Member Since: April 27, 2008
Last Login: November 20, 2008
Location: Boston
Occupation: Data Analyst
| Diagnosis: | Dx 2/1/2008, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+ |
| Diagnosed: | February 1, 2008 |
| Type: | Ductal Carcinoma In Situ |
| Recurrent? | No recurrence |
| Metastatic? | No |
| Stage: | Stage 0 |
| Lymph Nodes Removed: | 0 |
| Positive Lymph Nodes: | 0 |
| Tumor Size: | Less than 1cm |
| Tumor Grade: | Grade 3 or high grade |
| Hormone Receptor Status: | Tumor has both estrogen and progesterone receptors |
| HER2/neu Status: |
Posted in:
Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Nov 20, 2008 08:04 am
Bottle 'o TamoxifenHi girls - I'm back .... my laptop picked up a virus and I had to replace the hard drive. It has not been a fun 1 1/2 weeks. I am still working on restoring all my program files and data files (it's my work laptop). I also had my first colonoscopy last Thursday and I had no issues. I'll be back later to read the postings - they are always helpful. I must get back to work (urrgghhh). Dx 2/1/2008, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+ |
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Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Nov 6, 2008 01:34 pm
I'm 27 and just dx with DCISStronger27 - I am so happy to hear the good news from the pathology. It sounds like your attitude is upbeat and you are on the road to recovery. I have asked all my doctors about my when my 20 year old daughter should start mammograms. They all have said ten years prior to my diagnosis, making her 36 years old when she should start. I'm not real comfortable with that age, I'd much prefer around 30. In the meantime, she is doing monthly breast exams, having a breast exam at the ob/gyn annually, and when she's home for Xmas break from college, she'll have a PCP exam. The genetic counselor suggested the two breast exams annually, six months apart. I did test negative for BRCA but my mom was diagnosed at 58 with Stage IV ovarian. I continue to see the ob/gyn every six months for an internal, and I will continue to have the CA-125 test. Even though I don't carry the mutation, the risk of ovarian is increased because of the BC diagnosis. I'm also having a colonoscopy next week, as the doctors said BC patients are at a higher risk for that also. I figure I might has well max out my deductible this year!!! LOL!! Dx 2/1/2008, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+ |
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Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Nov 4, 2008 03:35 pm
Bottle 'o TamoxifenWell, I voted also, no lines and then had a nice lunch! Virginia - even though it is important for everyone to vote, it's really those delegates that make up the electoral college whose votes count towards electing the president. But they vote the way the constitutents vote(usually). This was a discussion topic with my poli sci major on the way back to college last Sunday! LOL! She went into a very detailed explanation which I pretty much forget by now. I could also share statistics about how they poll people and the margin of error, especially with many people not having land lines, only using cell phones. It was a long ride back to Providence! LOL!!!! I was a business major, no interest in poli sci! I'm just ticked that DWTS won't be on tonight. Results show is on Wednesday, my guess is that Susan Lucci is voted off? Dee - good luck with the rads. Take care of yourself while undergoing the rads. I started tamaxofin seven days after my last radiation treatment. I immediately started with hot flashes, but they do come and go, dependent on where I am in my cycle. I still get my period, but it has been really crazy for timing. One month I was 10 days early, for two months I was 10 days late. I take the tamaxofin at night right before I am going to bed. I have forgotten to take it 2x, and as soon as I remember in the morning, I'll take it. It seems to help me sleep, but others have issues sleeping, so who knows how you will react to it. Have a good night, everyone! Dx 2/1/2008, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+ |
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Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Nov 3, 2008 12:45 pm
Bottle 'o TamoxifenThat's awesome, Deb!!! I am amazed at the long lines folks are willing to wait in! We have a specific school we have to go and vote, same as you Virigina. In fact, there is no school tomorrow in my town. There was an incident last year on election day in a town close by, where an elderly gentlemen hit the gas peddle, drove onto the sidewalk and hit a 3rd grader. I'm planning on voting in the morning, and then heading up for a business luncheon at one of my favorite places, The Cheesecake Factory! Yummy. I dropped my daughter's absentee ballot off last week ... she was so excited about having the opportunity to vote in her first presidential election, she even took a picture of the ballot .... can you tell she's a political science major! LOL!!! Did any of you girls hear about the study that came out last week regarding Tamaxofin? A friend of mine told me about it, I guess if you have side effects, like those darn hot flashes, that is a good sign. Harley, good luck with the job hunt, it's a job just looking for a job. Keep your positive attitude!!! Have a wonderful day, everyone. Dx 2/1/2008, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+ |
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Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Oct 30, 2008 03:03 pm
