Member Since: August 17, 2008
Last Login: October 10, 2008
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Not Diagnosed but Concerned + High Risk Women, Created: Oct 10, 2008 08:18 am
My risk and a few questionsHBN, Sounds like you and I are on a similar timeline. In July-August, mammogram, core needle biopsy and MRI showed I had ALH. I had a partial mastectomy just one month ago that confirmed ALH and no cancer. I did genetic testing that came back negative. I am considered high risk- 26%. I do have a "high risk" oncologist who I am seeing for the second time this morning. I think his job is to monitor the situation, advise me re prophylatic treatment (mastectomy, chemical treatments like Evista, not sure what else). My surgeon set me up for alternating MRIs and mammograms every 6 months. I'll listen to what my oncologist reccommends today but I am not inclined to go the preventive drug route due to side effects and am not willing to consider the bilateral mastectomy at this point. I'm 58. If I was 34, I think I would have a different view! |
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Not Diagnosed but Concerned + Waiting for Test Results, Created: Sep 8, 2008 10:49 pm
comic reliefI had an excisional biopsy Friday and am waiting for results. As ordered, I've been wearing front zip, t-back sports bras since then. Now, I'm not a jogger, don't do anything sporty, never had a sports bra much less a t-back zip-front one. The bra almost ended me in the ER tonight. All day at work I noticed the fingers on my right hand seemed numb. As the day went on, it spread across my right hand and my right toes seemed to be going numb. By the time I left work, my right arm and much of the right side of my face seemed "asleep" as did the middle of my back. Being a bit slow on the uptake lately, I decided on the drive home I might be having a stroke and probably should drive to the ER. Thinking it was progressing awfully slowly and strangely for a stroke, I went home first to read stroke symptoms on the web and decide what to do. (If you are really having a stroke, this is a very bad idea. Get to the ER!). While trying to dagnosis myself and figure out if I could drive to the next town to the ER, I noticed a tight knot in my neck/shoulder area. Hmmmm. Apparently, the wretched bra was pinching a nerve! I switched bras, massaged the knot and all the numbness went away. Alas, the dumbness remains. I think I've joined the perpetually on high alert status of someone who has left normal behind. Oh well, it will make a funny story for later. |
Posted in:
Not Diagnosed but Concerned + Waiting for Test Results, Created: Sep 8, 2008 10:26 pm
New and nervous!I'm new here, too. Is your surgery on the 17th an excisional biopsy? I just had one Friday morning to see if my ALH is really ALH or something different. The excisional biopsy was scarier than it was bad. I went to work today--not much pain at all, just feel very sluggish. The women here are great and someone will be familiar with your possible diagnosis. Hang in there--you'll find your way. |
Posted in:
Not Diagnosed but Concerned + Waiting for Test Results, Created: Sep 5, 2008 08:27 pm
Back from excisional biopsy for ALHI had an excisional biopsy this morning after ALH daignosis. They are trying to determine if I'm in the 30% where all the other testing missed the cancer diasnosis. FIngers crossed! For a strange variety of reasons, I have not discussed the LAH diagnosis or surgery with anyone yet, but lucked into finding this group. This is my first posting but I "lurked" reading posts for weeks to find some level of support. While I have had moments of anxiety (not a big surprise!), the only time I cried was when I read the posts here--not because I felt pity for any of us (although I hate that we have to be her), but because I have been overwhlemed by the beautiful honesty, generous sharing, support and caring everyone here offers. I learned a lot, felt impowered and cannot thank you enough. Anyway, I doing OK. Took no pain meds other than OTC Tylenol but the pain is not bad so far. Sore throat is more annoying than the breast pain. I'm going to try a salt water gargle when I finish here. I had a mammography guided wire localization prior to the surgery. YUK. Two unpleasant things do not improve upon combination! The worst part was being "squeezed" for 10 minutes and the numbing injection, but overall it was not so bad. The surgery was not as bad as I thought it might be. I always imagine the worst and hope to be happily disappointed! Most of the time, that works. The nurses were great. I refused Verstadt (I don't think that's spelled right) as I am always suspicious of something that mostly keeps you from remembering, plus they were going to give me a general anyway. They told me it would reduce anxiety so I think some people would find it helpful. It was interesting be aware while going into surgery, meeting everyone in there, seeing the set up, having everything explained--at least until the general did me in. Surgery started around 9:30 (after the wire localization) and I was home by 12:30. Get my results Thursday in appt. with surgeon unless I can get someone to tell me over the phone sooner. Have a geneteic counseling appointment set up the following week. ALH is a weird diagnosis. Cutting it out does nothing beyond telling you if the diagnosis was right or wrong. Reduces your chances of bad stuff happening by zero. I don't even know what outcome to hope for. Look forward to talking to some of you soon about ALH or whatever path this takes me down. Thanks again to all of you. |
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