Member Since: February 22, 2008
Last Login: December 4, 2008
Birthday: April 29, 1948
Location: Brownsville, WI United States
Occupation: Home care RN
I was diagnosed in April '06 with a CA caught on my mammo. I have no family hx and always had my yearly mammo, so got "sloppy" about checking myself. When I was called back for a re-take, I could put my finger right on it. It was first 1.1 cm., then I went down to UW Madison and was told it was 1.8 cm. I opted for a lumpectomy, and when all was said and done, it was 2.5 cm. The upside was early stage, no mets., no nodes, ER+PR+, HER-2 neg. I'm 60 now, and after implants last Sept., my irradiated breast contracted (I opted for radiation, no chemo after lumpectomy. Also on Arimidex). Now hoping to be done once and for all by having a mastectomy completion and DIEP flap done!
I've been happily married to the same guy for 38 yrs. this Oct. We have 3 children, oldest is 35 and youngest 29 this year. All are married, and we have 7 grandchildren. The only "child" we have is a hurricane Katrina dog who's a mutt and came with a little baggage, but all in all, he's a loyal boy and a good companion. I work part-time as a Home Care RN. I was originally a NE Yankee but was transplanted many years ago by my husband, to his native MN. We've lived in WI for the past 27 yrs.
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: Nov 18, 2008 10:32 am
Scar therapyHow long do you leave the silicone sheeting on at a time? It's so easy to use, I feel like I could easily leave it on for a couple of days. I had a DIEP, and especially for my abdomen, it's very easy to "forget." What time frame does anyone else use them? Thanks! Nancy DX 4/06, IDC, 2.5 cm.,stage IIa, grade 1, 0/3 nodes, ER+PR+, HER-2 neg. |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: Nov 17, 2008 06:58 pm
Limited Reconstruction Options??Yes, rads can make re-con. diffiicult. I had rads following lumpectomy, and when I finally opted for DIEP flap procedure, Dr. Hijjawi had to be rather aggressive in removing the irradiated tissue (some didn't even bleed). Had I known before what I know now, I would have skipped the lumpectomy and rads, and gone straight for mast. with immediate DIEP flap re-con (that's unilaterally). Good luck to you! Nancy DX 4/06, IDC, 2.5 cm.,stage IIa, grade 1, 0/3 nodes, ER+PR+, HER-2 neg. |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: Nov 15, 2008 07:12 pm
DIEP SCARS treatment CICA CARE??Beth777, Thanks for the info about the sheeting........at least I know what to expect now. I'm anxious to try it out. I'm wondering if someplace like WalMart could order it out at a cheaper price. They've done that for me with Vanicream, when I was going through radiation a couple of years ago. It's nice cream for everything......not just radiation. Thanks again! Nancy DX 4/06, IDC, 2.5 cm.,stage IIa, grade 1, 0/3 nodes, ER+PR+, HER-2 neg. |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: Nov 14, 2008 05:23 pm
DIEP SCARS treatment CICA CARE??Beth777 I'm really feeling good these days, but the abdomen still feels a bit like there's a rubber band around it. My ps doesn't recommend Mederma or anything that doesn't have studies connected to it, for scar care. I THOUGHT you could use and re-use that silicone sheeting, but wasn't sure how that was possible. Guess I'll find out when I see it. Are you talking cleaning off the sheeting, or the scar? And if you're talking sheeting, do you just wipe it off with a damp cloth, or what? Glad you're paving the way, because I really want to beg some off the doc, as long as he mentioned it in the first place (maybe it's because I've been a referral source for him!) Anyway, thanks for the info. In the meantime, I'll massage with the cocoa butter stuff. Nancy DX 4/06, IDC, 2.5 cm.,stage IIa, grade 1, 0/3 nodes, ER+PR+, HER-2 neg. |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: Nov 14, 2008 08:23 am
