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Member Since: September 5, 2008
Last Login: October 20, 2008
Birthday: April 3, 1959
Location: Wilmington, NC United States
Occupation: Wife, mother, nana

Biography

I was diaganosed with stage 2 BC in Dec 1997 after a R breast mast. at age 38.

After 4 treatments of cytoxin & adrimician i was in remission until Jan 2001.  When tumors were found in my lungs & bones (ribs & spine.)  Since then it has been on again off again with different chemos.  I am HER2+ so herceptin has been a staple all these years.  I was then started on taxol, every week for 3 weeks then off 1 week herceptin weekly & zometa every 4 weeks.  This worked for

 finish story later

Diagnosis

Diagnosis: Dx 11/10/1997, IDC, 2cm, Stage IV, 3/11 nodes, mets, ER+, HER2+
Diagnosed: November 10, 1997
Type: Invasive or Infiltrating Ductal Carcinoma
Recurrent?
Metastatic? Yes
Stage: Stage IV
Lymph Nodes Removed: 11
Positive Lymph Nodes: 3
Tumor Size: 2cm-2.9cm
Tumor Grade:
Hormone Receptor Status:
HER2/neu Status: Tumor has an excess of HER2/neu receptors or genes

Recent Posts by CathyKops

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Sep 11, 2008 01:57 am

Ixempra-My experience

Hi everyone,

I just finised reading all 8 pages.  i have learned so much!!!  thanks again for sharing.  i get #2 next wed 9/17.  now i have a few ideas to help with the SEs.

kateve--i'm excited for you going to CTCA.  they are a place i will want to try when necessary.

Lots of love to ya all--cathy


Dx 11/10/1997, IDC, 2cm, Stage IV, 3/11 nodes, mets, ER+, HER2+
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Sep 9, 2008 11:45 pm

Ixempra chemo

Hi tooyoung,

thank you so much for your thread.  now i know what one is and i also learned a lot about ixempra and its se's.  i had my 1st 2 weeks ago.  it wiped me out.  i had mouth sores so bad (on the sides of my tongue) that my tongue swelled up.  i couldn't eat so that made me week, i could barely talk.  i slept for 3 days!!!   you girls talked about lowering your doses--do you know what dose you starter at?  she started me at 65mg.  this stuff is about as bad as the 1st. original round of AD/CY ten 1/2 years ago.  i feel for ya with the nausea & vomiting.  so far no bone pain.  well it's day 14 and i still have my hair, but i guess not for much longer huh???  sucks cuz i've only had it back for a feww mths.  carbo knocked it out last may/june.  oh well as long as it does something for my tumors,which are in my lungs & bones (ribs & spine.)

thanks to all of you beautiful girls for writing about ixempra--it really helped me & has made me feel better about a drug i knew little about.  and i hadn't know anyone who had taken it until now.  so God Bless you guys--we are in this together for the long haul.  i'll keep you posted as to how i do.

Love, Cathy


Dx 11/10/1997, IDC, 2cm, Stage IV, 3/11 nodes, mets, ER+, HER2+
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Sep 7, 2008 11:10 pm

Ixempra chemo

this stuff is new to me.  what is a thread?  and how do i search for it?  i'm confused---HELP!!!

thanks, cathy


Dx 11/10/1997, IDC, 2cm, Stage IV, 3/11 nodes, mets, ER+, HER2+
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Sep 7, 2008 01:54 am

Ixempra chemo

I have just started taking this new mets chemo, ixempra.  Has anyone taken it?  Have you lost your hair?

cathy


Dx 11/10/1997, IDC, 2cm, Stage IV, 3/11 nodes, mets, ER+, HER2+

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