Ai's and Soy supplement studyI met with a nutrionist while undergoing radiation. I also tested 90% ER/PR positive. Her suggestions are below: - if soy is one of the first four ingredients on a label, try and avoid that product. As we noticed, alot of stuff contains soy. - drink milk that is BST and also cheese. - avoid beef that is not hormone free I have found that Trader Joe's is an excellent source of reasonably priced items. I purchase my cheddar cheese , wheat crackers (no soy!), peanut butter, nacho chips at the store and they are all delicious products and reasonably priced. I also try and purchase organic veggies as much as possible. I am concerned about why I got it at 46, and only hope they are able to determine the environmental factors that are causing this in the US. Dx 2/1/2008, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+ |
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Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Oct 30, 2008 02:36 pm
Bottle 'o TamoxifenVirginia & Basha - So happy to hear the "all clear". The anxiety these tests create are enough to make you eat ice cream or buy shoes!!! LOL!!! Or, what I'd prefer, have a few Mich Ultras!!! My next mammo is on 12/4, and I know the anxiety will come. I love DWTS - that is what my husband and I want to do when the kids are gone ... ballroom dancing. Hubby is not a dancer, so this really surprised me when he told me he'd like us to take lessons someday. Deb - glad the job is going well. And what a bonus that you work out where you work!!! How cool is that? Munchy - no need to apologize. We all need to vent and this is the place for it. You have been through alot and continue to struggle, so feel free to vent all you want. Just make sure you do take care of yourself, eat good stuff so you make sure you give your body the nutrients you need. Of course, I should take my own advice .... I got my period this weekend, and mowed down on coconut chocolate almond ice cream from our local ice cream store, and I purchased up a half gallon so there would be plenty in the house. And I even put Hershey's chocolate sundae sauce on it. So, today, I walked an extra lap at the track. Sorry to hear about the tears with your daughter, but it's so typical of the freshmen year. The first semester is most challenging. Give her some time to meet some kids and get into the college life. It's so overwhelming that first semester - trying to get used to the workload, roommates, etc. The second semester will be a little better and by sophomore year, she'll like it. During the first semester, I'd send cards and packages to my daughter on a fairly regular basis. That always seemed to help her (and her roommate). I only live an hour away from Providence College where my daughter attends so I am able to make trips to see her (I'll even take vacation days during the week). Or, like this weekend, she surprised us on Saturday morning by taking the train home so she could watch her brother's football game. It's not easy when your kid is struggling through this adjustment period ... I guess that's a compliment to the home we have given our girls? Good luck with this. I must get back to work. Enjoy the day, ladies. Dx 2/1/2008, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+ |
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Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Oct 27, 2008 09:45 am
Bottle 'o TamoxifenBasha, Good luck tomorrow. I'm sending positive thoughts! Have a great day ladies. Dx 2/1/2008, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+ |
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Tests, Treatments & Side Effects + Radiation Therapy - Before, During and After, Created: Oct 24, 2008 10:11 am
First mammogram: How soon??My radiation oncologist and surgeon wanted me to have a mammogram after my surgery and prior to my radiation. They would not start the radiation unless my mammo was clear. That was on April 2nd. I started rads on 4/22. My follow-up with my surgeon, rad onc and medical oncologist all concur on the annual timing going forward. So, my regular timing is December, it's scheduled for 12/4. I had DCIS and it was picked up on regular mammo (not digital). The facility went digital in February 2008. I also asked about MRI because of the density of my breasts. Same answer from all doctors, continue with the digitial mammos. I am considered early onset since I was 46 when diaganosed. My mom was 58 when diagnosed with ovarian cancer, so I'm continuing with the screenings for ovarian with my ob/gyn. Having had breast cancer, you are at a higher risk for ovarian. I did have the BRCA testing, and was extremely grateful it came back negative. I am also going to have a colonocopy in mid-November. My sister is a physicians assistant and has been on me to get this done. All of my doctors agree this was good to schedule. Again, we are at a higher risk for colon cancer also! Hope this helps. Dx 2/1/2008, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+ |
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Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Oct 23, 2008 06:49 pm
