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Topic: Overweight but "not enough tissue" for DIEP...bummed

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Joined: May 2008
Posts: 32
  • Posted on: May 13, 2008 08:34 pm
hotsyta wrote:

Well I was really hoping to be a candidate for DIEP, but even though I am 70lbs over weight, it's not in the right spot!!! How do you like them apples? Second opinion is recommending implants as well. Did anyone else have this experience? Plus the hangy-skin-flap that is my lower abdomen is pretty stretched out, maybe that is a reason too. He really seemed to know what he is talking about, but I am still bummed out at no flap surgery. Plus he said that I have too much skin(?) for skin-saving mx. (he explained but it was still kinda confusing.

Also I am really confused at the "roll the dice" approach to placing the implants, or even just to know if I will get immediate recon. BS, 1st and 2nd opinion say that they will not know if I need rads or chemo till after the mx. If they place the implants and don't have to do rads--GREAT, but if they place the implants and I need rads--they have to take the implants out or I may have major complications???!!!! How do I know what to ask for!??

Thanks Girls, I don't know what I would do without this board for advice!!

Ta


Dx 4/23/2008, IDC, 3cm, Grade 1, ER+/PR+, HER2-

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ophelia
Joined: Sep 2007
Posts: 318
May 13, 2008 09:25 pm ophelia wrote:

Hi Hotsyta,

I didn't have enough abdominal fat for DIEP either but I had plenty of fat in my upper and lower buttocks.  I had SGAP on January 14, 2008.  SGAP is the same procedure as DIEP but they used the fat from my upper buttock.  I'm very happy with the look and feel of my breasts and I had very little pain during recovery.  Not all ps are experienced at this procedure so they won't tell you that it is available.  If you would like more information on it you'll find pictures and detailed info on WWW.DIEPFLAP.COM.

Best of luck with  your decision making.

Maria
Dx LCIS, , Stage 0, 0/2 nodes
JustTurnedF…
Joined: Mar 2007
Posts: 193
May 14, 2008 09:08 am JustTurnedForty wrote:

I would get a 2nd opinion.  Maybe this PS isn't comfortable doing the procedure you want so is pushing you to do something else.

Janine, who is now 41
Dx 1/15/2007, DCIS, Stage 0, 0/3 nodes
Dejaboo
Joined: Mar 2008
Posts: 690
May 14, 2008 09:17 am, edited May 14, 2008 09:18 AM by Dejaboo Dejaboo wrote:

Hi Ta,

  I wanted a DIEP too.  I didnt have enough tissue for 2 Cs.   So different scenario.  But I was still very  dissappointed to find out what I wanted - I couldnt do.   Then you have to start over & rethink it all.

I am having a BL mastectomy with Immediate Reconstruction (expanders) Next week.   Im ok with that.  Only took me a few days to switch gears.    And at this point I am relieved that I wont have the extra pain from the Belly Incision & all that healing to deal with too.  ( I had a Lumpectomy 6 weeks ago- Thats why I am pretty confident that my Immediate Reconstruction will go off without a hitch)  So I cant help you on that question.  Someone should be able to.

A 2nd Opinion is good.  But I bet you will get the same answer...and if you dont...You still need to be comfortable going with the decision to do one...Even though one recommends not- He may have very good reasons- like the ones you brought up.

Pam


Dx 3/7/2008, IDC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR-, HER2+
AnneW
Joined: Oct 2002
Posts: 2000
May 14, 2008 12:00 pm AnneW wrote:

I agree about a second opinion with the experts in DIEP and GAP surgeries. I went with implants rather than travel far for the other surgery. I doubt I would have had enough tummy for a DIEP, but I'll bet the GAP would have worked! Tongue out

Anne

2002 IDC stage 1, grade 1, rads & AI
Dx 9/18/2007, ILC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-
kcq
Joined: Oct 2007
Posts: 142
May 14, 2008 01:19 pm kcq wrote:

I dont know about all that girl---,my BMI was 24, so I did not have alot to take either.  My ps even joked and said we are going to suck you dry.  He did, but was able to create a fantastic boob!  I only had a unilateral.  He said that if I wanted to do both, he could, but they would be small.  I would get a second opinion too.  Good luck

