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Member Since: April 5, 2008
Last Login: November 26, 2008
Birthday: December 16, 1969
Location: New Zealand New Zealand
Occupation: Emergency services operator

Biography

I am a single mum with a 17 year old son.  I am only 38 years old and live with my dad who has been great through all this

Diagnosis

Diagnosis: Dx 12/28/2007, IDC, 3cm, Stage IV, 1/4 nodes, mets, ER+/PR+, HER2-
Diagnosed: December 28, 2007
Type: Invasive or Infiltrating Ductal Carcinoma
Recurrent? No recurrence
Metastatic? Yes
Stage: Stage IV
Lymph Nodes Removed: 4
Positive Lymph Nodes: 1
Tumor Size: 3cm-3.9cm
Tumor Grade:
Hormone Receptor Status: Tumor has both estrogen and progesterone receptors
HER2/neu Status: Tumor does not have an excess of HER2/neu receptors or genes

Recent Posts by beastybabe

Posted in: Support & Community Connections + Lesbians with Breast Cancer, Created: Nov 21, 2008 01:33 am

Telling the truth

Im still in the process of coming out, but so far so good.  My question to the ladies out there is when you meet a nice lady do you tell her straight away whats going on or do you wait until she has become involved and then tell her.

My feelings is that I know how much of a struggle this has been for me and Im doing okay now but I also know that one day things are not going to be pretty towards the end.  So I think that I should be upfront and tell the new partner to be and then at least she can make a clear concise choice.  If she stays then great Ive found myself a winner and if she doesn't then it wasnt meant to be.

What do you think


Dx 12/28/2007, IDC, 3cm, Stage IV, 1/4 nodes, mets, ER+/PR+, HER2-
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 27, 2008 02:54 am

MOM IS IN THE HOSPITAL!

Crystal

Im sorry to heart that your mum is having so much trouble, just know that your in my thoughts and prayers


Dx 12/28/2007, IDC, 3cm, Stage IV, 1/4 nodes, mets, ER+/PR+, HER2-
Posted in: Tests, Treatments & Side Effects + Alternative, Complementary & Holistic Treatment, Created: Oct 23, 2008 03:59 am

Alternative sum up please!!

Hi Caroline

I take a range of alternative medicine and so far so good, I think that these meds have helped my immune system hold off my cancer.

I take: Melatonin (20mg) at night this is used for cancer cell death

          Tumeric one table every morning and night

          Calcuim with magnesium and Vitamin D for my bones

          Esther C 1000mg everyday and night

          High dose IV Vitamin C, this is said to act like a natural chemo

         Omega 3 and 6

         Biotin every morning and night - good for the hair and cancer cell death

 I also try to eat fresh fruit and veges and when I can afford it I buy organic milk, bread and butter.

I too am still looking at other things just to see whats out there.       


Dx 12/28/2007, IDC, 3cm, Stage IV, 1/4 nodes, mets, ER+/PR+, HER2-
Posted in: Site News and Announcements + Comments, Suggestions, Feature Requests, Created: Oct 18, 2008 02:10 am

Is the site slow, or is it my puter? :(

yes, ive been having problems too, i just thought it was me....does anyone know whats going on??????


Dx 12/28/2007, IDC, 3cm, Stage IV, 1/4 nodes, mets, ER+/PR+, HER2-
Posted in: Connecting With Others Who Have a Similar Diagnosis + Triple Negative, Created: Oct 18, 2008 01:42 am

Questions for all, PLEASE help

Hi tooandrea

I would assume that because we have it here in New Zealand that you guys in the States would have it, (Vitamin C IV), you will just need to find a clinic that offers it.

As for the rads, unfortunately I did have a reaction to the rads, although I only had 5 doses, I had an almost instant reaction, nausea, vomiting when I tried to eat, headaches and really tired alot of the time.

Im 38, I have one son that I breast feed until he was 8months old.  As you know I take a range of vitamins to help keep my body strong to fight this dam thing, I also try to eat fresh veges and fruit.  I would like to eat only organic food but it is quite expensive here so I get organic milk, butter and cereal.

