Roja1955

Hang in there - prayers your way....

Hi Kim:  You do not sound unreasonable at all.  I just went through this similar situation, except the lump was found in my other breast.  The onc ordered a mamo and u/s - it was negative.  In four weeks time the lump grew to 3 cm, and I switched oncs.  The new onc ordered a biopsy (core needle) - it did confirm a new bc in other breast.  Now I don't know if that is the difference, as they said the red flag is up for BRCA (they did test me and I was negative).  I did get to see the breast surgeon who at this time says there is no need to do a mastectomy (because I have other "issues" to deal with), but agreed maybe 4 -6 months down the road he would do it once I get stable.  He did say I would have to stop chemo for 4 weeks at least.  I really felt he was just saying this to give me some satisfactory answer, as he wasn't very receptive.  This is the same guy who was so positive with me when I was initially dx'd, and now he can't even look me in the eyes.  Why do they behave this way?  You can't help but feel  that they are giving up on you.  Maybe Kim, they are just hoping the chemo will just erase that lump.  Keep an eye on it and continue to be pesistent, especially if you start to have symptoms or it gets larger.    

kgrimm:  Thank you so much for responding.  I feel like I was the only one out there!  This all just happened recently (3 weeks ago right stent - 1 week ago left stent).  They told me to come back and see them in 9 months.  But that will change, as this new gyn onc does not want to remove my ovaries.  Don't you think it would have made sense to remove them, as one less thing for the ca to grown on?  What are you on now?  You have been dealing with mets since 1998?  God Bless you!  Can I keep in touch with you as I'm so scared and overwhelmed with this.  Wishing you also continued excellent treatment.     

That's awesome.  Wishing you a very healthy vasculary system.  I'm going to discuss this procedure with my onc as I know they do this at the place I get care.

I understand exactly how you feel.  I was on Avastin and Taxol for six months, and had no progression.  Then I went on chemo break with Arimidex and then Aromasin (due to serious se) over 4 months with major progression.  Not only that, but I also have a new breast cancer (not mets - primary in my other breast).  So including progression to my liver and I have a mass in my pelvic area.  I returned to my original onc and she will start Nalvebine tomorrow, and praying for kicking this ca way down.  I am also considering having a mastectomy on this new primary, and a hysterectomy, as soon as I am stable.  My mind just keeps me in this depressed mood, but I continue to battle this and put this in God's hand.   What more can I do?  I will fight as long as I can and as long as there are other meds to try - I will go there.  I do look at chemo as a positive, though many make it a negative.  Avastin was well tolerated for me (nose bleeds), but I was taken off that as it was not working with the AI's. Also, the whole time my makers never changed (I went from 69-108).    Good Luck and God Bless. 

Fl lady:  I have two girls that live in Fl - Orlando and St. Petersburg.  Who is the person that you use? 

I've just been dx 2 weeks ago with a new breast cancer in my other breast (is this the same as secondary?).  Red flag went up, and they ordered the BRACA test.  I cannot begin to tell you how numb I am, but as the days go on and I have a pending plan in place (starting Navelbine next week).  My mets is in my lung and liver.  Also there is a growth recently found that is applying pressure on my right kidney.  Hoping I can get all this under control.  So my prayers your way.  God Bless. 

Wow!  All this is overwhelming!  I am for alternative, and conventional as well.  It is mind-boggeling when I try to put this all together.  There are some of you ladies that know your stuff.  I'm a metster and just want to live as long as I can.  Why don't we put together our own plan:  Do coffee enemas ourselves....  drink distilled water.....take peroxide baths....would a jacuzzi count as a whole body hyperthermia?.... find a doc to administer IV Vit C.....  I could go on and on....  Just know my God will be my healer and I am waiting faithfully.  God Bless you all!

My onc actually told me Abraxane works better for pleural effusions, though he never did start me on that, but I did Taxol and it was very tolerable done weekly.

I've never heard of the Gerson program.  Will look into that as well.  Sometimes I wonder if this is all just a waste of money, but alot of the theories make sense.  I remember as a student nurse some 20 years ago, I did a rotation at a hospital in San Diego (Hillside Hospital), which did coffee enemas to their patients.  The concept of their program was similar to Gerson.