Member Since: September 7, 2008
Last Login: November 20, 2008
Birthday: January 9, 1964
Location: Glendale, AZ United States
Occupation: Premier Designs Jewelry Distributor
Homepage URL: My Journey with IBC (www.up2god.net/index.php?page=blogs)
I am born and raised in AZ 3rd genetation. The Valley of the Sun! I have 4 brothers. 1 that lives in New York and 1 that lives in North Carolina the other 2 live here in AZ. I have a wonderful husband his name is Ron. We have been married for 6 years. We have two children. Robbie who is 22 yrs old and married to his lovely wife Sho. They just bought their first home. He is from my husband's first marriage. Seleania who is 19 yrs old and going to college. I am very proud of her. She is my pride and joy! I love being a mom. She is from my first marriage.
I have had a rough 3 years. In 2006 I got rear ended and hurt my back and neck. Saw doctors for a year and discovered that I have OA in my lower back. Then in March 2007 I broke my left arm in 2 places with a floating bone. They airvaced me and did surgery. Then in July I broke my left shoulder. I saw doctors and had physical therapy. Then in April of 2008 I was diagnosis with IBC in my left breast. 11cm tumor, Stage 3B prognosis was poor. God is amazing though and it is shrinking and the treatments are working. My doctor gave me good news and said it was curable and she is amazed with how wonderful it is responding. God is good!
I have a wonderful support group of famiy,friends and church. I have truly been blessed. I have three special friends. Tracy, Cris and Jean. They have truly been here for me. My husband is the greatest and has done his best to hold things together during these trying times.
I love animals and have rescued 4 of them. Zsa Zsa (yorkie mix), Peggy Sue (chihuahua mix) Samoa (hymalyin mix) and Pretty (cockatiel) They are very special to us and have such unique personalities. I taught children for 20 years. I retired and do miss being with them. I love to scrapbook, paint, read, pray, spending time with family and friends.
I have a strong faith in God. For his is my strenght and has helped me though my hard times each and everytime. I give him all the glory. I believe he is the mighty physician and though him anything is possible.
My husband has started a online christian network called Up2God. We are very excited about it.
| Diagnosis: | Dx 4/10/2008, IBC, 6cm+, Stage IIIb, Grade 3, 3/16 nodes, ER-/PR-, HER2- |
| Diagnosed: | April 10, 2008 |
| Type: | Inflammatory Breast Cancer |
| Recurrent? | |
| Metastatic? | |
| Stage: | Stage IIIb |
| Lymph Nodes Removed: | 16 |
| Positive Lymph Nodes: | 3 |
| Tumor Size: | 6cm or larger |
| Tumor Grade: | Grade 3 or high grade |
| Hormone Receptor Status: | Tumor does not have estrogen or progesterone receptors |
| HER2/neu Status: | Tumor does not have an excess of HER2/neu receptors or genes |
Posted in:
Support & Community Connections + Get Togethers, Created: Nov 18, 2008 11:07 pm
Anyone In Phoenix, AZ Area?Hi Jerri; I have been on Taxotere/Cisplatin and then I did AC/Cytoxin, and now I am doing Taxol/Carboplatin. I can tell you Taxotere was the hardest for me. I am so grateful that they had medications to help me out. I do not know what I would of done. AC was alright it really broke down my red blood cells so I had to have a blood transfusion. I had a allergic reaction to them all. So they premedicate me before I even begin. I sleep during chemo cause of the meds they give me before I begin. Everyone is different though. You may do just fine. That would be great. You seem like a very strong lady. Remember we are here for you. I think it is a good idea that your husband does take you. My husband takes me everry Thursday. I am glad that he is there. Pink hair huh! I say go for it, we only live once. I went to Classy Sisters. They did a great job and I love my wigs. I did not wear them in the summer though cause it was way to hot. I would go bald with lots of sunscreen or wear a hat. Now that the weather is a little cooler I wear my wig. Remember they can shape and make it fit you nicely. Wigs now you cannot till that you are wearing one. I wish you the best Jerri in getting your port put in and the beginning of chemo. You are in my thoughts and prayers. In God's Grace; Elizabeth
www.up2god.net Dx 4/10/2008, IBC, 6cm+, Stage IIIb, Grade 3, 3/16 nodes, ER-/PR-, HER2- |
Posted in:
Tests, Treatments & Side Effects + Breast Prostheses and Reconstruction Alternatives, Created: Nov 18, 2008 01:56 am
