Member Since: September 13, 2007
Last Login: November 19, 2008
Birthday: January 17, 1968
Location: Clinton Township, MI United States
Occupation: Admin. Assistant
Biography
DX with IBC July 19, 2004:
Went thru:
4 doses of A/C which took 8 weeks to complete. Followed by 12 weeks of taxol.
Jan. 24, 2005: Left mastectomy along with tram flap.
March 3, 2005 started Gemzar/carboplatin on for 3 1/2 months.
End of June 2005 started 7 weeks of rad. Middle of July 2005 ended up in the hospital with 3 PE's.
August 12th, 2005 was given dx of NED!!!
End of September 2005 was hit with a big blow my mom was dx with bc. (Note: I was dx with bc before my mom)When I saw my oncologist he advised to have the right breast removed and since I also had the PE's I would need to have my ovaries removed.
January 11, 2006: Mastectomy right breast along with complete hysterectomy.
August 2007 still in the clear NED!!!!
Diagnosis
| Diagnosis: | Dx 7/19/2004, IBC, Stage IIIb, 9/17 nodes, ER-/PR+, HER2- |
| Diagnosed: | July 19, 2004 |
| Type: | Inflammatory Breast Cancer |
| Recurrent? | No recurrence |
| Metastatic? | No |
| Stage: | Stage IIIb |
| Lymph Nodes Removed: | 17 |
| Positive Lymph Nodes: | 9 |
| Tumor Size: | |
| Tumor Grade: | |
| Hormone Receptor Status: | Tumor has progesterone receptors but not estrogen receptors |
| HER2/neu Status: | Tumor does not have an excess of HER2/neu receptors or genes |
Recent Posts by Caseysmom
Posted in:
Connecting With Others Who Have a Similar Diagnosis + IBC (Inflammatory Breast Cancer), Created: Nov 11, 2008 08:14 pm
Some good newsShrink: Thats great news!!!!!!! and congratulations on your almost year of NED!!!! Hugs Laura Dx 7/19/2004, IBC, Stage IIIb, 9/17 nodes, ER-/PR+, HER2- |
Posted in:
Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Nov 6, 2008 12:54 pm
Hello friendsFumi: I'm holding your hand Hugs Laura Dx 7/19/2004, IBC, Stage IIIb, 9/17 nodes, ER-/PR+, HER2- |
Posted in:
Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Nov 3, 2008 02:59 pm
Presidential PollMcCain Dx 7/19/2004, IBC, Stage IIIb, 9/17 nodes, ER-/PR+, HER2- |
Posted in:
Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Oct 31, 2008 04:34 pm
Scared to deathI looked up both Adenofibroma and Fibroadenoma: Here is what I found: Adenofibroma: 1. A benign neoplasm composed of glandular and fibrous tissues, with a relatively large proportion of the gland. 2. Dense, fibrous connective tissue with interspered glandular space. Fibroadenoma:1. Findings that can be seen on a mammogram. 2. They are benign breast tumors that are made glandular and fibrous breast tissue. 3. Is a smooth rubbery hard lump that moves with in the breast tissues. I hope this helps! Dx 7/19/2004, IBC, Stage IIIb, 9/17 nodes, ER-/PR+, HER2- |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + IBC (Inflammatory Breast Cancer), Created: Oct 26, 2008 03:22 pm
reconstructionJessica: My opinion is that reconstruction is safe. I was dx with IBC in July of 04 when I finished chemo in December 04. In January of 05 I had both my mastectomy and reconstruction done at the same time. Followed by another 3 1/2 months of chemo and 7 weeks of rads. I have been NED for 3 years. Laura Dx 7/19/2004, IBC, Stage IIIb, 9/17 nodes, ER-/PR+, HER2- |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + IBC (Inflammatory Breast Cancer), Created: Oct 24, 2008 04:09 pm
PET/CTibcspouse & Cam Congratulations!!!! Very big hugs to both of you Laura Dx 7/19/2004, IBC, Stage IIIb, 9/17 nodes, ER-/PR+, HER2- |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + IBC (Inflammatory Breast Cancer), Created: Oct 24, 2008 04:04 pm
Skin Abrasion?I would start with the dermatologist he/she can do a skin biopsy in the office. Good Luck Laura Dx 7/19/2004, IBC, Stage IIIb, 9/17 nodes, ER-/PR+, HER2- |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + IBC (Inflammatory Breast Cancer), Created: Oct 24, 2008 03:53 pm
any thoughtsI would get a secon opinion. Laura Dx 7/19/2004, IBC, Stage IIIb, 9/17 nodes, ER-/PR+, HER2- |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + IBC (Inflammatory Breast Cancer), Created: Oct 24, 2008 03:52 pm
rash on breast for over 2 monthsAngela: Re: Referral to Onc. The only think I can think of is if you have an HMO you will need a referral other than that I can not see why you can't. Laura Dx 7/19/2004, IBC, Stage IIIb, 9/17 nodes, ER-/PR+, HER2- |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + IBC (Inflammatory Breast Cancer), Created: Oct 22, 2008 10:58 am
negative pathology report for IBCyounggrandma: Yes it is better to be safe! Good Luck tomorrow Hugs Laura Dx 7/19/2004, IBC, Stage IIIb, 9/17 nodes, ER-/PR+, HER2- |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + IBC (Inflammatory Breast Cancer), Created: Oct 22, 2008 10:56 am
