Member Since: September 2, 2008
Last Login: November 18, 2008
Location: MA - RI line United States
Occupation:
Biography
I'm a 36 year old, with a family history of breast cancer. My mom was DX twice and is a survivor, her sister DX one month later, and passed away after fighting for close to 4 years. Their aunt also DX with BC passed away. Mom is brca 2 positive. My sister just found out she is BRAC 2+
I have left breast drainage, reason unknown. Pituitary tumor test is negative. Mammo, and ultrasound are normal limits. Next step is MRI... stay tuned for updates!! Ok now breast MRI is negative. What is going on here? I know I am not crazy, other people have seen it. This is nuts!!
Diagnosis
Recent Posts by Hanaki
Posted in:
Not Diagnosed but Concerned + High Risk Women, Created: Nov 18, 2008 08:52 am
Massachusetts Ladies Help PleaseLissa71- what a horrible experience. I can't imagine how that must of felt, how long were you stuck for? As for me the discharge is a mix of green and yellow with occasional red. So far I have had a mammo, u/s, and mri and all came back with in normal limits. I did some research last night and found that the hospital that I am going to go to for the galactogram is part of the Brigham and Woman's Hospital in Boston, a satellite cancer center.
"Mommy, when people die and go to heaven is that when we see shooting stars?" asked by my daughter Kayla, age 7 |
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Not Diagnosed but Concerned + High Risk Women, Created: Nov 17, 2008 10:57 pm
Massachusetts Ladies Help PleaseHmmmm I wonder why my doctors office was bounced around from a few major hospitals here in MA, all of them stating that they don't do that test... I am at the point now that I dont care where I have to go I just want the test. What was it like? "Mommy, when people die and go to heaven is that when we see shooting stars?" asked by my daughter Kayla, age 7 |
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Not Diagnosed but Concerned + High Risk Women, Created: Nov 17, 2008 10:33 pm
Massachusetts Ladies Help Pleaseyes that is the test... did you get it in MA? if so where? "Mommy, when people die and go to heaven is that when we see shooting stars?" asked by my daughter Kayla, age 7 |
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Not Diagnosed but Concerned + High Risk Women, Created: Nov 17, 2008 07:24 pm
Massachusetts Ladies Help PleaseUpdate... after doing some research my doctors office has found only one hospital in MA that does a test to check the fluid that is coming from my nipple. Is this procedure that new? Has anyone had this procedure? My doctors office called the Brigham and Woman's and they said that UMass in Worcester does it, well they said that they don't and that the Faulkner Hospital in Jamaica Plain does. Well it turns out that they do, and to get this test, my doctor has to explain in detail why I should get this test. Thankfully he told me that he will do what ever it takes for me to get tested. I find it weird that of all the hospitals in Boston no one does this test. Any comments?? Anyone???
"Mommy, when people die and go to heaven is that when we see shooting stars?" asked by my daughter Kayla, age 7 |
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Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Nov 17, 2008 06:43 pm
Effexor- please I need feedbackHeartbroken1 .. I just sent you a PM "Mommy, when people die and go to heaven is that when we see shooting stars?" asked by my daughter Kayla, age 7 |
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Not Diagnosed but Concerned + High Risk Women, Created: Nov 7, 2008 08:28 pm
Massachusetts Ladies Help Pleaseawb- no not yet, is the ductal lavage the same as mammary ductoscopy? Yes I have considered the gene testing, I am going to a conference in Boston on 11/15 about the brac genes. "Mommy, when people die and go to heaven is that when we see shooting stars?" asked by my daughter Kayla, age 7 |
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Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Nov 7, 2008 10:44 am
ProlactinI have not heard anything about that but when I first saw my dr due to my left breast discharge he ordered a mammo, u/s and a head mri. they took blood to check my prolactin levels just in case it was a pituitary tumor. It wasnt. mammo and u/s came back within normal limits dense breasts. MRI of breasts were clear. but i still have the discharge
 "Mommy, when people die and go to heaven is that when we see shooting stars?" asked by my daughter Kayla, age 7 |
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Not Diagnosed but Concerned + High Risk Women, Created: Nov 7, 2008 10:29 am
Massachusetts Ladies Help PleaseUpdate: I talked to my doctor yesterday and he agreed that I should get seen by a breast specialist. So he is calling the Brigham's and Womans Hosp to get me in with a breast surgeon. He said that there might be some insurance issues of getting them to pay for the other testing since the mri dr said on the mri that no further testing required. Grrrrrr so now I wait to see what is next. "Mommy, when people die and go to heaven is that when we see shooting stars?" asked by my daughter Kayla, age 7 |
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Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Nov 7, 2008 10:24 am
too those with or had nipple dischargeHanaki Update::: I talked to my doctor yesterday and he agreed that I should get seen by a breast specialist. So he is calling the Brigham's and Womans Hosp to get me in with a breast surgeon. He said that there might be some insurance issues of getting them to pay for the other testing since the mri dr said on the mri that no further testing required. Grrrrrr so now I wait to see what is next. "Mommy, when people die and go to heaven is that when we see shooting stars?" asked by my daughter Kayla, age 7 |
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Not Diagnosed but Concerned + High Risk Women, Created: Nov 5, 2008 04:29 pm
Massachusetts Ladies Help PleaseMy PCP said that he will give me a referral to any doctor I wanted. Brigham and Woman's - Dana Farber just opened a satellite clinic down here in Milford. I went there for my MRI. I called them and asked about being seen by a breast specialist and the woman said that I needed to be dx'd with cancer before they can see me. So where does one find a breast doctor? If there is a problem with the breast who do I see besides my PCP, because truthfully I would trust a breast specialist over a PCP any day. There are only so many tests that the PCP can order it figure out what is going on. So when they come back negative and the problem is still there I feel that I should see a specialist. I am sick about this whole thing. I just can't walk away from this and come back in 6 months. I want to know know if there is pre-cancer or cancer cells in the discharge. When I say discharge I am not talking about a drip once a week, its a 24 hour a day occurrence. There is no lump according to the MRI. I am considered high risk. My mother was dx'd with BC at the age of 38, in 1989 then again in 2001. Her younger sister was dx'd with BC at the age of 37 and lost her fight to it. Their aunt was dx'd with BC also. My mom and my sister both have the BRCA 2 gene. I have yet to be tested. I am 37. I feel like I must be going crazy. Am I a hypochondriac? Should I just forget this and go back in 6 months. I am starting to feel like an idiot since I dont have a lump but have discharge that seems to be coming from who know where in my body and out my left breast. It's not like I want cancer because I dont. I just want to know what is happening with my breast.
