Member Since: September 5, 2007
Last Login: November 22, 2008
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DX 8/17/07 IDC, w/DCIS, 1.8cm, Stage I, Grade 2, ER/PR+, HER2-
Lumpectomies 8/17/07, 9/17/07, 10/15/07
SNB 9/17/07, frozen section clean, immunohistogram showed 1 node with .6mm and .4mm cancerous spots
Anxially node dissection, 10/15/07, 0/4
Chemo, TC 4x, via IV, 12/27, 1/16, 2/6, 2/27
Tamoxifen 5-10 years, started in June 08
| Diagnosis: | Dx 8/17/2007, IDC, 1cm, Stage I, Grade 2, 1/7 nodes, ER+/PR+, HER2- |
| Diagnosed: | August 17, 2007 |
| Type: | Invasive or Infiltrating Ductal Carcinoma |
| Recurrent? | No recurrence |
| Metastatic? | No |
| Stage: | Stage I |
| Lymph Nodes Removed: | 7 |
| Positive Lymph Nodes: | 1 |
| Tumor Size: | 1cm-1.9cm |
| Tumor Grade: | Grade 2 or medium grade |
| Hormone Receptor Status: | Tumor has both estrogen and progesterone receptors |
| HER2/neu Status: | Tumor does not have an excess of HER2/neu receptors or genes |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: 21 hours ago
Jan 2008--Ain't it Great?So it's the weekend! First off, I want to acknowledge how positive Kris is being. It makes me happy to see you making an informed decision for yourself and taking action. I hope I can handle the next hurdle that comes my way with your WTF attitude. You go, girl! Secondly, CathyCA, you must think I'm a complete dolt. For some reason, I thought your 3 day was LAST weekend! And I'm sitting here, waiting for the report. So, enjoy your walk and allow yourself to celebrate that you're walking a 3day this year, rather than what you were doing last year. You've come a long way, baby. (I don't know about the Bioelectric Impedance Analysis-have to tried posting the question over on the Lymphedema discussion? There are a couple of women there who seem to have heard of everything...) It sounds like you guys are getting a lot of snow, Carla. Hope you're prepared for it. You, too, sound like you have a game plan for your upcoming tests (the snow better melt so you can get to your appointments w/o hassle!). Fingers are crossed that everything will be okay. Shouts to Carol on her cation! I hope your golf swing is unaffected by the port removal (or if you completely suck, blame it on your de-porting), and that you get that water boob out for a swim! Continue to enjoy and libate! (Is that a word???) I have a question for anyone who has done therapy. I went for a consult with the LCSW and came away feeling like I hadn't accomplished anything. I mean, I laid out my issues and asked her suggestions on how to ameliorate them and she had nothing for me. She pretty much said she's a safe place to talk things out (which is good for me, since I've had this stuff bottled up for years, but I want resolution!). Am I expecting too much from this? Does one get resolution by going to therapy? Should I shop around-or do you have to give it a chance to be effective? Sorry so many questions, but I'm thinking electro-shock therapy might be a better answer for me... Anyhoo, I want to move my laundry around before I head out to pick up my dd from school (she couldn't get up early enough to drive herself today, poor baby). Happy Friday, everyone! D1 The things that we're afraid of are gonna show us what we're made of in the end. Dx 8/17/2007, IDC, 1cm, Stage I, Grade 2, 1/7 nodes, ER+/PR+, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Nov 19, 2008 06:37 pm
Jan 2008--Ain't it Great?Holy shit. No, Kris, it's FUCK YOU BREAST CANCER!!!!!! (I hope I didn't offend anyone.) I guess you're going to be seeing your surgeon tomorrow. I'll be sending all my very best your way. Be strong, and like Carol says, stay optimistic. You've got the sparkle of the Jewels on your side. CHJ-I'll bet you're a little shaky about your mammo/MRI. Hold your head up and march on in there. Don't second guess any decisions you've made along the way-you made them when they were the best options at the time. You're going to be great, I can just tell. (Weather cold enough for you?) LWDana-Glad to have you back. It sounds like your cruise was just the ticket-despite the fact you had to dress for dinner. I know what you mean about wanting to call your dad. Mine died seven years ago and I talk to him all the time. You have to know he's there for you-and will probably do a better job parenting with the advantage of hindsight. Don't ever give up on him. As for your family, be gracious, but firm. Family is a tough nut sometimes. But you have to look out for LW (who will find a way to prepare for those exams-you always amaze). Oh, and it's so unfair that you didn't gain any weight on your cruise-you put me in an environment with that much rich food and it's a disaster waiting to happen. So I went to my gentle yoga trial today. I LOVED it. This would have never been my schtick a year ago, but I'm a little different now. I'm going to call the coordinator tomorrow to see if my friend and I can pay a prorated amount for the remaining three classes in this session, rather than waiting till Jan. 21 (day after inauguration!!!!!) to start the new session. Oh, and I made the first call to a therapist. It led to a list of referrals since the doc I was calling was not accepting new patients. So I made the call to a LCSW on the list since it's a woman and she deals with relationship issues (which I believe is the crux of my bad feelings). I'm a little anxious awaiting her return call as it means I'll have to start actually spilling some beans, but I can do it. I know you guys are all cheering me on and it helps more than you'll ever know (and if you're not cheering me on, you should.) Carol, have a good trip and I hope some golf is in the cards for you. Onward. D1 The things that we're afraid of are gonna show us what we're made of in the end. Dx 8/17/2007, IDC, 1cm, Stage I, Grade 2, 1/7 nodes, ER+/PR+, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Nov 18, 2008 11:50 am
Jan 2008--Ain't it Great?Hey Ladies. So the Vikes and the Hawks still suck. At least the Seahawks KNOW they're getting rid of their coach at the end of the season... Had my massage yesterday. It was as good as the first one. I've scheduled another for next week and after that my therapist wants to reevaluate. I'm thinking maybe I need to go in EVERY day! Now I'm back from the gym and I'm putting off my shower because that means I have to climb in to my Flexi machine. BORING! Damn, LJ, you know your audio shit. I'm impressed. I need you to be closer by when I'm in the market. I love your attitude about your students' grades for the next marking period, SISKimberly. It reminds me of the "innocent until proven guilty" thing. I hope they start to see the light this trimester. And I don't see anything wrong with rewards. Sometimes they add the extra incentive we all need. So I see Kathleen is getting her PET scan today. Hopefully, it will help her team better define what they're going to do during her surgery on the 4th. What surgery did she decide to do? (Sorry if I missed it.) Doggoneit, Carol, I wish I'd just called. I know my crew gets their bowels in an uproar (is that an okay expression to use around you, now?) when I disappear in to the phone, so I try to be sensitive about that. The darn time difference makes it tough. Congrats on your cancerversary, Kris! Thank God it's been a year!!!!! WTF, Carla?! How did that make it past the thought police??? I tried arguing that mine stood for "Friends United By Cancer," but the gal on the phone didn't buy it. Hey, I saw that you guys were getting some snow-drive carefully. You too, Paula, you're probably seeing some white stuff, too. I'm sending my very best vibes to you and Ed. Please take care. CathyCA-waiting for the results of your 3day... Thanks to my SP! I received a little Thanksgiving cheer in the mail yesterday. It made me happy and very, very thankful. Okay, off to my machine... D1 The things that we're afraid of are gonna show us what we're made of in the end. Dx 8/17/2007, IDC, 1cm, Stage I, Grade 2, 1/7 nodes, ER+/PR+, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Nov 16, 2008 12:56 pm