Knit a tit!Well ladies my mother crocheted me some foobs. She knew I was sad about losing my breasts and that I could not have reconstruction for a year. So my mother decided to surprise me one day with a set of foobs. She made them of a soft pink yarn and added glitter flower buttons as the nipples. I love them. They look good, feel good, and are colorful. She has added more to my collection. I especially like the hippie color ones with smiley faces as nipples. Then she made me some red ones with green hand buttons as the nipples. She is having a lot of fun with them. Now we are coming up with another plan for them. Who knows what will be next. They make me feel extra good. In God's Grace; Elizabeth www.up2god.net Dx 4/10/2008, IBC, 6cm+, Stage IIIb, Grade 3, 3/16 nodes, ER-/PR-, HER2- |
Posted in:
Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Nov 18, 2008 01:40 am
1st Treatment and Neulasta ShotI found that when I was a Taxotere I was so tired and had low energy. My onc mentioned to me about my bone aches and flu symptoms to take Alieve and Claritian. That made a difference for me. I took it the morning before my shot. Then I took for 3 days after. I found that it really helped me for I was miserable. My body took me about 2 weeks to recover before I found out about the Alieve and Clariatian. By the 3 week and having to go back when I started to feel better. I dreaded going back, but was happy that is was one less treatement I had to do. In God's Grace; Elizabeth www.up2god.net Dx 4/10/2008, IBC, 6cm+, Stage IIIb, Grade 3, 3/16 nodes, ER-/PR-, HER2- |
Posted in:
Support & Community Connections + Get Togethers, Created: Nov 17, 2008 10:42 pm
Anyone In Phoenix, AZ Area?Hi Amira: I am so excited that you maybe able to come after all. Is the change in chemo treatment a good thing? Hi Karen: Your welcome Karen...I love doing this kind of stuff. If I had it my way I would be planning events and organizing things. It is a lot of fun. I am so sorry to hear that you have a skin infection and may need to have your expanders out. It actually sounds painful. Okay here is a list of ladies that have joined our group so far! Elizabeth - ebann Tracy- friend Sue - suemed8749 Teena -TNT Jerri - PinkLaddy Karen - KinAZ Pamela - sweeeeetpam Amira - proudafwife00 Kath - azsun Melody - MelodyinAZ Neesie - Neesie (when she is visiting in AZ)
www.up2god.net Dx 4/10/2008, IBC, 6cm+, Stage IIIb, Grade 3, 3/16 nodes, ER-/PR-, HER2- |
Posted in:
Recovery, Renewal, & Hope + Prayers and Spiritual Inspiration, Created: Nov 17, 2008 12:41 pm
I need a mentorMoodyK13; I was just coming in to explain the Trinity. Well you did such a great job in explaining it. So bump! www.up2god.net Dx 4/10/2008, IBC, 6cm+, Stage IIIb, Grade 3, 3/16 nodes, ER-/PR-, HER2- |
Posted in:
Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Nov 16, 2008 09:02 pm
Anyone starting chemo in October 08?Hi Everyone; RockFan; I do recall losing my hair about the 17th day. Walking is a good thing to do. To keep up with some form of exercise really helps with side effects as well. My hair started growing back after I had surgery. We thought I was done with chemo, but they found more. So I am doing it again along with radiatoin. I am wondering if my hair is going to fall out again now that it has started to grow. I even have my eyelashes and eyebrows back. It is very exciting. Let's see if I can keep the excitment going. Unique I am so sorry to hear that you are having problems with bruising. I agree that you need to discuss this with your onc, Here is some information on bruising. http://www.chemocare.com/managing/bruising.asp I hope that you find this helpful and may raise some questions to ask your onc. Bourschild: I agree spoil yourself. I say an outfit is not complete without your earrings. I go bald all the time and I have to have my jewelry on. I sale jewelry so I definately wear it. I love that bling. So you go for it and make yourself feel special. Cause you are! Fammy5: I had a reaction to AC and they premedicated me each time I had to use it. I am on Taxol and they premedicate me for that too. I do Taxol/Carboplatin every Thursday for 3 weeks and one week off for 3 months. I am doing radiation with it too. I understand about a normal life. I do pray that is so for all of us. I hear it is never the same though. Which I think is expected. I wish you the best with your chemo. I get this week off from chemo. Yeah! Isn't that nice of them? LOL In God's Grace; Elizabeth
www.up2god.net Dx 4/10/2008, IBC, 6cm+, Stage IIIb, Grade 3, 3/16 nodes, ER-/PR-, HER2- |
Posted in:
Support & Community Connections + Get Togethers, Created: Nov 16, 2008 03:38 pm
Anyone In Phoenix, AZ Area?
