Skip to content
Forum IndexCommunity Member List → Profile for Bubby
Heather_hair_023

Member Since: April 14, 2008
Last Login: August 14, 2008
Birthday: March 25, 1952
Location: South Africa South Africa
Occupation: medical technologist Lab Manager

Biography

Diagnosis

Diagnosis: Dx 7/31/2008, ILC, 4cm, Stage II, 5/24 nodes, ER+/PR-, HER2-
Diagnosed: July 31, 2008
Type: Invasive or Infiltrating Lobular Carcinoma
Recurrent? No recurrence
Metastatic? No
Stage: Stage II
Lymph Nodes Removed: 24
Positive Lymph Nodes: 5
Tumor Size: 4cm-4.9cm
Tumor Grade:
Hormone Receptor Status: Tumor has estrogen receptors but not progesterone receptors
HER2/neu Status: Tumor does not have an excess of HER2/neu receptors or genes

Recent Posts by Bubby

Posted in: Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Aug 14, 2008 03:47 am

am or pm tamoxifen/effexor?

I have been on Tamoxifen since March and have now been given a script to go on Effexor for depression. My doc says it is a mood elevator that works on the neurotransmitters in the brain. I am told to take it in the morning and my tamoxifen I have always taken at night. Can anyone please tell me what side effects to expect from the Effexor as I have never been on anti depressants before. The doc also says it will help with the hot flushes -  is this true???

HEarp-jones
Dx 7/31/2008, ILC, 4cm, Stage II, 5/24 nodes, ER+/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Aug 11, 2008 07:08 am

depression symptoms before Tamoxifen does it worsen?

I would like to know if anyone on Tamoxifen has experienced spinal joint pain? I get it between the shoulder blades and also in the lower back. If i press the area it is sore. Any comments? I also have very painful thumb joints.

I started Tamoxifen in March, and although I get 7-8 hours sleep a night i am tired. Not sure if i am heading into a depression or not as i have awful thoughts all the time that the cancer is back in some part of my body. Especially when i have aches and pains. I would like to hear more about the SE;s you ladies have had on Tamoxifen. Then maybe i can get rid of my phobia.

HEarp-jones
Dx 7/31/2008, ILC, 4cm, Stage II, 5/24 nodes, ER+/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Aug 11, 2008 06:43 am

Implants settle time....what was yours?

Beesie I was told by my PS here in SA that i have a silicone implant. It is a 450cc. I have to wear an under wire bra 24/7 for 3 months and have an elasticated strap around the chest for 3 weeks. No I did not have RADS only chemo. While i had the expander in I did not have too much tightness in my arm, Now i do and this worries me.There is already a large dent in the armpit from the hectic axillary clearance I had to have, which has left me with a numb arm right to the elbow. I also have pain between my shoulder blades. Can this be connected to the implant exchange  op??

By the way my i ask what is rippling?

HEarp-jones
Dx 7/31/2008, ILC, 4cm, Stage II, 5/24 nodes, ER+/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Aug 6, 2008 04:33 am

exchange surgery

I have just had exchange surgey on my R side last week . Went back to work and drove after 4 days. I am however slightly concerned that my results were not what i expected. The foob is softer than the expander but not pliable  and does not move easily. It feels  tight. It is also slightly smaller than my left breast when I am looking without a bra. My PS says this is the closest size prosthesis I could get. Can anyone comment on these observations and tell me if the implant is going to get softer with time. I have to wear an underwire bra all the time and alos have an elasticated strap around my chest.

HEarp-jones
Dx 7/31/2008, ILC, 4cm, Stage II, 5/24 nodes, ER+/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Aug 6, 2008 04:16 am

Implants settle time....what was yours?

I am very interested to find out about this settling time. I had exchange surgery last week after 4 month with a tissue expander and must say I am a little worried that my implant is so tight and hard. Especially towards my arm pit. Did i have too high expectations of the final result? I was told the foob would be soft and pliable. It is at this stgae also slightly smaller than my left side althought the PS says this is the closest symmetry i can get. Please can i hear your comments .