Kim
Dx 5/1/2007, ILC, 4cm, Stage IIb, 1/4 nodes, ER+, HER2+
Colleen123
Joined: Sep 2006
Posts: 354
May 14, 2008 01:42 pm Colleen123 wrote:

I definitely would have a consultation with one of the ps that specialize in GAP flaps.  I am from Canada and because I didn't have enough tummy for DIEP, I had no option here except implants which I didn't want for a number of reasons (they have to be switched out after 10 or so years, they have a huge possibility of capsular contracture, they are not soft and warm like a real breast). So... after visiting this site and and asking a lot of questions and visiting a couple of other sites, I contacted The Center for Restorative Breast Reconstruction www.breastcenter.com  in New Orleans .   Everything was done over the phone and internet (by sending pictures).  I had bilateral SGAP (using the buttocks) a year ago in February and I am thrilled with the result.  The surgery took 7 1/2 hours (I had already had my mastectomies).  My only regret is that I didn't know about them before my mastectomies so that I could have had skin sparing mastectomies and then there would be no scars to speak of.  But... my scars are pretty much faded now and I am sooooo happy that I didn't have my recon done here at home with implants.

Everyone has to make the choice for themselves after doing a lot of research.  You are the only one that has to be happy.... because you have to live with your choice.  One thing that I can say about implants is that if they don't work out for some reason, you can still have GAP surgery at a later date.

althea
Joined: Jan 2005
Posts: 1079
May 14, 2008 01:51 pm althea wrote: I'd suggest getting a second opinion also.  I also traveled to the same place colleen did and I'm now a strong believer in getting surgery from surgeons who specialize and have loads of experience.  I'm very pleased with my results.  I know a lot of women are happy with their implants also.  I think you need to listen to your heart and take heed of what it tells you. 
My idea of a balanced diet is a cookie in each hand
Dx 12/22/2004, ILC, 5cm, Stage II, Grade 1, 0/1 nodes, ER+/PR+, HER2-
BethNY
Joined: Nov 2004
Posts: 3859
May 14, 2008 02:52 pm BethNY wrote:

I'm confused that he said you have too much skin for a skin sparing mastectomy.  That doesn't make sense.  Even if they do a breast reduction pattern for the incisions, and take out a ton of skin, it doesn't make sense that you wouldn't be a candidate for that.

I woul seek a second opinion just to be certain.

Believe it or not, you can be overweight and not be a candidate for DIEP... it depends on where you carry your weight.  BUT, I agree with everyone else here-- get a second opinion.

If you love this PS, have you talked to him about implant sizes?  Did he talk about how very large breasts sometimes are harder when it comes to implants?

I told you I only play to win....
twink
Joined: Feb 2007
Posts: 1571
May 14, 2008 06:46 pm, edited May 14, 2008 06:46 PM by twink twink wrote:

I can't comment on the flap surgery Ta but I can tell you my experience with radiated implants.  First of all, a little history... I was diagnosed Jan/07, IDC, triple neg, 4.5 cm tumor in left breast with no apparent node involvement (clinically, PET/CT and MRI).  I had neo adjuvant chemo then a bilateral mastectomy with SNB.  I had immediate reconstruction with silicone implants using Alloderm.  the SNB was negative intraoperatively but three nodes came back with micromets 2 weeks after surgery.  I went on to a full axillary node dissection and all were negative.  In any case, I sought several opinions about radiation therapy and adjuvant chemotherapy.  The docs at a local University hospital did recommend I do both in light of the neoadjuvant chemo, the likelihood that the nodes were 'more' positive pre-chemo or there were more positive nodes...  yada yada... I do go on.  What I meant to tell you is that the radiation has not significantly affected my implant.  I was noticing a slight tightening of the prophy side before radiation and the implant didn't seem to be seated symetrically.  That hasn't changed.  I have a slight ripple on the underside of the cancer boob.  I've decided to go back into surgery for a revision ... larger and high profile implants, to see if that will correct the problem.  I could just as easily live with these breasts the way they are but I want bigger.  I don't think it's a given that radiation will muck up your implant even though it often does.

