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Member Since: March 30, 2008
Last Login: November 30, 2008
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Diagnosis

Recent Posts by ACAB

Posted in: Tests, Treatments & Side Effects + Radiation Therapy - Before, During and After, Created: Nov 28, 2008 05:57 pm

Christina Applegate and radiation

Amen to what Emily said.  I had DCIS so I'm not a real trooper like you all with breast cancer.  I did elect the bi lateral mast.  I'm 43 with 2 girls under 4, little joys.

People are generally full of bull when they are faced with a person who has a real problem.  I've been guilty of it myself.  I don't know if they are nervous and feel the need to say something or what.

Christina Applegate is pardon my casual manner, the flavor of the month poster child for breast cancer.  I'm not trying to offend Applegate lovers.  It's wonderful that she's interested in helping people get MRIs and genetic testing. 

Real heroes are those with lots of bills, losing their hair, puking and doing radiation and all that stuff.  Tomato Juice don't focus on Applegate.  You've been through a lot.  You're a hero.  AND, I'm glad you feel well enough to run those stairs if need be. 

Amy B.

Posted in: Tests, Treatments & Side Effects + Surgery - Before, During, and After, Created: Nov 3, 2008 09:47 pm

Need pre-surgery tips for Psyching Myself Up!

Texas 357,

That's great that one of your drains is coming out.....3 days after surgery right?  Both my drains were in for a week.  I was so pleased when they took them out.  I could see one of them in my chest and I thought it was the edge of the expander, yikes!  Weird sensation yes, but what a relief to have them removed. 

I know hairy armpits aren't acceptable here but shaving isn't a priority for me anymore. 

Your spirits sound UP for someone so soon out of major surgery.  I wish you continued healing and rest.

Amy B.

Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Oct 20, 2008 09:57 pm

DIEP flap for mom of toddler tips?

PS

I'm changing Emily on the floor, so far so good. I was nervous too.

Amy B.

Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Oct 20, 2008 09:56 pm

DIEP flap for mom of toddler tips?

Laura,

Congratulations on your adorable 20month old son, what a blessing he is.  I'm so sorry you're going through this surgery.

I'm a 43 year old mom of 4 & 2 y.o. girls.  Had bilat mast 2/expanders last Wed (th 8th).  I had surgery out of town and stayed with friends.  It worked great for me.  My sister came to our home in NC, filled in for me and helped my husband tremendously.  I never thought I could leave the girls for that long (10 days).  I rested better than I could have at home.  No one thought my drains were funny little toys to pull.  And some days I was very pensive which is hard to carry off in front of a cheerful little person.  Is there any way a sibling or good friend can fill in for you while you recuperate?  Your surgery will be much more involved than mine so I can only relate a little bit. 

Our youngest is a little older than yours so you have a more challenging situation.  You're smart to train him to get in and out of his seat himself.  Instead of picking up Emily I get down on her level and give her a real loose hug.  That is working.  Tomorrow we're putting her in a toddler bed.  I know she's older than your son but with our FIRST child, we put her in a twin mattress on the floor in anticipation of the arrival of Emily.  Our oldest was 20 months when we did that and she transitioned very well.  We put a body pillow next to the mattress.  Some mornings she woke up on the floor but she had slept the whole night, as did we.  Safety proof his room so he can't pull over furniture.  We're going to put our daughter's bookcase on it's side so she won't climb it.  I'm leaving her one drawer to open and freely play in with "safe" toys. 

The idea of  a baby leash sounds good but remember he's going to pull on that.  I let our little girl push one of her outdoor cars around our neighborhood.  It's cumbersome enough to use all her energy and she can't run away with it.  

If he drinks juice, stock up on juice boxes.  Stock up on food for yourself too.  I ate a lot of fruit.  I read that pineapple contains bromelaine, supposed to be great for healing/brusing/pain.  I also bought  alot of new videos.  I don't like setting my child in front of the tv either but you need to have him occupied while you take it easy.  I've got a "booty" closet full of new stuff to interest them when I need to zone out.  Tuesday morning has great prices as do marshalls and places like that. 

Most importantly, LET YOUR FRIENDS AND FAMILY HELP YOU.  It will be good for your son, your husband and you.  Also, children are perceptive.  When I came home I had a pillow under my right arm and used it when they sat on my lap.  One time I got up without my pillow, Emmy followed, brought it over to me and said " here Mommy."  They know when we don't feel good and can adjust accordingly.  Your son needs a healthy Mommy for the many years ahead.  This will be a blip on his radar.  Sometimes that's hard to remember. 

I wish you the best,

Amy B. 

Posted in: Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Sep 10, 2008 11:14 pm

Anyone had hysterectomy following bi-lateral mastectomy?