HEarp-jones
Dx 7/31/2008, ILC, 4cm, Stage II, 5/24 nodes, ER+/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Jun 23, 2008 07:58 am

Starting chemo Dec 2007

Well i took the plunge and let the hairdresser put a nice nut brown colour rinse on. What a shock!!! I looked in the mirror and the whole top of my head where most of the white hair was  - was golden yellow. Any how they started again with much more brown and I now have a chestnut colour. a bit more firey than hoped for but it will tone down with washes. apparently its the white hair that grew out which was the problem. We live and learn

Wishi were i am on Tamoxifen and also wondered if this was the cause of the slow growth. As i am suddenly experiencing odd things like very painful thumb and wrist joints, and the slow hair growth. Though they might be side effects. The hot flushes i have got used to!!

HEarp-jones
Dx 7/31/2008, ILC, 4cm, Stage II, 5/24 nodes, ER+/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Jun 19, 2008 05:00 am

Starting chemo Dec 2007

Hi. Can anyone tell me what the story is with not being allowed to colour your new regrowth of hair after chemo. Mine has grown out a grey white colour, and I was told I must wait 6 months, before putting a colour on it. Why???

Also it started growing really fast after I finished the AC but was still on Tax. I finshed in Feb. and now it has slowed down to a snail's pace. Infact i cannot the hairline on my forehead to grow down at all. It is still only 1cm after nearly 6 months.  Help!!!

HEarp-jones
Dx 7/31/2008, ILC, 4cm, Stage II, 5/24 nodes, ER+/PR-, HER2-
Posted in: Not Diagnosed but Concerned + High Risk Women, Created: Apr 24, 2008 09:36 am

LCIS

I was diagnosed with an infiltrating lobular carcinoma tumour of 4 cms. last year. This is worse that the in situ one you have. I also had foci of LCIS in the rest of the breast.  It had also spread to the lymphnodes.I was also told about the possibiblity of it showing up in the other breast, but chose to only lose the one . I had hectic chemotherapy for 6 months and finished that in Feb. Now I am busy with reconstruction with a  tissue expander. I was told as long as a close watch and mammogram and ultrasound were done often, it was fine. My breasts were also very dense and difficult to read on mammo.I am now on Tamoxifen as well for 3 years as i was oestrogen receptor +.

HEarp-jones
Dx 7/31/2008, ILC, 4cm, Stage II, 5/24 nodes, ER+/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Apr 24, 2008 09:26 am

Taxol Side Effects

I had 4 AC and 4 Taxotere and have been left with numbness of the feet. I am now nearly 3 months post chemo and there is still no feeling in the toes, in fact I sometimes get the feeling that even at this stage the numbness is getting worse. Pressure on the soles from walking and standing only seen to make it worse. I call it my dead meat feet!!! Onc did say it can be irreversible.

HEarp-jones
Dx 7/31/2008, ILC, 4cm, Stage II, 5/24 nodes, ER+/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Apr 24, 2008 09:04 am

continued Tissue expander pain!!

While coping with the pain i keep thinking would the TRAM flap have been less painful. I chose this type of reconstruction as I had heard that it was a breeze in comparison to getting over the TRAM op. This way it goes on for 4 + months but the other is a huge op and then its over. Any comments?

HEarp-jones
Dx 7/31/2008, ILC, 4cm, Stage II, 5/24 nodes, ER+/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Apr 23, 2008 05:00 am

continued Tissue expander pain!!

I am so happy for you Debbie. To not have bricks any more nust be great. It seem quite a lot of ladies have had expanders put in at the same time as the mastectomy. Mine were only put in 8 months post surgery and post chemo, so there was no skin saving done. i am now filled to 450cc and hve to get to 550. i have a small probelm in that cloudy yellow flud is collecting around the outside of the expander. My ps drew off 20cc yesterday and then did a 50cc fill. He hopes it is not infected. Awaiting results of the culture. I also have now noticed quite a bit of purplish bruising over the underside of the area.Did anyone experience that. Also my skin is so tight now that it shines, and i am so scared someone is going to bump me and it will split.  The ps is is still insistent that i wear this underwire bra. Cant handle it.

