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Member Since: October 7, 2004
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Recent Posts by Carol_D

Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Aug 13, 2007 09:41 pm

Curls after Chemo

My hair came in curly (or wavy) but it was inconsistent and it didn't last. I had very stick straight hair and it's back to being straight now. I'm over 2 years out of chemo so go figure. I even permed my hair a few months ago to try to get more body in it. Now I'm toying with cutting it short again (and straight) because it's dry and fried and because my boyfriend keeps pushing the "cut it short" idea. I guess he likes short hair.

Most people I've talked to say the curls don't last, though I wish mine had lasted a little bit longer! It was nice to have wavy bodiful hair for just a little while.
Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Aug 13, 2007 09:31 pm

At my lowest point ever

My life turned upside down as well. I never was able to return to my job after BC surgery and have struggled to find my new "niche" in life. It's been a constant struggle to figure out where my next paycheck is coming from. I tried graduate school for a while and now I'm about to accept a job that I worked in as a "temp" ... no benefits for now but hopefully in the future. It seems that BC has lasting effects for some of us that take awhile to resolve. Please don't give up hope and please don't give up entirely. There is something out there that is right for you and your family.
Posted in: Tests, Treatments & Side Effects + Just Diagnosed, Created: Aug 13, 2007 09:25 pm

Just diagnoised with DCIS

Greenjeans, just as everyone has said, you are at the worst part of all of this, the diagnosis and treatment stage... it's very scary but if you treat it appropriately there is no reason to think that you will be anything but fine in the end. I know it's hard to reconcile the fact that you have been diagnosed with this awful diseae but I am almost 3 years out (DCIS with IDC) and no sign of anything ominous and honestly there are days when I don't worry about BC at all! Truth! Channel your energy into something positive if at all possible. There IS life after BC and I'm living proof, as are many ladies here on this board. Have faith that time will mitigate your worries and anxieties about this. Being a member of BC.org doesn't define you; you are who you are aside from all of this. Take care.
Posted in: Tests, Treatments & Side Effects + Just Diagnosed, Created: Jul 27, 2007 06:39 pm

how many nodes is "normal"

Well I had a lymph node dissection, supposedly, but no nodes were found. So I do have the numbness on the back of my arm and behind my arm (on my side) but will never know my stage.
Posted in: Tests, Treatments & Side Effects + Just Diagnosed, Created: Jul 26, 2007 05:46 pm

anyone have IDC 2 mm lump and then DCIS too

I had a 3mm IDC and 7mm DCIS at the same time, but it was all in the same area. I opted for mastectomy because all I could think about was survival. In hindsight, I might have been better off with lumpectomy. Make sure you're thinking clearly before you make such a big decision. Good luck.
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Jul 18, 2007 10:57 am

PS negligent?

I think it's incredibly rare that a doctor would make that kind of comment about another doctor's work. They usually protect each other quite a bit. Maybe you're right that he's trying to tell you something, only not in so many words.
Posted in: Tests, Treatments & Side Effects + Help Me Get Through Treatment, Created: Jul 16, 2007 06:11 pm

Unable to Stage???

Hi 37,

Wow, it is great to meet you, although I wish it could be under other circumstances.

I will never know what stage I truly was because after my surgery they "couldn't find any lymph nodes." My tumor was 7mm DCIS and 3mm IDC so they decided that the odds of me having positive nodes wasn't worth the risk of going through more surgery. Easy for them to say. I will never know!

I call myself Stage 1 but it's a presumed Stage 1. I had bilateral masts and I'm almost 3 years out so I keep my fingers crossed. I have met only one other survivor in this same boat (besides you).

I elected to have chemo, 4 A/C, mainly due to not knowing my node status. Of course, cancer can travel in other ways, as you've found out.

Good luck to you; I hope you find some peace in this.
Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Jul 16, 2007 12:47 pm

Abnormal Pap

I've had several abnormal paps. Several biopsies, freezings, etc. Never any cancer, just some "suspicious" areas called dysplasia. Try not to worry; most likely it's some kind of slightly abnormal cell that can be taken care of with a simple office procedure.
Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Jul 13, 2007 02:26 pm

Who remembers Phil Donahue

It's a money thing. Dramas and comedies and shows with scripts and professional actors cost a lot more $$ to produce, compared to "reality" shows. I think the reality show may lose its luster eventually; tv seems to go in fads. Remember variety shows? Those went out of vogue. Remember the "nighttime soaps" like Dynasty and Dallas? Sitcoms have gone in and out of fashion. Wait long enough and things will change.

I do like shows like Law and Order and Boston Legal. The drama is well written and the storylines are inventive. So there is still good programming out there; you just have to be selective.
Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Jul 10, 2007 09:39 pm

How to deal with Osteopenia...

I was diagnosed with osteopenia before my BC diagnosis about 3 years ago. My doctor wanted to put me on Actonel but I never actually took it. I think I feel that it's not a "disease" -- just as some others have said -- but rather a forewarning of possible problems in the future. I try to eat well and avoid falls if possible, lol. My doctor did tell me not to jump out of any airplanes. He doesn't have to worry about that.
Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Jul 6, 2007 06:49 am

"Sicko" Moore movie

Darya, it's true most people's health insurance seems to come from their employers. It's a benefit that most employers have to bear to hire and retain good workers. I don't know how our wages compare to yours but I'm guessing the cost of health insurance may keep ours lower.

I quit my job 17 mos. ago to return to school. I had the option of keeping my health insurance, but I had to pay for it. It's almost $400 a month. You can only be insured for 18 months this way so my health insurance is about to expire and it's a source of great anxiety for me. I have applied to a state-sponsored health insurance plan that's for low-income adults who don't qualify for other coverage (because I've been turned down by other insurance companies due to my medical history). I had to fill out a bunch of paperwork, get a copy of my birth certificate, go down to the "human services" department office (basically welfare) during work hours, etc. I got a letter back that they need more information before they can decide. I provided everything they asked for so now I guess I'm in the "send more" papers phase while they hope I give up.

