I am 34 with Stage IV BC. Originally diagnosed with Stage IIIC then 3 years later had Mets to the liver. I was in remission for 9 months and has now returned back to my liver. I am about to start taking xeloda orally tomorrow. I have done a lot of research and have noticed that hand and foot problems are most common. Any advice while taking this.
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morgansmom Joined: Apr 2007 Posts: 67 |
Mar 30, 2008 07:10 pm
morgansmom wrote:
I am interested in watching this thread for responses. I have bone mets & hormone therapy seems to have quit working...I think I will be starting xeloda later this week. I would love to hear from others who are taking it and how they are doing! Dx 4/2007, IDC, 2cm, Stage IV, mets, ER+/PR+, HER2- |
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jerseymaria… Joined: Nov 2007 Posts: 240 |
Mar 30, 2008 08:00 pm
jerseymaria wrote:
me too, i'll be starting it soon also. Dx 2/27/2006, 3cm, Stage IIIb, Grade 3, 9/27 nodes, mets, ER-/PR-, HER2+ |
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AnnNYC Joined: Aug 2007 Posts: 1567 |
Mar 30, 2008 08:43 pm, edited Mar 30, 2008 08:44 PM
by AnnNYC
AnnNYC wrote:
Hi ladies, You might want to check out a conversation called "Fellow Xelodians please read" on the Recurrence and Metastatic Disease topic. Dx 3/9/2007, IDC, <1cm, Stage I, Grade 2, 0/5 nodes, ER+/PR+, HER2- |
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lisa39 Joined: Feb 2008 Posts: 97 |
Mar 31, 2008 09:58 am
lisa39 wrote:
There's also a Tykerb/Xeloda thread in the HER 2 neu positive postings.... It might have some good info for you. Lisa Dx 11/29/2007, IDC, 1cm, Stage I, Grade 3, 0/4 nodes, ER-/PR-, HER2+ |
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suecco Joined: Feb 2008 Posts: 142 |
Apr 8, 2008 01:56 pm, edited Apr 10, 2008 03:31 PM
by suecco
suecco wrote:
Hi ladies Im on cycle 3 of xeloda and so far no side affects, but hints and tips Ive had are: cream! cream! cream! hands and feet several times daily start this before you start treatment, hand cream that is lanolin based was recommended by my chemo nurse, so I use it on my feet aswell! cotton sox and gloves for bed with lots of cream, I havent done the gloves one but do cream up and sleep in sox! If hand foot syndrome becomes a problem the dose of xeloda can be reduced and still be as effective so be vigilant!! Side effects are cumulative, I was told after cycle 3 is when problems might start Upset stomach is another SE but not one Ive had, I believe activia yoghurts can be helpful and again be vigilant, I was told not to carry on with taking the tablets if diarrhea was severe and ring oncs asap Theres probably loads more but I cant think of any more at the moment!! The threads mentioned above are full of tips and experiences so do check them out! I wish you all luck with xeloda and hope it does a great job for us all one comment i had was that this is known as the kindness chemo, I like that and thought you would too!!! Take care ladies Sue xx Just remembered, the tablets are taken 12 hours apart with food and a LARGE glass of water, a small amount of food is enough, a few cookies, a sandwich, piece of fruit etc I take mine around 9am and pm and have stuck to this religiously, this is the trick to not getting an upset stomach apparently!! I need a credit card thats got no limit - Rockstar - Nickelback
Dx 2002, , Stage IV, 17/20 nodes, mets, ER+/PR+, HER2- |
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Raysgirl Joined: Mar 2008 Posts: 4 |
Apr 8, 2008 02:42 pm
Raysgirl wrote:
I just started Xeloda a couple of days ago. The doc suggested possible side effects to be: the "sunburn" of the hands and feet, heartburn and/or intestinal issues. I am to contact him asap when/if these occur. He gives the meds until the side effects occur, stop for a week and then start up again. Is anyone doing it differently. I'll keep everyone posted. |
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suecco Joined: Feb 2008 Posts: 142 |
Apr 10, 2008 03:34 pm
suecco wrote:
Hey Raysgirl that sounds pretty much right, good luck to you hope it works well for you and you avoid any SE sue xx I need a credit card thats got no limit - Rockstar - Nickelback
Dx 2002, , Stage IV, 17/20 nodes, mets, ER+/PR+, HER2- |
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PJV Joined: Apr 2007 Posts: 29 |
Apr 22, 2008 01:34 am
PJV wrote:
Just started my 2nd cycle. Besides my hands and feet falling asleep at night side effects have been very tolerable. Thanks again for all your advice. I will have a PET scan after my 3rd cycle to see how my cancer's responding....this waiting drives me nuts. You would think after fighting this disease for 4 years I would have more patients:) Dx 12/12/2003, DCIS, 5cm, Stage IV, 12/15 nodes, ER+/PR+, HER2- |
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PJV Joined: Apr 2007 Posts: 29 |
Apr 23, 2008 02:00 am
PJV wrote:
So a little worried. I just started my 2nd cycle of Xeloda and today had my blood work done. My CEA marker went up still a low number but more than doubled. I will talk to my doctor in the am and see what's going on. Not sure if it's something to worry about or if my doctor will want to wait another cycle than do my blood work to see where it is then. I am just getting very frustrated with this emotional roller coaster and for the first time I am feeling very overwhelmed. Thanks again for all your support. It's just been so tough on my family my dad and my sisters. I wish I could convince then not to worry but my dad more than anyone is beyond stressed. Dx 12/12/2003, DCIS, 5cm, Stage IV, 12/15 nodes, ER+/PR+, HER2- |
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PJV Joined: Apr 2007 Posts: 29 |
Apr 23, 2008 02:00 am
PJV wrote:
So a little worried. I just started my 2nd cycle of Xeloda and today had my blood work done. My CEA marker went up still a low number but more than doubled. I will talk to my doctor in the am and see what's going on. Not sure if it's something to worry about or if my doctor will want to wait another cycle than do my blood work to see where it is then. I am just getting very frustrated with this emotional roller coaster and for the first time I am feeling very overwhelmed. Thanks again for all your support. It's just been so tough on my family my dad and my sisters. I wish I could convince then not to worry but my dad more than anyone is beyond stressed. Dx 12/12/2003, DCIS, 5cm, Stage IV, 12/15 nodes, ER+/PR+, HER2- |
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