DIEP SCARS treatment CICA CARE??I'm 9 wks. post-DIEP, and I've been massaging the scars with Palmer's cocoa butter with Vit. E. .......just mainly because it's a lubricant for the massage, and my adult son used it on a nasty scar on his forehead and it seemed to help quite well. Actually, my PS said he'd give me some slicone sheeting, so I'm going to remind him when I see him this coming Mon. How long do you leave the strips on for? I know it's pricey. And just exactly what does it do? Make the scar fade, be less bumpy, or what? I think we "newbies" are just anxious to see these red marks disappear, and I do know that time will take care of a lot of it. Hang in there, and I will, too!!! I'd still like to hear more about silicone sheeting, though. Thanks! Nancy DX 4/06, IDC, 2.5 cm.,stage IIa, grade 1, 0/3 nodes, ER+PR+, HER-2 neg. |
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Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Nov 10, 2008 08:40 am
Hysterectomy...Do you take the ovaries??When I had my hysterectomy at age 42 back in '90, my GYN said, "No ovaries, no ovarian Ca." Well, I guess having been diagnosed with breast Ca in '06, I was glad I'd had my ovaries out at the same time, as that's one less thing to produce estrogen (and my Ca was ER/PR +). Those words just came out of my mouth to my husband over the weekend. As long as you're having some menopause symptoms anyway, I'd say to get rid of them, especially with bc......no matter how innocuous it may seem. Hope this helps. Best of luck. Nancy DX 4/06, IDC, 2.5 cm.,stage IIa, grade 1, 0/3 nodes, ER+PR+, HER-2 neg. |
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Connecting With Others Who Have a Similar Diagnosis + IDC (Invasive Ductal Carcinoma), Created: Nov 9, 2008 01:48 pm
Open, oozing, bloody chestSome herbs and alternative medicines can actually cause more bleeding. Before my latest surgery, my ps wanted me off ALL meds. except for the prescribed ones he knew about. He was doing microsurgery, and did not need any extra bleeding. My heart goes out to you and your friend. I'm sure she feels like she'll try just about anything. Take care. Nancy PS. It sounds like they're trying all the traditional ways of trying to heal her. I'm just glad they're not using wet to dry dressings!!!! (I'm a nurse, and there are SO many better ways to heal wounds than many doctors' "standard" w-d drsgs.!) DX 4/06, IDC, 2.5 cm.,stage IIa, grade 1, 0 nodes, ER+PR+, HER-2 neg. |
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Tests, Treatments & Side Effects + Surgery - Before, During, and After, Created: Nov 7, 2008 08:02 pm
For those who "could" have Lumpectomy.... why choose Mast?I DID have a lumpectomy, followed by radiation. After a yr., and a deep scar on a small breast, I opted for implants bilaterally. All was great for 6 weeks, when my irradiated breast contracted, making the breast shoved, tight, and tender. I waited another yr., and for my own comfort and peace of mind, I went ahead and had a mastectomy completion with immediate DIEP flap re-con. I now feel like the breast I have is my own, and am glad I did it. If I knew before what I know now, I would have just had the mast. with immediate DIEP re-con., but alas........we get more informed as we make our way through this journey called cancer. I guess I just had to evolve. Nancy DX 4/06, IDC, 2.5 cm.,stage IIa, grade 1, 0 nodes, ER+PR+, HER-2 neg. |
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Connecting With Others Who Have a Similar Diagnosis + IDC (Invasive Ductal Carcinoma), Created: Nov 7, 2008 07:41 am
Is it normal to remaining positive?Though I didn't have chemo, I, too, have remained positive throughout. I think my boss at work thought I was in denial, but I felt that having the test results and a plan ahead of me, I would just keep moving forward. I made choices early on, and ended up moving in different directions over the past 2 1/2 yrs., but I still feel optimistic. (I first had a lumpectomy with rads., then implants, and now just had mastectomy completion with DIEP flap re-con. due to a contracture from the implant on the irradiated side.) Though I have more scars now, I'm COMFORTABLE, and don't feel like I have a softball glued to my chest!!! (hard, yet tender due to the implant being in too small of a space after the contracture.) Dr. John Hijjawi in Milwaukee did the DIEP, and I couldn't be happier! Yes, time to enjoy life! Nancy DX 4/06, IDC, 2.5 cm.,stage IIa, grade 1, 0 nodes, ER+PR+, HER-2 neg. |