 "Mommy, when people die and go to heaven is that when we see shooting stars?" asked by my daughter Kayla, age 7 |
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Not Diagnosed but Concerned + High Risk Women, Created: Nov 5, 2008 02:37 pm
Massachusetts Ladies Help PleaseI need information on how to find a breast doctor that I can get an appointment with. I live in Northern Rhode Island and have MA insurance. I am at wits end. I have discharge from my left breast, I have had a mammo, u/s and mri all come back normal limits. I know that there are other tests that can be done to determine if this is something to worry about. Who does these tests? How do I get in to see a breast doctor. I wanted to get in with the Brigham and Woman's satellite in Milford, but when I call there they tell me that unless I have already been dx'd with cancer they can's see me.... ugh But I did get my MRI there go figure. I was told to have a mammo in six months then six months after that have a mri and continue on like that. WHAT? Are they kidding? I want to deal with this now.
"Mommy, when people die and go to heaven is that when we see shooting stars?" asked by my daughter Kayla, age 7 |
Posted in:
Support & Community Connections + Lesbians with Breast Cancer, Created: Nov 2, 2008 09:48 pm
Rayne's updateHi! we dont know each other but I just had to say I think that is a great picture!! It's filled with energy and happiness. I wish the best for the both of you. Hanaki "Mommy, when people die and go to heaven is that when we see shooting stars?" asked by my daughter Kayla, age 7 |
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Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Oct 23, 2008 10:36 pm
too those with or had nipple dischargethe duct where the leakage is coming from needs to come out? did your mri state anything there or was it negative? "if when people die and go to heaven is that when we see shooting stars?" asked by my daughter Kayla, age 7 |
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Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Oct 23, 2008 08:21 pm
too those with or had nipple dischargeJennywren... what did your breast mri come back as? they said that mine in normal. how did you get to the point of having a duct excision? what made them decide to do that? "if when people die and go to heaven is that when we see shooting stars?" asked by my daughter Kayla, age 7 |
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Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Oct 23, 2008 05:04 pm
too those with or had nipple dischargeanyone take lamictal? the dr seems to think its the pill causing all of this...
 "if when people die and go to heaven is that when we see shooting stars?" asked by my daughter Kayla, age 7 |
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Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Oct 23, 2008 01:10 pm
too those with or had nipple dischargeUpdate::: I had the breast MRI on 10/16 and today I found out the tests were negative! But I am still having the discharge from my left breast. So far I have had a mammo, u/s, brain MRI for pituitary tumor, and now negative breast MRI... what the hell is going on? what other tests can i get to find out what this liquid is? "if when people die and go to heaven is that when we see shooting stars?" asked by my daughter Kayla, age 7 |
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Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Oct 17, 2008 11:26 pm
OK now what do I do???????I had my MRI yesterday, now I wait. My sister gets hers tomorrow.
"if when people die and go to heaven is that when we see shooting stars?" asked by my daughter Kayla, age 7 |
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Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Oct 16, 2008 11:28 pm
picscarrie just ask if any one would like to see the pics, it might help you out by giving you their opinion, its worth a try "if when people die and go to heaven is that when we see shooting stars?" asked by my daughter Kayla, age 7 |
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Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Oct 16, 2008 10:26 pm
picscarrie post this to the ibc board.. you might get more help with the pics there... Huggz Hanaki "if when people die and go to heaven is that when we see shooting stars?" asked by my daughter Kayla, age 7 |
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Not Diagnosed but Concerned + Not Diagnosed but Worried, Created: Oct 16, 2008 10:05 am
too those with or had nipple dischargeprestressed... are you seeing a breast dr or a family practice dr? I'm going to pm you... "if when people die and go to heaven is that when we see shooting stars?" asked by my daughter Kayla, age 7 |