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Member Since: August 5, 2008
Last Login: November 19, 2008
Location: Bay Area, CA United States
Occupation: Jack of all trades, Master of none

Biography

Diagnosis

Recent Posts by TheQu33n

Posted in: Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Nov 18, 2008 10:33 pm

dcis non invasive then why worry?

Barry, I get it. I totally understand your struggle, and I totally get that you don't get it. Suffice to say, I don't get it either, and I don't believe I ever will.  I'm just going to leave it at that because I don't want to upset the apple cart. Just wanted to let you know that you're not alone. -karen

Posted in: Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Nov 18, 2008 02:06 pm

What should I expect?

2boys4me, the diagnostic mammo is the same as a mammo except that they will switch out the acrylic panel thingy to a smaller one if not a couple of swap outs. In addition, they use more compression than the routine mammo. As far as discomfort goes, my personal experience is that it's a breeze compared to the mammo's of past. But because you've never had the old school mammo's that's not too helpful. Some women are more sensitive than others so if you tend to fall into that categroy a tylenol is a great idea. As far as time, most of the time is spent prepping and re-prepping - the images themselves goes quite quickly.

Results- that varies. In my neck of the woods, the diagnostic mammos are read by a radiologist while one waits. A regular mammo gets read when time permits. 

Deodorant should not be used, I carry mine in to put on after.

Best wishes for clean results -k

PS Beesie and PSK slid in with clearer info while I was typing. Dang they're good!

Posted in: Not Diagnosed but Concerned + Waiting for Test Results, Created: Nov 18, 2008 01:16 pm

Oldie, but waiting again

watching your saga Sheri, and praying for conclusive results and a positive outcome (as in good). Please keep us posted - k

Posted in: Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Nov 18, 2008 12:33 pm

Surgical Biopsy vs BSGI

I would wait for the BSGI. It sounds like you're dealing with "tissue" or a "lesion" rather than a palpable lump and that adds a level of complexity in determining that whether you're getting the right samples or not. It sounds like your team is already questioning whether the marker was accurately placed which is not at all uncommon. So, even if you require a biopsy after going through the BSGI, there should be better indicators as to where the affected tissue really resides and how large it really is.

That said, I'm one of those gals that can wait it out. I'm also a huge fan of breast conservation. Given your circumstances as described, I would want to go into surgery with a higher level of confidence that my team knew what they were taking and that it was the correct tissue. 

Just my 2 cents- I have complete faith that you'll do whatever makes the most sense for you.

Warm hugs- karen

Posted in: Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Nov 16, 2008 01:50 pm

Second time around, will they want to take out more nodes?

Barry, what Rose is saying is that a SNB is no longer a viable option because you've already gone through that procedure and therefore there is no longer a sentinal node or gate keeper to the rest of you node system. That said, just because you have grade 3 DCIS does not make node dissection a must. There are several other factors in determining whether node checks are deemed necessary. 

Your node system is still functioning fine, it's just "processing" in re-routed way.

Take care -karen

Posted in: Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Nov 15, 2008 02:45 pm

MRI guided biopsy

Ravdeb, it would be highly unlikely though I guess it would depend on the individual center. Generally, you're either scheduled for a MRI or a MRI guided biopsy. The latter requires a Radiologist be present, and the first one does not. Best wishes -k

Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Nov 12, 2008 01:16 pm

RE: Do overs <grin>

Deirdre, thank you for the info. Now that I think about it, my PS did mention that the antomical's are available but he won't use them based on the shifting issue. Maybe the rounds will be ready by the time our first set expires Surprised -k

P.S. Love your term do overs. It's a favorite with my boys and rates as highly as "hold up".

Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Nov 11, 2008 06:25 pm

RE: Do overs <grin>

Deirdre, what are 5th gen gummies. Are they the ones that being used in the rest of the world but not in the US yet (other than those who blessed enough for the trial)? Oh and do have a timeframe on when these will be available? My exchange will not be until Marchish, but this is a subject very close to my heart. In passing I had asked my PS about gummies and he said he uses them. Then I said "I mean true gummies", and he immediately knew what I was talking about and stated that the trial window had passed and that they were not yet approved in the US:). Sorry for rambling. Thanks for any input you have. I think I remember that you're here in the Bay Area somewhere, and was hoping you had the inside track on what's available Wink -k
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Nov 9, 2008 08:36 pm

Expanders vs. Implants looks....

Carolsd, Funny girl!! Mine is pointy and lumpy too. One of the points is driving me crazy. I keep pushing it in but it just keeps poking back out. It's like the corner of a glad sandwich bag filled with water. Yup, I'm pretty sure that no matter what kind of implants I get, they will be free and clear of the lumps and points. Laughing While I was hoping I wouldn't have a hamburger bun, I'm now thinking it beats the bag the buns come in!
Posted in: Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Nov 5, 2008 04:44 pm

There's Something Missing??

