terridwo

Hi all, my mouth was probably one of the worst se's I had.  No taste, hurting, etc.  But I never had sores so didn't call my onc after last tx.  When I told her before this one she prescribed two mouthwashes which I alternated and it seemed to help a lot.  One was  mix of Benadryl, malox and lidocain.  The other is called nystatin, which is for infection.  The nystatin seemed to help more than the other even though I didn't think I had an infection.  It was definitely worth it and would recommend asking for it.  My taste came back way faster than last time and my teeth and tongue didn't hurt as much..  Hope it helps for anyone else.

Hi all - Hope everyone is feeling good today.  Moving my son into college yesterday went ok except I decided to wear my wig for a change ( usually wear hats for comfort) and it was so hot in his dorm room  I had sweat running down the back of my head and I found it looks like hell when it is wet!!!  Luckily I had my hat in the car and put it on half way through, which turned out to be a great idea because people started holding the door for me and letting me pass them!!  One of the few benefits of this mess!

My daughter and I too joked about a temporary tatoo on the back of my head.  My favorite she came up with was "Got Chemo?"  Except for around the house though I don't dare go bald now, the little hairs that have begun to grow back are pure white and starting to look curly! Ugh!!!!  Love the mowhawk TX66!!

Have a good day all!

Sandra-- We have had so much in common with our tx's.  This is day 4 tx3 and I feel worse than I did the other two times.  No energy at all, my legs feel like complete rubber and hips and thighs are hurting.  I kinda feel out of body as a whole and very irrititable.  I think it's finally getting to me and dreading the last one already.  People keep saying, well you only have one more, but I'm not through this one yet!!!!!  I have a son to move into college next Tuesday and I have so much to do for that and I'm freaking myself out about not getting everything done.  Hopefully this will end  by tomorrow or Saturday at least.  That's about how long this punky feeling lasted before, but just never this bad. 

Alright enough of my complaining.  On a happier note, I wanted to let you all know that the Rod Stewart concert was awesome last weekend.  I'm so glad I changed my tx to Monday so I felt the best I could for it.  I couldn't believe the range of ages there and he put on such a great show.  He looks great for 63 and sang all the songs I wanted to hear.

Sherri - I know what you mean about feeling like a cancer patient, but this shall pass.  Hang in there everybody.

Sandra - Thanks for keeping up with the schedule.  I was actually scheduled today but will not be having my tx#3 until Monday the 11th.  This was my choice.  My dh bought Rod Stewart tickets right after I was diagnosed figuring I'd be all done with all this mess by now and it would be a good way to celebrate. I decided I wanted to feel my best and be able to taste my dinner and a beer at the concert.  My onc had no problem with waiting 3 days which also puts my 4th and last the day after Labor Day, so this worked out good.  Now I have to remember how to act at a concert, I'm 48 and haven't been to a concert since ..................?

 Susan - Sorry to hear about the shingles.  My dh had them a few years ago, they can be quite painful.  Talk about adding insult to injury.  Hope you have a mild case.  Good Luck.

All - the trots suck!!!!  and have a great weekend!!

Hi Stickerlady, I too ran a fever after my first tx.  The highest it got was 100.1.  I was told to call if it was 100.4 or higher.  But I felt so crummy I called and onc had me come in for a blood test.  My wbc was pretty low and I too was put on a 10 day dose of Levaquin.  They told me if I hadn't called then I probably would have ended up in for IV antibiotics.  It took quite a few days even after the antibiotic for the fever to go down and stay down.  Fortunately for me the cancer center is only 15 minutes away, but if you are not feeling well, I suggest you call.  Maybe they can call you in a script for antibiotics.  Good luck and feel better soon!!

OMG Valerie, that is awful and scary.  Good luck with that.

Maria- Best of luck to you on your 1st tx, may your se's be non-existant!

Day 7 after 2nd tx and not feeling as well as the first time.  My taste is just coming back since last Saturday and my tongue is so sore I want to cut it off!!!! And I have cold sores too!  Just feel generally more punky than last time and it is lasting longer.  Someone posted about feeling crummy in the morning and then better later, it is the opposite for me.  Afternoons are the worst.

Sorry about all the complaining, it just goes to show how every person is so different and each tx can be different.

Hope everyone has a great weekend, SE FREE!!!!

Sandra,  That makes even more sense about the histamine.  That explains why the benadryl helped so fast.  Maybe they will give us the benadryl beforehand.  I'm definitely going to bring it up before they start next time.  Again, though, you would think they would have experienced this before and not be so surprised about it. 

This is the first I'm hearing about serious acid reflux problems, good Lord does it ever end???My Onc nurse warned me about too much internet searches, but I think I'd rather have the heads up about some of this stuff then second guessing myself all the time.

Otter, you have been a wealth of info throughout all this.  I can see you in medical school soon!!! You'd be great at it.

I have absolutley no taste buds this time and it figures my sister invited my dh and I over for a filet mignon dinner yesterday.  The only way I knew it was good was that it melted in my mouth.  What a friggin waste!!

Good Sunday to all and feel good !!!!

Sandra - Sorry you had to experience this too, but glad you did the right thing and buzzed for a nurse right away.  That is why I posted about it.  You mentioned that you heard this could happen during second tx.  That makes sense, but I'm surprised the nurses or doctor didn't tell me that.  They actually seemed quite surprised by it.  Did your nurses say anthing?  I wonder if they are going to do anything for tx 3 to prevent this from happening again.

 I went in for Neulasta shot today and my temp was 99, which I didn't think was a big deal except that when I get a fever it usually is in the afternoon.  This nurse seemed more concerned and told me to watch it all day.  Said to take Tylenol and if it doesn't stay below 100 to call.  She did say the Neulasta could cause fever.  But since I've been getting a low grade fever almost everyday, who's to know.  I don't think anyone really knows what's going on.  When we're taking so many drugs how do you know what is causing what!!!!

Phillydee-I too felt the same way.  I felt great before all of this.  The hard part now is that if I had just had the mastectomy, I'd be pretty much back to feeling myself again.  But the two things I chose, chemo and reconstruction are still looming in my future.  But the way I figure it will be worth it in the end  for peace of mind and a new boob (and a lift on the other to match!!!!). 

Good luck to you and all and have a great weekend!!!!

Sandra and Otter - Thanks for the info about the fever.  I guess I freaked because the first time my counts were so low, now I know it's probably something to expect.  That sucks Sandra about the screw up.  We try so hard to keep on top of things on our end and we expect the same for them.  Good luck! 

Congrats and good luck to you Shari!  Karen-I hope your 6th and last is your easiest!

Collector-right after I posted yesterday about how good I was feeling I felt like I was hit by a truck (again!!!).  Sure enough my temp. was back to 100.1 and had the headache and sore throat again just like the first week after treatment.  I feel better this a.m., but I have noticed that it always hits around noon for some reason.  I'm nervous because tx is tomorrow and I'm afraid it may be postponed.  If temp spikes again today, I'm not sure if I should call and get my bloodwork done today rather than in the a.m. before treatment.  Luckily the cancer center is only 15 minutes away.  I'll just put my car on auto-pilot!!!!