Good luck to you.

If you can't be kind, have the decency to be vague.
hotsyta
Joined: May 2008
Posts: 32
May 15, 2008 05:37 pm hotsyta wrote:

Thanks for all the advice guys!! DIEP Dr. was a second opinion. PS #1 also said I wasn't a candidate, but he made it seem like there was too much fat, and he doesn't do microsurgery. I will talk to him again next week and see what he says about implants. It seems like I have to make a decision now if I want the skin saving mx--and Beth, No, I don't particularly like PS #1, he is just the one that my BS works with. I really liked #2 but he works in a different city so if I want to go with him I would have to change BS or postpone the recon. It should be more clear when I talk to PS#1 again on tuesday and if I still don't feel satisfied then I will postpone recon if I can. Do you really ever feel good about the decision or do you always feel like no matter what the decision is--it just sux!!??

Ta


Dx 4/23/2008, IDC, 3cm, Grade 1, ER+/PR+, HER2-
althea
Joined: Jan 2005
Posts: 1079
May 15, 2008 05:48 pm althea wrote:

When I was going through treatments, surgery was the one that scared me the most.  It's a good thing people don't typically die of fright because I wouldn't be here today if that were true.  Even so, I distinctly remember the day I requested the information packet from the doctors in New Orleans.  I had peace in my heart.  Then in June my local surgeon and onc were really scaring me to pieces when I said I wanted a diep in the next state.  They must be arrogant aholes because they appear to have scared me for no reason other than their bruised egos.  I had many ocasions before and since to feel very very very glad that I travelled to get my surgery. 

If you have a nagging little voice telling you to get another surgeon, I urge you to listen.   

My idea of a balanced diet is a cookie in each hand
Dx 12/22/2004, ILC, 5cm, Stage II, Grade 1, 0/1 nodes, ER+/PR+, HER2-
pamfenton
Joined: Jul 2007
Posts: 211
May 15, 2008 08:04 pm pamfenton wrote:

I am echoing Colleen, but with this exception:  Collen is a tiny little person, I am 5'8" and weigh 200 lbs.  A solid size 16.  Amazingly, not enough fat in stomach.  Field of dreams in my ass tho and I am sitting here with double Ds on my chest and a very sore butt. Check out NOLA.  When they do your stage 2 they will "clean up" that overhang you speak of.  Do not fear the GAP.


Dx 5/17/2005, IDC, 4cm, Stage IIb, Grade 3, 1/10 nodes, ER+/PR+, HER2-
hotsyta
Joined: May 2008
Posts: 32
May 16, 2008 10:19 am hotsyta wrote:

I have Kaiser insurance and they are notorious for not paying for stuff. Colleen you had all of your dx done with photos? Does this mean that almost everyone will be a candidate? I am 20 lbs heavier, a smallish 18 and about 1/4 inch shorter. I guess it can't hurt to send some pics yeah? I'm gonna give it a shot!! I feel so down about asking Kaiser for ANOTHER referral, and I know I shouldn't feel that way, but part of me feels like I may be making a big deal just because this is such a difficult process and I really just want it to be over with. Implants are much easier to recover from....ol' flip floppy me, can't make up my mind..

Ta


Dx 4/23/2008, IDC, 3cm, Grade 1, ER+/PR+, HER2-
pamfenton
Joined: Jul 2007
Posts: 211
May 16, 2008 12:06 pm pamfenton wrote:

I also did it all with pictures.  Live in Oregon so a trip out for assessment would have been doable but expensive.  I swear, they can just take a glance and know.  I would view having the GAP as a chance to get a butt lift and a tummy tuck, because that will be the end result.  the more fat, the bigger breasts, and I always felt like my old, real breasts, solid Ds, helped top balance my body.  My husband always said not to worry how I looked in clothes, because  I looked great naked.  I am looking forward  to looking good naked again.


