy. I do not like funerals for 48 year old people!

Pam - adding LCIS & ALH to the mix, 8/25/08
Dx 8/3/2007, DCIS, <1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+
Posted in: Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Nov 18, 2008 01:51 pm

What should I expect?

From www.imaginis.com: "Diagnostic mammography is different from screening mammography in that additional views of the breast are usually taken, as opposed to two views typically taken with screening mammography."

15-30 minutes, maybe more if they have to take more pictures. If it's digital, they don't have to wait for films, so it is easier for the radiologist to have the tech take more images.

You can expect results in as little as that same day or as much as a week - it depends on whether or not there is a radiologist on site to read it and if it is using a digital machine. With the one that found what turned out to be DCIS, I had the results right then, with the doc showing me on the screen where the problem was. 

It may hurt some - tylenol or advil is ok to take beforehand, but lots of women don't have any pain.  Don't wear any kind of deodorant, anti-perspirant, powder, lotion.  Residue can give problem readings.

I hope it goes well.

Pam - adding LCIS & ALH to the mix, 8/25/08
Dx 8/3/2007, DCIS, <1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+
Posted in: Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Nov 18, 2008 12:36 pm

About-to-Start-Hormones Group

I'm headed to my internist today to change from Zoloft to ... something else. Probably Effexor, if there's a generic.

I don't know how my cycles could get any worse than what they are today. The oncologist said they'd probably get lighter. Maybe she just said that to make me feel better??

Pam - adding LCIS & ALH to the mix, 8/25/08
Dx 8/3/2007, DCIS, <1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+
Posted in: Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Nov 18, 2008 12:10 pm

dcis non invasive then why worry?

barry - sometimes the stuff is there, but the mammogram reader (radiologist) doesn't see it.  Digital mammograms help, but the research in the past few years has shown that the best readings come from doctors who do only breasts and then lots and lots of them.  More experience reading = better odds of seeing something.

An MRI should be performed before surgery, if there's a biopsy, really, don't worry about seeding. It is so rare and unlikely - far worse would be to not have a biopsy and then miss something which could be resolved with surgery.

As long as this is just DCIS, you won't need chemo at all and even with a microinvasion, odds are pretty darn high that no chemo for it, either.

Second opinion on the biopsy pathology is a good idea. I have my mammos/MRIs/biopsies (and surgery) at one breast center/hospital, but my oncologist is at a different one. She arranged to get the slides and had the path redone there for this bout with LCIS/ALH. Same result. No cost to me (well, insurance paid).

I said on your other topic, and I'll say on this one, too. Consult with everyone - med oncologist, radiation oncologist, plastic surgeon (if needed) before any surgery. You don't want to get cut and then find out that a treatment option isn't open to you.  Surgeons cut, oncologists treat.

take care.

Pam - adding LCIS & ALH to the mix, 8/25/08
Dx 8/3/2007, DCIS, <1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+
Posted in: Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Nov 18, 2008 11:49 am

Second time around, will they want to take out more nodes?

Barry - where in the NW are you?  You may want to talk to a radiation oncologist about Mammosite before you have surgery - not all women are candidates and not all rad oncs will use it. Mine, for instance, will not use it unless it is conjunction with a study and then only for women post menopause and a certain age ...he and his colleagues are not convinced as yet. 

Since this has been such a rocky road for you, getting all the opinions in place before they start to cut would probably help a lot.  It would not be good to get all the way and find that another option is lost or that you have to find a different doctor.

wishing you the best.

Pam

Pam - adding LCIS & ALH to the mix, 8/25/08
Dx 8/3/2007, DCIS, <1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+
Posted in: Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Nov 17, 2008 04:22 pm

I'm 27 and just dx with DCIS

Ailla - My mom had BC when she was a post-menopausal 62.  My doctor had me get my first (baseline) mammo at 35, then the next one at 40. My sisters had the same recommendation.  Even though she was post-menopausal and there was no familial history, they all felt that an early baseline was a good idea. 

They say you get more radiation flying at 35,000 feet than you do with a mammogram.

good luck to your mom.

Pam - adding LCIS & ALH to the mix, 8/25/08
Dx 8/3/2007, DCIS, <1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 17, 2008 01:41 pm

Jodi (Jodian)

I remember when she joined, how concerned she was over her pregnancy, and her joy at knowing that she would have a healthy baby.
My deepest sympathies to her family and friends.
Pam - adding LCIS & ALH to the mix, 8/25/08
Dx 8/3/2007, DCIS, <1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+
Posted in: Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Nov 17, 2008 01:37 pm

New vitamin D research statistics?

DCIS is non-invasive. The cells are contained in the ducts.

