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Posted in:
Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Apr 1, 2008 12:30 am
Arimidex side effectsI experienced the achiness and stiffness that seems to be a common side effect of Arimidex. However, it recently occurred to me that I have not been feeling them so much this year (now completing 3 years on it). Other friends have had the same experience. It may take a couple of years, but the side effects often ease up! |
Posted in:
Support & Community Connections + Canadian Breast Cancer Survivors, Created: Apr 1, 2008 12:25 am
Chemo Dose Dense vs Standard DoseIt is my understanding that there have not been clear indications that dose-dense give better or worse statistics than the 3-week protocol. |
Posted in:
Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Jul 6, 2007 12:36 am
"Sicko" Moore movie"Herceptin was not approved until July of 2005 in Ontario, only after it had been used continuously in the U.S for at least 8-10 years and in B.C for 6 years."
Babyface - In your enthusiasm to make a point, you have made some misleading statements. Herceptin only came into widespread use anywhere, for early stage cancer, after the May 2005 San Antonio conference. It was generally used before that only for metastatic cancers, or in the trials. It was not available in B.C. for stage 2 breast cancer until June or July 2005, not 6 years as you implied. You mention the target wait of 84 days. That really surprised me (and is unacceptable). However, you didn't mention that the actual wait averages 38 days, which is not acceptable either, but it is certainly different from 84. You can find horror stories about medical treatment in Canada and anywhere. It is like discussing crime rates in various cities - we often lose perspective when we focus on sensational but true anecdotes. However, sometimes that is necessary to shock people into action - sort of like Roger Moore is trying to do. |
Posted in:
Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Jul 4, 2007 11:06 pm
"Sicko" Moore movieI just have to add my comments, even though others have made the points well.
Breast cancer cost me almost nothing, in dollars, and after 3 years browsing this forum I am totally convinced that my treatment was state-of-the-art. I had Neupogen for 10 days after every chemo - it was covered. I started Herceptin in June 2005, after the May conference. Some people had to wait a month or two or 3, but it was entirely reasonable that there would be a bit of delay. Of course, if you are caught in that delay, it is horrible, but NO system can eliminate all problems. What puzzles me in this discussion is the fear of "socialized" medicine. I do not understand how it could destroy America. Why on earth would that be the case? America is far more resiliant that that! Isn't primary and secondary education "socialized"? Whoops, maybe I better not start on education. I think there is a lot more to complain about in our education system than our health care system. People always complain about taxes, and our health care, simply because those are the things we are expected to complain about. I honestly have never minded paying my taxes, and am proud to be able to do so. In general, I don't think that if Americans move to Canada for a year or two, they would really notice much about our health care system being different in terms of quality. - C |
Posted in:
Recovery, Renewal, & Hope + Growing our Friendships After Treatment, Created: May 20, 2007 10:13 pm
What is your favorite book & Why?Can I name three?
(1) A Tale of Two Cities (mainly for the first sentence and the last sentence, but you really have to read everything between them in order to appreciate them. (2) One Hundred Years of Solitude by Gabriel Garcia Marquez. The language and translation are outstanding. (3) Maus by Art Speigelman. This is new on my all-time favorites list, as I just read it a few months ago. I never would have expected to find it so brilliant. It is definitely worth getting. - Clare |
Posted in:
Support & Community Connections + Canadian Breast Cancer Survivors, Created: Apr 8, 2007 11:46 pm
rate your canadian doctors!!I looked up 5 or 6 doctors I've known quite well over recent years and was very dismayed at the comments. One excellent one (in my opinion) got poor reviews and 2 mediocre (at best) got reasonably good ones.
For one doctor, it looked to me as if most of the 13 comments were written by the same person, who slammed the doctor mercilessly. It was a doctor I haven't seen for many years, because I moved, but she delivered 2 of my children and I was totally satisfied with her care. So, don't put too much stock in these opinions. - C |
Posted in:
Support & Community Connections + Canadian Breast Cancer Survivors, Created: Feb 9, 2007 08:48 pm
Did anyone have this Plastic Surgeon in Surrey BCI'm glad you are back at home and the surgery went well. I am curious about your impression of Dr. Oxley now. You did have the surgery by him, didn't you?