Dx 5/17/2005, IDC, 4cm, Stage IIb, Grade 3, 1/10 nodes, ER+/PR+, HER2-
AnneW
Joined: Oct 2002
Posts: 2000
May 16, 2008 04:55 pm AnneW wrote:

I think I read here somewhere that this is a kaiser in southern CA that does DIEP. You may want to search the archives for that, or maybe someone else will pop in with the info.


Anne

2002 IDC stage 1, grade 1, rads & AI
Dx 9/18/2007, ILC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-
Colleen123
Joined: Sep 2006
Posts: 354
May 16, 2008 07:55 pm Colleen123 wrote:

yes.... all with photos.  I travelled all the way from Western Canada to New Orleans for this surgery.  Going for a consultation would have been an added expense that I didn't want.  They didn't ask me to come down.... they just asked that I send photos.  I had a telephone consultation before sending the photos and another pre-op telephone consult.  Everything else was done by email.  I didn't meet with the doctors until the day before my surgery.  Even though this cost me a small fortune (our Canadian insurance doesn't cover out of country surgery if there is an option at home..... the only option was implants, which I didn't want).... it was worth it 100 times over.  My husband says it was totally worth it.... not for the boobs (which I know he likes...lol) but for the change in my self-esteem.  He says I smile more now and am proud of the way I look. 

I know other docs do this surgery, but I researched my options thoroughly and the docs at NOLA are among the best in the world, if not the best.  Dr. Allen was their teacher, so I would think that he and his partner surgeons are also among the best, but I can only go by my own experience.

Good luck.

Colleen

coka9
Joined: May 2008
Posts: 1
May 25, 2008 09:19 pm coka9 wrote:

Hi

I have kaiser and I have just been diagnosed with IDC. Who do you recommend at Kaiser ? She has not scheduled me to see a plastic surgeon. She thinks a lumpectomy will be fine. Can you tell me if you had an MRI. I have had a lump for a while but they missed it and I think it has spread as I have a lot of pain in my back but they do not want to do an MRI.

Kathy_K
Joined: Feb 2007
Posts: 631
May 26, 2008 01:47 pm Kathy_K wrote:

Coka9, where are you?  I had my surgeries at Santa Clara Kaiser last year so I only know about them.  But, I would definitely recommend my team there.  My BS is Dr. Stevenson and my PS is Dr. Santoro.  I think that going for a lumpectomy is a good way to start and see where you are.  My biopsy showed DCIS with no microinvasion but the lumpectomy showed widely-scattered DCIS with micro invasion so then the only choice was to go ahead with the mastectomy.  Well, we could have tried for another lump. to find clean margins but my gut told me to go all the way and not put myself and family through the surgeries and waiting.  As it turned out, it was the right decision.  I have not had an MRI.

When a woman tells the truth she is creating the possibility for more truth around her. Adrienne Rich
Looneymom
Joined: May 2008
Posts: 56
May 26, 2008 03:09 pm Looneymom wrote:

Hi, this is my first post on this site,  I would get a 2nd opinion since they are making me a D breast and I am only about 15 lbs overweight. I will have a mastectomy in the next 1-3 weeks depending on several issues.  He is he told me to go home and eat!!!  I am 5'3 and now weigh 133lbs.  This is my heaviest weight (without baby) ever.  My age is 47 and in the last 1-2 years I started getting the tire around my lower ab, flabby arms etc....(there is a reason for everything)  He said I almost have enough for a D cup breast so go home and gain weight.  I am only about 10-15 pounds over what I have averaged most of my life.  When I am thinner I am a B cup, when I gained weight in my mid 30's I went to a C cup. It was fine with me.  I do not think I am a D cup maybe a small C.  What concerns is my bust seems to go up and down according to my weight.  I took my measurements yesterday so I can kind of track what every thing is. I was 39 - 29 - 38,  I had not measured in years I think 20 yrs ago I was a 34-24-34.  I am not athletic nor lots of just m  body type.  I am scared about making all the decisions but would like to have reconstruction immediately it will save most of my skin. He said an one implant would not be a good match for me. This is so overwhelming! I am in a Houston suburb.  Have a great holiday I will be checking back later or tomorrow.    

