Member Since: April 8, 2008
Last Login: November 24, 2008
Location: Colorado Springs, CO United States
Occupation: R.N.
| Diagnosis: | Dx 2/7/2008, IDC, 1cm, Stage I, Grade 3, 0/2 nodes, ER+/PR-, HER2- |
| Diagnosed: | February 7, 2008 |
| Type: | Invasive or Infiltrating Ductal Carcinoma |
| Recurrent? | No recurrence |
| Metastatic? | No |
| Stage: | Stage I |
| Lymph Nodes Removed: | 2 |
| Positive Lymph Nodes: | 0 |
| Tumor Size: | 1cm-1.9cm |
| Tumor Grade: | Grade 3 or high grade |
| Hormone Receptor Status: | Tumor has estrogen receptors but not progesterone receptors |
| HER2/neu Status: | Tumor does not have an excess of HER2/neu receptors or genes |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Jul 4, 2008 11:20 am
Starting Chemo May 2008Eddie - I'm DONE DONE DONE with any toxic chemicals being infused into my blood stream. Three weeks from now my onco and I will discuss what's next - anti hormal therapy. Robin Robin K. Dx 2/7/2008, IDC, 1cm, Stage I, Grade 3, 0/2 nodes, ER+/PR-, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Jul 3, 2008 10:01 pm
Starting Chemo May 2008I'm with you ewesterman...DONE DONE DONE DONE DONE, relieved yes but more so next week when the worst of my se's will be over. I am hoping that this cycle mimics #2 which seems to be a piece of cake! Aiming for chocolate. Rock, I'm with Otter. You were/are and awesome substitute chemo professor. Dark chocolate curing everything? don't know about curing everything but I enjoy eating it, Ya know, it is counted amoung the good belly fat foods as it contains MUFA (monounsaturated fatty acid). I don't think they intend me to eat the amount that I do. Robin K. Dx 2/7/2008, IDC, 1cm, Stage I, Grade 3, 0/2 nodes, ER+/PR-, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Jul 3, 2008 02:38 pm
Anyone on just Taxotere and Cytoxan?HAPPY LAST DAY OF CHEMO TO ME! A few of the nurses gathered round me and sand to me, gave me a card and a lovely mug with sunflowers. I am touched...I am also glad to not have to come back here! As I write this I am still in the chair, getting Zofran now then Cytoxin then HOME! To the rest of you finishing today CONGRATS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I will consider myself officially done when my 3week post chemo labs are drawn and comback normal. To all a good July 4th weekend and minimal SE to those in need. Robin K. Dx 2/7/2008, IDC, 1cm, Stage I, Grade 3, 0/2 nodes, ER+/PR-, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Jul 2, 2008 10:04 pm
Anyone on just Taxotere and Cytoxan?Gee Otter, Edema now? when things should be going away. Somewhere (i don't know if it was on this thread) in some information about Taxotere I read about peripheral edema/taxotere and either occuring a while after treatment concludes or the possiblity of lasting quite a while in some persons. After treatment #3 on day 7-9ish I developed edema of my hands, feet, lower legs, and mast. site. Today I mentioned it to my onco who agreed it was from the Taxoteres. He said if it happened in round #4 and didn't self resolve OR was worse than last time he would prescribe a diuretic. Tomorrow is the beginning of the end for me...last chemo! It will be more of an end 3 wks after my last trip to the chemo bar and I receive my final labs and my walking papers! Oh yeah, and I suppose a prescription for an aromatase inhibitor. Robin K. Dx 2/7/2008, IDC, 1cm, Stage I, Grade 3, 0/2 nodes, ER+/PR-, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Jul 1, 2008 12:22 am
Starting Chemo May 2008Rock...I'm sorry you are scared of the Taxol coming at you Wed. Being on Taxotere/Cytoxin I don't know how to advise you. How often do you go for those treatments and for how long? It looks like our receptor status is the same but one of your nodes had the nerve to be possible, mine were negative. Remind me what your were on initially. I recall being frightened with my 1st chemo but found it all to be anti-climatic. What I am now dreading is not my next and LAST treatment Thursday but possible crap my body will go through following Thursday. Well, whatever my reaction is this time it all must be over by day day 7 since DD college visit/registration is days 8 and 9. Just drug me up with Ativan and put me in a wagon. On Wed. this week I have two job interviews and think I'll suck it up and wear the wig. My biggest concern is not anyone detecting fake hair but flexing my start date when they learn my leave of absence isn't over until July 31. I'd consider having my onco sign my release to return to work early but my DD paid for my sister to come visit me and that trip is the last week of July. Don't think my sis or dd would understand if I said welcome to town, now I have to leave for a new job. I'm babbling here but am hoping you'll still read... Robin K. Dx 2/7/2008, IDC, 1cm, Stage I, Grade 3, 0/2 nodes, ER+/PR-, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Jun 28, 2008 04:12 pm