Jan 2008--Ain't it Great?So, I've had a hankering to give our girl Carol a ringy dingy, but have hesitated because I don't want to interfere with family time. So a post will have to do. How are you? As I recall, Friday your port was headed out to sea. Perhaps as I read through the thread I'll see how you're doing, but you should know, you've been on my mind. Ah, yes, there's the mention of your "de-porting" (lol). I love those warm blankets-the only good thing to be had in a surgery, imo. Darn it all, anyway! Why does the ds have to do his weird teenage shit when you leave town? Does he want you hanging in his business all the time???? Tell him it's time to straighten up and fly right. You and his dad are tired of being disappointed, particularly when he seems to be moving along so well. Maybe you all need to come up with a more constructive way for him to decompress whenever the whole "being a teen" scene gets overwhelming. Would he be receptive to talking about options with you guys? (Why is it so hard to be a teen? You'd think with all the years humanity has been working on it, that it would improve, but NOOOOOOOO!) Yellow Bird-the rum drink with crème de banana, orange juice and pineapple juice. You drink too many of them before you realize you're wasted... Well, maybe your sleeve fits okay, then. I will say, I HATE wearing my compression every day and really look forward to about 7p when I allow myself to take it off. The sick part is that when I take off the big bra, I can't just go braless-too much of a shock to the system-but wearing a regular bra feels great. How sad is that???!!!! I remember the day when I'd shed the regular bra at 7p and felt like the world was right again... Okay, I'll try to relax about the boyfriend for college girl. I guess I don't really have to deal with it till he comes for dinner over Thanksgiving break... CathyCA, good for your doc in being so thorough. I really like having all the testing done for my peace of mind. I imagine you're getting the same comfort from your medical care. Oh, and I know exactly how you feel about having buried your chemo memories. When we were in the Bahamas, one of my old friends was really curious about chemo and I found myself describing some of the se's and, in the back of my mind, wondering where on Earth I found the strength to deal with them. I hope your MIL finds the strength, too. Oh, got a smile out of your ds' charges from Claire's. And our kids think we're stupid... Good luck for your 3day! I'll be there in spirit (and marveling at your wisdom in forgoing the tenting experience). Reminder to Carol-you're supposed to stay AHEAD of the pain. Take the scripts and some colace. Maybe you can use it as an excuse to call in sick tomorrow... Paula-I cannot imagine you doing the 80 year old shuffle-you are as vibrant as anyone I've ever met! Oh, I do hear you on the whole boyfriend scene. I want to talk to my college girl about boyfriends (this is her first relationship-unless you count the high school years she spent pining for this kid) and how you are still "you" and don't have to become anything else to please this other person. I want her to know that her goals and dreams should not change to accommodate anyone else-it's okay to achieve things as an individual-couples can still celebrate the individual successes a partner has and still be a couple. You know, that kind of thing. I'm just afraid I might blow it because she'll see right through to my disappointment that she's with this guy. I'm going to have to keep it in check. I remember from my own teen years, anything my parents really wanted me to do, I did exactly the opposite (and I wasn't particularly rebellious). Oh, and you guys want to see drinking smiles? You should see the photos we took after we'd finished our Yellow Birds! Those are not fit for the internet!!! I'm off to the in-laws this afternoon to watch the Vikings. My fil has the football package so we can see the Vikes every weekend. It really chews up the time I'd spend puttering around the house, but it is fun to watch the games (and if they're willing to pay for the package, I'm all for it!). Tomorrow I get my next massage-I am SO looking forward to it! Later. D1 The things that we're afraid of are gonna show us what we're made of in the end. Dx 8/17/2007, IDC, 1cm, Stage I, Grade 2, 1/7 nodes, ER+/PR+, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Nov 14, 2008 01:54 pm
Jan 2008--Ain't it Great?Honest to God, who invited LJ to our party? She's so lippy... Today I seem to have an "eat" going. I'm trying not to snack, but my mouth really wants stuff! I find it annoying as I'm still 6 pounds away from my goal (although I'm about to kiss off two of those pounds and revise my goal-I just know if I do that, though, it will be the beginning of the end...). Maybe if I spend some time with you all, my mastication phase will pass. So I got some pix from my sister to post. My sisters are identical twins, although they don't look much alike to me. The one with the shorter hair was the one who had Hodgkin's Lymphoma 3 years ago. She now has a new lump (I told you all about that) that her doc's have changed their minds on and will have to have it removed around Thanksgiving time. And because the news just keeps getting better, she had a bad mammo since we've been home and now has to figure out what's next with that (this on top of the bad thyroid that hasn't been managed, yet). She had to turn around and head out on a business trip the day after we returned from Eleuthera, so she hasn't had a chance to do anything about her health. Ugh, Debbie Downer. So here are the pix:
This one is the three of us at a beach we used to frequent as kids. The little island in the background on the left hosted our snorkeling forays many, many times.
Here we are, drinking the Kitty dry in the Nassau airport. Those are Yellow Birds we're enjoying!
Finally, I had to post one that proved we actually did some work! We sorted many shelves of books and then my librarian sis had us color code them so the patrons would know what to expect from the books. We also made circ cards and envelopes for the cards in the back of each book. This is just one case of books, there were a total of 3 cases we finished up in this particular library (all of the children's collection). So, other than LJ giving me shit for my blood pressure and single-handedly driving our economy, what's up? Julie, taking the house off the market right now is probably a smart move. You won't get your value back in this economy. Join me in the renovation revolution! (I'm redoing a bathroom.) We can commiserate online... Geez, Carol, everything's just aching to test your emotional state, isn't it???? (At least it's the weekend!) A clean kitchen sounds like the best gift, ever, Carla! Glad your girls came through for you. I can't believe you have time for a post, KathyL! I hope the bday party goes better than the family celebration. Get your dog a wheelchair! (Seriously, I hope he's back to his old self soon.) Best birthday wishes to Paula and Ed!!! I hope you have a grand celebration! Onward! D1 The things that we're afraid of are gonna show us what we're made of in the end. Dx 8/17/2007, IDC, 1cm, Stage I, Grade 2, 1/7 nodes, ER+/PR+, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Nov 13, 2008 04:05 pm
Jan 2008--Ain't it Great?Has it been since Monday that I've posted? Time flies! Well, college girl's news was that she has a boyfriend (she's almost 20 and this is her first one). Unfortunately, it's not the guy I would have picked for her. She's known this guy since they were in 6th grade together and he hasn't always been a good friend. She's always had a crush on him and I know they've hooked up (I think I'm using that right) on and off since they were freshmen in high school (much to my dismay). I know she's always held a candle for this kid (part of me thinks it has something to do with how women form emotional attachments once we establish physical attachments, but that's probably too heavy to discuss here), but he has been emotionally abusive to her over the years. She acknowledged that he probably isn't the guy dh or I would have picked for her, but she says he's changed (oh yeah, heard that one before). She would like to invite him to dinner at the house over the Thanksgiving break, so I'll be on my best behavior. (Is it time for me to mention that this kid did well in high school, but dropped out of college after the freshman year? Now he's thinking about attending community college in South Carolina, where his mother recently relocated. I can already see my college girl dumping her prestigious college to follow this kid...) What a rant! Hopefully, this will allow me to behave myself around my daughter and her, swallow hard, boyfriend. License plate options. Love your idea, LJ, but there's already someone driving around my town with that one! And BC SUX would have the same problem as FUBC, I'm afraid. So here are my ideas: DTRMD1 D-WON BP1BC0 (BP are my real initials) FU1BC0 What do you guys think? LJ, thanks a million for the weight videos-it's hard to misunderstand how to do the exercise when you watch someone do it correctly. I can see that many of them will do the same thing as my bands, so when I graduate from the bands, I imagine I'll be substituting these. If you find some more, send them on-new ideas are always welcome. Carol, I read about your visit with Baby Katie with a big smile on my face because it wasn't clear to me who drank the 4oz and then experienced the big burp!!! Glad you had a good time. You look fabulous in the photo. I think your hair may be thickening up again. Oh, and the baby is really cute. Your sleeve should