Member Since: September 21, 2007
Last Login: August 31, 2008
Location: Carolina
Occupation:
Biography
Diagnosis
| Diagnosis: | Dx 10/10/2006, ILC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
| Diagnosed: | October 10, 2006 |
| Type: | Invasive or Infiltrating Lobular Carcinoma |
| Recurrent? | No recurrence |
| Metastatic? | No |
| Stage: | Stage I |
| Lymph Nodes Removed: | 2 |
| Positive Lymph Nodes: | 0 |
| Tumor Size: | 1cm-1.9cm |
| Tumor Grade: | Grade 1 or low grade |
| Hormone Receptor Status: | Tumor has both estrogen and progesterone receptors |
| HER2/neu Status: | Tumor does not have an excess of HER2/neu receptors or genes |
Recent Posts by KC1
Posted in:
Not Diagnosed but Concerned + High Risk Women, Created: Aug 31, 2008 05:59 pm
brca testing and insurance ???I will be having the test done 10/3. My Onc. said I should know the results the following week. I had ILC Stage I at age 43. I had my ovaries removed last Oct. Dx 10/10/2006, ILC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
Posted in:
Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Aug 18, 2008 09:59 pm
Hot Flashes!!!!!!!Ask your Dr. about Effexor. It's helped me a great deal. Dx 10/10/2006, ILC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
Posted in:
Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Aug 18, 2008 09:58 pm
Sex anyone?No interest here either. Dx 10/10/2006, ILC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
Posted in:
Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Aug 18, 2008 09:39 pm
Diagnosed 4 years ago now 16 year old niece has lumpHI! Congrats! I hope you are doing well. Hopefully, it's fibroid. I wish you both the best! Dx 10/10/2006, ILC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
Posted in:
Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Aug 17, 2008 08:29 pm
Hair Hair Hair - Another questionCongrats! It took mine about 6 weeks after finishing chemo. I'm soo glad it's back! Dx 10/10/2006, ILC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
Posted in:
Not Diagnosed but Concerned + High Risk Women, Created: Aug 17, 2008 07:38 pm
deformation after biopsyI had a lumpectomy too. My breast doesn't look the same either, and the nipple tips upward, but it's OK..... The tumor is gone and I'm alive. That's what matters to me. Dx 10/10/2006, ILC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
Posted in:
Not Diagnosed but Concerned + High Risk Women, Created: Aug 17, 2008 07:32 pm
Opinions needed, pleaseThe mammogram didn't pick up the thickening I had either, until a year later. It turned out to be ILC. Stage I. Thank God it had NOT spread!!! I too have heard tumors can be slow growing from 7 to 10 years before they show up.... THAT'S SCARY! All the best to you! Dx 10/10/2006, ILC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
Posted in:
Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Aug 17, 2008 09:24 am
ovary removal/suppression-please helpFrom the research I've gathered, they don't like to remove a woman's ovaries until her mid 40's. By this age; our bodies are supposedly producing less estrogen naturally. It's a known fact estrogen plays a big role in keeping our body and mind functioning properly. Estrogen it's a double edge sword...... I was dx at 43. I'm now 45. I had a lumpectomy, the tumor was ER/PR + , had 4 rounds of chemo (A/C) and 33.5 radiation treatments. I took Tamoxifen from June to Oct. when I had my ovaries removed. It was an extremely difficult decision to make. It was done laproscopic and I took a week off from work to rest. I was better in 2 days, by the 3rd day I was able to get around really well. Since b/c runs in my family I felt I HAD to do as much as possible to prevent any re-occurance. I'm on Aromasin; and it's disablingly torture for me. I'm considering opting out at this point. I have an appt. with my Onc. 8/29 to discuss this matter. Another b/c survivor sister is using DIM. http://www.activamune.com/?gclid=COeCkvijkpUCFQ60HgodLiJ4fg I'm considering giving it a shot as well. Best of luck in your decision. Dx 10/10/2006, ILC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
Posted in:
Support & Community Connections + High Risk of Recurrence or Second Breast Cancer, Created: Aug 17, 2008 08:54 am
Stage 1-Should I worry about recurrence???I've taken Aromasin since last Oct. My tumor was 1.5 cm and by the Grace of God, it had NOT spread. The side effects for me have increased dramatically over the months including CTS. I want to do everything possible to prevent the cancer from returning, however; this stuff is disabling me. I see my Onc. 8/29. Arimidex is next but it is only going to have the same s/e if not more so. Something has got to give here....... and yes, we will always worry. Dx 10/10/2006, ILC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
Posted in:
Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Aug 17, 2008 08:41 am
sore mouth tipBiotene mouthwash and toothpaste worked for me. Heal soon. Dx 10/10/2006, ILC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + ILC (Invasive Lobular Carcinoma), Created: Aug 16, 2008 10:05 pm
What are symptoms of ilc?Mine was a thickening, no other symptons. Dx 10/10/2006, ILC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
Posted in:
Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Aug 16, 2008 10:00 pm
good menopause symptoms???I'd take a period over the S/E of A/I ANYDAY! Dx 10/10/2006, ILC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
Posted in:
Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Aug 16, 2008 07:09 pm
AI's and tendonitisBi-lateral CTS should be listed as a side effect of Aromasin as well. Also joint pain needs to be described in more detail, along with swelling of fingers/hands and can have an almost "crippling" effect. AI's HURT LIKE A MUG!!! |
Posted in:
Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Aug 15, 2008 02:30 pm
am or pm tamoxifen/effexor?Effexor is great.... I take mine in the morning. |
Posted in:
Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Aug 15, 2008 02:28 pm
AI's and tendonitis*bump* |
Posted in:
Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Aug 15, 2008 02:26 pm
Slight numbness in toes and feetNumbness and tingling - hands and feet are affected, yep, I'm experiencing the same thing with Aromasin. IT'S THE MEDS (not old age) and it's frickin' miserable and I don't know if I can continue like this........ |
Posted in:
Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Aug 15, 2008 02:17 pm
Anyone switched from tamox to A1?I'd rather have a period any day than to take A. I.'s |
Posted in:
Support & Community Connections + High Risk of Recurrence or Second Breast Cancer, Created: Aug 13, 2008 04:26 pm
NeuropathyFrom what I'm experiencing I think mine (if that's what it is) is caused by the, A.I. - Aromasin. I'm seeing my Onc. on 8/29. This stuff is torture on the body!!! |
Posted in:
Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Aug 13, 2008 04:13 pm
Has anyone done well on aromasin?I *thought* I was doing ok on it up until this past May. Now days, my hands, fingers, feet, toes, ankles and knees ache! I've recently learned my CTS most likely is caused by Aromasin. And here I've been seeing an Orthopedic! I don't like this... and, I've lost my flexibility! UGH! This stuff is almost "crippling" me! |
Posted in:
Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Aug 13, 2008 04:04 pm
AI's and tendonitisI too have am having trouble with CTS!!!! My hands feel swollen and ache. Trouble with my feet, toes, knees and ankles as well. I called the Dr. last week and the nurse told me to stop taking the Aromasin for about a week to ten days to see if my symptons improve. Well, they have! So, I now have to schedule to see the Dr. as to what do I do now...... UGH!!!!!! |