kyra

enjoylife, if you go to symptoms and diagnosis and the top of the page click on and look to the left you will see how they have abrivateted tech words, l hope this will help you, l had to find out myself, anytime you need any help just ask, hope your feeling ok what chemo treatment are you on, there so many different ones dont panic the nurses are so reasurring and do not be frightened to ask, thats what there for, you can well imagine when l go with my notes with questions but there fine l feel it is my body and l want to know what is going on.and l ask for the truth and what to expect which has helped so much, knowing that some of what l have been through is just having side effects, all the best and enjoy the group.

hello and welcome, sorry you to have  our problem, but when you are on your own it must find it very hard as my husband cannot discuss it, this is where this  group comes in. l am 49 and have DCSI and ILC x 6+ cm and l having FEC X6 Chemo, next one is in june that will be my 5th cycyle what chemo are you having? l had operertion in december to find DCSI and another operation in Feb 08 to find ILC  and had a left masectomy and l have done so much research and asked plenty of questioned, l have a 40% chance of it returning, there as been 5 in my family with this, but l still feel positive because the more you read and talk to you can see cancer research as really come on, l really hope you find this group supportive.and all the best.

as anyone had trouble with there chemo ? l am on fec x 6 and on my 4th cycle, the treatment l am having is iv 5fu, Epirubicin, and cyclophosphamide, the trouble l have had is phlebitis on the first cycle and the 2nd cycle they used a different vein to give the drugs on the the 3rd cycle they tried anoher vein but could see it was very painfull and my veins looked swoolen they gave me some steriod cream to rub in on the 4th round they had to use the arm which l had my lymph nodes out when l had my masectomy l did not feel happy about this but they said just for this cycle and go back to the other arm on thr 5th cycle all being well, as anyone else had this problem?

rue think positive cancer has come a long way, l have been dx with ILC 70mm and DSCI you have to do your reserch, l have had 2 operations in 3 months the last was a  masectomy now on fec 6 chemo my 4th is tomorrow l have a lovely team at my hospital and they are always there to ask, ILC has improved so much treatment wise, good luck and take it easy think of yourself first thats sounds terrible but you have to, this is your time.and get all the support that you can.

rue think positive cancer has come a long way, l have been dx with ILC 70mm and DSCI you have to do your reserch, l have had 2 operations in 3 months the last was a  masectomy now on fec 6 chemo my 4th is tomorrow l have a lovely team at my hospital and they are always there to ask, ILC has improved so much treatment wise, good luck and take it easy think of yourself first thats sounds terrible but you have to, this is your time.and get all the support that you can.

mary6204

hope all goes well, l am waitng to start chemo will know more on wednesday, good luck your not on your own.

Kimber.l cant believe your surgeon is letting you suffer, last week l had 250mls drained and on friday 300mls drained quite nasty looking but felt better today when l went another 300mls of seroma but it looked a lot better, hopefully mine is slowing down, l was dx in dec 07 with invasive lobular carcinoma grade 2 after having lumpectomy, then l was reffered to another hospital  l had a masectomy in feb 08 to find l had another problem DSCI grade 2, l had a total of 7cm invasive cancer this runs in my family, chemo to my chest wall for 8 months and radiation 5 to 6 weeks. and hormone theropy here we come. l must say l have the most wonderfull cancer group and if you feel uneasy talk to your cancer nurse, l have to wait for 12 to 18 months for my tram flap reconstruction. but that is my reward after all the sleepless nights. speak up and dont be afraid best of luck.