not be cutting off circulation to your fingers. When I fly I wear my sleeve and a gauntlet (glove w/o fingers) to keep the compression from sending fluid into my hand. I don't have to wear the gauntlet every day, tho. Something about the pressurization when you fly that I need it then. Try this: put your sleeve on. If your skin bulges at the upper arm or wrist around the edge of the sleeve, then it's probably too tight. Didn't you see a le therapist for an evaluation? If so, call her and ask if you can pop by between her appointments to show her your sleeve so she can give you some guidance. My experience with those folks is that they're willing to come out for a few minutes to talk, even if you don't have an appointment. Hope the weather is okay for you. The forecaster here keeps talking about your rain... Oh man, SISKimberly, I'm so sorry your students are disappointing you. That would be hard for me to take-putting in all that effort, only to have it fall on deaf ears. I hope those kids wake up soon and realize that you're one of the best things to ever happen to them! (Sounds like the weekend getaway was good for recharging the ‘ol batteries!) For crying out loud, Carol, what's up with your "whore moans?" I know what you mean about the emotions being right there. As you'll recall, I'm not a crier and since I've been on the Tamoxifen it seems a cry is just around the corner. Maybe your AI is messing with you. (Is everything okay with the ds?) Hey, Happy Birthday, Carla!!! I just sang for you at my computer (and you can thank your lucky stars that you couldn't hear it!). Take care, gang. D1 The things that we're afraid of are gonna show us what we're made of in the end. Dx 8/17/2007, IDC, 1cm, Stage I, Grade 2, 1/7 nodes, ER+/PR+, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Nov 10, 2008 03:18 pm
Jan 2008--Ain't it Great?Hey Jewels! Happy Monday. Life was good this weekend. I looked great in my black tie get-up and even had a man at the function compliment me! Then dd played great in her last fall season basketball game, so she's ready for tryouts, which start tonight. Finally, the Vikings won! (Sorry about the Seahawks, Carol, I was keeping an eye on the score and thinking of you...) Speaking of Carol, you must be with your friend and her baby by now. Sometimes medicine can be such a miracle, can't it? How's the little one doing? So why is sex such a weapon, Carla? That doesn't sound very fair for your dh to use it that way. I'm glad you're able to articulate your emotions to him-that's a huge step. Hang in there. LOL at the thought of you dealing with a poopy diaper, Carol! I hope the baby behaved! I didn't think the mammo hurt that much, either, Norma. Glad it came back clear, but even gladder that you stood up for yourself and got them to alternate with ultrasound. I'm alternating with MRIs, despite the fact that my surgeon doesn't like them for the very reason you mentioned (the excessive false alarms). I'm feeling pretty good about them for me, though, since it's my Georgetown team doing the MRIs and they look at the one I just had done as my new baseline and will look at new questionable areas from that. (Oh, and my mammo report sounded just like yours, it didn't sound like the "all clear" to me, either, but I guess we have to hope these people know what they're doing.) Thanks for the head's up on the skin changes-it doesn't hurt to be reminded of such things every so often. And I hear you on the doc's appts, but the ovary thing really does merit more checking... Quite the story on the heart palps in your son. I hate it when our kids have to watch their bodies like that. My college girl has acid reflux (she even takes daily meds for it) and is constantly having to be vigilant. It sucks for them. Oh, to answer your question about my connection to Eleuthera. My parents were both private pilots, so we traveled by plane a lot as kids. One of the places we landed was Eleuthera. Since we were unable to take off the same day we landed (my parents were only visually rated, so they couldn't fly over the water after dark), we ended up in one of the settlements on the island looking for lodging. Well, this was truly an out-island at the time, so there were no rooms to rent. We ended up being invited into a family home and the people living there became my "relatives" so to speak. I spent a lot of my wonder years with these people and the other people in the settlement. I even attended half of my 6th grade year in the school in the settlement (it was at this time I learned that my hair could not be plaited like the other girls'. One of my early recollections of the differences in race...). Long story short. OMG, Deb, LOL on your snappy repartee!!!! So college girl has made an appointment to call the dh and me tonight to share some news. I'm a little nervous... Oh, and today I went in for my first massage therapy appointment. I'm thinking I'm going to move in to their little clinic so I can get attention 24/7! I was totally drooling! I cannot wait to go back next Monday! I should see what else I need to do around here. I bought some pansies for the front and need to plant some hyacinth bulbs first. Perhaps I should bundle up and do that (I probably should have done it a few weeks ago, but I wasn't feeling it then). Till later. D1 Oh, what do you guys think of a license plate personalization that says "DTRMD1"? My dh didn't get it, but I imagine you all will... (The other idea I had is "D WON".) Opinions? The things that we're afraid of are gonna show us what we're made of in the end. Dx 8/17/2007, IDC, 1cm, Stage I, Grade 2, 1/7 nodes, ER+/PR+, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Nov 7, 2008 04:39 pm
Jan 2008--Ain't it Great?Happy Friday! I managed to find a top to complete my outfit for only $23, so I'm feeling good about myself! I've also scheduled my first massage/MLD therapy for Monday, so that's moving ahead. I've tried ringing up the head therapist recommended to me a couple of times, but no answer. I'm not sure if that's a sign... I'll have to redouble my efforts on that next week. LWDana-it's so good to hear from you. I'm so sorry to hear about your father's death. I guess I didn't realize he was battling cancer, too. I'll bet it made him a lot more comfortable to know his daughter was caring for him. And you gotta know, he was/is so proud of your accomplishment, even though he couldn't celebrate the way he would have liked. Enjoy your cruise and know it was his gift to you to cherish. I'm confident that you will find a job that suits you-you seem to have a great deal of compassion. Hang in there-and I, too, like the sound of your tumors stagnating. You're going to come out of this a stronger person (if that's possible). ;) CHJ, what a great testimonial from your co-worker on the election. It really puts it in perspective, doesn't it? Hope the colonoscopy went well today and you got a humongo ham sandwich to celebrate! Wow, Therese! Your recon is complete! I'll bet you thought the day would never come. Congratulations! You know, it's funny, part of the reason I've been stalling on keeping the short hair is because I'm not ready to look like my mom, either. My hairdresser said she'd like me to grow it out a little more, but keep it short. She keeps saying she wants to try something edgy with me. I guess "edgy" doesn't sound like my mom's hair... Have a safe trip, Carol. Don't sweat the small plane too much. Both of my parents were pilots and we only flew the little ones. Sometimes I feel more secure in those planes. The bloody mary should help, but don't have too many. When my sisters and I were leaving the Bahamas last week we had a 2 ½ hour layover in Nassau and had some money left in our kitty (we pooled our money for the week to minimize arguments over finances). Well, we decided to drink the kitty dry. So we each ordered up a couple of yellow birds (that's the banana rum drink). Next thing you know, we hear our names over the loudspeaker that they were closing the door to our flight and were "last calling" us! We freaked out! And then completely stumbled to the plane. I think I'm still nursing that hangover! I agree with you, KathyL, I think Beau Biden could have a good career in government service. I hope he gets the nod. Oh my, Sherry, take a deep breath and exhale slowly. I hear there's a lot on your plate and it sounds like it's completely stressing you out. Make yourself a list and triage it. Only do what you can do without stroking out and let the rest of it go (oh, and send this same message to me when I start freaking). It's all good. Enjoy Brandy and her pals. I should get back to my laundry and walk the dog before I start primping for my black tie affair tonight. At least it shouldn't take me long to do my hair!!!! Onward. D1 The things that we're afraid of are gonna show us what we're made of in the end. Dx 8/17/2007, IDC, 1cm, Stage I, Grade 2, 1/7 nodes, ER+/PR+, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Nov 6, 2008 12:07 pm