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Connecting With Others Who Have a Similar Diagnosis + IDC (Invasive Ductal Carcinoma), Created: Nov 7, 2008 07:32 am
CHEMO OR NOT?Jerri, My grade was 1 and stage IIa because of the size. I'm 60 now and was diagnosed at 58, so that was a factor in my consideration of chemo or not. Yes, I am on Arimidex and the first autumn I was on it, my hands felt stiff in the AM, but seemed better as the day wore on. I AM getting older, and so now I tend to have stiffness other places as the weather turns colder (in WI) but I have had no major problems with the Arimidex. I started on Tamoxifen but developed an all-over rash......due to a drug-drug interaction with Singulair. All my docs were scratching their heads, till I saw my allergist the following spring and he told me why that happened. In the meantime I'd been switched to Arimidex and all's well. Hope all goes well for you, too! Nancy DX 4/06, IDC, 2.5 cm.,stage IIa, grade 1, 0 nodes, ER+PR+, HER-2 neg. |
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Connecting With Others Who Have a Similar Diagnosis + IDC (Invasive Ductal Carcinoma), Created: Nov 5, 2008 08:14 pm
CHEMO OR NOT?saraand45, My tumor stats were exactly like yours, except mine was 2.5 cm........that 's the only difference. I opted for no chemo, but rads followed by Arimidex instead. Both my med. onc. and bs said if they felt I really needed the chemo, they'd push me to do so. They didn't, and I decided not to. It was early stage, with low aggressiveness, no nodes........at the time, I was not encouraged to have the Oncotype DX test done. I probably would have the test run, if I had it to do over again. Anyway, I'm 2 1/2 yrs.out and doing just fine. Hope this helps. Nancy DX 4/06, IDC, 2.5 cm.,stage IIa, grade 1, 0 nodes, ER+PR+, HER-2 neg. |
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Connecting With Others Who Have a Similar Diagnosis + IDC (Invasive Ductal Carcinoma), Created: Nov 5, 2008 07:49 pm
More surgery or Masectomy?Personally, I would feel more confident by going for the mastectomy. I had an original lumpectomy with radiation, but after various circumstances, decided on a mastectomy completion with immediate DIEP flap reconstruction. I'm glad I did. Take care......Nancy DX 4/06, IDC, 2.5 cm.,stage IIa, grade 1, 0/3 nodes, ER+PR+, HER-2 neg. |
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Tests, Treatments & Side Effects + Surgery - Before, During, and After, Created: Nov 5, 2008 06:22 pm
How long before DIEP flap breast "plumps" up?Next stage is 12 weeks after healing, according to my ps. Thought maybe I'd have a nipple for Christmas, as my surgery was Sept. 10th. He says maybe for Valentine's Day! (Almost there, but not completely healed.) Nancy DX 4/06, IDC, 2.5 cm.,stage IIa, grade 1, 0 nodes, ER+PR+, HER-2 neg. |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: Nov 4, 2008 06:57 pm
immediate DIEP recon in Older personAnnie, How did things go? Are you home? Yes, I'm 60 and had a unilateral mastectomy completion with immediate DIEP, and I couldn't be happier. Hope your experience is as good as mine. Nancy |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: Oct 31, 2008 11:44 pm
Implants smaller than expanders!moodyk13, When I had implants put in, my ps told me to put rice in 2 baggies, put them in my bra and put on a t-shirt to see what size I liked!! I took the baggies filled with rice to the hosp. on the day of surgery, and he actually used those amts. to decide what he'd put in. I jokingly said I thought he just wanted Chinese for supper, and got his free Jasmine rice that way!!! Best of luck! Nancy DX 4/06, IDC, 2.5 cm.,stage IIa, grade 1, 0 nodes, ER+PR+, HER-2 neg. |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: Oct 31, 2008 11:30 pm
