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« Forum: For Family and Friends of Those Who Have Breast Cancer: For those of you who would like help, advice and support through the difficult experiences of living with and supporting someone you love who has breast cancer.

Topic: My sister has breast cancer

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Joined: May 2008
Posts: 2
  • Posted on: May 14, 2008 11:20 pm, edited May 14, 2008 11:21 PM by misskriss
misskriss wrote:

My sister was diagnosed with IDC last month. Her pathology report reads:

Breast tissue with infiltrating poorly differentiated Ductal Carcinoma, nuclear grade 2, mitotic index 1.

Her hormone test came back that she is ER negative, PR uncertain and Her-2 negative.

She had a lumpectomy 2 weeks ago with a sentinal node biopsy, and now the doctor said they didn't get good margins, and they have to do a mastectomy. She is going next week for that. The biopsy came back negative for no nodes involved.

She went to an ocologist who told her that if the sentinal node biopsy comes out negative (which it came out negative) she may not need chemo.  

I thought that if you are triple negative (which she is) you always should get chemo. Especially now that she did not get good margins.

Also, she was not sent for any scans or chest x-rays to make sure it didnt spread. Should she be more proactive and make sure she is getting the right care, or should she trust the doctors? 

If it was for myself, I would definately make sure I got the chest and bone scans and even a pet scan, but she just wants to follow what the doctors say.

Thanks in advance.

Posts 1 - 14 (14 total)
Easybreezy5…
Joined: May 2008
Posts: 1
May 14, 2008 11:37 pm Easybreezy52 wrote:

I am sorry about your sister. Mine was too, over a year ago. I do not know about the chemo with triple negative. My sister was estrogen/progesterone positive. She did not want chemo, even though it was recommended( she was grade 3). She made the decision herself, and I have supported it, even though I don't know if I would have made the same decision. It is her body, she would have to deal with the treatment. I remember my sister telling me that she was in such a fog just dealing with the diagnosis that it was difficult to even think about what her options might be. She took some time and came here and learned a lot and made the decision that she felt was best for her in her situation. I was proud of her resolve in such a difficult time. I worry more about her now, then I did then because she has other things going on that although were probably not caused by her cancer, were really made worse because of it. Good luck to you, sorry I could not be more help with the technical stuff.

shokk
Joined: Jun 2006
Posts: 1450
May 14, 2008 11:47 pm shokk wrote:

MissKriss if your sister is triple negative even if her nodes came back negative triples are always treated as if they have positive nodes......if she is triple negative she should do chemo........if her doctor is telling her she doesn't need chemo she really should get a second opinion........also there are also some very aggressive forms of triple that for some reason chemo doesn't work or the tumor doesn't respond to...............chemo is doable..........no one wants to do chemo but then again no one wants bc............with triple negative bc she needs to treat it with everything they have including chemo and radiation.....it will give your sister her best changes of not having a recurrence and/or mets..........Shokk

the stupid science hating fence straddling polluting conservative
misskriss
Joined: May 2008
Posts: 2
May 14, 2008 11:52 pm misskriss wrote:

Thanks for the reply Shokk. Also the fact that the pathology says poorly differentiated can't be good, right? and how about nuclear grade 2? what does that mean?

Thanks 

rockwell_gi…
Joined: Mar 2008
Posts: 230
May 15, 2008 12:01 am rockwell_girl wrote:

what was the size of her IDC?

If it's less than 1cm that might be why her doctor is saying no chemo

She should ask about the oncotype test that helps you decide if chemo is beneficial.  I hope the best for your sister

Is she considering reconstruction...it's amazing what they can do but many women are just fine with no reconstruction.  Just have her do what is best for herself and no one else : )

Sandy/Sunshine : )
Dx 3/4/2008, IDC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2-
BethNY
Joined: Nov 2004
Posts: 3836
May 15, 2008 12:34 pm BethNY wrote:

grade 2 goes on a scale of grade 1, 2, or 3.  It looks at the cells uder the micrscope and grade 1 the nucleus is still in tact-- think back to 10th grade bio- when you have the circle with the clearly defined center.  Grade three is poorly defined, and tends to be a faster growing cancer. 

I agree with everyone here, that a second opinion is worthwhile.  If she's triple negative, depending on her age and the size of the tumor, chemo may be a good safeguard.

Please let us know what happens.

I told you I only play to win....
Shirlann
Joined: Feb 2002
Posts: 6152
May 15, 2008 06:09 pm, edited May 15, 2008 06:12 PM by Shirlann Shirlann wrote:

Hi, I am a Triple Neg and I did not have chemo.  I had a lumpectomy and rads.  Now, this was 9 & 1/2 years ago and things change. I did not have any extra tests at all.  But as I say, a long time ago.  Oh, also, I have never seen a pathology report that was psotive that DID NOT say "poorly differentiated", and aggressive.

If in doubt, get another opinion, hopefully with a specialty breast clinic.