Bottle 'o TamoxifenHi girls - well, the hot flashes must be contagious. I wear winter Under-Armour when I go to my son's football games to try and keep warm. It's pretty funny when I get the hot flashes during a Friday night game!!!! Its like a furnace! This weekend, I won't have to worry about wearing my Under-Armour as it's an away game on Saturday game at 1:00 pm. Still have not got my period .... it's 8 days late and I rescheduled my colonscopy from next Tuesday to mid-November. I would have preferred to get that over and done with. My sister was really on me to get the colonoscopy. I declined attending a business meeting for mid-November. It's going to be held in Tampa, nice and warm, but I just didn't feel like I could go. The dinners are very long, with speakers and awards/recognition presentations afterwards. It was not an issue with my manager - his wife is also a breast cancer survivor. She was diagnosed in June and has called me several times, just to talk. She's done with her rads, and is doing well. Well, I'm off to make an apple pie. I promised my son I would make one this week for him. I'll have a slice for all you ladies!! Dx 2/1/2008, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+ |
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Tests, Treatments & Side Effects + Radiation Therapy - Before, During and After, Created: Oct 22, 2008 01:41 pm
Fatigue Later?It's been 4 months since my last radiation treatment. I felt alot better starting in September and continue to feel stronger each week. Having said that, I still get tired by the end of the day, and at times have even napped during the afternoons on the weekends. Our bodies have been through alot and it's not unusual to feel fatigue for months after treatment stops. Alot depends on your activity level and the stress in your life. Minimize the stress and anxiety, if possible, I find walking every day is very helpful to my overall attitude and fatigue level. I also have found that eating healthy makes a difference in how I feel. Thoughout radiation, I made sure I ate my 5 servings of fruit and veggies. My appetite has diminished since I started taking Tamaxofin, so I really have to force myself to eat 5 servings a day. All in all, I'm feeling so much stronger and I guess I now realize how crappy I did feel during radiation. Glad i didn't realize it when I was going thru it!!!! Dx 2/1/2008, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+ |
Posted in:
Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Oct 22, 2008 01:34 pm
I Happen to Like Pink Monththanks for the correction, lindasa. I'll blame it on "rad brain"!!! Have a great day. Dx 2/1/2008, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+ |
Posted in:
Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Oct 22, 2008 12:41 pm
Positive Obama threadLAphoenix - thanks for the pat on the back, but I truly put it all on my daughter. This is her third year of college and she did work on Hillary's campaign last winter. She is very excited about the election, and is taking a class this semester entitled "Elections & Electoral Behavior". Not my cup of tea, but she loves it. She received her absentee ballot and took a picture of it. LOL!!! Dx 2/1/2008, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+ |
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Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Oct 22, 2008 11:08 am
A 12 year olds perspectiveWow. Your son is a very special young man. My son was 14 when I was diagnosed and is just now starting to talk about it. His high school participated in the Making Strides Walk on October 5th and he asked his friends on the football team to do the walk. Over 100 kids participated and raised $3000. I received so many hugs that day!!! The one thing I hope my children learn from this experience is empathy and compassion for others. It sounds like your son has those characteristics. Great job, Mom!!! Dx 2/1/2008, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+ |
Posted in:
Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Oct 22, 2008 10:59 am
I Happen to Like Pink MonthI am a redhead so pink is not a color that I wear!!! However, being a breast cancer survivor and experiencing my first Awareness Month as a survivor, it has been a pretty emotional month. The most positive experience this month was when I walked with my son's high school at the Making Strides Walk in Boston - which is the oldest BC walk in the country!! Over 100 high school kids participated and raised $3000. It was truly inspirational. One thing we can all do is to sign up at amyofwomen.org. This is Dr. Love's website where she expects to find a cure. I encourage everyone to visit this website and forward the info to others. Dx 2/1/2008, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+ |
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Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Oct 22, 2008 09:32 am
Positive Obama threadI am a Registered Independent, one of those "swing voters" that both political parties are so interested in! I also have a daughter that attends college, and is a political science major. So, we have alot of interesting discussions - both pro and con on each party. The major concern I have with John McCain is his policy on healthcare. My health insurance premium costs $12,000 per year. I also live in a high cost area so the money that McCain says will cover my family's premium ($5000) wouldn't go far in the Boston area. The economy has also hit me very hard ...my husband sells houses (or used to). Now, we can all go back and forth about WHO is responsible, but it is both political parties. From Clinton to Phill Gramm, they all had a hand in this disaster. I really believe the regular American citizen is not represented in Washington. We have yet to get an apology from any elected offiical (the former SEC chairman did take responsibility) on the economic mess the country is now in. Only 6% of mortgages are sub-prime - there are alot of other factors that contributed to this mess. The one solution is to eliminate