Opinion on DIEP flap reconstructionThe average is 4-5 days.......I was out in 4. For the 1st 48 hrs., they'll check your blood flow in the flap (by Doppler) every hour to make sure they hear the nice swoosh of good blood supply there. I was totally pleased with the outcome.......going from a contracted breast due to irradiation post-lumpectomy, to a mast. completion with immediate DIEP flap re-con. I finally feel like the breast on my chest belongs to me!! My muscle wasn't compromised in the least, as my perforators wrapped around the muscle, rather than going through it.....a nice surprise, that didn't affect the muscle at all. (I keep forgetting to ask when I can try crunches, but I'm sure they'd be no problem, as I'm now 7 wks. out). I DO have a couple of areas on my flap that are not healing as quickly as I'd like, but that's due to the irradiated tissue I had before. I guess that's been the most frustrating part of it........I'm a nurse, and can now identify with my pts. who have a slow-healing wound. GRRRR! I'd recommend Dr. John Hijjawi, but he's in Milwaukee, and I think your best bet is closer to home........in S. Carolina. Good luck.....it's a tough decision to take the plunge, but well worth it. Nancy DX 4/06, IDC, 2.5 cm.,stage IIa, grade 1, 0 nodes, ER+PR+, HER-2 neg. |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: Oct 16, 2008 07:56 pm
Capsular contractionbookerdust, I waited for a yr. and 2 mos. from my rads finish to haviig my implants put in. I contracted within 6 wks. of having the implant put in (on my affected side) I then waited another yr. and had a mastectomy completion on that side with immediate DIEP flap procedure. My ps said he had to be more aggressive with the irradiated tissue, as some of it didn't even bleed when he cut into it (which is not conducive to healing). I'm happy to say that I'm doing well, despite a couple of open areas due to that darned irradiated tissue! Good luck! Nancy DX 4/06, IDC, 2.5 cm.,stage IIa, grade 1, 0 nodes, ER+PR+, HER-2 neg. |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: Oct 16, 2008 07:48 pm
DIEP and Immediate ReconstructionI don't know if this is typical in all cases, but after my DIEP, I was in bed with knees bent and head raised for 48 hrs. post-op. The nurses came in every hour for 48 to check my breast with a Doppler, to hear the swoosh of the blood going through (music to your ears!) One of the worst parts for that period of time was having absolutely nothing by mouth.........I could wet my lips and tongue with watered ice chips and a spongey toothette, but couldn't even drink anything. They want to make absolutely sure that, should they have to whisk you back to the OR (if blood supply isn't up to snuff), that you'll be ready to roll! I, too, experienced back spasms when I first got up, and that was a killer. I only experienced that in the hosp., and was okay when I got home. I just noticed my back got sore and tired, as my front was so taut from the tummy tuck. I'm 5 weeks out now, and doing just great. I'm sure you will do just fine. My best to you! Nancy DX 4/06, IDC, 2.5 cm.,stage IIa, grade 1, 0 nodes, ER+PR+, HER-2 neg. |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: Oct 16, 2008 07:39 pm
Wound Vac for InfectionI can't attest to the pain, as I've never used one as a pt., but as a nurse, wound vacs are WONDERFUL for speeding up healing. I love them, and the results they produce. As long as the dr. keeps it on long enough, you'll be all set. I've run into some that take it off prematurely, and then you can run into problems again. Good luck with it.......it's a great device! Nancy DX 4/06, IDC, 2.5 cm.,stage IIa, grade 1, 0 nodes, ER+PR+, HER-2 neg. |
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Tests, Treatments & Side Effects + Breast Reconstruction, Created: Oct 13, 2008 09:54 pm
Capsular contractionbookerdust, I had the mastectomy for peace of mind as much as anything. I have a feeling that if you choose mastectomies, you wouldn't need the radiation, but ask your doctor. I know that lumpectomy + rads = mastectomy, but what I didn't realize was how disfiguring my lumpectomy scar could be. I also am a IIa, due to the size.......2.5 cm. Otherwise it was considered early stage, low grade, with no node involvement. I chose no chemo, but I'm 60 yrs. young and didn't want to go through it if I didn't absolutely need it. My drs. concurred with my decision. Keep us posted as to what you decide! My best to you.........Nancy DX 4/06, IDC, 2.5 cm.,stage IIa, grade 1, 0 nodes, ER+PR+, HER-2 neg. |
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