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Member Since: September 6, 2008
Last Login: September 19, 2008
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Recent Posts by jessie38

Posted in: Connecting With Others Who Have a Similar Diagnosis + Triple Negative, Created: Sep 19, 2008 02:56 pm

Basal Subtype with Triple Negative

Hey Everyone,

     My onc visit went well.  We went ahead and sent off for the gene testing, so hopefully I'll know something in the next few weeks.  I really liked him alot.  He was very informative, but kind of brutal.  When I say that I mean SS and how agressive the cancer is blah, blah.  He also advised that if I'm BRCA pos I should strongly consider a bialteral mastectomy and an oophorectomy.  GD, more surgery, but may be not.

     I actually had my first chemo treatment yesterday and am doing fairly well.  I had some nausea, but they give you great drugs.  My nurse said I would probably feel worse over the weekend.  I planning on being at work monday with bells on though.

     Thank you to everyone for all their wonderful support.  I love this site and hope to become more active in it, besides for me but for other people too.  I hope your doing okay Boo, and thanks for the encouragement to all.

Jessie

Posted in: Connecting With Others Who Have a Similar Diagnosis + Triple Negative, Created: Sep 7, 2008 03:54 pm

Basal Subtype with Triple Negative

Cheranthia,

     Thank you so much for all the great info.  I know I can't put all my energy into what the prognosis means, but this whole thing is still so new I think I'm a little fixated on it.  My mom also spoke with me about being gene tested.  Nobody in my family has ever been tested before.  There is no breast cancer in my family, but my aunt and cousin both died of ovarian cancer.  So the gene testing is something I'm definitely going to pursue.

     I will post more info after my appt.  Thanks again!!!  Jessie

Posted in: Connecting With Others Who Have a Similar Diagnosis + Triple Negative, Created: Sep 7, 2008 03:49 pm

Basal Subtype with Triple Negative

Hey Boo,

     By the way that was my nickname my father gave me as a child, and still calls me to this day.  Thanks for all the support and encouraging words.  I will post a report on how things went on monday.  This is my first time in any kind of discussion forum since dx and it's a wonderful support network.  Thanks again, Jessie

Posted in: Connecting With Others Who Have a Similar Diagnosis + Triple Negative, Created: Sep 7, 2008 03:46 pm

Basal Subtype with Triple Negative

Summer,

Good luck with getting your path report.  Stay on them.  I think some doctors don't want to let their patients see their path reports, but I think they are getting better.  Let me know how it goes.  Good luck to you.  Jessie

Posted in: Connecting With Others Who Have a Similar Diagnosis + Triple Negative, Created: Sep 6, 2008 02:28 pm

Basal Subtype with Triple Negative

Hello,

     I am hoping there is someone out there that will be able to give me more information.  I'm 38 and a little over a month ago was diagnosed with IDC, 4.2 cm, grade 3, node positive, but the path report also talked about 5 tumor markers (Vimentin positive, Cytokeratin 5/6 positive, ER, PR, and Her2 all negative).  They also made mention of a consistency with this basal subtype of invasive breast cancer that is also observed with BRCA-1 with very poor clinical outcomes.  Maybe I shouldn't read my path report, but I'm an educated woman.  I don't want to dwell on clinical outcomes, but I'm seeing the ONC on monday for the first time and would like to know if there is anyone out there that can tell me what to expect?  Is the onc going to be honest about my prognosis, will he talk about gene testing?  Is there anyone else that has had treatment for this type of BC?  Any advice I am giving would be great.  I will be rooting for each and every one of you.  Thanks in Advance!!!! 

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