Jan 2008--Ain't it Great?Time for a quick post, then off to be more productive (well, I have cleaned the stove and vacuumed already...) Saw the radonc yesty (my baby doc) and he said my MRI was inconclusive. When I pushed him, he used the word, "unremarkable." He said there's some stuff that pops up, but he's not concerned about it. He's using this MRI as my new normal base and the next one in 6 months (!) will be the one he uses to monitor changes. He said he'll follow me every 6 months for a couple of years. Next time he wants MRI and mammo, so I'm going to do the mammo at Arl Hosp and carry it to G'town (where I'll do the MRI). That way, I'm consistently having each of those scans done at the same place, creating a nice little portfolio for myself. Then I went down and parked myself in my onc's waiting area till I got me a script for massage therapy. Apparently, there is no script for the head therapy, I just cold call therapists till I find one in my insurance network and clicks with me. I did get the name of a woman at G'town, but I'm also putting out a few email feelers to people whom I trust in the Arlington Hospital system to see if I can find someone closer to me. Guess the next step is to run the names by my insurance and begin scheduling consults with them. Aside from cleaning today, I'm going to head in to my closet to see if I can still fit into anything that resembles black tie apparel as the dh and I have a function to attend tomorrow night. I think we're just going to fill the table, but whatever. I haven't been to black tie stuff in ages (made the circuit during the Clinton years, if you can remember back that far), so I'm hoping something will fit and look somewhat fashionable. We'll see. Speaking of the Clinton years-happy post election, everyone! No matter how you voted, you have to admit, it's kinda heady to know we're sending an African American to the White House! I sure hope he's up for the job. Julie, did some of those races turn out better for your dh? I'm totally in to the political junkie thing myself. You should have seen me racing around Eleuthera last week, trying to find a bar that would run the Obamamercial and keep their patrons quiet while I watched a little bit o' history being made. Weird about Ed's seizures, Paula. Sounds like you could almost keep the calendar by them. Well, here's hoping they're just part of his cycle and not anything new. Please let us know what the bloodwork says. Yeah, we know Delaware, KathyL!!! Do you think there's a chance your governor will appoint Joe's son, Beau, to the seat? That would be very cool, indeed. Hope the dd's party goes well this weekend. I kinda miss those parties... LJ, as always, thanks for the link to the lifting. I may print it out. I still have to use my bands for another 8-10 weeks, but after that, I'm supposed to be able to introduce more free weights in to my workout. This will be kinda new for me as I used machines before. Hey, as long as I can do some weight-bearing stuff, I'm okay with it. So Carol, do you know where the life vests are on your ferry???? Hope you got there safely. Off to shower and get this show on the road today. My big excitement is my hair appointment this afternoon! Onward. D1 The things that we're afraid of are gonna show us what we're made of in the end. Dx 8/17/2007, IDC, 1cm, Stage I, Grade 2, 1/7 nodes, ER+/PR+, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Nov 4, 2008 04:34 pm
Jan 2008--Ain't it Great?So I made it safely home. It was a good trip. We did some good deeds in a couple of libraries, but the best part was doing it with my sisters. We reconnected as sisters and ran in to some old friends on the island. We were all moved by the impact of all three of us being there, with our childhood friends, all at once. That may never happen again in this lifetime, so it was really special. I don't think my husband will ever understand how that Christmas gift was greater than just about any other I've ever had. Unfortunately, while we were on the island (mostly without phone service), one call that got through was from my NM sister's onc (she's the one who had Hodgkin's Lymphoma 3 years ago and recently discovered a new lump). Apparently, after reviewing her test results, they have decided that she needs to have the lump surgically removed for more testing. (I mean, we couldn't seem to get calls through to our families, but the onc managed to find us!) My sister will be calling to schedule that surgery later this week (she came home in time to vote and repack for a business trip). I'm glad I was with her when she got the call. I know IF she has to do this again, I'll be much better equipped to support her than I was before my own cancer journey. Speaking of my cancer journey, waiting for me upon my return was a letter from the VA DMV saying they were rejecting my request for a license plate bearing the personalization "O FUBC" on the grounds they thought it might be construed as lewd. Ya think???!!! I'm peeved. Now I have to come up with a new personalization and I can't think of anything I'd rather have. Your suggestions are welcome. Maybe you'll get my creative juices flowing. So what have you guys been up to? Hooray to CathyCa on a good mammo!!! One more hurdle cleared. Now it sounds like you're full on into your training for your 3day. Keep us posted on your progress. SISKimberly-I totally hear you on the impatience to get back to normal. Quite frankly, I think that IS normal. I do understand the whole "tears of a clown" gig, though. Please vent any old time. I'm also wondering how Kathleen's consult with the surgeon went. It was yesterday, right? Gosh darn it, Paula, what's up with the heart? I know you must be stressed out-everytime you post your agenda it makes MY heart palpitate. PLEASE take care of yourself. Mention this to one of your docs. We worry about you. Very eloquent, Carol. With Kimberly's start, you really took off and put our feelings in to words. I think what you wrote is why I'm trying to get a script for a therapist. While I really, really need you guys to help me on my journey, I think I have some more stuff that needs professional attention in the hope that I can not only get back to the physical normal I enjoyed 18 months ago, but also the mental normal I've left behind many years ago. LJ!!! Yes, I hear you on the bone mets fear! I awoke one morning with a pain in my ribs and was convinced something was really wrong. I tried to ignore it for a couple of days and only casually mentioned it to my physical therapist, but it wouldn't go away and I didn't want to appear stupid by talking about it. I ended up skipping situps and any exercise that seemed to be aggravating it and it did go away. But my head is a scary place these days. OMG, Norma! A cyst on your ovary! What do they do for that? I really wish this weren't happening to you. KathyL, thanks for the encouragement re: therapy. I really don't know how you do it all and still have time for the Jewels! Gosh, Sherry, you're really having a time of it, aren't you? I hope as you settle in to your new job things will improve. Love your optimism in getting over the Jewel Sapphires (Blues), Therese. Thanks for helping us keep it in perspective. And you can steal my ideas any ol' day. I live by the words, "there is no such thing as a new idea, the difficulty is to think of it again." I think it was Thomas Wolfe who said that, but don't quote me. Ideas for the survival bag-Biotene mouth wash, Colace, immodium, lotion, lip balm, A+D ointment for q-tipping in a dried out nose, good smelling shower gel (because it makes you happy), um, that's all that's top of mind... Hooray for heavy twilight, Carol! Glad you pursued it. So we'll mark our calendars... Hey, I'm sorry dh wasn't on the same page when you tried to communicate your feelings. I've had a couple of disappointments in that regard. Heck, I'm disappointed trying to communicate my happy thoughts (reference my comments about being with my sisters in the opening paragraph). Somehow it's just different once you've walked a mile in the shoes. I don't know why, but it is. I think we should continue to try to connect with the mere humans in our lives, but really, let's face it, the Jewels get it. Hooray to Therese and SISKim for their cyber empathy. LJ, you just da bomb, gf! Okay, bring on those hot flashes! Hey, CHJ, thanks for the perspective. Your input is always so spot on. Try to stop in more often. LOL, Julie!!! Carla, I sense some moving forward in your post. Good for you. And I still think Pippi Longstocking was a hippie... I really like the way you handled your socializers, SISKimberly. The cause and effect lesson they will receive will likely stick with them forever. (Oh, and I liked your comments to Julie about her poop system!) You