lobbying and to institute term limits for Congress. Of couse, that will never happen. But most importantly, we need leadership and the American people want a leader they can believe in. My kids future depends on the country turning around. The regular American family is hurting. My husband works 3 jobs, my daughter is attending a prestigious private college on mostly merit scholarship (thankfully), and I have to feed a 15 year old son - anyone who has a teenage son knows how much their food bill has gone up over the past year. And then there is the oil heat that the New England area is dependent on. I had a fill-up last week, and it was only $3.13 a gallon. So, that's approximately $540 ... that will last a few months. I will be voting for Obama as I think he will help my family the most. Any candidate who has had to earn his way through life, not by the family they were born into, is someone who I can respect. Dx 2/1/2008, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+ |
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Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Oct 22, 2008 08:53 am
New to everything & DCISEve - Its been months since my diagnosis and I had the same reaction when I shop and see all that PINK. You are perfectly normal to feel overwhelmed, emotional and anxious. It will take alot of time before you get to a place where you don't feel that on a consistent basis. I'm just starting to get there. You have to make sure that you have something positive everyday to think of ... I walk every day to some really great tunes on my iPod. It is certainly different experiencing Breast Cancer Awareness Month as a Survivor - and you are a SURVIVOR! You will be okay, just take each task individually, and try not to think of everything at once. I waited a bit before I had the genetic testing as I don't think I could have handled hearing if I was positive (I was negative). The hardest part for me is how my kids are doing. Even though I am okay, at my medical oncologist's appointment last week, the doctor asked me how my kids are doing and I burst into tears! Why, I have no idea! She was very supportive, but the emotions just come up and out!!! As folks ask me how I'm doing, I say "great", and that I'm looking forward, not backward, and I have to continue to remind myself to do that. Hang in there, use this website, it's great. My medical oncologist has suggested attending a support group, but I have found exceptional support with this website. Good luck with everything. Dx 2/1/2008, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+ |
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Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Oct 22, 2008 08:41 am
Friends? What friends??Hi My Beatiful Sister - I find myself going back to that poem and rereading it. It helps sometimes when you need a boost. Good luck with the journey. I'm not too far from Medway ... I live south of Boston. Have a good day! Dx 2/1/2008, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+ |
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Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Oct 21, 2008 07:58 pm
I'm 27 and just dx with DCISStronger27 - Good luck with your journey. I am sending you hugs. You aren't too much older than my daughter. I will be sending positive thoughts on Friday morning ... please continue to let us know how you are doing. Dx 2/1/2008, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+ |
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Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Oct 21, 2008 07:45 pm
Friends? What friends??I think everyone has had the full range of support or lack of support. At times like this, you truly find out who matters the most in your life. I am fortunate that my husband and two children were my best cheerleaders, even though my kids were only teenagers. My hope is that my experience taught my children to have empathy and compassion for others. I believe the folks who aren't part of our lives because of our diagnosis are not the type of people who should be in our life. I was very fortunate to participate in the ACS Breast Cancer Making Strides Walk in Boston on October 5th. Over 100 kids from my son's high school participated and I received so many hugs that day. I found it so inspirtational - some of those kids have moms who have not even asked me how I'm doing even though their kids come over my house .... But, that is the exception rather than the rule. I sent the poem below to a bunch of my friends after completing my radiation. Take a moment and read it, I'm sure you will be able to relate to it and send it forward to those "girls in your circle". GIRLS IN MY CIRCLE Dx 2/1/2008, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+ |
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Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Oct 21, 2008 07:27 pm
Did I or didn't I????Gerberer - It is very unfortunate that negative comments were made. Unfortunately, some people do not have the ability to find compassion and empathy for others. If you find yourself in a conversation with that person again and a negative comment is made, let them know it is very insensitive to what you went through. Good luck redheadace1 on your upcoming radiation. Take good care of yourself! October is Breast Cancer Awareness Month - please make sure you go to the website that Dr Love has set up: armyofwomen.org I am confident they will find the cure. Dx 2/1/2008, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+ |
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