I just really liked his attitude with my father and wondered if you also found it positive. |
Posted in:
Support & Community Connections + Canadian Breast Cancer Survivors, Created: Jan 22, 2007 05:39 pm
Node positive chemotherapy...CEF vs AC/TLiz
I can answer that question. I was in the MA21 trial, on the EC/T arm. I just looked up the information I was given before I decided to do it. The AC/T group got AC every 3 weeks for 4 cycles, then Taxol every 3 weeks for 4 cycles. |
Posted in:
Support & Community Connections + Canadian Breast Cancer Survivors, Created: Dec 19, 2006 08:41 pm
Node positive chemotherapy...CEF vs AC/TYou know, that difference between 85% and 89-90% is not huge. They are both very good survival rates! When I started chemo I was told that either chemo regime would reduce my changes of recurrence from about 50% to 25%. So all 3 arms of the trial are showing better results than the expectations of only 2 years ago.
I suspect that the 'T' has particular benefits for some patients, and the news report suggests that 'E' might have been harder on your heart. When I first heard the news report, I realized that what seems good news for some patients would seem like bad news for others. So I hope that your oncologist can help lift your sense of doom. Clare |
Posted in:
Support & Community Connections + Canadian Breast Cancer Survivors, Created: Dec 18, 2006 06:51 pm
Node positive chemotherapy...CEF vs AC/TThe Edmonton Sun said:
"The three-year recurrence-free survival rate was 85% for the patients on AC/T, compared to 90.1% for patients on CEF and 89.5% for those on EC/T." I was on the MA21 trial, which this one sound like. I did EC/T arm, which was virtually as good as CEF, so I'm happy to hear this news. I am a little confused, though, because I though E had fewer heart-related side effects than A. But the news reports suggest otherwise. Clare |
Posted in:
Support & Community Connections + Canadian Breast Cancer Survivors, Created: Dec 9, 2006 04:53 pm
Did anyone have this Plastic Surgeon in Surrey BCHi Michelle
I am 2 years since my mastectomy and am not planning reconstruction, so I can't answer your exact questions. However, my 87-year-old father has had surgery by Dr. Oxley twice - for recurring squamous cell carcinoma on his face. My father's case is obviously not at all like yours, but if I were to have plastic surgery I would happily put myself in Dr Oxley's hands. He has been extremely informative as well as direct and compassionate with my father. (I've accompanied my father to 4 or 5 visits to him.) He is a great example of how to deal with patients, unlike some other doctors we've seen. So, best of luck.. Clare |
Posted in:
Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Nov 18, 2006 06:25 pm
Where's My Remote?I had to come on to say how much I enjoyed reading this thread today! For some reason, it reminded me of how satisfied I was this morning when I was able to fix my mother's computer...
The internet wasn't working and she thought maybe the recent wind storm had caused problems. However, I was able to find and fix an unplugged cord WITHOUT EVEN CALLING THE TECHNICAL SUPPORT line! I am now 20 months past chemo and 6 months past the end of herceptin. As my brilliant work this morning shows, you too will regain some of your mental function! |
Posted in:
Recovery, Renewal, & Hope + Inspiring Stories, Created: Sep 19, 2004 02:05 pm
Success Stories!Last week I climbed on a stump to offer some parsley over the back fence to my neighbour. She is in her late 70s and was telling me about her husband's illness. I mentioned that I was currently being treated for breast cancer. She asked "did you have a mastectomy?" I answered yes. She said "I had one 29 years ago." She said she hadn't even known what a mastectomy was since there wasn't much publicity about cancer at that time. She plays bridge with a group of women of similar ages, and 4 of the 12 have had breast cancer.
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