Profile for goops

Member Since: April 1, 2008
Last Login: May 11, 2008
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Diagnosis

Recent Posts by goops

Posted in: Connecting With Others Who Have a Similar Diagnosis + HER2/neu Positive Breast Cancer, Created: May 11, 2008 08:51 pm

herceptin and fatigue

I have been on Herceptin since Sept of last year, I do feel tired the week after I have it and after the last two treatments I was throwing up flem. I also have gotten water retention after some of the treatments which has made me achy for a few days.

Posted in: Connecting With Others Who Have a Similar Diagnosis + HER2/neu Positive Breast Cancer, Created: Apr 9, 2008 10:40 pm

Use PET scans aggressively for recurrence and NED status!!!!

My oncologist ordered a pet scan after a CT showed possible liver Metasis. The pet scan showed that I had no cancer in the liver, but it gave me a false positive for having it in the lymph nodes. Since I had just completed chemo - it was pretty frightening to think I had a new tumor. Thank goodness it all turned out to be OK.

My doctor does not believe in routine scans - and after going through the anxiety of them - I am glad she does not.

Posted in: Connecting With Others Who Have a Similar Diagnosis + HER2/neu Positive Breast Cancer, Created: Apr 2, 2008 03:29 pm

Herceptin Treatment

I am currently on Herceptin and my last Muga was 47 - they decided to give me 2 more treatments and then if my Muga isn't better - they will stop treatment for awhile. I have also been trying to find info on shorter treatment with Herceptin - but so far all I have seen is studies that still appear to be underway. Since I am stage III I know my oncologist is going to want to continue the treatments.

I did ask my oncologist about the nine weeks and he said the current recommendation is still 1 year and that shorter treatment protocals were being tested.

Posted in: Connecting With Others Who Have a Similar Diagnosis + HER2/neu Positive Breast Cancer, Created: Apr 1, 2008 11:21 pm

High blood pressure/Herceptin

I went through reconstruction while I was on Herceptin and Tamoxifen - I had no trouble tolerating it - I had the Silicone implant, I did not have high blood pressure problems. Are you measuring your BP at home? Mine is always high at the doctor's office but low at home.