While I don't know if socialized medicine is the answer, clearly our current plan is not working for everyone.
Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Jun 25, 2007 05:59 pm

Survivor Dating?

Good for you! I think it's great that you're ready to get out there and see what's what.

As for questions, I think I'd have a few ready to get the ball rolling... but then be flexible to go off on a tangent should the occasion arise. Design your questions around things that are important to you, such as personal fitness, and whatever else you hold in high priority. Make your questions help you "weed out" the rejects (such a harsh word!) so you can narrow the field quickly.

Have fun!
Posted in: Tests, Treatments & Side Effects + Breast Reconstruction, Created: Jun 21, 2007 08:51 pm

Anyone opt to be larger?

Yes I was always an A cup and now I'm a B. I like having more there to fill out clothing, which I could never really do before. No cleavage; there is a wide valley between them, but I'm not complaining.
Posted in: Recovery, Renewal, & Hope + Moving Beyond Cancer, Created: Jun 21, 2007 05:14 pm

Alcohol??

I'm definitely drinking more now than I ever did, but I'm not advocating that. Still, I drink at least one cocktail each evening to unwind. I'm considered sort of "high strung" by most people who know me. The drink mellows me out.
Posted in: Tests, Treatments & Side Effects + Just Diagnosed, Created: Jun 18, 2007 11:55 am

cancer back in spite of chemo

You may not be able to feel it, but they can never truly get 100% of the breast tissue out.
Posted in: Tests, Treatments & Side Effects + Just Diagnosed, Created: May 1, 2007 06:29 pm

my cancer's back

Marin, *LOL* at your post. The cancer card... I can't deny I used it a few times and it DID come in handy!
Posted in: Tests, Treatments & Side Effects + Just Diagnosed, Created: Apr 29, 2007 08:48 pm

my cancer's back

My heart goes out to you. You're understandably devastated, overwhelmed, blindsided. This is not fair!

I know you're afraid of chemo, but you can do it. I went through chemo for a very small invasive tumor (my choice) and while it wasn't easy, it's not like the old days when people got horribly sick. The drugs they have are very effective. I think I only threw up once in 4 treatments. Losing your hair is a trauma, I agree. For me, I think it was the worst part. But I am a little over 2 years out and my hair is back, long, thicker than before, and a pain in the a$$ sometimes! Don't get me wrong, I'm glad to have it. But believe it or not, there are times when I fondly recall how lovely and easy life was without hair. I hope you can see the silver lining in this very difficult situation.

What's more important is your health. I, too, had family over 1000 miles away, so I was terrified of how I would get through it. And I had two 9 year olds to take care of too. You'll be amazed at how wonderfully the people who value you step up to the plate and help you out. I had wonderful friends who went above and beyond to hold fundraisers, run errands, provide emotional support -- and I bet you will too.

I am soooo sorry this is happening to you. I don't know how old you are, but you look way too young to be going through this mess -- again! I'm thinking of you and hoping for the best. Please keep us posted.
Posted in: Tests, Treatments & Side Effects + Just Diagnosed, Created: Apr 28, 2007 12:56 pm

I've won the battle!!!

This is grrrrrreat!!!!!

Congratulations to you!! You did it!!
Posted in: Recovery, Renewal, & Hope + Growing our Friendships After Treatment, Created: Apr 22, 2007 06:15 am

Where are you vactioning this year?

I'm going to Las Vegas in July, but that's probably not a place you'd want to take kids that age, although Hoover Dam nearby is fascinating. After that I'm taking my kids (two 12-year olds) on a trip to visit the family, in Indiana. Not very exciting for most people, but it's wonderful to re-connect with family. Do you have family somewhere that would be nice to visit? One year I went to Ohiopyle state park in Pennsylvania, where they have camping, white-water rafting, and Frank Lloyd Wright's "Falling Water" house you can visit. Estes Park in Colorado, in the Rocky Mountains, is beautiful and I think there is rafting on the Colorado river there, too. What about Cedar Crest north of you? There is the Rock and Roll Hall of Fame in Cleveland, if your kids like rock music. Chicago has fantastic museums (the Field Museum of natural history and the Science and Industry Museum) and also a wonderful historic aquarium. It's a beautiful city. San Antonio is a good vacation destination, with the River Walk, Sea World, Six Flags, the Alamo, and a world-class water park in New Braunfels up north of there called the Schlitterbahn. Another idea is Mount Rushmore, maybe on your way out west to see Yellowstone park? Like someone else said, there are so many fabulous travel destinations all over the country. I am not that well-traveled but I've enjoyed all these places. And, I have always wanted to take my kids to New York City sometime to see the Empire State Building, Statue of Liberty, etc. I guess you might want to throw some different ideas out there (city, country, camping, roughing it, luxury, etc.) and see what excites the kids the most, and then go from there. Good luck!
Posted in: Tests, Treatments & Side Effects + Just Diagnosed, Created: Apr 9, 2007 08:54 pm

Deciding no to a SNB?


It's been so much in the news lately I hate to repeat it, but cancer that returns is not curable. So you want to treat it in an appropriate way when you first find it.

With due respect to Rose, and I'm sure this is what she meant, you can have a recurrence that can be successfully treated. What isn't curable is when cancer spreads to distant sites (bones, lungs, liver). Local recurrences are treatable, that's why lumpectomy has the same survival rate as mastectomy, though the recurrence rate is higher.

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