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everyminute

Member Since: August 5, 2008
Last Login: November 20, 2008
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Recent Posts by everyminute

Posted in: Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: 7 hours ago

I was weeping idiot at work today...

I had crying jags after each treatment - i attributed it to depression coming off steroids.  I would have treatment on Wed and still would be crying at work on Monday afternoon if anyone asked me even a simple "how are you?"  Go easy on yourself.  If you have to go to work then try to keep super busy and isolate yourself.  Understand that this too shall pass.

Just had my last treatment (8 of 8) today (god willing) and am a weepy mess....but one foot in front of the other....this too shall pass.

Posted in: Day to Day Matters + Fitness and Getting Back in Shape, Created: Nov 18, 2008 07:15 pm

I am sick of this c crap and am jumping back right in !!!

and happy birthday - I am looking forward to following your progress.  Just got back from the gym - walked a mile, ran 2 miles - in 34 mins...Well at least I was never really fast anyway so I dont have much to work back up to!  Was closer to a 8.5 - 9 min mile before .....

Good luck and keep us posted!

Posted in: Day to Day Matters + Fitness and Getting Back in Shape, Created: Nov 18, 2008 04:55 pm

I am sick of this c crap and am jumping back right in !!!

on a much smaller scale I am finishing my last chemo tomorrow and running in a 5k turkey trot on Thanksgiving - at least I hope I am.  furthest I have gone during treatment is 2 miles but I am hoping adreniline kicks in - or I will walk.

Posted in: Connecting With Others Who Have a Similar Diagnosis + Stage III Cancer, Created: Nov 18, 2008 02:58 pm

Zometa

Sent you a PM, Celtic!

Posted in: Connecting With Others Who Have a Similar Diagnosis + Stage III Cancer, Created: Nov 18, 2008 02:48 pm

Zometa

Yah for you!  I am scheduled for breast exchange, port removal and total laproscopic hysterectomy on Dec 9th. Last chemo tomorrow and radiation starts on 12/24. 

I am gathering all my research on Zometa to bring to next onc appt in Dec....

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 18, 2008 12:38 pm

How are you doing? is there anything I can do...

I am sure you are right, Sandy.  I apologize for posting in fact I hesitated before doing so.  Should have trusted my gut! 

I wish you only the best

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 18, 2008 12:01 pm

How are you doing? is there anything I can do...

No no - not offended at  all!!!!  I just know that everything makes me mad about this disease and I do realize that sometimes it is just me :-(

edited to say - I dont have mets (that I know of) finishing chemo tomorrow (hopefully forever) and I am still pissed off. 

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Nov 18, 2008 11:24 am

How are you doing? is there anything I can do...

There are times (ok - almost always) when I am just pissed off and no one can do anything right.  I get upset when people want to help me because I dont want them to feel sorry for me and I get upset when people treat me normally - don't they know I am going thru hell????  I get upset when people tell me how strong I am and then I get upset when people tell me they wish I didnt have to go through this.  Basically I am just pissed off and try to keep it to myself!

Know the feeling?

Posted in: Day to Day Matters + Research, News, and Study Results, Created: Nov 18, 2008 11:10 am

Clue To Stopping Breast-cancer Metastasis Discovered

Thank you.  Your tireless research and sharing all that you find makes us all better advocates for ourselves. 

Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Nov 18, 2008 10:34 am

Nips/Tats and future implant replacements

I am having my exchange surgery on Dec 9th and then radiation in January.  How long after radiation should I wait before having tattoos (in case of capsular contraction I guess?)

Posted in: Connecting With Others Who Have a Similar Diagnosis + Stage III Cancer, Created: Nov 18, 2008 08:37 am

Zometa

Congrats on finishing Herceptin!!!

I will keep my open for the San Antonio info on Zometa.  I am just finishing chemo (tomorrow) and still have surgery and radiation to go so I probably would not get Zometa til after that anyway but if my oncologist wont give it to me it may mean I switch to another oncologist.

Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Nov 18, 2008 05:53 am

A Crafty Christmas?

I love hand crochetted or knitted scarves - and a doggie sweaters are little!

Posted in: Connecting With Others Who Have a Similar Diagnosis + Stage III Cancer, Created: Nov 17, 2008 03:30 pm

Zometa

My onc wouldnt do the Vit D testing - I think your primary can do it if your onc wont.  I am going to discuss that with Onc at next visit too.

Posted in: Connecting With Others Who Have a Similar Diagnosis + Stage III Cancer, Created: Nov 17, 2008 03:19 pm

Zometa

Celtic Spirit - A recent study came out re Vit D not being helpful BUT as you may have noticed it was only using 400 IU- a Canadian study came out saying that more was better...I live in upstate NY and take 4000 a day in the fall and winter and 2000 a day in the spring and summer.  Have you had yours tested?

.

