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Member Since: September 7, 2008
Last Login: October 29, 2008
Location: Rawson, OH United States
Occupation: Beancounter

Biography

My real name is Carol but so many had that taken already that I decided to go with a childhood nickname. I am married to the most wonderful man in the world - Kurt. We have 5 children and 3 grandchildren. Two weeks after we became empty nesters, I was dx with lung mets. My first dx was IDC in my right breast. The original tumor was 4cm. After 2 weeks it was 8cm. I had a mastectomy in November 2007, rads in Jan-Mar 08 and the symptoms for the lung mets started in June 08. Really had to push the docs that there was something wrong. Go with your gut - you know you better that they do!

Diagnosis

Diagnosis: Dx 9/5/2008, , Stage IV, / nodes, mets, ER-/PR-, HER2-
Diagnosed: September 5, 2008
Type:
Recurrent?
Metastatic? Yes
Stage: Stage IV
Lymph Nodes Removed:
Positive Lymph Nodes:
Tumor Size:
Tumor Grade:
Hormone Receptor Status: Tumor does not have estrogen or progesterone receptors
HER2/neu Status: Tumor does not have an excess of HER2/neu receptors or genes

Recent Posts by CarrieJ

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 29, 2008 12:55 pm

How long will you fight?

Stephanie,

I know that the fight is over when you say it is. . I was drawn ro this site because of your screen name and have tried to read all of your postings. I too am triple neg. Please know that I am praying for you.


Dx 9/5/2008, , Stage IV, / nodes, mets, ER-/PR-, HER2-
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 22, 2008 07:16 pm

Avastin Questions

Kelly,

How did your appointment go today? I got out if the hospital last week after dealing with pneumonia and plural effusion and two rounds of Navelbine. I start with the chemo again tomorrow and my onc wants to add Avastin then also. I am no longer weezing again either. I have heard good things about Avastin and all these ladies have helped with the s/e questions but did you get this drug today? How are you feeling? I know that you are probably wiped out so I hope things are going better for you by this time.

Carol


Dx 9/5/2008, , Stage IV, / nodes, mets, ER-/PR-, HER2-
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Oct 22, 2008 06:23 pm

HELEN..

Oh Helen,

And I thought that my last month in the hospital dealing with plural e was bad.

You are surely in my prayers.


Dx 9/5/2008, , Stage IV, / nodes, mets, ER-/PR-, HER2-
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Sep 15, 2008 11:25 am

Lets start a Roll Call

September 2008

DX June 2007 Right IDC 4cm Stage IIb ,two weeks later 8cm, Triple Neg

July to Oct 2007 - 6 cycles Taxotere/Adriamycin/Cytoxin

Nov 07 - Right mastectomy, clear margins, 9/14 nodes positive

Jan - March 08 - 33 radiation treatments

July 08 - blood work shows no TM

Aug 08 - mammogram - left breast - Neg, bone scan - neg, chest x-ray - "something funky"

Aug 08 - CT Scan and lung biopsy - bilateral lung mets , 3.2cm, 2.5cm, 6 x 1.9cm (good thing I can read upside down)

Sept 08- port placement, beginning Avastin/Navelbine

Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Sep 15, 2008 10:54 am

Question about Nevalbine

Stephanie B,

Thanks for asking this question. I start Navelbine next Monday. I will let you know how things go that first day. I plan on taking the day off of work since I don't know how I will react. Thanks to all the rest of you for letting me know what to expect. Of course I will be taking Avastin too so that might change things. Guess I better go buy out the store of Senekot!

Carol


Dx 9/5/2008, , Stage IV, / nodes, mets, ER-/PR-, HER2-
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Sep 15, 2008 10:34 am

requesting your prayers and insight

Kim,

Prayers are with you always. We are definitely living! Never give up.

Carol


Dx 9/5/2008, , Stage IV, / nodes, mets, ER-/PR-, HER2-
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Sep 15, 2008 10:31 am

Diane, how was your first chemo?

Diane,

So glad that the first chemo went well. I am hoping to keep this on a roll. My first chemo this time around starts next Monday. They are giving me Compazine for the nausea this time. Hope it works as well as the Kytril is for you.

Carol


Dx 9/5/2008, , Stage IV, / nodes, mets, ER-/PR-, HER2-
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Sep 10, 2008 06:11 am

DEAR CANCER

Oh Jeanne, stay angry. It gives you fight. You are all such an inspiration to me. I know that I have hope now that I am getting to know you all. I know that I will always be mad at cancer.


Dx 9/5/2008, , Stage IV, / nodes, mets, ER-/PR-, HER2-
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Sep 9, 2008 11:47 am

Survivor vs. Surviving

Sandy,

I was wearing my survivor tee over the weekend to clean and decided that it was SO inappropriate anymore. I really didn't like the yellow "In Treatment" tees that they had on Stand Up to Cancer. I do like the "surviving" tee shirt idea though. Pink ones again or some other color?