Anyone on just Taxotere and Cytoxan?NO NO NO NO NO #4 can't be worse or bad or what ever. Chemo is on July 3rd, July 10 and 11 dd and I have to go for her college orientation/registration. #2 was almost a walk in the park and since #1 & #3 were bad #4 HAS to be easy. RIGHT??????????????????? Otter - I want that 6-8 pound weight loss. I seem to be slowly putting on some pounds. Not happy. Robin K. Dx 2/7/2008, IDC, 1cm, Stage I, Grade 3, 0/2 nodes, ER+/PR-, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Jun 26, 2008 11:31 pm
Starting Chemo May 2008tomatojouic - hope you will be satisfied with whoever takes over you care. Cristine - glad you finally got your treatment. Not that I wish this kind of stuff on people but dragging the end of this saga out is not something I want for any of us. Rock - you and your TMI alert made me laugh out loud! Hope your _____ is healing. About the podiatrist, I've considered going to one as I have this funky big toenail that just keeps getting funkier. I am actually hoping the chemo will kill off whatever is making it grow wierd. Maybe that will be a good side effect! I don't like the NO barefoot thing. Roxi - hurray for being done! RanD - sorry you've had two crappy weeks but good to know your sone is doing better. Otter - I wasn't familiar with Traci's thread so I checked it out. Think I'll post here with my friends when I need to vent. Well, I'm off to bed. Gotta take the 21 year old ds to the greyhound station at 4:30 am, he's headed to montana for 6 weeks. $300 roundtrip compared to a $700 flight so needless to say the bus won. Robin Robin K. Dx 2/7/2008, IDC, 1cm, Stage I, Grade 3, 0/2 nodes, ER+/PR-, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Jun 26, 2008 11:08 pm
Anyone on just Taxotere and Cytoxan?Karen - I get Decadron starting the day before chemo, the day of and the day after, twice daily. Last time (#3) I forgot several doses and wonder if that was the reason I developed some peripheral edema about a week after the treatment. Sandym - congrats on a good finish! RNKaren - do you see any lines or discolorations with your nails? I've been fortunate, no nail pain. One of my toenails was funky for a long time before chemo, I am hoping since the chemo kills so many cells, good and bad, it will kill whatever is making my toenail so ugly. RJ62 - my face gets red and stays red for 3-4 days. The steroids cause flushing but I think mine is related to the Taxotere as I've had others symptoms of an allergic reaction. VBG - my onco only gives neulasta if the white count drops to an unacceptable level. My did not so I've been one of the lucky ones! After treatment #1 my CBC was checked and since it was satisfactory the labs are now done a day or two before chemo. I'm just fine with that. beachmom - hurray for being done! rosario and senora - good to hear from you I noticed today my eyebrows looking sparse - I tried some pencil to fill in but thought they looked worse. My lashes are hanging in there. My head has a lot of white stubble that has been growing since the initial fallout and I have shaved it twice because I didn't like the way it looked. Today I noticed my scalp being tender like the first time so I wonder if it's a precursor to more instense baldness. Robin K. Dx 2/7/2008, IDC, 1cm, Stage I, Grade 3, 0/2 nodes, ER+/PR-, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Jun 24, 2008 10:38 pm
Anyone on just Taxotere and Cytoxan?Holy Cow deecsw and Liz....not a good day for Taxotere. I;ve had reactions but not to the severe nature of yours. Sounds scary and I'm sorry for both of you. Robin K. Dx 2/7/2008, IDC, 1cm, Stage I, Grade 3, 0/2 nodes, ER+/PR-, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Jun 24, 2008 10:29 pm
Starting Chemo May 2008Beachmom - I'm done next Thursday. I hate that it's almost time but to know there won't be any more trips to the pool, bar, beach, exotic destination and be served up my toxic cocktail...woohoo!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! So come on July 3rd. Get r' done. I'll jump on board where ever you'd like to go. Robin K. Dx 2/7/2008, IDC, 1cm, Stage I, Grade 3, 0/2 nodes, ER+/PR-, HER2- |
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Tests, Treatments & Side Effects + Breast Prostheses and Reconstruction Alternatives, Created: Jun 24, 2008 10:22 pm