Welcome to our Phx BCO Sisters. We would love to have you join us anytime. Believe me we will have other plans coming along the way. I am planning to have a get together once a month. I will send you a form to fill out for the group in your PM box. This information I will be giving out to each of the women. For those of you that cannot attend I will mail you the information. Information Folders includes: Form w/ each women information Newsletter for December 2009 Agenda for our Get Togethers Poem Brochure for up2god Picture I hope you find this to be helpful. I am always open to more suggestions. 2 more weeks and we shall meet. www.up2god.net Dx 4/10/2008, IBC, 6cm+, Stage IIIb, Grade 3, 3/16 nodes, ER-/PR-, HER2- |
Posted in:
Support & Community Connections + Get Togethers, Created: Nov 16, 2008 01:48 pm
Anyone In Phoenix, AZ Area?Oh yeah Pam who just came into our group lives in Gilbert. www.up2god.net Dx 4/10/2008, IBC, 6cm+, Stage IIIb, Grade 3, 3/16 nodes, ER-/PR-, HER2- |
Posted in:
Recovery, Renewal, & Hope + Prayers and Spiritual Inspiration, Created: Nov 16, 2008 01:45 pm
I need a mentorEWB; Sorry I did not answer your question sooner. I think you have figured it out. As far as a christian goes. I am not sure really how to answer that. I just know that we seem to be more open about not being judgemental, excepting of who you are. We know we are not perfect. That God loves us no matter what. We are not God's and there is only one God. That God died for our sins and was resurrected for us. Though there are some people known as Christian's who are oppositie of this. Which is not how God would like I to live that life. Everyone is different and handles it differently. I think you are on the right track. It is great you brought up these questions. I am not sure if I am any help with this. Though I do believe so many here are very wise. In God's Grace; Elizabeth www.up2god.net Dx 4/10/2008, IBC, 6cm+, Stage IIIb, Grade 3, 3/16 nodes, ER-/PR-, HER2- |
Posted in:
Support & Community Connections + Get Togethers, Created: Nov 16, 2008 12:48 pm
Anyone In Phoenix, AZ Area?Welcome to Our 1st Phx BCO Sisters Meetup Host: Elizabeth Fugate Location: The Old Spagetti Factory 1418 N. Central Ave. Phx, AZ 85004 When: Monday December 1st, 2008 Time: 6:30pm Looking forward to many more get togethers.
