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isityouisit

Member Since: September 18, 2007
Last Login: February 27, 2008
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Recent Posts by isityouisit

Posted in: Connecting With Others Who Have a Similar Diagnosis + Triple Negative, Created: Feb 27, 2008 01:02 pm

Where are the tri-negs!

Hi, I still have neuropathy in my hands and feet, finished chemo on Dec. 5, 2007.  Second time around, had b.c. 18 years ago, too, then found out last March that I'm BRCA-1, triple negative, two months later, MRI found breast cancer.  NOT a recurrence.  Stage 1, grade 3; had dbl mastectomy on June 28, didn't know I'd need chemo until path report came back.  3 FEC/3 Taxol, ended up 6 days in hospital w/neutropenia during Taxol treatment.  The neuropathy is very debilitating and I'm going to try to get neurontin and see if it helps.  My oncologist said neuropathy can last 6-12 months after chemo ends and if it doesn't go away then, it'll probably NEVER go away.  Had ovaries out two weeks ago due to BRCA-1 diagnosis.  My daughter, age 33, also found out she's BRCA-1 and will likely have prophylactic dbl mastectomy/ovary removal after she has children.

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