What's involved with a fitting?I went to be fitted about 4 weeks post op which turned out to be a mistake, now wish I had waited another 4 weeks. The landscape of my operative site has gradually changed, all the swelling is gone and the size 5 I walked out of the boutique with is clearly too small. I am not symetrical and struggle to keep the form on the side of my chest it's supposed to be on, unless I adjust the bra more then the band digs into my ribs and makes me uncomfortable. Today I went to a different fitter, got resized and am considering a different brand. Currently the small one is Amoena Natura Light 2s size 5. The fitter suggested Trulife 472 silk plus size 7. No decision will be made until my breast surgeon writes a letter of medical neccessity for the insurance company. Having already paid for one foob they certainly don't want to pay for a 2nd since it's been about 6 weeks, not two years. Tomorrow I'm going to make a trip to the boutique and talk with the original fitter. Maybe she'll work with me??? I did learn something interesting, they may pay for at least part of a custom prosthesis - it is considered a nonsurgical reconstruction. Also if I opt for the custom form that will not alter my benefits when it comes to surgical rescontruction. That made me feel better. Robin K. Dx 2/7/2008, IDC, 1cm, Stage I, Grade 3, 0/2 nodes, ER+/PR-, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Jun 21, 2008 01:22 am
Starting Chemo May 2008Rock: re holding our shit together too well. Earlier this week I posted my melt down (don't remember now if it was on this thread or the taxotere/cytoxan thread). I had worked very hard on staying positive for me and everyone else but Monday I allowed myself to feel what I've been stuffing inside, allowed myself to speak the words. It was quite therapeutic. A dear friend who has been a sounding board for me told me she was glad to hear I had finally gotten pissed off, that it was about time. I didn't need anyone's permission to fall apart but it sure felt good to have someone give me a pat on the back for being human and vulnerable. My friend reminded me to keep the big picture in mind, one sucky year that will eventually be behind me, that I am enduring this to assure many wonderful years ahead of me. where was i going with this???? Oh yeah...it's OK for us to break down but we can't stay down, we all have futures and wonderful years ahead and must tell ourselves this is doable!!!!!!!!!!!!!!!!!!!! Robin K. Dx 2/7/2008, IDC, 1cm, Stage I, Grade 3, 0/2 nodes, ER+/PR-, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Jun 20, 2008 12:13 pm
Starting Chemo May 2008Ladies, I must tell you what my 18 year old dd has done for me. It requires a bit of back ground info. Columbus, ohio is where I grew up but moved to Colorado in 1981. My entire family resides in Columbus. One of my sister's was going to come to spend time with me in July, after my last chemo. Her husband lost his job last week and the trip to Colorado was not going to happen. This past week I've had a very difficult time with round 3, physically and emotionally so I was quite upset about not being able to see my sis. Yesterday my dd (who works two jobs) informed me that she has arranged for my sis to fly out for a visit, paid for it with her hard earned money but is keeping the arrival date a secret. Today I am still awed by the depth of her love and her desire to do such a special thing for my sis and I. I am blessed. Robin K. Dx 2/7/2008, IDC, 1cm, Stage I, Grade 3, 0/2 nodes, ER+/PR-, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Jun 19, 2008 11:45 pm
Anyone on just Taxotere and Cytoxan?catlover: my hands and fingers are tight, hard to get my ring off. my watch leaves an imprint on my wrist and that never happens, my operative side feels tight and anything i wear leaves a mark, and my legs which are kind of skinny look fluffy - socks leave a mark. glad you mentioned the face because i thought my face looked full. is that because of the taxotere (otter you probably know the answer)? The decadron we take doesn't help with the moon face either. as for how #3 did me in...first of all i had a reaction to the taxotere the first night (chest burning, tightness). the next few days i was more tired than usual then day 5,6,7 i was physically and emotionally exhausted, the brain fog was worse than the other 2 cycles, my taste was shot, and this time around i got constipated. I reached a low point when i was ready to through in the chemo towel but i have persevered. today i have a sore throat - dh says it's red and swollen but i am not running a fever. I guess that's it. Robin Robin K. Dx 2/7/2008, IDC, 1cm, Stage I, Grade 3, 0/2 nodes, ER+/PR-, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Jun 18, 2008 10:46 pm