www.up2god.net Dx 4/10/2008, IBC, 6cm+, Stage IIIb, Grade 3, 3/16 nodes, ER-/PR-, HER2- |
Posted in:
Support & Community Connections + Get Togethers, Created: Nov 16, 2008 12:38 pm
Anyone In Phoenix, AZ Area?This Post was deleted by ebann. |
Posted in:
Support & Community Connections + Get Togethers, Created: Nov 16, 2008 12:31 pm
Anyone In Phoenix, AZ Area?Hi Jerri; Here is the run down where everyone lives in the Valley. Elizabeth: Glendale Armia: Buckeye Teena: El Mirage Karen: Chandler Sue: Phx (Ahwatukee) Melody: Tempe Jerri: NW Phx Hope this helps you out. I am not sure where Tamara is. I have not heard from her since her last message letting me know she was interested. Everyone please check your email for your evite. I know some of you can not respond until later. I will post the information for our meetup here as well. I will keep everyone posted. Sue: I am doing alright. Very tired doing radiation and chemo together. My side effects are mild so far. The one thing is constipated though I believe I have that under control now with SenKotS. It works wonders. So glad bourschild told me about it. Thank you for the offer Sue in helping. Right now I do have everything covered so far. Though I may need help in future gatherings. Amira: I do know someone on this site named Sue/Susan13. She takes care of her daughter who is 2 yrs old. I do not have a little one anymore. I do pray that your will not have to experience vomiting/nausea. The medications for that are pretty strong. Which is great. I will PM you a site Susan13 started and you can either PM her or discuss it on the discussion board. Maybe you can start a topic and I am sure that other women have young children. I wish I could be more helpful to you. Pam: Welcome to our group. We are so happy to have you. I look forward to getting to know you as well. We are having a get together on December 1st, 2008. In God's Grace; Elizabeth www.up2god.net Dx 4/10/2008, IBC, 6cm+, Stage IIIb, Grade 3, 3/16 nodes, ER-/PR-, HER2- |
Posted in:
Connecting With Others Who Have a Similar Diagnosis + Triple Negative, Created: Nov 13, 2008 11:06 pm
TripleNeg, 50 yrs old, white...anyone else?I am 44 Dx 4/10/08 Left IBC and Right DCIS Stage 3b 3/16 nods Triple Neg, & caucasian. I was perimenopausal. The treatments I have had are 4 rounds of Taxotere/Cisplatin. Every 3 weeks. Then 4 rounds of AC/Cytoxan every 2 weeks, Had a radical mastectomy. They removed a 12.5 tumor on my left breast. IBC is a rare and aggressive form of cancer. It is rarely misdiagnosis Mine was. It rarely shows up on a mammogram or ultrasound. Mine did not on the left, it showed on the right for DCIS. I had a biopsy for my diagnosis. They found 3 positive nodes. I had clear margins, and have cancer on my chest wall. Having to do more chemo now along with radiation. I am doing Taxol/Carboplatin every week for 3 weeks with one week off. Then radiation 33 tx. The combination is making me so exhausted right now. I have been hospitalized twice that is not including my surgery. This is because of infection and shortness of breath. I have heard that reoccurrence in Triple Neg is higher and that we are better at responding to chemo. I take each day one at a time and enjoy life as much as I can. I do something for myself each day. Even if it is 5 mins. I have a wonderful husband and mother who have helped me a great deal. I wish you the best in your decisions. In God's Grace; Elizabeth www.up2god.net Dx 4/10/2008, IBC, 6cm+, Stage IIIb, Grade 3, 3/16 nodes, ER-/PR-, HER2- |
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Tests, Treatments & Side Effects + Surgery - Before, During, and After, Created: Nov 13, 2008 10:53 pm
Drains removed No problemsI have to say that the most irritating thing for me was the staples. I wanted them out the most. But the tight feeling is still there. Like I have a bra on 3x smaller. I sometimes want to adjust it and then realize I do not have one. LOL Getting my staples out felt good. I had no problem getting the drains out. I took a deep breath and she pulled and out they came. I know it was more bothersome to remove the stitches and that was nothing really. So overall my experience with it was good. I have no idea about expanders and reconstruction. With the type of cancer I have I can not have reconstruction for about 2 years. My tumor they removed was 12.5cm. So I am glad to be here. It is nice to know that things can come out good and does not always have to be surrounded with pain. In God's Grace; Elizabeth www.up2god.net Dx 4/10/2008, IBC, 6cm+, Stage IIIb, Grade 3, 3/16 nodes, ER-/PR-, HER2- |
Posted in:
Day to Day Matters + Humor and Games, Created: Nov 13, 2008 10:37 pm