I see my oncologist every three months and have a CT scan every 4 months, and Im sure that once this last one is shown to be clear that my check ups will go to every 6 months.

I dont think Ive ever had a PET scan, unless they call it something different here.  When I was first diagnosed with it in my spine, I had a range of X-rays, like, normal xrays, bone scan, mri and CT scan.


Dx 12/28/2007, IDC, 3cm, Stage IV, 1/4 nodes, mets, ER+/PR+, HER2-
Posted in: Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Oct 17, 2008 04:47 am

19 yr old scheduled for biopsy and don't know what to expect

Hi amyhipps

Its me again, I was looking around the site and came across a forum for young women with cancer. So that may be a place that you would like to go


Dx 12/28/2007, IDC, 3cm, Stage IV, 1/4 nodes, mets, ER+/PR+, HER2-
Posted in: Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Oct 17, 2008 04:36 am

19 yr old scheduled for biopsy and don't know what to expect

Hi Amyhipps

You've come to the right place, there are lots of ladies that will be able to offer you their knowledge.

As for the biopsy, what they did for me was they numbed the area first and then put a needle into the breast and took several samples.  I could no feel any pain but it was uncomfortable for me. 

Over this last week there have been several young women who have posted on this site, so hopefully they will see your post and answer you.

I know its easy to say, but try not to worry.  But remember that once you know one way or the other what you are dealing with you can start to put a plan into action.


Dx 12/28/2007, IDC, 3cm, Stage IV, 1/4 nodes, mets, ER+/PR+, HER2-
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Oct 17, 2008 04:22 am

New To Board- Introduction...

Welcome Michelle

Good luck for your mammogram, I think that with your experience you will have a few ladies asking you the questions.  As you can give them information that they might need.


Dx 12/28/2007, IDC, 3cm, Stage IV, 1/4 nodes, mets, ER+/PR+, HER2-
Posted in: Connecting With Others Who Have a Similar Diagnosis + Triple Negative, Created: Oct 17, 2008 04:14 am

Questions for all, PLEASE help

Hi tooandrea

I was diagnosed with breast cancer earlier this year.  I was given 5 doses of radiation and have had no chemo.

But what I have done is IV Vitamin C, High dose Melatonin, Curcumin, Biotin, Quercetin, Calcium and Esther C.  All these things are natural products, at my last scan in July there showed no new cancer and I had signs of healing at the tumor site.

So in my opinion I think that the natural products are helping my body fight this damm thing by helping my immune system.


Dx 12/28/2007, IDC, 3cm, Stage IV, 1/4 nodes, mets, ER+/PR+, HER2-
Posted in: Connecting With Others Who Have a Similar Diagnosis + IBC (Inflammatory Breast Cancer), Created: Oct 17, 2008 04:07 am

New and Should I be more worried

Hi there

Im glad that you have come here, hopefully more ladies answer your post.

I must say that Im concerned on your behalf about the discharge and the fact that your breasts are so tender and that you have a burning sensation.

I think that usually a burning sensation is a sign of an infection, along with the discharge.  I would be tempted to go to a doc as soon as I could.

As for the ultrasound or mammogram, I would do both.  I was lucky as here in New Zealand they do the mammogram and then an ultrasound.

As for only being 39 and the doc saying not to worry, I was 38 when diagnosedd with breast cancer...Please get yourself checked.  If its nothing then that good but if its something then the soon they get onto it the better.


Dx 12/28/2007, IDC, 3cm, Stage IV, 1/4 nodes, mets, ER+/PR+, HER2-
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 16, 2008 03:42 am

I Have lost my beatiful Mum

Oh Holly01

Im sorry to hear that your mum has passed away, I guess one thing now is that she is no longer in pain and is at peace.

You and your family are in my thoughts and prayers


Dx 12/28/2007, IDC, 3cm, Stage IV, 1/4 nodes, mets, ER+/PR+, HER2-
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 14, 2008 01:36 am

What do bone mets feel like?

When I was diagnosed with bone mets it was because I had requested my doctor to get my back checked out as I was having pain and wanted to cross out any chance that it was cancer.