Gentle hugs, shirlann

SoulSister
Joined: May 2008
Posts: 1
May 31, 2008 01:32 pm SoulSister wrote:

My sister was diagnosed with bc last month.  Following a lumpectomy, the margins did not look good and the sentinel node biopsy came back positive.  She will now be having a mastectomy with reconstruction (in mid-June).  She will then have 5 months of chemotherapy, with treatments every two weeks.  I need advice on how best to help her and prepare for what lies ahead.  What can my other sister and I do to provide the best support? help? assistance?  She is a single mom with four kids (ages 6-16).

Thanks for any input, wisdom and advice you can provide.   

nmcourtland…
Joined: Jun 2008
Posts: 1
Jun 3, 2008 10:43 pm nmcourtland32 wrote:

My sister was diagnosed today.  I am a Registered Nurse and work in what else then an Oncology Clinic, but with leukemia patients.  She is looking to me for answers and reassurance, since I am a oncology nurse.  I want to be a concerned sister, not an analyzing nurse.  I have told her that BC is different from leukemia and treatment is different.  What else can I do to seperate myself from my JOB as a nurse and my RESPONSIBILITY as a concerned, loving, and supportive sister?  Anyone please HELP!!

sisterofsab…
Joined: Jul 2008
Posts: 2
Jul 7, 2008 12:59 am sisterofsabrina wrote:

Hello, My sister was diagnosed in January with bc and had a lumpectomy. Now it has gone to her bones. She is taking Zometa. Sometimes I can't breathe in and out and I feel like I'm choking. Morbid thoughts come in to my mind and I try to shake them out. I ask everyone I meet to pray for her. I try to be very upbeat when I am around her. She has small children and I go every night after work and help with what I can and just sit with her and live her life. At times I wish I wasn't alive so I wouldn't have to be dealing with this and then I think how she must feel. Is this my purpose in life to help her through this. Is there a place where I can talk to people on the drug Zometa? thanks, Robin

sisterofsab…
Joined: Jul 2008
Posts: 2
Jul 7, 2008 01:06 am sisterofsabrina wrote:

Hello Soulsister, My sis has told me that she just wants laughter and positive...everything. We tease her all the time. She chooses some horrible show on tv and we tell her we will watch her choice because she has cancer. We all laugh. MY sis has children and one is three and is so funny he just keeps us laughing all the time. I am single so I can be there more to cook and help with chores and just be with her, while my other sis has a family but she has more money so she finances all of her trips to the doc (150 miles from home). She calls often. I will pray for you and your sister, I'm Robin

Arleen1114
Joined: Jul 2008
Posts: 1
Jul 7, 2008 02:02 pm Arleen1114 wrote:

Hello everyone.  I just registered at this site although I have visited it a number of times over the past 18 months.  My sister was diagnosed with breast cancern in January 2007 and has had several ups and downs along the way.  Right now she is returning to a new normal in her life; she's returned to work and has resumed all activities she loved prior to diagnosis.  Her tumor marker was up last week, so a PET scan was performed and we will learn the results tomorrow.

It is so difficult to watch my sister, who is a year younger than I am, go through this journey.  Yet she has done so with optimism and grace and peace.  I love her so very much.  I'm sure that is true for all of you as well.

My best wishes to you all.  ~Arleen

feelinghelp…
Joined: Jul 2008
Posts: 1
Jul 7, 2008 08:31 pm feelinghelpless wrote:

I too have a sister who had a masectomy 5 years ago. Unfortunatey hers has returned and she is now battling the disease in her bones. They have found and given radiation to 3 tumours on her back so far and are now checking 2 more spots. I feel so helpless and wish i could do more for her and her family. She is only 50.

cwbyjnkies
Joined: Apr 2008
Posts: 2
Jul 7, 2008 10:46 pm cwbyjnkies wrote:

Breast cancer is a baffling disease in that no two are truly alike. Things like age, background, size, grade, hormone receptors, her2 positive or neg...btw what was the fish results, environmental factors, margins clear or close, lymph node status. Then the bottom line comes down to a woman's choice.

I am reading with interest the feelinghelpless writing on what you can do for your sister. My sister was diagnosed with pancreatic cancer at age 37 and lived 6 months. I moved her in with me as she was not married and her son lived with her ex. One of the things that she appreciated was touch...massage her feet, her hands....feel her energy and allow her to feel yours. This reciprical energy exchange is powerful. Mindful walks and really enjoying each other. We did not have a lot of money, but the laughter was priceless. Additionally, she slept a lot and I got her 800 thread comforter and sheets. She said it felt like heaven

This past april, I was diagnosed with Invasive ductal carcinoma, grade 3, 6mm, estrogen 90%positive, progesterone 20% positive, her 2 neg....although fish came back positive which puts me in line for chemo along with that grade 3 knee slapper of aggressiveness...lymph node negative. The way I understand it through the folks at MOFFITT cancer center in Tampa, is that sometimes the grade and the Her2 status can be predictors of recurrence. 

Heaven85
Joined: Jul 2008
Posts: 4
Jul 13, 2008 08:12 pm Heaven85 wrote:

i'm also feel sorry with your sister. Anyway, try to give her a full of supports. And always encourage her to make following treatment as well.

Cheers,

http://breast-cancer-wristbands.blogspot.com 

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