This word reminds me of....Cilantro www.up2god.net Dx 4/10/2008, IBC, 6cm+, Stage IIIb, Grade 3, 3/16 nodes, ER-/PR-, HER2- |
Posted in:
Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Nov 13, 2008 09:25 pm
Anyone starting chemo in October 08?Hi Penny; I know how it is to have an infection and be hospitalized and not even know that you have one. I am sorry you had to experience that and miss the birth of your grandson. It is great that you are spending time with them now. They make such a difference. So precious in his sight. As far as the nuelasta shot goes it is good cause it brings up your blood counts. It is like a boost. I can tell you that you get flu like symptoms, and it makes your bones/joints ache. They told me to take claritan and alieve in the morning before you go in. They say it really makes a difference I do not know. I will find out tomorrow. I did nuelasta shots the other times I have had chemo. They did not tell me about what else to take. So I really hope this helps, cause I hated how I felt with it. http://www.neulasta.com/ Here is their website I sure hope this helps. In God;s Grace Elizabeth www.up2god.net Dx 4/10/2008, IBC, 6cm+, Stage IIIb, Grade 3, 3/16 nodes, ER-/PR-, HER2- |
Posted in:
Recovery, Renewal, & Hope + Prayers and Spiritual Inspiration, Created: Nov 13, 2008 11:04 am
I need a mentorEWB; I think this is a great place to ask/discuss. Thanks to Held who started this thread. I come and read and get very inspired. I think that God will truly bless you in helping others. It is away of serving our Lord. Church is not for everyone. It took me a long time to find a church. I finally did. It was not a easy journey and churches are still going to have issues. I think you can be a christian if you do not go to church. That you can believe with all your heart. God loves you. For you are his child. Do you believe in God? Do you believe that he is there in the mist of it all? May you have a blessed day! May God praise you daily for your good works in him. In God's Grace; Elizabeth www.up2god.net Dx 4/10/2008, IBC, 6cm+, Stage IIIb, Grade 3, 3/16 nodes, ER-/PR-, HER2- |
Posted in:
Tests, Treatments & Side Effects + Chemotherapy - Before, During and After, Created: Nov 13, 2008 12:02 am
Recovering from chemo; starting radiation Oct 2008I get the privilege of having radiation and chemo at the same time. I think it depends on your circumstances. They informed me because I am doing them together to expect to burn and blister faster than most. I am on my 10th day of rads. I have 23 more to go. I have chemo every week for 3 months. So the one thing I really have noticed is how exhausted I am from it all. One day at a time. I am grateful for each day the Lord has given me. I hope everyone is doing well with their rads and it will be over for us all real soon. In God's Grace; Elizabeth www.up2god.net Dx 4/10/2008, IBC, 6cm+, Stage IIIb, Grade 3, 3/16 nodes, ER-/PR-, HER2- |
Posted in:
Support & Community Connections + Get Togethers, Created: Nov 11, 2008 11:14 pm
Anyone In Phoenix, AZ Area?Hi Jerri; So sorry to hear that your energy has been down. I do know how that is. I am being treated with chemo and radiation. The combo is something else. On Sunday I slept all day and during the week I sleep most of the afternoons. Get up occassionally here and there to check BCO out. Other than that I do my best with my day however I spend it. Will it does sound like you are getting everything ready for chemo. I do recall going through all those tests. Do you know what cocktails they will be using? I am doing Taxol/Carboplatin right now. I am praying that I will be done in January. That is the goal anyways. Jerri, send me a list of prayers that are needed and I will be sure to lift you up in prayer. Friendship are good to have and it is nice when you can have other women who can relate. I do hope you can join us. If not know that we are thinking of you. I am your friend and that is just for starters. In God's Grace; Elizabeth www.up2god.net Dx 4/10/2008, IBC, 6cm+, Stage IIIb, Grade 3, 3/16 nodes, ER-/PR-, HER2- |
Posted in:
Support & Community Connections + Get Togethers, Created: Nov 11, 2008 11:05 pm
Anyone In Phoenix, AZ Area?Neesie; So nice to hear from you. I am glad that you have been enjoying 'AZ. The weather right now has been fabulous. I will keep you in my prayers while you are traveling back home. I look forward to a day we get to meet. Blessings to you and your family. In God's Grace; Elizabeth www.up2god.net Dx 4/10/2008, IBC, 6cm+, Stage IIIb, Grade 3, 3/16 nodes, ER-/PR-, HER2- |
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