HEarp-jones
Dx 7/31/2008, ILC, 4cm, Stage II, 5/24 nodes, ER+/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Apr 18, 2008 02:52 am

peripheral neuropathy

Well it seems we all experience the same thing. I was lucky enough not to lose a single nail. Only discolouration and weird growth plates like on a tree!!! My fingers are ok , its just the toes that are totally dead, thats why i think i trip and fall a lot as i cannot feel the ground properly when I take steps. But hey - we are aliveLaughing

HEarp-jones
Dx 7/31/2008, ILC, 4cm, Stage II, 5/24 nodes, ER+/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Apr 17, 2008 07:08 am

peripheral neuropathy

Hi Otter. I had 4 of the red drip and then 4 of the Taxotere. They were at 3 week intervals so were quite intense. Towards the end i mentioned the numbness to my onc. but she did not say anything could be done to stop it. To me it seems to be getting worse and I finished chemo 2 months ago.Now on Tamoxifen which is another story!!!!

HEarp-jones
Dx 7/31/2008, ILC, 4cm, Stage II, 5/24 nodes, ER+/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Apr 17, 2008 06:58 am

continued Tissue expander pain!!

Finally had the drain out last night and have to have another fill tomorrow. PS said they overfill to make more skin than what they need then when the exchange takes place the final look is liable and soft, otherwise there is always a degree of hardness. I will be up to 400cc of the the final 550. The following they are filling twice x 50cc.

Today I have an incredible pain on the inner side close to the breastbone and if i press there i can feel the expander rim. Hope it is ok as it is worse with movement. It almost feels like a big bubble I am touching.I find it very comforting on this site to know that every other woman going through this complains of the pain and discomfort so I know that I am not alone. I asked my PS why I have to wear this underwire bra all the time and he said it helps to give the curved shape underneath.

HEarp-jones
Dx 7/31/2008, ILC, 4cm, Stage II, 5/24 nodes, ER+/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Apr 15, 2008 03:22 am

peripheral neuropathy

Hi. I am new the site and need to hear from those who have landed up with dead toes and feet after being on Taxotere. I am 2 months post chemo now and still have the numbness and tingling in my feet. My oncologist told me it is sometimes irreversible. Any comments?I  trip and fall often if the floor beneath me changes

HEarp-jones
Dx 7/31/2008, ILC, 4cm, Stage II, 5/24 nodes, ER+/PR-, HER2-
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Apr 15, 2008 03:09 am

continued Tissue expander pain!!

Thanks Laura and Kerry. They told me that the drain would only come out at 25 c.c.s in 24 hrs, so i am hoping that it will happen to morrow.  I think Laura you are very brave to have chemo and this expander at the same time. I could not have coped. My chemo was too hectic, and although i am 2 months post last chemo, I still have some side effects.

Can someone tell me why once you have had the last fill there is a 3 month wait for the exchange, i would have thought they had stretched the skin to its limit by then.

Kerry you must be feeling excited as the 25/4 draws near.

Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Apr 14, 2008 08:02 am

continued Tissue expander pain!!

I am new to this site having had a mastectomy and chemo and then decided to have the expander put in. Had I known about the pain I might have reconsidered. I woke up with an expander in place that had 300c.c.s already put in, in one go!!!!. I nearly died with the pain. Was on a morphine drip.They have since put another 50cc.s in, after one week post op. But I have still got my drain in, and it is still draining 50ml. in 24hrs. And this is after 12 days post op. Does the drain add to the discomfort and pain and will things improve when it is taken out?Did anyone else have a drain in for so long? I know it is not forever but ouch it hurts!! They make me wear an underwire bra and an elastic bandage around my chest, to keep the expander in place so it does not float up. As if the pressure is not bad enough already. I was back at work 3 days after the op in severe pain but find it difficult to cope with the 8 hr day.I told my PS that i feel like a vienna sausage that has been placed in the microwave for just too long and is about to split!!!! LOL

© 2008 Breastcancer.org. All rights reserved.