Anyone on just Taxotere and Cytoxan?So Karen...what did ya do with that hair? I do like the statement it was/is making cause over the past few days I just wanted to throw in the towel. This round three kicked my butt and now as I am picking myself up again I am realizing I've developed edema. Anyone else experience that and how long does it last? Robin K. Dx 2/7/2008, IDC, 1cm, Stage I, Grade 3, 0/2 nodes, ER+/PR-, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Jun 18, 2008 01:12 pm
Starting Chemo May 2008For anyone: back to the Nioxin subject. I am confused about which "system" to try #1, #2, #3 which one? My brain is sooooooooo foggy I can't get it figured out. Robin Robin K. Dx 2/7/2008, IDC, 1cm, Stage I, Grade 3, 0/2 nodes, ER+/PR-, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Jun 16, 2008 07:24 pm
Anyone on just Taxotere and Cytoxan?Thanks friends. Concerning the Nioxin - which number are you using? Also are you using the entire treatment system, just the shampoo - scalp treatment or what? Robin Robin K. Dx 2/7/2008, IDC, 1cm, Stage I, Grade 3, 0/2 nodes, ER+/PR-, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Jun 16, 2008 04:30 pm
Anyone on just Taxotere and Cytoxan?Thinking I could manage I drove to my appointments (cancer exercise program and lymphedema prevention). After 10 minutes on the treadmill (on which I was doing pretty good) my PT comes over, asks how it's going today after which I am reduced to tears. Finally I have allowed myself to feel my fear, my frustration, my baldness, my numb deformed chest, my smaller remaining breast that I once considered my equalization procedure. Allowed myself to say I am feeling very poorly today, I am weary, my taste buds are shot but I'm hungry, I'm cold, I hate the dark circles and bags under my eyes. Allowed myself to be upset with friends and family who can't meet my needs because they are either halfway across the country or mostly because they don't know how to reach out to me. Angry with myself for sucking it up all this time, playing strong for everyone when I wanted someone to be strong for me but I never said anything. Angry with myself for choosing chemo therapy but knowing I would always doubt a decision refusing chemo, wondering if I had done everything to insure a good shot at long term survival. Today I just want to be done. I do not want to take a single dose of antihormonal medication. I dont' want to have one more surgery but I do not want to look like this anymore. And I want to be with my Mom but she's in Ohio, I'm in Colorado, she will never be able to travel here again due to strokes suffered after her mastectomy. But my house isn't flooded. Nor my forest or home burning. I don't have bug bites, or hand/foot problems, or diarrhea or constipation. I don't have a fever and am not nauseated. It's cool and damp here today but I have a dry house and heat and warm clothes. My dh was understanding when I called and said I just couldn't do the errands I had promised. Said go home-go to bed -I'll take care of everything. I'm not sure why I expected him to say anything else - guess I just needed to hear the words. Robin Robin K. Dx 2/7/2008, IDC, 1cm, Stage I, Grade 3, 0/2 nodes, ER+/PR-, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Jun 16, 2008 11:29 am
Anyone on just Taxotere and Cytoxan?For the first time I feel "stuck". I've got two appointments, and errands to do so we can go fishing tomorrow. need to do something that feels fun and normal but today I just don't give a crap about anything. This is day 5, cycle 3. Up until this point I've sucked it up, done as much as I could around my house, drive to most of my apointments, even feed the family but I don't want to do a bloody thing and I want someone to feel sorry for me today. BooHoo I couldn't even shave my head without giving myself razor burn. Poor scalp. good thing for hydrocortisone cream. On the other hand, I had a nice weekend. Robin K. Dx 2/7/2008, IDC, 1cm, Stage I, Grade 3, 0/2 nodes, ER+/PR-, HER2- |
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Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Jun 16, 2008 07:39 am
Anyone on just Taxotere and Cytoxan?Otter ; you can have my Udder cream also. Glad to donate it to a good cause Robin K. Dx 2/7/2008, IDC, 1cm, Stage I, Grade 3, 0/2 nodes, ER+/PR-, HER2- |
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