Pam - adding LCIS & ALH to the mix, 8/25/08
Dx 8/3/2007, DCIS, <1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+
Posted in: Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Nov 17, 2008 01:31 pm

What to expect after lumpectomy

For both of mine I took several days off. I had general both times, used a few Darvocet, and rested.  I second the sports bra for after the compression bandage comes off (my doc likes the 40-ft long ace bandage) - I kept it on 24 hrs/day til the day I went back to work.  Because I have relatively-low BP and anesthesia seems to make it worse, I held off work until I felt ok driving. That, and I'm a wuss with a lot of sick leave saved up.

I was able to shower within 48 hours the first time and 24 hours the second. Steri-strips stayed on for about 10 days.  No heavy lifting for a bit, but walking was highly encouraged. Take it easy and you should be fine.

Pam - adding LCIS & ALH to the mix, 8/25/08
Dx 8/3/2007, DCIS, <1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+
Posted in: Tests, Treatments & Side Effects + Just Diagnosed, Created: Nov 15, 2008 11:40 pm

Recently diagnosed with Atypical Hyperplasia

Feick2,

Chemo and radiation are not used to treat atypical hyperplasia. 

Atypical Hyperplasia is not cancer, it is a pre-cancer or marker.  It is usually an incidental finding - they are doing a biopsy of a lump, nodule or lesion and the pathology shows ALH or atypical ductal hyperplasia (ADH). If that is the case, they will remove the nodule, but that probably won't remove all of the atypical cells, just what is in the area. If there isn't anything solid to remove, it will probably be left in place & you'll be watched closely. 

Other than that, the treatment is Tamoxifen, lots of monitoring (mammos/MRI alternating every 6 months, clinical breast exams), sometimes a prophylactic mastectomy is offered. Since your risk of developing an invasive cancer is higher, you'll be monitored for years to come to make sure that if anything develops it's found early.

The good news is that it is not cancer and unless it was found in conjunction with something cancerous, you won't need any chemo or rads.

I had surgery at the end of October to remove the nodule where LCIS and ALH were found. The incision is healing well and I'll be starting tamoxifen in the next couple of weeks.

take care.   0h - take a look at the LCIS discussion topic down a bit on the page. ALH/ADH fits in with LCIS and risk.

Pam - adding LCIS & ALH to the mix, 8/25/08
Dx 8/3/2007, DCIS, <1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+
Posted in: Tests, Treatments & Side Effects + Alternative, Complementary & Holistic Treatment, Created: Nov 15, 2008 05:03 pm

Vitamin D roled questioned

My PCP ordered a check of my Vit D levels with my normal annual bloodwork. While Vitamin D deficiency may or may not have anything to do with BC, my levels were very low. I had 50,000 IU of Vit D to take weekly for 8 weeks, and since then have been on 1000 IU/day, and will have my levels checked again this week. Taking too much is dangerous - it is not water soluble.

I don't know about big pharma, but the big vitamin industry doesn't seem to have any problem with charging high prices for vitamins.

I have had numerous discussions my PCP and recent discussion with new oncologist on what supplements I'm taking and how they interact with prescription meds I'm on.

Pam - adding LCIS & ALH to the mix, 8/25/08
Dx 8/3/2007, DCIS, <1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+
Posted in: Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Nov 14, 2008 06:37 pm

dcis non invasive then why worry?

Deirdre - none taken. And back at you. Smile

See, I wouldn't consider a mastectomy for single focus DCIS because I was willing to accept the risk level that lumpectomy/rads/tamoxifen gave me. My mom had invasive 18 years ago. At that time, the lumpectomy approach was just coming into vogue. She not only had an elective mod. radical mastectomy (they yanked out all nodes), she had chemo to boot. She's got lymphedema and chemo brain, but has never had a recurrence. knock on wood. It might have been over treatment, but she couldn't deal with anything less.  Mastectomy is a real option for LCIS, my current dx, even though it is just a marker for cancer. Right now, I'm in the let's watch it and see. I may end up with lumpectomy every flippin year and may eventually change my mind.

When I was dx, I told one of my sisters, "When mom asks why doesn't Pam do such and such, tell her that it is my cancer, not hers, and my decisions may well be different." I guess that goes for everyone. (words for me to remember) 

That's the beauty of having this forum, knowing that there are so many women out there going through what seems to be the same journey, but in fact, it's all different for each of us. There are so many different doctors, medical centers, opinions. Where you live can mean huge differences in treatment options.  Maybe it's because I've been lucky so far that I can say trust the doc?  who knows. Undecided perception and reality and all that.

take care.

Pam - adding LCIS & ALH to the mix, 8/25/08
Dx 8/3/2007, DCIS, <1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+

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