remind me, my sisters and I dressed for Halloween, too. We all wore green t-shirts with a large "P" drawn on the front. Then we each gave ourselves one black eye. We were the "Black Eyed Peas!" Get it??? It was fun having people guess. Great entry from our poet laureate!!! Good to hear from you, Joan. I hope you're getting more and more obedient in your classes every day! (I imagine Lucy's a very good teacher!) ;) I love the story behind the butterfly tattoo, Carla! Although, with my needle phobia, the only tattoos I'll have are the four rad dots running across my chest-good news is that one shows up when I wear v-neck clothing, so I can point out that it's a tattoo to those who would be amused by such things and feel very cool, indeed. Hey Deb, Ima gonna bitch slap the next person who says "at least you're alive." Geesh. Paula, I'm not happy reading about Ed. Particularly when it seems he was doing so well for a while, there. Does his med team have any idea why he'd be having these problems? Are they related to his tx? Oh, speaking of things medical, my appointment with my radonc has been moved to tomorrow. So I imagine I'll be out of pocket pretty much all day (gym in the a.m., appointment with my legu at noon, then the radonc). I'll let you know what he says. I'm going to try to stop by my onc's while I'm at the hospital and see if I can't shake some scripts outta him. Don't forget to vote, everyone! XOXO D1 The things that we're afraid of are gonna show us what we're made of in the end. Dx 8/17/2007, IDC, 1cm, Stage I, Grade 2, 1/7 nodes, ER+/PR+, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Oct 29, 2008 04:05 pm
Jan 2008--Ain't it Great?Hi you guys. I'm in a library where I worked 3 years ago and it's still up and running (a major feat on this island). They have internet, so I'm like a crazy woman checking emails and such. I'm composing in the bc.org box, not Word, so I better not lose this. I'll be brief. (You guys are thinking, yeah, right.) We worked in a tiny public library Mon/Tues and categorized 100's of books, made envelopes for the circ cards, and made circ cards. It looked great when we left. My librarian sis helped the librarian that "works" there learn the ropes of tracking circ and making the library more fun. She even set up a bunch of educational websites on the desktops of the computers, so the kids just have to click on them for homework help. Every night when we go home we mix up some island drinks and pop a movie in the dvd player and doze off. This morning my librarian sis went to the next library on her own to check things out (as it were) and then came home to get us. We drove 45 minutes to a town with a laundromat to do our laundry and now we're in that town's library. We're hoping to score some fresh seafood to make for dinner tonight (we've been getting off work too late at night and the boys with the fish are gone from the docks). No time in the sun, yet, although my non librarian sis and I did manage to snorkle for about an hour one morning. It was good. Tomorrow back to the "stacks" (library joke). We're hoping we can finish tomorrow and have Friday off. Yay!!! Oops, the kids are off from school and are coming in to the library, so I have to get off the computer. Till next time... D1 The things that we're afraid of are gonna show us what we're made of in the end. Dx 8/17/2007, IDC, 1cm, Stage I, Grade 2, 1/7 nodes, ER+/PR+, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Oct 24, 2008 05:20 pm
Jan 2008--Ain't it Great?Oh my gosh, you guys, I'm just frantic getting ready to leave! The folks who live on this out-island don't have access to many of the luxuries we enjoy in the States and my sister gave me a shopping list to make their lives easier. So the beginning of the week was filled with shopping and getting my own stuff ready to go. Then my sister was rear-ended, totaling her car, (she has some whiplash and neck issues), so she couldn't get out to buy the stuff on her list. So she sent it to me. Now I'm wondering where I'm going to pack my clothes! On top of all this, I've been calling my med team this week to make sure everything is set for my rad onc checkup the day after I return and come to find out, they needed me to have my MRI BEFORE I went in for that appointment, so they can talk about the pictures with me when I go. So, I had to rush in at 5:45AM for my MRI yesterday. I was yanking on my big girl panties BIG TIME, Carol, as they could not get the IV in for the contrast. My hand is all black and blue and swollen today. It even hurts a little to type (maybe I should pour me a drink to alleviate that pain...). I was so stressed out by the experience that I gave myself diarrhea (who said it's not mind over matter??). That was fun having me race off to the bathroom just as they were going to put me in the MRI machine. (This bc stuff is still a laugh a minute!) I won't know what they saw on the MRI till I get home. I did finish up p/t for my rotator cuff this week. I'm not sure I'm really ready to be sprung, but I have a list of exercises and my therapist gave me her email so I can check in with her in six weeks for the next set she wants me to do. She said that if in 8-10 weeks I'm still having the pain that I should get a new script from one of my docs and start another round of p/t. I'm kinda hoping that the exercises and the massage therapy (if my onc would ever call me back to give me a script for that!), will take care of it. Massages sound much better to me than p/t. Are you guys tired of reading about me? Let's see what you all are up to. Carol, thanks for the ringy dingy. I'm sorry I missed you. You're always a mood brightener. It sounds like the ds losing his wallet was a "found" opportunity for you! How cool to reconnect with an old friend! (And how great that the wallet was found right away.) I leave for my trip in the morning, Julie. I return on November 2. It will take us all day to get to the island tomorrow. Then we get up on Sunday and do our grocery shopping and drive about 4 hours to the other end of the island to the house we've rented. Luckily, the two libraries we're working in this time are only about 45 minutes apart, so our house is kinda in the middle. That way we won't have to move during the week. When we're done working next Friday, we're going to drive back up the island about 3 hours and visit our old family friends, who live there. Then on Saturday, we're going to drive the rest of the way toward the airport (in fact, about a half hour past it) and spend the day on a cay there. We'll take a water taxi to get to the cay. This is our day to kick back. Then early on Sunday, we start the process of returning to our homes, which will take the entire day. I think I get in to the DC area at 8pm. I'm really looking forward to this (even though my sister sent the work schedule and we start at 8am every day, but should get out at 5pm-plenty early enough to get in to trouble!). It's a good thing you and your dh ironed out the school situation BEFORE you moved! It sounds like your ds is doing well this year and I can completely understand that you would want to get him in an academic environment that would continue to encourage him. Oh, and don't worry about the decorations-we don't have a pumpkin, yet! (And now it's not my problem!) Good to hear from you KathyL! How cool that the dd's picture was chosen. I remember my own college girl was honored in the same fashion many, many years ago. I never did see that picture, but people told me they saw it in the Ed building, and then in a local mall when they did the display there. I hope you're a better mother than I and get a chance to oogle her talent. Happy 3rd b-day to the ds! Ages 3 and 8 were my favorite years. Have a great partay! Don't you hate those tests that require fasting, Carol? I can go without food on any given day, but if you tell me that I CAN'T eat, then I'm starving! Hope it all went well (I don't know what half those tests are for, either, so don't feel bad). Keep up the exercise (I'm jealous of the yoga-looks like that waits till after the first of the year for me), eating fish, and drinking wine excessively! (Oops, that last one is me, I think.) Okay, I'm off to the Caribbean! Cross your fingers that there are no hurricanes. I'll pop in if I can find a computer with internet access. Shine on you crazy Jewels! D1 The things that we're afraid of are gonna show us what we're made of in the end. Dx 8/17/2007, IDC, 1cm, Stage I, Grade 2, 1/7 nodes, ER+/PR+, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Oct 21, 2008 07:58 pm
Jan 2008--Ain't it Great?Carla, I think Pippi Longstocking was a hippie. D1 The things that we're afraid of are gonna show us what we're made of in the end. Dx 8/17/2007, IDC, 1cm, Stage I, Grade 2, 1/7 nodes, ER+/PR+, HER2- |
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Tests, Treatments & Side Effects + Just Diagnosed, Created: Oct 20, 2008 09:47 pm