Deirdre, I had an epiphany a couple of days ago, and while I don't have the answer, I found a perspective  to that which was missing aside from the obvious. I too have been struggling with this big time and it dawned on me that it wasn't anymore the question of "what's missing" but the realization that what I was missing is actually what I had gained. What I have gained is an unsolicited heightened awareness (which I think many of us have already acknowledged but it wasn't to the degree that was working for me until now.) And with any gain, there are consequences, hence, all of the losses or things gone missing (time, mortality, innocence, naivety, hope, dreams, constants, breasts, passion, insert loss here).

For perspective, 10 years ago I had the most joyous day of my life thus far. I gave birth to beautiful 10 weeks early tiny twin boys. This is of course another story in itself.  Now people can explain the love for a child until the cows come home. But for me, until I've experienced it, I'm not able to fully appreciate it. So, here were these tiny beautiful miracle gifts that I fought so hard to bring into this world. The love that I felt was profound, a new plateau - so unconditional, so protective, so euphoric. But with that heightened awareness came a foreboding as well. It was the first time in my life that I truly felt vulnerable. It was a realization that I could and would if I had to, compromise my morals, values, myself, if it came down to  protecting my little miracles. Like if I held the recipe for the secret sauce and was charged with guarding it with my life, I would have done so without thought. But now I have children to safeguard, and if my children were held hostage, I would be forced to choose and would probably give up the recipe as ransom. Heightened awareness = ultimate love, Love = vulnerability.

Back to the present, I was sitting by myself, again thinking of Deirdre, and pondering of what else was missing. With that comes the wandering mind. Then came the 3 wishes game which lead me to the "I'd wish for world peace" which lead me to the "I can't wish for world peace, I'd have to be more explicit because if I'd simply wish for world peace, then some group extremist  would be free to desecrate the holy land, and because battle and war were no longer an option then what alternative would exist to protect the holy land and" (this is all meant figuratively).... well, that's when it hit me. It's not about what is missing because I'm already sad and missing all that is missing. It's the heightened awareness that I've gained that things are not as simple as they were or in the grander scheme of things, more of the mundane things are so much more insignificant than they use to be. Gosh I hope this makes sense and I don't sound too loony.

So, while I've not worked through what I'm going to do with the new found higher power if you will, I am happy to say that I think for me, I'm no longer in search for the "IT" that was missing. I am not the me that I was and know that that former me is never going to be again. But I was happy enough with the old me as I was whole, and now need to work towards a new me, making me whole once again.

I want to close by saying thank you once again for putting this "thing" on the table as it helped me immensely to find what I needed to wrap my head around.

Wish me luck!!

karen

Posted in: Not Diagnosed but Concerned + High Risk Women, Created: Nov 4, 2008 10:12 pm

Daughter's Mammo

Hi Dawn,

Yes, many insurance companies will not cover until age 40. Some insurance companies define high risk as 2 or more immediate family members with BC. There is still much debate on the accuracy of mammos on women under 40. Theory being that by age 40 the breast tissue has broken down enough to see changes in the breast via mammo. (I say theory because there seems to be a whole heck of a lot of us who still have dense breast tissue way beyond age 40!)

Anyway, it's not unheard of to be denied a mammo at age 35. That said, apparently your daughter has had one in the past, so one has to wonder what changed for her.... I would strongly suggest that your daughter talk to her insurance provider and see what gives. She may even be able to lookup the coverage/exclusions herself? (I work for a large corporation, so this kind of information is available to us via the internet.) 

Sadly, many insurance providers are now covering mammo's every 2 years until age 50, unless yet again you can prove that you're high risk based on their standards. 

Dawn, I hope your daughter finds resolution on this for your peace of mind as well as her own.

Wishing you the best -karen

 

Posted in: Tests, Treatments & Side Effects + Surgery - Before, During, and After, Created: Nov 1, 2008 01:40 pm

skin apring mastect ?

Hi Laura, 3 weeks out is very doable bar any unforseen complications. That said, I only had SNB and it sounds like you may be having more lymphs removed? I use the word "only" lightly. The deal with the lifting thing is that it takes the body about 6 weeks for the scar tissue to form and eliminate the risk of tearing away the sutures. Of course everyone is different, but 6 weeks appears to be the magic marker. HTH -k

Posted in: Not Diagnosed but Concerned + Waiting for Test Results, Created: Oct 30, 2008 12:37 pm

Pathology Report Questionable

ILvTink, I'm so sorry you're going through this set back. It has to suck. I don't have any insight for you, but I wanted to support you because I feel for you. That said, I had to have a revision two weeks post op due to necrosis because the blood supply didn't quite make it. It's not the same thing by any stretch, but it is amazing the things that can be done to get us back on track.