Looneymom
Joined: May 2008
Posts: 56
May 26, 2008 03:09 pm, edited May 27, 2008 10:01 AM by Looneymom Looneymom wrote:

Hi, this is my first post on this site,  I would get a 2nd opinion since they are making me a D breast and I am only about 15 lbs overweight. I will have a mastectomy in the next 1-3 weeks depending on several issues.  He is he told me to go home and eat!!!  I am 5'3 and now weigh 133lbs.  This is my heaviest weight (without baby) ever.  My age is 47 and in the last 1-2 years I started getting the tire around my lower ab, flabby arms etc....(there is a reason for everything)  He said I almost have enough for a D cup breast so go home and eat &gain weight.  I am only about 10-15 pounds over what I have averaged most of my life.  When I am thinner I am a B cup, when I gained weight in my mid 30's I went to a C cup.   What concerns is my bust seems to go up and down according to my weight.  I  I am scared about making all the decisions but would like to have reconstruction immediately it will save most of my skin. He said an one implant would not be a good match for me. This is so overwhelming! I am in a Houston suburb.  Have a great holiday I will be checking back later or tomorrow.    

bubble2766
Joined: Jun 2008
Posts: 4
Jun 1, 2008 09:48 pm, edited Jun 1, 2008 10:29 PM by bubble2766 bubble2766 wrote:

This is my first post on this site. My Godmother has breast cancer which was the reason I started researching all this. Unfortunately it turns out her cancer is too advanced for an immediate breast reconstruction. The DIEP flap certainly seems like the way to go but she'll have to wait until all her cancer treatment is completed, including radiation.

Have you heard of PRMA plastic surgery in San Antonio, TX?

Four plastic surgeons. All are apparently very experienced in DIEP flap breast reconstruction. They've performed over 2000 DIEP flaps and have a very high success rate (over 99%). I've heard from a handful of their patients. All had great things to say about the practice. They've had patients from all over the US and even from abroad.

Good news for us is that they accept insurance and unlike most of the other practices we spoke to they DO NOT balance bill.

They have a nice article on their website about finding a DIEP flap surgeon and what questions to ask.

I found this article particularly useful when I started researching docs. I didn't realize so few plastic surgeons perform DIEP breast reconstruction, yet alone routinely.


Keryl
Joined: May 2008
Posts: 40
Jun 1, 2008 10:31 pm Keryl wrote:

Anyone suggest how you would know if you have enough lower ab? I still have 2 weeks until I see my PS. I feel like I have a good "bowl" full tummy down low, though I am not really overweight for my height. (5'8" 155 lbs.) Not much in my butt, maybe more around my middle. I know I need expert opinion, but hard to know if I should even be thinking this is a possibility. I also have a prior implant of 310 cc in both breasts, so figure I'd have to make that up with xtra fat too, to achieve symmtery with my other breast.  Any thoughts?

Patrish
Joined: Jul 2006
Posts: 217
Jun 1, 2008 11:18 pm Patrish wrote:

hi Keryl, I think it is pretty hard to tell by yourself. I thought I had plenty, but my ps told me I barely had enough fat for one B breast.  seeems I had very little fat just under the belly skin but above the ab muscle.  that is the fat that they use in a tram or diep.  I had some extra fat under the ab muscle, but that is not in the right place, even tho it gave me a tummy pooch.  if you can grab some squishy tummy, that is a good sign!  best, and have brownie, can't hurt...Pat

Patrish
Joined: Jul 2006
Posts: 217
Jun 1, 2008 11:18 pm, edited Jun 1, 2008 11:19 PM by Patrish Patrish wrote:
This Post was deleted by Patrish.
Keryl
Joined: May 2008
Posts: 40
Jun 2, 2008 11:34 am Keryl wrote:

ok, well, it is squishy and on top of muscle, so that is a good sign, but realize only the expert can tell. I have 2 more weeks until my PS consult and I cant stand waiting. Funny to say "eat" as I just started an excercise and diet routine thinking that I could lose some weight before my surgery as I will be laid up and I read about people gaining. I like the brownie idea better. I will stick with the xercse though. Thanks.