SNB Recovery QuestionsThanks, Karen. I leave at the crack of dawn on Saturday. I'm running around right now, trying to buy everything on the shopping list I've been given. They have limited access to so many things on this island that whenever someone comes in from the US they send long request lists! I hope I have room for my clothes! I also need to find some good insect repellent as the last time I did this the sand fleas feasted on me! I'll give you all a trip report. Take care. D1 The things that we're afraid of are gonna show us what we're made of in the end. Dx 8/17/2007, IDC, 1cm, Stage I, Grade 2, 1/7 nodes, ER+/PR+, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Oct 20, 2008 09:35 pm
Jan 2008--Ain't it Great?Whew! I'm running around, trying to accumulate all of the requested items from my friends in the Bahamas. It's exhausting! (Maybe I should have started last week...) I have a few more things on my list to buy, then on to things like getting my specs adjusted and my nails done. Oh yeah, I have to pack, too. I hope I have room for my clothes after I include all this stuff they need on the island (maybe I shouldn't be so selfish about wanting to be cute...). Therese, our graveyard is really cool. Fifteen years ago I bought a sheet of plywood and borrowed a jigsaw to make some gravestones. Then I painted them all gray (I can't remember the type of paint I bought, but it holds up well to rain), and then used black paint to inscribe them with some "names." The "dead" include Yuri Goner, Anita Coffen, C.U. Laytor, Helen Gaun, Seth M. Free, and I.M. Cursed. There are a couple of others, but I can't remember them right now. Then I nailed the plywood to some yard stakes. Every year I have to renail the markers to the stakes, but other than that, they've held up well. The whole neighborhood looks forward to our graveyard. I also hang some bats from the trees overhead to add to the scene. It's fun. Hope your Komen race went well. Paula, can't wait for you to get your help at school. You work too hard, girl! My homecoming was more like yours. Dd had a good time, though, so I guess it's all good. Latest word from college girl is that she lost her keys, to which she'd attached a thing that held her id, driver's license, bank card, a few bucks, etc. She's now scrambling to replace everything/stop her bank card. Man, life's a bitch, isn't it? I just bought the latest Alice Sebold book for my trip (have to use my new bookmark and light from my SP!). I read "The Lovely Bones" and really liked it, so I'm hoping for more of the same. Oh yeah, Carol, you had the crab! I'm hoping for some crawfish (most people call them lobster) and shrimp while on Eleuthera. I'm in charge of dinner one night and I'm taking the makings for a chicken curry dish. I'm hoping they don't confiscate my spices at customs. If they do, I'll just be grilling chicken and hoping for lots of Kalik (the local brew). One of my sisters is promising some seafood, so hopefully it'll be something I'm craving... Sherry, the medal is good, but the hair is GREAT. I'm glad you did the walk-no one can take that experience away from you. Hang in with the job training. You'll be awesome. Carla-a MAN with fish in his platforms!!!! You guys are crazy in WV!!! BC.org has some advertising, Carol? I've never seen any. How cool is that?! So, SIS Kimberly, what is the bible of Italian cooking? I like to prepare Italian (particularly pasta dishes). What's the twinsis going to do, Kimberly? Glad she's headed to Sutter. Those folks seem to have done good by you. Is Kathleen going the lump or mast route? I know with your family history, it must weigh in her decision. All our Jewce is headed her way! CHJ, great pix! I see you're in pink! Sounds like a real crowd at your event. Carol, sounds like ds had a typical homecoming experience. I'm glad he rose above the shit high school kids pile on each other and had a good time anyway. This will be one of the stories he tells his own kids someday (God knows my girls are tired of mine-and particularly those of the dh!) Oh, yeah, scallops and prosciutto, sounds good to me. What cookbook is that? Are there pictures? I need a picture so I know what my food is supposed to look like when I'm done mangling it. The Seahawks and the Vikings suck. Julie, good to hear some news from you. I'm sorry the house thing is more difficult than you expected. (LOL at the "step-monster."). It's such a sucky time to be in the market. I wish all good things for you guys. Oh, and I'll be pulling for "Vendor #2"! Break a leg! (I had more of those parts than I can count!-And I was still an honor Thespian, so tell ds to take heart.) Hmmm. Dd is trying to tell me about talent night at her school. I want to pay attention to her. I'm suddenly realizing that she'll be gone in 9 months... (Or at least I hope so!) Later, Jewels. D1 The things that we're afraid of are gonna show us what we're made of in the end. Dx 8/17/2007, IDC, 1cm, Stage I, Grade 2, 1/7 nodes, ER+/PR+, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Oct 17, 2008 03:13 pm
Jan 2008--Ain't it Great?Okay, I was just going to read through the comments, but I can't stop myself! I HAVE to chirp in! (Besides, I was just going to head into the garage and get down my homemade gravestones for Halloween and do the repairs that are needed each year before we put it up again-OMG, they are SO fun. We have names like "C.U. Laytor," "Anita Coffen," and "Yuri Goner." Much better than the ones you buy and we've used the same graveyard for, hmmm, this is our 15th year!) Anyhoo. Carol, did you manage to stick around to hear the only good line in the whole debate? When McCain said if Obama wanted to run against George W. Bush, then he should have run four years ago. Oh schnap!!!!!! The rest of it was watching McCain trying to get under Obama's skin and Obama trying to look presidential. Not one of the better debates, IMO. I'm all ready to vote, tho (I have a couple of hot issues that are important to me-Supreme Court appointments being my biggie-so it's relatively easy for me to figure out my candidate based on those few things), the debates were not going to change anything for me. I was just watching for sport. Oh, college girl. Yes, she's trying to figure it out, that's for sure. She called me today between classes to complain about the amount of money the sorority life is costing her. I didn't bite. I told her she'll really be motivated to get a job over winter break! (Mean ‘ol mom!) I know, I should be more understanding as she seems to be keeping the academics under control, but that's what she's there for! I told her to invite her grandparents up to take her out to dinner, they'll probably slip her a $20 (not that it would go far...). I picked up info on yoga today. Looks like this "round" of classes all started mid-September and won't be done till mid-December (these are the ones through the county-price is right). I'll bet they won't start another round till after the first of the year. I am going to call the rec center that holds the classes and see if I can sit in on a couple to figure out which one is right for me. There were probably four in the course book that sounded like beginner level. So at least I'm starting on that project. I'm probably not the right one to ask about weight-bearing, Carol. While I did some lifting (perhaps I should put that in quotes-I never used a lot of poundage. I think even at my peak I was only using 12 lb free weights), before, because of my rotator cuff injury, I've been side-lined. My p/t does have me using the bands and my surgeon did observe that my back has good def...I attribute that totally to the band exercises I'm doing. In fact, I have 2 p/t sessions left next week and we're putting together a workout routine designed to keep my rotator cuffs happy and still give me some strength training, so I may not ever go back to the machines. (I will miss them...) That said, some type of strength training is critical. You, in particular, should be interested as the AI will leech your bone density and the strength training will help you combat that. I'm not sure what kind of routine you should do, but if you have free weights, some curls for your biceps (start low and work your way up-I mean, start at like 3 lbs), light weights at your sides with your shoulder blades pushed together and pelvis tucked and lift your arms straight out to the sides for 10, then straight forward for 10, then repeat (don't lift your arms up higher than your shoulders), um, heavier weights held at your sides and "walk" 10-15 steps one direction lunging so your back knee almost touches the floor with each step. Reps are more important than pounds. My descriptions are lame. Sorry. But if you can figure out what I mean, at least it's a start. Hope Sylvan was okay. I know what you mean about 5 and 3 year olds. I loved it then