IBC DIAGNOSED, LETS SHARE OUR STORIES!Herbie & Cam: Welcome!!! I loved the creative way you told Cam's story. I can tell by your posts that you have done a lot of research on this beast. Keeping you in my prays. Hugs Laura Dx 7/19/2004, IBC, Stage IIIb, 9/17 nodes, ER-/PR+, HER2- |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + IBC (Inflammatory Breast Cancer), Created: Oct 21, 2008 07:40 pm
IBC DIAGNOSED, LETS SHARE OUR STORIES!P4U: Thank you for sharing your story with us. I am so glade that the urgent care doctor that you saw had some knowledge of IBC. What courage you had by walking into the oncology office and requesting an appointment. Jadai any results yet? keeping your mom in my prays. Sunneedazee how are you doing? Hugs Laura Dx 7/19/2004, IBC, Stage IIIb, 9/17 nodes, ER-/PR+, HER2- |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + IBC (Inflammatory Breast Cancer), Created: Oct 15, 2008 07:22 pm
Officially diagnosed with IBCJadai: I would get a second opinion I do not know where you live but it would be worth a try to check out MD Anderson or U of M they both and doing research on IBC. Your mom may qualify for a clinical trial. Keeping you and your mom in my prays. Hugs Laura Dx 7/19/2004, IBC, Stage IIIb, 9/17 nodes, ER-/PR+, HER2- |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + IBC (Inflammatory Breast Cancer), Created: Oct 14, 2008 08:18 pm
rash on breast for over 2 monthsAngela80: I would go to a breast surgeon because the only way that IBC can be diagnosed is by a skin biopsy. One of the 1st questions I would ask whom ever you decide to see if they are familiar with IBC. Hugs Laura Dx 7/19/2004, IBC, Stage IIIb, 9/17 nodes, ER-/PR+, HER2- |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + IBC (Inflammatory Breast Cancer), Created: Oct 14, 2008 08:03 pm
Officially diagnosed with IBCJadai: Yes I did meet with the oncologist and went over a treatment plan. He told me what kind of chemo and how long I would be in treatment. I had 4 very large tx of A/C which took 8 weeks to complete followed by 12 weeks of Taxol. You may want to ask the doctor about giving your mom some steroid prior to her treatment. My onc started the steroids after how sick I was after my first treatment and the rest of my chemo treatment was a breeze. Having frozen meals for her would be very helpful for when she is by herself. The big thing is to make sure she drinks plenty of water or decaffeinated drink so that she does not get dehydrated. I also craved something very cold so I always stopped on my way home and pick up some frozen drinks. I would suggest that you stay with your mom after her first treatment just in case she does get sick. Another suggestion is for her to eat non-spicy or greasy foods for a few days after treatment. Hugs Laura Dx 7/19/2004, IBC, Stage IIIb, 9/17 nodes, ER-/PR+, HER2- |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + IBC (Inflammatory Breast Cancer), Created: Oct 10, 2008 06:35 pm
worried toornmom2two: I agree with shrink to get this checked out. Laura Dx 7/19/2004, IBC, Stage IIIb, 9/17 nodes, ER-/PR+, HER2- |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + IBC (Inflammatory Breast Cancer), Created: Oct 8, 2008 06:48 pm
Need everyones opinon!Bailey1: My opinion is yes you should request a biopy. I know that my mammogram ect.. all came back negative. From all that I have read about IBC the only true way that they can dx this through a skin biopsy. Laura Dx 7/19/2004, IBC, Stage IIIb, 9/17 nodes, ER-/PR+, HER2- |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + IBC (Inflammatory Breast Cancer), Created: Oct 7, 2008 07:35 pm
help in canadaprestressed: I have never heard of MRI resutls taking two weeks the normal turn around time is at the most 5 days. Since I only have MRI's done now my onc and pc get my results in about 3 days. Keeping my fingers crossed that you get your results sooner. Hugs Laura Dx 7/19/2004, IBC, Stage IIIb, 9/17 nodes, ER-/PR+, HER2- |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + IBC (Inflammatory Breast Cancer), Created: Oct 7, 2008 07:29 pm
Mastecomy & ReconstructionDorothy: I had my tram flap done at the same time as my mastectomy on my left side. For one breast the total surgery time was 8 hours and I was in the hospital for about 5 days. A year later I had a right mastectomy done since I could not have a tram flap again I have a silicone implant this surgery was much shorter I am not sure how long I was under since I also had a complete hysterectomy done at the same time. I hope this helps. Hugs Laura Dx 7/19/2004, IBC, Stage IIIb, 9/17 nodes, ER-/PR+, HER2- |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + IBC (Inflammatory Breast Cancer), Created: Oct 7, 2008 07:21 pm
What can I do to help?Bailey1: What you are doing is great!!! I thank you from the bottom of my heart that you have sent out e-mail to your friends and asking you manager to send out a mass e-mail. I only know of two places that are doing research on IBC is MD Anderson and University of Michigan. Again Thank you for spreading the word! Laura Dx 7/19/2004, IBC, Stage IIIb, 9/17 nodes, ER-/PR+, HER2- |