Hi Allyson,

I've not had a hysterectomy or bi lateral but my thinking has been similar to yours.

 I'm 43 and not looking to expand our family either.  I never had children, we adopted our daughters now 4 and 2.  I had DCIS in my rt breast in March too.  I'd scheduled a bi lat mast in May then cancelled.  I heard the word drains and got scared. 

When I was first diagnosed with all this, every fear I'd had about ovarian cancer surfaced and I was sure I'd have a hysterectomy after a bi lateral mast.  Now,  I do differ from you in that I took LOTS of fertility medication over the years.  I assume that increases my risk for developing oc, hopefully not by too much.

I don't think you're crazy to want a hysterectomy.  Once you've been diagnosed with cancer you want to decrease your chance of having it again. 

It's good that you went through with your surgery.  I'm afraid I've entered into a kind of circular thought process regarding treatment.    I'm scheduled for a bi lat mast in Oct but not convinced I'll proceed.

Hope you hear from someone that's already travelled the road you're considering.

Amy B. 

Posted in: Not Diagnosed but Concerned + High Risk Women, Created: Sep 4, 2008 10:56 pm

Study: New way to spot breast cancer shows prom

My hygienist was talking about this today.  Her fellow hygienist friend and b/c veteran works with b/c pts at Chapel Hill and said they're starting this new testing.  Don't know if it's in progress or on the table for the future.  It's worth a phone call to the breast center at Chapel Hill if you're interested and near NC. 

Amy B. 

Posted in: Not Diagnosed but Concerned + High Risk Women, Created: Jun 24, 2008 10:38 pm

Prophylactic Mastectomy

Hi Christine,

I too had an MRI last Thursday.  My BS said it would take 3-5 days to have it read.  Today was day 3.  I live in coastal NC.  Had lumpectomy in March dx of DCIS.  Couldn't commit to radiation and am having 2nd opinions at Johns Hopkins, visited them in May. They suggested the MRI since I was having trouble deciding on course of treatment.  The BS's nurse told me they read MRIs within 24 hours.  Fed ex'd a cd of MRI and mammo films to them today.  Going on vacation Friday, hope to hear from both parties by then. 

I'm 43 have 2 little girls, aged 4 and 2.  They have been enormously distracting through all of this, a real blessing. 

Hopefully we both post tomorrow with "clean" MRI results.

Take Care, Amy

Posted in: Day to Day Matters + Humor and Games, Created: Jun 23, 2008 10:51 pm

6 Letter Word Game

from seated............steady

Posted in: Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Jun 18, 2008 11:19 pm

Sugery ove!

Sandy, congratulations!

I've been reading your comments since you joined the boards and was heartened by your news.  But what really compelled me to write was reading your grandboy's "imaginate" comment.  Our 4 y.o. daughter uses that word often.  The best part is seeing her sincere expression when she uses the word imaginate.  The distraction of small children is a blessing, isn't it? 

My best to you,

Amy B. 

Amy B.

Posted in: Tests, Treatments & Side Effects + Radiation Therapy - Before, During and After, Created: May 14, 2008 08:37 am

creams

Found a great cream called biafine from my dermatologist.  She burned a few things off my forehead (I grew up in FL) and recommended this stuff.  I hesitated due to cost but insurance covered a lot of it.  Out of pocket was 16$.  Pharmacist told me it was created for radiation patients.   Don't know if you can use it on breasts.  Had to call a few pharmacies to order, then purchase.  It's not like neosporin, contains no antibiotic, it worked very well and those 3 sores on my head went away lickety split. 

I'm having trouble deciding on course of treatment for some really minimal DCIS and found her comments regarding radiation patients comforting should I choose that therapy.

Amy 

Posted in: Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: May 10, 2008 11:02 pm

Guilty for "just DCIS?"

I've been lurking here since lumpectomy 3/19 found DCIS, 0 low grade.  I've had a lot of the same feelings many of you have posted.  I'm all over the place regarding treatment and I think that is from the minimizing I've heard from 2 surgeons and everything I've read on the internet about women with DCIS overestimating their risk.  One minute I'm going to do radiation then I think I'm going to do bi lateral mast.  I also considered having a hysterectomy (to skip tamoxifen)and being done with treatment.   I'm 43 and we have a 4 y.o. and 20 mo. old that we adopted at birth. ( Pina, I was an IVF patient with stage 3 endometriosis so I'm opting for hysterectomy-my breast surgeon said tamoxifen would "help" with the endometriosis).  I sometimes feel extreme considering the bi lateral.  Then I think well I could have it now or 20 years from now when I'll likely have other medical issues to consider.   I'm getting off topic and will search for treatment decision thread but I do think that all the minimizing I've heard is what is fueling much of my indecision. 

Thanks for posting,

Amy 

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