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Member Since: September 28, 2008
Last Login: November 10, 2008
Birthday: January 25, 1962
Location: Clark Fork , ID United States
Occupation: Dental Hygienist
Homepage URL: google (lazywater@dishmail .net)

Biography

Diagnosed Oct. .07. 1.8cm ILC  3/8 pos. nodes

Diagnosis

Diagnosis: Dx 10/23/2007, ILC, 1cm, Stage IIb, Grade 2, 3/8 nodes, ER+/PR+, HER2-
Diagnosed: October 23, 2007
Type: Invasive or Infiltrating Lobular Carcinoma
Recurrent? No recurrence
Metastatic? No
Stage: Stage IIb
Lymph Nodes Removed: 8
Positive Lymph Nodes: 3
Tumor Size: 1cm-1.9cm
Tumor Grade: Grade 2 or medium grade
Hormone Receptor Status: Tumor has both estrogen and progesterone receptors
HER2/neu Status: Tumor does not have an excess of HER2/neu receptors or genes

Recent Posts by sharneu1

Posted in: Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Nov 9, 2008 08:06 pm

Bottle 'o Tamoxifen

Harley,

Do you happen to remember how thick your endometrial lining was?  Mine was 12mm which I guess is a little thick even for someone on Tamox. My onc. said 10mm is normal for someone on Tamox. He wants me to have another US in 2-3 mos. I know what you mean about the sleep aids, I've only tried Tyelenol and Advil PM which helped me sleep but... like you, I felt like crap the next day, so whats the point?  The hot flashes and night sweats have come in waves for me...sometimes I think they're getting better and then they return with a vengence, along with leg cramps!

Basha...what do you do for plantar faciitis?

Thanks for the info gals...I appreciate it!

Shari

sharneu1
Dx 10/23/2007, ILC, 1cm, Stage IIb, Grade 2, 3/8 nodes, ER+/PR+, HER2-
Posted in: Tests, Treatments & Side Effects + Hormonal Therapy - Before, During and After, Created: Nov 8, 2008 09:30 pm

Bottle 'o Tamoxifen

Harley,

 I was so glad to see your post about the stiff and sore neck and shoulders.  I too have experienced this since starting Tamoxifen in May 08.  I also have very sore feet( mostly my heels when I wake in AM), hot flashes, night sweats and lower back and hip pain. I have been searching this thread for other mentions of these SE's and your post prompted me to reply. I am also worried that they are not normal SE's and are mets instead, especially my back and hip pain.  I'm due for a CT  scan in Dec. that hopefully will rule out mets. I  would also like to know if these are normal SE's.

I also just had a trans. vag. ultrasound and was told that I have pretty large uterine fibroids so I wonder if that is causing the lower back and hip pain. Anyone else have painful fibroids?

sharneu1
Dx 10/23/2007, ILC, 1cm, Stage IIb, Grade 2, 3/8 nodes, ER+/PR+, HER2-
Posted in: Connecting With Others Who Have a Similar Diagnosis + ILC (Invasive Lobular Carcinoma), Created: Sep 28, 2008 01:26 am

What's your ILC story?

I found what I will call a thickening in my rt. breast while putting on lotion one day late Sept. 07.  My Dr. sent me for a "diagnostic mammogram".  After about 10 shots of the area the radiologist said he could not see anything abnormal on the films and sent me to have an ultrasound.  The US showed 2 spots so the radiologist ordered a biopsy.  A few agonizing days later I found out that I had ILC.  After a breast MRI (which found a 3rd spot) and consultations with a surgeon and an oncologist I decided to have a double mastectomy.  The surgeon pushed for a  lumpectomy but the onc said double mast. because lobular is "tricky" and has a tendancy to jump to the other breast.  That's all I needed to hear and I have had no regrets!  I ended up having 3 positve  sentinel nodes so a week later had an axillary node dissection where 5/5 nodes were negative. I started my 8 rounds of dose -dense chemo on New Years Eve 2007.  4--adriamycin/taxol and 4 cytoxin. After the 5th round I ended up in intesive care for 9 days with pneumonia.  After recovering from that my remaining 3 chemo txs. were a piece of cake. I finished chemo on April 25, 2008. I started taking tamoxifen in May 2008.

sharneu1
Dx 10/23/2007, ILC, 1cm, Stage IIb, Grade 2, 3/8 nodes, ER+/PR+, HER2-

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