because I still walked on water... I saw that about Julie's 6 acres, too! That's a lot of grass clippings, Julie! Oh, there's LJ with some weight ideas. And she's right, the le is a risk with repetitive stuff. I'm supposed to break up my lifting routines, much like LJ describes, but I just alternate lower strengthening and then upper strengthening to keep from doing too much at once. And I agree, once you can do 15 reps 2x comfortably, then increase the weight and then move back to 8 reps and work your way up to 15 again. Once you get to 10-12 pounds, though, I think I'd stick there. Sounds like you had a similar reaction to the debate, Deb. There must be a reason that campaign after campaign we get these same debates where you don't learn too much about the candidates. Maybe we Americans are dumber than we think we are and the handlers know just how to feed us our information... (Try Jon Stewart or Stephen Colbert-they've got the issues! Jk-although I watch regularly. Sunday talk shows are pretty good for filling in some of the details.) Not dealing with much neuropathy anymore-well, the tips of my toes are still numb, but it doesn't seem to bother me too much. So I can't help you there. Hey, if you want the FUBC license plate-go for it! It'd be great to know that my sister in Arkansas is "driving" the same message home! Carol, you hit the nail on the head. (I'm so full of puns today!) Your mind was in game mode when you were training for your 3day. Now just wrap your head around your new regimen and be as committed to that. OMG, CHJ! I think our oncs are related! I told him about the nightly drenchings (I get them during the day, sometimes, too) and he just blew them off. He did suggest that I take vit e and oil of evening primrose 2x a day to help the hot flashes, but I'm not convinced it's doing anything. I did the BRCA1&2 testing this fall. I probably wouldn't have done it, but I'm participating in all of these studies at Georgetown and one of them deals with genetic counseling/testing. Since I've met my deductible for the year, I figured, why not? All my stuff came back negative, but I'm hoping that doesn't change my level of care going forward. I guess it's a good thing for my daughters that I'm negative, but from what I understand, it doesn't much help my sisters. About the only thing that would have come out of being positive is the whole ovary thing, but I'm not sure what I would have done about it. The testing's got to be easier than a root canal/colonoscopy... (you've got it coming and going, don't you!) Carla-mani/pedi, good for you! (I've become such a sucker for that girlie stuff.) And so many of us looking in to yoga! LJ/CHJ-you guys crack me up with your Komen planning! Okay, off to check on the graveyard... D1 The things that we're afraid of are gonna show us what we're made of in the end. Dx 8/17/2007, IDC, 1cm, Stage I, Grade 2, 1/7 nodes, ER+/PR+, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Oct 15, 2008 08:14 pm
Jan 2008--Ain't it Great?Hey Guys. Got college girl back to school. As you know, I was SO looking forward to taking her in to vote on Tuesday and then to lunch, but in her 19 ½ year old infinite wisdom, she stayed out till 4:15a Monday night/Tuesday morn, so I was disappointed in her behavior. I told her I didn't feel much like lunch, so we just went in and she voted and I went upstairs and ordered my "O FUBC" license plate and called it a day. We came home and she packed and then we drove back to college (PALady and Vettegal, did you hear my shout outs?). So today I put the call in to my oncologist to ask for a script for the massage therapy and a referral to a head therapist. Hmmm. CHJ-a 1.5 mile hike? Hope it was on a trail. I don't mind trail hiking, but that off-trail stuff when you have to battle your way through spider webs is for the birds. (Did I mention that I'm kinda afraid of spiders? It's spiders and needles for me!) I love the Shenandoah, we've done lots of hiking and cabining in the Shenandoah. Looks like your weather was perfect that day. What a great way to get out and celebrate! Great news on the Sylvan experience, Carol! I hope ds is able to keep up with it. It will be hard to cut back on the work hours, they so love to have some money in their pockets, but priorities have to win out. My dd just quit her job to focus on college apps and to get ready for basketball, so we're going through the financial weaning here, too. I cannot wait to tag along on a West Coast trip! This was not the one-too many moving parts. I'll get there, keep the faith. (Oh, I leave for Eleuthera on Oct. 25 and return on Nov. 2.) So you liked the yoga? I'm going to try to see if I can find a flyer on it tomorrow when I'm at the hospital for my p/t. I called a friend who has wanted to do yoga for a couple of years and she's interested in doing it with me. I'll see. It would be great if the yoga and massage help with your se's. Hey, we'll have to start a thread for yoga-fied, massaged noodles! Oh, Carla, I'm so sorry you're still dealing with a DH. Please take care of yourself and figure out what YOU need. Vent here anytime. We're in your corner. OMG, Carol, LOL at your "stiff as a board" comment. Get in line behind me, my dear. I'm so impressed you were able to connect. At the conference I attended on Saturday, they had a demo of guided imagery and I found myself drifting off, organizing my "to do" lists. What a loser. Julie, it sounds like you guys worked hard on your day "off." It's fun to accomplish so much, isn't it? I remember a time, not too long ago, when you were supervising. I'm glad you're in the thick of things and doing okay. How's the new ‘do? KathyL, you make me LOL. YOUR ass has a new zip code? You're too young for that, girl. So, Deb, you're working on building up your time off bank? Good for you. Four day weeks every other sounds sweet. You deserve it. Just don't try to cram 5 days' work into those four, okay? As a veteran toenail faller offer, it doesn't hurt. It's just ugly. Keep ‘em really short and maybe you can avoid the whole scene... I'm psyching up for the final debate. I'm waiting to see some punches. Guess I'll go watch some pundits for a half hour and see what they have to say. Lata. D1 The things that we're afraid of are gonna show us what we're made of in the end. Dx 8/17/2007, IDC, 1cm, Stage I, Grade 2, 1/7 nodes, ER+/PR+, HER2- |
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Tests, Treatments & Side Effects + Just Diagnosed, Created: Oct 13, 2008 05:31 pm
SNB Recovery QuestionsOh Clessie, I'm so sorry about your dad. It sounds like he sensed your families' anxiety over the nursing home decision and helped you all through it. The grieving is so difficult, but give yourself a chance to do so. I know you have your hands full, but you need it for you. Yeah, you'll miss him. But he'll be with you every single day. You can count on it. Please let us know if there's anything we can do. Dawn, good to hear from you! Hey, just let me know when you want to get together! I'm getting ready to fly to one of the Bahamian Out Islands to volunteer in a couple of literacy centers down there for about 10 days, but maybe we could squeak something in before the holidays. Ditto what Karen said--my thoughts are on you guys all the time. D1 The things that we're afraid of are gonna show us what we're made of in the end. Dx 8/17/2007, IDC, 1cm, Stage I, Grade 2, 1/7 nodes, ER+/PR+, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Oct 13, 2008 05:15 pm
Jan 2008--Ain't it Great?Oh my, a lot has happened in a day! Good news is that the Vikings won (okay, the interference call was questionable, but sometimes you just gotta get the breaks!). I was totally bummed that Seattle didn't win, though, as they were playing one of our division rivals and the Vikes coulda used the assist... (Sorry, Carol) Sherry, no wonder you're hot to trot, girl, you look GREAT!! Thanks for the photo update. It's hard to believe you've recently been through more surgery. Oh, and forgot to tell you: on the toenails. Keep them moisturized. When the nail falls off it leaves a crusty "nail" underneath (I tried to paint that to make my nail look longer-what a weirdo!), and if you keep it lotioned up good, it will look better. Without the lotion it looks all dried out and yucky. The lotion is good for your feet, anyway! ;) And thanks for the hug. I'll get it together. CHJ-your hair looks great!! And where are you? Kinda resemble the scenic overlook on 270, but I don't remember anywhere where you can get out on the rocks. SIS Kimberly-I'm so glad you were there to get the MRI for your twinsis. It's much better to catch it now. We'll all be eager to hear how she decides to proceed as we'll want to send her our Jewel Jewce (hmm, I was getting creative with the alliteration and spelling of ‘juice.' Does it work???). This is the tough time-figuring out what to do. Our thoughts