Dx 9/5/2008, , Stage IV, / nodes, mets, ER-/PR-, HER2-
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Sep 9, 2008 09:43 am

Just diagonsed Friday with lung mets

Oh, I forgot. Thanks, watson for your advice. We have been telling people on a need to know basis that my cancer is back and we are starting chemo again. That usually stops them right there. That is all they want to know. I don't have to tell them anything else and we don't talk about it again. also, my husband agrees that the cheerleader thing is now at an end. Now if I could just get myself to stop doing it!


Dx 9/5/2008, , Stage IV, / nodes, mets, ER-/PR-, HER2-
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Sep 9, 2008 09:38 am

Just diagonsed Friday with lung mets

suzyq18,

My lung mets presented itself with a cough. I was coughing up yellow gunk and my family practice doctor put me on antibiotics. That stuff went away but the cough didn't. I had orientation with my youngest at college and we did alot of walking and climbing stairs all over campus for 2 days. I was having trouble breathing and since then I have been short of breath alot. I persuaded the onc to proscribe another course of anitbiotics, which she very reluctantly did (mumbled something about a super-infection). I was right about that. It made them do a chest x-ray, CT scan and finally the lung biopsy. I have pneumonia along with these tumors. BTW, two weeks before the chest xray, my blood test came back with "negligable" tumor markers. Thank God I knew that something wasn't right and pushed harder.

I have seen on here though that some have no symptoms with lung mets. If you don't feel right and can't breath or do have that cough, have a chest x-ray. That's how they found mine so early. My rads were done in March. I was told it was scar tissue. Not!

All the things that they recommed to relieve the cough, cool breeze, AC, etc, work really well. I have also had some success with Halls menthol cough drops when I can't get to the water fountain or somewhere like church.


Dx 9/5/2008, , Stage IV, / nodes, mets, ER-/PR-, HER2-
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Sep 8, 2008 01:16 pm

Here is a fluff question I hope you can help me with

Okay, so here's my question. How many bald GUYS are going to be there on that ride that don't worry about a hat/scarf coming off? I had my husband shave the last of my hair off (it was one of those things that he always dreamed of doing when he was angry anyway) and went bald as often as possible. Scarves and hats in the sun are what you need though. Get one of those safari hats that they sell there as a souvenir and put it on top of your scarf. Then have FUN!


Dx 9/5/2008, , Stage IV, / nodes, mets, ER-/PR-, HER2-
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Sep 8, 2008 09:34 am

Just diagonsed Friday with lung mets

Thank you all for welcoming me. I too wish I wasn't here.

From what I have heard about Avastin, the high blood pressure thing might not be a problem. My normal BP is around 90/60. They were watching very closely with my last surgery because it bottomed out around 80/50. Apparently that isn't good.

My last chemo had me on Neulasta and Aranesp every week also. Nothing new there.

The last IV I had for my CT scan took 7 tries and three people to get in. My sister the RN was so angry! She tells me that a port will be wonderful for me. Thanks jeanne46. I can use all the experience that you all here can give.

CarrieJ


Dx 9/5/2008, , Stage IV, / nodes, mets, ER-/PR-, HER2-
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Sep 8, 2008 09:22 am

Recurrence, Stage IV

Keishi,

I am new to all this too. I was just dx with lung mets last Friday. I am Triple Neg also. We are still reeling. My first bc chemo and surgery finished in November 07 and radiation was done in March 08. I even have a cute little certificate from my doctor that says I am cancer free and a survivor. Not anymore!

My original chemo was TAC. The A is adrinomycin - C is Cytoxin. I tolerated this fairly well. I was given such great drugs for side effects that I only missed a few days of work. I don't think I will be that lucky again.

I have been all over this website this weekend. It is great! Please find the Inspirational Thread.

{{{{{{HUGS}}}}}

CarrieJ


Dx 9/5/2008, , Stage IV, / nodes, mets, ER-/PR-, HER2-
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Sep 7, 2008 03:13 pm

Just diagonsed Friday with lung mets

wishiwere,

Yes, I am on Lexapro. It seems my sister has been on it for awhile but didn't mention it until I told her about all this Friday night. I started it last night with a starterpak. It probably just hasn't kicked in yet.

Thanks for all your prayers and thoughts already.


Dx 9/5/2008, , Stage IV, / nodes, mets, ER-/PR-, HER2-
Posted in: Connecting With Others Who Have a Similar Diagnosis + Recurrence and Metastatic Disease, Created: Sep 7, 2008 02:51 pm

Just diagonsed Friday with lung mets

I was just diagnosed Friday with lung mets. I have read so much on the internet and am very confused about what I need to be doing and how to tell others that after 3 months of being cancer free from my original BC that it is back. I see from some of your signatures that you have had this for years. I hope that is me. My children and my husband are not handling this well. I don't want to be their cheerleader again this time. My doctors have me starting Avastin and Navelbine soon. I need to have a port put in this time and don't know what to expect with that. I have been reading alot of your previous posts and still don't know what to expect. Can anyone tell me just what happens with this? How will I feel the next day? As you all know, anxiety is worse than the actual. Thanks for any help you can give me.

CarrieJ


Dx 9/5/2008, , Stage IV, / nodes, mets, ER-/PR-, HER2-

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