Statement about vitamin D and breast cancer prevention

TORONTO, Nov. 14 /CNW/ - Today, Marc Sorenson, Ed.D, an expert in vitamin D, issued a statement today in regards to the health and cancer prevention benefits of vitamin D: "The recent Journal of the National Cancer Institute published study, only used 400 IU of vitamin D - an amount we know has no affect on vitamin D blood levels. This research is deceiving. In contrast, the Creighton University study (released in 2007) used 1,100 IU of vitamin D. People need vitamin D blood levels around 40-60 ng/ml to achieve optimal anti-cancer benefit, and we know that 400 IU won't get you there - in fact, it is barely enough to prevent rickets. In the winter in Canada, every adult needs about 4,000 to 5,000 IU daily. Vitamin D is called "The Sunshine Vitamin" because sun or UVB exposure to the skin is by far the most abundant source. Vitamin D deficiency is a growing concern in Canada, especially during the darker winter months. Get your levels checked." Note: 400 IU, if no other source of vitamin D were available, would produce a level of about 4, not 23. << Sources for research about vitamin D and cancer prevention include: - A four-year, randomized study followed 1,179 healthy, postmenopausal women from rural eastern Nebraska. Participants taking calcium, as well as a quantity of vitamin D3 nearly three times the U.S. government's Recommended Daily Amount (RDA) for middle-age adults, showed a dramatic 60 percent or greater reduction in cancer risk than women who did not get the vitamin. The results of the study from Creighton University School of Medicine, conducted between 2000 and 2005, and reported in the June 8 online edition of the American Journal of Clinical Nutrition. Joan Lappe, Ph.D., R.N., Creighton professor of medicine and holder of the Criss/Beirne Endowed Chair in the School of Nursing said, "Vitamin D is a critical tool in fighting cancer as well as many other diseases." - Fifteen experts from universities, research institutes and university hospitals around the world recently called for international agencies to "reassess as a matter of high priority" dietary recommendations for vitamin D because current advice is outdated and puts the public at risk of deficiency (The American Journal of Clinical Nutrition, Vol. 85, pp. 860-868). - A 2007 breast cancer study, published online in the Journal of Steroid Biochemistry and Molecular Biology, used two earlier studies - the Harvard Nurses Health Study and the St. George's Hospital Study - and found that individuals with the highest blood levels of 25- hydroxyvitamin D, or 25(OH) D, had the lowest risk of breast cancer. - A study released in 2008 by the University of Toronto researchers measured the vitamin D blood levels of 512 women who had just been diagnosed with breast cancer, and tracked the progression of the disease during almost 12 years. Almost three-quarters of the women suffering from breast cancer had insufficient blood levels of vitamin D, and almost half of them were severely deficient. Women whose levels were highest had a 75 per cent reduced chance of death and a 96 per cent reduced chance of metastasis when compared to those whose levels were lowest. - Dr. Cedric F. Garland, cancer prevention specialist at the Moores Cancer Center at the University of California, San Diego (UCSD) and colleagues estimate that 250,000 cases of colorectal cancer and 350,000 cases of breast cancer could be prevented worldwide by increasing intake of vitamin D3, particularly in northern or southern countries in temperate latitudes. >> Recently, The Canadian Cancer Society, recognized the cancer-fighting potential of vitamin D, and recommends 1,000 IU of vitamin D daily.

Posted in: Connecting With Others Who Have a Similar Diagnosis + Stage III Cancer, Created: Nov 17, 2008 03:06 pm

Zometa

I dont have mets (that I know of) but am stage 3a and would like to keep from developing mets. It is still in study.  SWOG study. One study was done which looks promising.  Based on what I read on this board - some oncologists are prescribing it off label, others are wiating for the studies.

Posted in: Connecting With Others Who Have a Similar Diagnosis + Stage III Cancer, Created: Nov 17, 2008 02:42 pm

Zometa

possible prevention of bone mets as shown in recent studies.

Posted in: Connecting With Others Who Have a Similar Diagnosis + Stage III Cancer, Created: Nov 17, 2008 02:15 pm

Zometa

Hi all.

I have my last chemo on Wednesday. yay, I guess.  Now the scary time starts.  I am having a hysterectomy/ooph on 12.9 and radiation in Jan.  Doc says tamox for a few months (to make sure all estrogen is gone) and then onto Femara.  I had a bilateral mastectomy in July.  So far I have been as aggressive as possible (Stage 3a, small multifocal tumors (1.3 and 1 cm) and 5/20 positive nodes). 

I have been taking vit d since diagnosis and will go back to my intergrative health doc for more supplements once treatment is over.  I really want Zometa though. I mentioned it my oncologist and she said something like "well, those studies havent been proven yet".  I can probably get into the SWOG study where I would get one of three drugs - at least I would get something. 

This is some scary s--t. 

Posted in: Day to Day Matters + Research, News, and Study Results, Created: Nov 14, 2008 12:02 pm

Fighting cancer with antibody

Yes, thank you for this and all articles that you post.  I am more informed because of you.  Not sure what it all means and when it will trickle down to us but I am glad the research seems to be getting somewhere.

Posted in: Connecting With Others Who Have a Similar Diagnosis + IBC (Inflammatory Breast Cancer), Created: Nov 14, 2008 11:42 am

A question

sounds like a bruise?  Have you been on crutches lately?

Posted in: Connecting With Others Who Have a Similar Diagnosis + Stage III Cancer, Created: Nov 14, 2008 09:57 am

Just saying Hi...

Thank you.  I needed that today.  My last chemo treatment is wednesday then hyst/ooph and radiation and Femara.....

I have stayed very active all through chemo (thank god for anti nausea drugs) and have tried to enjoy every day but am reallllllllly looking forward to hair again!

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