Patrish
Joined: Jul 2006
Posts: 217
Jun 2, 2008 11:32 pm Patrish wrote:

hi Keryl...yea, you are right to stick with the exercise.  get your abs & back muscles in the best shape possible before the surgery.  I actually hired a personal trainer for 3 months before my delayed diep, and I think it really helped with my recovery.  your back muscles will be doing all the work while your abs recover, so your back can get really sore. the stronger the better.  and you don't have to feel as guilty about the brownies!

I read some of your earlier posts, and it sounds like you are trying to make some tough decisions right now.  just want to send you my best, Pat

Keryl
Joined: May 2008
Posts: 40
Jun 2, 2008 11:43 pm Keryl wrote:

That's cool. I just hired a trainer also, we meet every TH and it is nice to have the support. she is awesome and does a lot of recoveries as well as rigorus training. This is the longest two weeks of it-- I need to settle on a plan and get on with it - that is me. 

I think I am going with the let mast.; immediate recon of some sort, and then we'll see.... I trust my medical team but its a bit hazzy.

priz47
Joined: Apr 2008
Posts: 71
Jun 3, 2008 12:04 am priz47 wrote:

bubble2766,

Thanks for those websites. i actualy e-mailed the one doc to see if I was a candidate or if he took our insurance. let's see what happens next. As much as I want this over with, i sure hesitate about a PS. I know I do not want implants unless necessary, i would rather do a TRAM or DIEP.

D


Dx 4/22/2008, ILC, 1cm, Stage II, Grade 3, 0/1 nodes, ER+/PR+, HER2-
Patrish
Joined: Jul 2006
Posts: 217
Jun 3, 2008 06:05 am, edited Jun 3, 2008 06:07 AM by Patrish Patrish wrote:

Keryl, when I had my uni-diep, I ended up losing about 20% of my new breast to a circulation problem.  my ps offered to compensate by putting an implant behind the new breast tissue.  I don't see why a surgeon could not combine an implant--especially if you already have one--with the diep or tram for women who are short on ab fat.  the ab fat would surely be thick enough to cover the implant nicely, sort of like a lat-flap does.  now that I re-read your first post, I see that this is what you were asking about.  seems very do-able to me.  my ps even put in an expander under my diep when I had the complication fixed.  I just think that most women who have dieps or trams are not offered the option of combining it with an implant, or don't want an implant, but my ps did offer it to me, so it must work. I  had delayed reconstruction, so I would have had to do the expander first, but I would think that with immediate recon., you would not need to do that part.  and if you were willing to go smaller, perhaps you could have the implants removed and just go with the diep on one side.  btw, I later decided to reduce my natural side with lipo and had the expander removed, and I match very well.  best...

Patrish
Dx 10/26/2005, IDC, 1cm, Stage IIIa, Grade 2, 5/25 nodes, ER+/PR+, HER2+
DATO
Joined: Jun 2006
Posts: 82
Jun 3, 2008 03:47 pm DATO wrote:

Hotsyta, don't be afraid to ask for more referrals.  I have Kaiser in Sacramento and there is no one here that does DIEP. I've asked for and received referrals to 4 different PS. 

Kathy K, did you have DIEP surgery?  Dr. Santoro is the plastic surgeon I decided to go with. I saw him once in January and I have another appointment with him on June 19th to set the date for the surgery.  I don't want surgery until fall because I've got too many things to do until then. 

I'm glad to read that several of you have hired personal trainers.  I tell people I'm in training for my reconstruction.  I too have hired a personal trainer.  I just finished a 16 week program and I signed up for another 16 weeks which should take me through until October.

I definitely have enough squishy tummy to grab.  I joke that I've been growing two C cups down there for 20 years.  I've lost 10 lbs since I last saw my PS in January.  I just joined WW and I'd like to lose at least another 15 lbs before my surgery.   I'm not worried about losing too much fat on my abdomen since that seems to be where my body wants to store any extra fat.

Darlene


Dx 5/12/2006, IDC, 1cm, Stage IIIa, Grade 3, 6/9 nodes, ER+/PR+, HER2-

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