Unfortunately it was cancer in my T8 vertebrae, it was quite painful because I also had a compression fracture in the same bone.  I was told by my doc that I probably have had my breast cancer for a year or so as the T8 bone is completely taken over with cancer.  but until I did the fracture I had no pain at all and would not have even given it another thought.

I guess its different for everybody, it just depends on where the mets is and whether it causes any pain..


Dx 12/28/2007, IDC, 3cm, Stage IV, 1/4 nodes, mets, ER+/PR+, HER2-
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 13, 2008 02:06 am

MOM NOW HAS BRAIN METS!

Hi Crystal

Im sorry that your mum has joined this club, but try and stay strong.  There are other ladies here that can hopefully help you with the questions that you have.

I will keep you in my thoughts and prayers


Dx 12/28/2007, IDC, 3cm, Stage IV, 1/4 nodes, mets, ER+/PR+, HER2-
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 13, 2008 02:00 am

advice please - mom with mets to lung, liver, and bone

Hi TMB2357

I was diagnosed with bone mets in March and so far have had no chemo, I have had radiation and am on tamoxifen....so far my bone mets is stable....Im due to have another CT on Friday as I have been having a little pain.

But there are other ladies on this site that have had mets and have lived a long time.  Im sorry that I cant answer your questions, hopefully other ladies on this site will be able to answer your questions.


Dx 12/28/2007, IDC, 3cm, Stage IV, 1/4 nodes, mets, ER+/PR+, HER2-
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 13, 2008 01:54 am

Scared about cancer spreading

Diane thanks for replying, apart from the 5 rad doses that I had and the tamoxifen that Im on, I have had no other treatment or drugs for the bone mets


Dx 12/28/2007, IDC, 3cm, Stage IV, 1/4 nodes, mets, ER+/PR+, HER2-
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 12, 2008 08:33 pm

Scared about cancer spreading

does anyone that has had or has bone mets redone a fracture that had healed????????


Dx 12/28/2007, IDC, 3cm, Stage IV, 1/4 nodes, mets, ER+/PR+, HER2-
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 12, 2008 08:28 pm

Bone pain

Hi

I agree with Ozzie, go and get a CT scan or a bone scan, at least then you will know one way or the other what your dealing with.


Dx 12/28/2007, IDC, 3cm, Stage IV, 1/4 nodes, mets, ER+/PR+, HER2-
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 12, 2008 07:52 pm

Update on my Mum

Holly

I am so sorry to hear about your mum....just want to let you know that you are in my thoughts and prayers.  Im not sure what to tell you....but I hope that your mum gets better and if for some reason she doesnt then I hope that your mum has no pain and is peaceful.


Dx 12/28/2007, IDC, 3cm, Stage IV, 1/4 nodes, mets, ER+/PR+, HER2-
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Oct 12, 2008 07:37 pm

Periods Returning????

Hi ya

Im not sure what to tell ya, but I was on the injection as a form of birth control last year before I knew about the cancer.  I did not get the next injection as I decided to let my body get back to normal.

But of course in January the cancer came along and I had rads in April or May, 65 days ago I had some spotting and thought that things were returning to normal but that only lasted a couple of days and then it was 55 days before I got what I call a proper period.  I have know idea when the next one will be.

I too am on Tamoxifen....Im not sure if its the tamoxifen that is causing the periods to go all over the place, as the tamox effects your hormones.


Dx 12/28/2007, IDC, 3cm, Stage IV, 1/4 nodes, mets, ER+/PR+, HER2-
Posted in: Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Oct 11, 2008 03:08 am

worried beyond belief

amyhipps

Im sorry that you are going through this, but I would insist on more tests, like maybe a CT scan or a biopsy, that way you will know for sure and maybe you should go and see an oncologist....to me it doesnt sound like they are doing enough.

Dont give up, keep going at them until you get an answer one way or the other. 


Dx 12/28/2007, IDC, 3cm, Stage IV, 1/4 nodes, mets, ER+/PR+, HER2-

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