Stickerlady

I had my second TC yesterday and after a few minnutes I had stomach pain, then my back hurt and I turned bright  red from my chest up and had a hard time breathing. They turned the Taxatore off right away and gave me something in the I.V. and after about a half hour or 45 mins they started it up again and it was O.K. Boy was that scary. The Dr. gave me the purple pill for acid reflux this time and boy what a difference. She also changed my pain meds to Oxycodone instead of Vicodine because the Vicodine didn't work so good first ime for the pain that settles in on day 5 or 6. It is from the WBC shot I get the day after. My RBC is very low and she gave me Iron pills for that and if it gets worse she will give me a shot next time for that. Hope everyone is doing O.K. I am now half way done. Only 2 more and then 6 weeks of Radiation.I live in Alaska and my parents are sending me plane tickets to spend a month in Myrtle Beach S.C this winter and that is what is keeping me going. My sister lives there and my parents stay there winters so we are going to have a wonderful time together.

Today is day 15 and one side of my head hurts. My scalp hurts even if I lift my hair. How long before my hair falls out? Should I shave my head today? Will it feel better? It is itchy too but hurts to itch it. Please tell me it I should buss it today. I am O.K. with it but is it to soon?

Texasmom, my husband is in the Coast Guard and we are stationed here until next year. During my treatments I have a Hero's Home to stay in at Elmendorf A.F.B. in Anchorage. I am very lucky for the YMCA because they are the sponsers of this Wonderful idea to have these Homes available to injured Soldiers for their families who are getting medical help. I have the house set up for every one of my treatments  and my 7 weeks of Radiation.  My husband is going to Chiefs Academy in Aug. Sept. and I may have to start Radiation on my own but would prefer not to do anything alone. I will if I have to though. I have met 2 people in Anchorage so I do have someone that can look in on me from time to time.

I have an appointment with my On. Dr. on the 30th and I am abolutley going to ask about a stronger acid reflux med. for next time. I don't have a Gallbladder so I already have lots of problems in that dept. I'm sure she will give me something stronger.  Thanks for reminding me to put that on top of my list of stuff to ask. 

Hi Ladies, sorry it's taken me so long to write about my Anchorage trip to the Dr. I was not real happy with the Oncoligist office. I had my bloodwork done and everything is good except my RBC is low but they say they expect that. It is O.K. I also told them about the Terrible Throbbing Pains in my bones and the nurse that I talked to said it didn't sound like the bone pain and that I should have gone to the Hospital because they pain should be evaluated. She said it could be my heart. Next time she said go to the ER. I get to see my Dr. Oncoligist on the 30th and I hope she will look into it. I woke up on Monday and it was gone.

I also saw my surgeon. He is Wonderful byt is moving to the lower 48 this month. I will miss him. He said it sounded like the bome pains and that sometimes with each dose of Chemo the SE might get worse. He says he hope not though. He says I will have to have a Mamo after 6 months for a baseline. I don't know how they will do it unless all the pain goes away. He says they will allow me to heal after my 6 weeks of Radiation. Once I get through this 12 weeks of Chemo I am thinking Radiation is going to be like a vacation. 

Otter, we called the Oncoligist at 12 noon and it is now 9 p.m. and still no call. I guess they expect you just to go to the ER on week-ends. I have been taking Vicodin but it only last 4 and a half hours and when I take it at the 6 hour mark it takes 2 hours to feel any difference. So I am in terrible THROBBING pain for about 3 hours. I felt so bad because my Mom called today from Connecticut and I forgot it was Father's Day. My Dad got on the phone and I burst into tears. I was in so much pain I didn't even want to talk to my parents who I love so much and don't want them to know how much pain I'm in. I hope I get some answers in Anchorage tomorrow. I lost it on my husband today because I can't drive and hurt so bad I don't know how I will get through tomorrow. He called and he has a Coast Guard Chief meeting me at the airport and he will be my driver to both my appointment s.

Otter, yes my first TC was on Monday and I did get the shot on Tuesday. I had pains like the real bad flu on Friday but today it almost feels like my vains are throbbing and it is in my spine. Well, I will write tomorrow and tell you how I make out. 

OH my goodness, I am having the worst throbbing pain in my arms and it goes down my spine. It  started at 5 a.m. and it is Sunday morning.  I got up and took a Vicodin with a bowl of cereal. Has anyone had this throbbing pain? Could I be having a heart attack or is this part of the treatment SE?  I live in a small town and don't like either DR. here. I hope this Vicodin kicks in soon. This is Scary. How do I know what is normal? Yesterday I had such a great day and now today this. Does anyone know if throbbing pain in the arms and back normal?

Has anyone had real bad acid reflux? I had my first T&C on Monday and the acid reflux is so bad. I am so glad I'm not sick to my stomach though. I called the Dr. to see if I could take something stronger than Pepcid AC. Today I have the bone aches. I fly home at 5:30 and can't wait to get home and see me kids and go to bed early and sleep all night long I hope. I almost want to take a Vicodin so these pains don't keep waking me. How bad is the pain supposed to be before you take the hard stuff instead of Tylenol?  I guess this is all doable. It is nothing I can't handle so far but hope it gets better.

Hope everyone is having a good day. 

I live in Valdez Alaska, but I fly to Anchorage for my Dr. visits. I am Stage 1 grade1 ER+pr+and H2her-. I just started Cytoxan and Taxotere this monday the 6th. So far I feel wonderful except I have had the hick-ups about a hundred time since. I get them after I eat anything or burp. Has anyone had this. I was very tired yesterday because of all the stressof not knowing what to expect. I took Ativan and help me to sleep yesterday and last night. I needed it.I went to get the White blood count shot yesterday and still feel fine. I hope I am O.K. tomorrow I get to fly home and stay there for 3 weeks. Actually I have to fly back next Monday the 16th for an appt. with my surgeon and to have blood work at the Oncoligist.

My husband  and I are staying in a beautiful house called a Heros home here on the Air Force Base. Nice place. It is hard to get  a hotel in the summer here in Alaska. This is provided by the YMCA. We are very lucky. They have this set up for when all my treatment happen. I will have to stay in town for 6 weeks during Radiation. I have a 18 yr. son just graduated May23 and a 17 year old daughter that will be a Sr this year. Both Great kids. They holding down the fort while we are here.

I saw one person from Alaska here are there any others? I hope I continue tofeel tis good. Good luck to all and Prayers to you all.

I found out just after Easter this year I have Intrusive Ductal Carsanoma. It is cancer in a milk duct (it was actually in the tube that carries the milk to the nipple). I had surgery on April 21. I had a Lumpectomy. I too never felt a lump and none of the Dr. could either. I had a Mamo 10 months ago and nothing was there but I found a bloody discharge on my nightgown and went to the Dr. I live in Alaska and only have 2 MD's here in town and have to fly to Anchorage for any Specialists appointments. I went and a Radioligist studied my Mamo and found a very small tumor. I went the next morning to see a surgeon and within a week I had a Lumpectomy. The surgery was not bad. I only took pain meds for 3 days but was still sore I just took it easy. I now am waiting for results from my Hormone test to see what treatments I will have to go through. I know I have to do 4-6 weeks of Radiation in which time my husband and I will have to live in Anchorage because they are everyday. I know how scared you feel but just think it is caught early if they can't feel a lump yet. I will Pray you get the comfort I did from all my friends and family. Good luck and think Positive!!!!