cjl56

nancylovespink,

I am scheduled forsurgery on June 16.  I am getting a mastectomy on one with reconstruction trap flap.  I am really scared but I work and try to keep really busy.  I started mall walking and exercise.  I will be in the best shape of my life.  I feel I will look hot another way.  I still haven't met w/my ps yet so, i'm waiting to see what that brings. Tomorrow I go to my surgern to review tests that I took last week.  I really can't wait for everything to be over with.  This web site is great and just reading what everyone else is going throu keeps you informed. I have learned alot from this site and it has helped me alot

cjl56

I met with the oncologist and back again with the surgeon.  The oncologist agreed with the surgeon on the mastectony.  the mri showed the mass is 1.6 ap X 3.0 transverse X 5.4 cm.  I'm not really sure what all of that means except the the mass is larger then the mammo showed. it also said that craniocaudally highly suspicious for malignancy. (does anyone know what that means?).  also demonstrates some nodular peripheral rim enhancement postcontrast( ?) AND a 5mm rounded enhancing solid mass likely an intramammary lymph node. AND if that's not bad enough the MRi also showed high t2 weighted signal intensity massed in the liver measuring 1.5 X 1.7 cm.  does anyone know what all this means? 

We'll I had the MRI done on 4/18.  Now again waiting for the results. On Fri I have a apt with the oncologist.  My dr wants me to get a second opinion and talk to other women there and then go back and see her later that same day.  I had a good weekend, but today I'm really wired.  I feel so down.  I feel like because it's stage o, no one takes it serious.  and now I'm getting a Mastectomy.  I just want to cry and scream.  I feel lost.  I think I feel how can I have cancer and they cought it in time and I'm not sick or in any pain, but now I have to get a mastectomy.  I think my nerves are really kicking in. I know I'm going to have more of these days.  How do you get by with acting liking nothing is wrong, and everyone else acts like nothing is wrong.  Everyone is joking about how great it is to get new boobs and I even joke about it but I'm dying inside.

crazydaisy,

I had my visit with the surgen, she said that there is not a very clear path.  she showed me the mammo's and said that there is a large mass where the DCiS is comming from.   report shows it's 3.2cm,

DCiS, intermediate to high nuclear grade w/central necrosis (whatever this means)  She said a lumpedtomy was out and she recommends a mastectomy.  I am really in shock.  I had no idea that w/dcis this was even a thought.  Why did you get a Mastectomy and how did you make such a hard decision?  did you get reconstruction?  I'm just having a hard time facing that decision. 

Cathy

The report says right breast mammotome bx"is a 3.2cm in greatest dimension aggregate of yellow-tan fibrofatty tissue cores. t/2 (ml:mls:mm)

Diagnosis:

-ductal carcinoma in situ, intermediate to high nuclear grade, with central necrosis.

-no invasive carcinom identified

-microcalcifications present, associated with benign ducts

- estrogen receptor: positive 70%

- progesterone receptor: positive 90%

for estrogen and progesterone receptors, positive is >1% strong nuclear staining or >10% weak or moderate nuclear staining; FFPE, CLONE pgr636, ABC detection.

I have a MRi scheduled for fri 4/18, then meet with her next wk to review MRI.  at this point she wants to do a Mastectomy. because of the mass the dcis is in.  the radiology report for the ultrsound reads:

ultrasound of the upper outer right breast reveals a hypoechoic vague mass deep in the breast parenchyma measuring 3.3 X 1.7cm.  In addition there is a tubular extension of the mass which extends down to the nipple , measuring 1.9 X4.6cm

I really need a down to earth read on what any of this means.

Michele

you have been user since 10/31/05

what type was yours and are you now cancer free

or have you had any more flair ups?

cathy

I am in the same boat.  As I see alot of us are.  During the biopsy , my surgen told me I had cancer.  that was on 4/04 I'm still waiting for the results.  It does hit you like a brick and the first 24hrs were the worst.  I took 2 sleeping pills and still couldn't sleep.  I went to work the next day until 12, had lunch with my sister, went to the book store and bought a book "breast cancer for dummies". It really helped me alot.  Went to the nail sal and got a fill and ped.  and then went home and cried.   As the days go by , the waiting is hard but keeping busy helps.  And I love this site. 

I hope yours and mine comes out neg.  I fell drs don't know everything.  But reading up on the subject prepares you incase they are right.

cathy

Thanks Michele & heidi,

The Mammotone biopsy I guess is new.  I know that it really hurt.  I was told from the beginning that this doctor is to the point.  Now I know why they said that.  When she first told me, my husband and I cried.  but it has given me time to read up on it.  I bought "breast cancer for dummies".  and I have had time to pray and digest it.  Now I hope everything comes back neg.  but if she was right then I will still be upset , but I know more about breast cancer.  I loved finding this site and reading everything about what everyone else is going throu.  I feel like I am in a haze waiting to find out.  and it does help letting out how you feel.  what is the normal waiting time.   I am going by the old saying no news is good news and if it was true I would have been called right away.

cathy