Hoping that things work out well for you. Please keep us posted. -k

Posted in: Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Oct 29, 2008 07:08 pm

There's Something Missing??

I just came back from lunch with a girlfriend a couple of hours ago. I had told her a few days ago that I was not me, that a part of my essence was lost and I don't think it will ever be recovered. So today, she told me that had saddened her and she didn't see it as I seemed the same Karen that she had always admired.

The only way that I can articulate it is that I use to live in the moment, as in really live in it, own it, I was there in the moment conscience of it. Now, I "do" in the moment. I go through the motions, but I'm really not there. I do what I have to do. I take care of what I need to take care of . I smile,  joke, whatever. But the little light in me has dwindled. It's still there, but not so bright. And what's sad is that I'm there, I'm all alone, and no one is ever going to be able to understand it because I can't even fully grasp it. The essence of me is gone, and I don't believe it will ever come back. 

I spend a lot of quiet time thinking about this because I need to figure out how I'm going to build on the new me. Sorry if this sounds crazy, but thank you for allowing me to share. This one is a real big deal to me as well. 

Hugz- karen

Posted in: Connecting With Others Who Have a Similar Diagnosis + DCIS (Ductal Carcinoma In Situ), Created: Oct 29, 2008 06:48 pm

How quickly do I need to schedule surgery?

Sherry, I had both lcis and dcis as well and didn't have clean margins. Due to seroma's, infection, abscess etc.... my mastectomy took place 15 weeks later. Admittedly, I was in no hurry because I fought like hell to try and conserve my breast so I was happy enough to have the 15 weeks. My Dr.'s on the other hand were anxious to get a move on as my DCIS was high grade comedo, I had three incisions, and I didn't get clean margins in any of those areas. Point is, if I were you, I'd take the opportunity to enjoy this vacation with the family.

As for scheduling a mastectomy for next week and being able to go to NY in three weeks, I'd say forget it. While I believe it can be done, I can guarantee that you would not be enjoying it much. 

My vote is go for it, have a blast, and this crap can wait until you get back!!! -k

Posted in: Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Oct 29, 2008 06:28 pm

I'm not actually worried, but I need some opinions

Amen to what PatMom said. Go for the USound. He sent the boat, it's up to you to get in Wink
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Oct 29, 2008 06:06 pm

expander and cup size question

Moodyk13, can I ask where you got the info on the Natrelle's? I've been to their website but can't find any detailed product information. Any help would be most appreciated. Thanks -karen

Posted in: Tests, Treatments & Side Effects + Lymphedema After Surgery, Created: Oct 28, 2008 07:45 pm

hematoma post surgerry- Anybody else ?

Hi Naturelover, I used a heating pad every night for the hematoma. It gave me great relief, and it helped my body to absorb it. I believe it took 6 weeks for it to resolve, but it was only like 4 x 3+ inches. Hard to say exactly as it was shaped like a swimming pool or putting green.Laughing  Now when I say resolved, I mean resolved enough for excisional biopsy. I had gotten the hematoma during the stereotactic biopsy.I ended up with seromas after the excisionals...

I hope it gets better for you, the heating pad worked well for me.  -karen

Posted in: Tests, Treatments & Side Effects + Surgery - Before, During, and After, Created: Oct 27, 2008 08:55 pm

What to wear going home from the hospital?

Hi Simvog, I came out of surgery in what my Dr. referred to as a halter top. In reality, it was more of a tube top except that it closed via velcro rather than being pulled over the head. It's a light compression type thing, was actually cute, and most importantly it supported my healthy girl. I had a zip up sweatshirt and pull on capri sweats. I dressed myself and was chomping at the bit waiting for dh to come get me and take me home. Hopefully your Dr. has some support garment type thing for you as well. If not, other ladies here will give you options.

The one thing I strongly suggest is a pillow to protect you from the seat belt for the ride home. I found that to be the best tip. 

Congrats on your PET results, and wishin you well with your surgery.... You'll do great - I can feel it!!! -karen

Posted in: Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Oct 27, 2008 08:16 pm

Complex Cysts

Beesie, I had assumed that a complex cyst was the same a cyst with a solid component. I guess I'm off to google and discover the difference.  I have one of these bad boys on an ovary and we're playing the every 6 wk US to see if it changes game. I've not cared to deal with it as the bc journey was sucking up enough energySurprised. I guess it's time to start paying it some attention.

Might I just add that it's so darn cool that brilliant people are here to  share their knowledge and I get educated for free!!! Thank you -k

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