are with her as she makes her first decisions. I started asking questions about massage today. I think it will have to wait till I find a doc to write me a script for it. I want to use the wellness center at the hospital so they can do my MLD at the same time and I need a doc for that. I'll ponder it. And I was perturbed with myself for forgetting to pick up the flyer on the yoga classes today, maybe I'll remember on Thursday when I'm over there next time. Still in the talking about it phase with the therapy. I think I'll wait to start that one till I get back from the Bahamas. I did talk to dh today (oh, he's on his way out your direction-Seattle tonight and tomorrow, Portland on Weds, Sacramento on Thurs, San Jose on Fri and then the red eye home), and told him that I want to see someone to discuss our situation and asked him if he'd be up for joining me if appropriate. He agreed. I take that as a good sign. Hang in there on the weight. As you know, sometimes it bounces around a little. I've been stuck on the last 5 pounds for months! In fact, I put on 3 lbs about 3 weeks ago and I think I may finally be backing off that now. I'd love to lose that last 5 so I don't have to buy some new pants this winter-I've tried on my old ones and they're just too tight in the crotch and around the waistband. I can't wear them, yet. With colder weather coming, I've got to do something quick!! You'll get there. I suspect the Wii Fit thingy will help! Do you think the magnetic bracelet would do more good if you'd stop shoveling gravel, Carol???? I see you were watching the ‘Hawks yesty-you guys can't catch a break with your professional sports teams, can you? You saw dh will be in your neck of the woods tonight. His plane takes off from here around 6p and he lands in Sea-Tac at 11:30, or something equally stupid for a 52 year old man. Keep him in line, would ya? Hope the Sylvan eval went okay today. I hope ds is in the mood to be helped-with teens I found that to be the larger battle. I know he doesn't want to be harped on by your bald (well, not so much anymore!) lady friends, but pull out my thuggin' picture and tell him I said this year is important for college! Do his homework-that's the gimme part of the grade! (It'll help when it comes time for the tests, too, I promise.) Brag corner!!!!! College girl got her first philosophy grade emailed from her prof-she scored 100% on her test!!! That's a third of her grade!!! Shit, I don't even understand philosophy! (She needs some good grades to go abroad. She finished her freshman year with a 2.7 and needs a 3.0 to go overseas-yikes!) Hope you have a good week getting ready for homecoming. Dd said the dinner before her dance was a lot of fun. One of her friends figured out the tip and what everyone owed and dd said the server came back to the table four times to thank them, so she figured her friend over-calculated. Not what the server expected from a table of high school girls, I'm sure! They arrived at the dance 10 minutes before they closed the doors (they don't let anyone in to the dances at our high school after 10p). Someone said they were cutting it close and dd said, ‘no, if it were nine minutes from now, it would be close!' Smart ass. She said the music was lame and too many chaperones, but their group danced anyway and apparently hopped around yelling, ‘Oh-nine!' to let everyone know they were the seniors! She was home by 11:30p and happy as a clam. May your experience this weekend go just as well. Oh, I remember the parties, KathyL. They're so much fun. I always loved how my kids would jabber on during the car rides about all the drama a 5 year old (or whatever) could have. It makes you remember how unimportant your own concerns are. We def need a photo of your new ‘do! It's so much fun to be girly again, isn't it? So happy you and dh had a good experience with Robin Roberts. I'm always so impressed with her when I tune in to ABC. I hope the book is as good as her talk. Hey, Carol, did you see that? KathyL is having her port removed under twilight sedation. Is that something you can have so you only have to pull your big girl panties on halfway???? I dunno Sherry, I think I'd want sludge and acids out! But I do know what you mean about the medical appointments! Deb-totally AWESOME re: the Little Rock numbers! Isn't it great to participate in those events? So reaffirming. Even to those like me who are not so much in to the "pink." It's wonderful that you connected with so many. I'd love to see some pictures. I think I'll go clean the green beans so I can be ready to roll on dinner when the girls get home. It'll be kinda fun to just be the three girls tonight! D1 The things that we're afraid of are gonna show us what we're made of in the end. Dx 8/17/2007, IDC, 1cm, Stage I, Grade 2, 1/7 nodes, ER+/PR+, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Oct 12, 2008 08:36 am
Jan 2008--Ain't it Great?Okay, SIS Kimberly. Get twinsis a cape. It's a must-have. Who'da thunk you'd be leading your baby sister through this journey? Well, as others have said, she could not have a better guide. (I'm still trying to wrap my head around the idea that your BRCA results were negative. -That's right, isn't it?-- With all the bc in your family I find it hard to believe it's coincidence.) We're totally here for you and Kathleen. Deb-It was SO good to see your post. I'm happy that life is getting in the way of your time online with us! Your walk was yesterday-hope the dogs aren't barking too much today. Speaking of dogs, your puppy is looking good. I, too, had occasion to wear my Jewels FUBC t-shirt yesterday. I attended a bc awareness conference at the hospital where my surgery was done. It was interesting-particularly when they had a panel of 4 women describe their journey. Even I was on the verge of tears! I did realize a couple of things about myself there. First, I want to try yoga. They had a demo of seated yoga and I was really digging it. Second, I'm going to really try to get a script from someone to get massage therapy through the wellness center at the hospital as their massage therapists are also trained to deal with le and will adjust their touch to the le side (I'd been told no real massage due to the le, so this could be just what I need). Third, I'm going to try to make my mind more open to the idea of seeing a professional to get me over my hump. Listening to the presentations yesterday, I think I might be allowing bc and my marriage situation put me in a state of depression. Not sure (no doctor here-just see them on tv), but maybe, just maybe... Now I have to figure out where to find a therapist and allow myself to talk out loud to someone about these things. I'm really not excited about the prospect of more appointments, especially since I should be dropping two a week at the end of this month (the rotator cuff therapy) and I'm thinking about adding the massage therapy, but I'll think about it. (Not till after my trip!) Ugh, Julie, you have to wait till the end of the month?! That sucks. Glad you survived homecoming. Our dance was held last night and dd is still in bed, so I don't know how it went. But she looked really pretty. College girl (who is a clothes horse) brought home a couple of dresses to loan her sis, so we didn't have to go out and get a new one. College girl helped dd cover her backne and off she went. She went with a really nice group of girls, so I'm sure there were lots of laughs. I can't wait to hear the report. Today dd is going to try playing basketball on her ankle again. It's been 5 weeks since she's played, but her p/t seems to think she's ready to try it-not to mention the fortune in orthotics and braces she'll be wearing... I just hope she plays well-she allows her performance on the court to color her outlook on the rest of the world. Hey SP! Great gift idea! I received a bookmark and a booklight to take on my trip. Now I have to find just the right tome to break them in. Thanks!!! Oh, and just an update on college girl. She's blossoming in to a wonderful adult. She's so much quicker to give a hug than she's ever been. She has thought-out opinions of the world and can concisely share them. And, she's beautiful. I'm loving it. Of course, she came home and announced that she's met her future husband (again!). She's bumped in to this guy twice at school events and they're talking. The other girls are jealous, so that's encouraging to college girl (we all know how girls are!). There doesn't sound like much to work on, yet, but she's swooning and eager to get back to school to see if something works out. It's fun to watch. That's about it here. I think today is going to be go, go, go! Guess I'd better get ready! D1 The things that we're afraid of are gonna show us what we're made of in the end. Dx 8/17/2007, IDC, 1cm, Stage I, Grade 2, 1/7 nodes, ER+/PR+, HER2- |
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