Hey everyone,
Im hoping this is not too weird of a question as Ive not seen anyone ask it yet. I was dx at the beginning of March with dcis in both breasts and a third site with adh. I am possibly facing a bilat mastectomy so my question is for those of you who have had a mastectomy and chose implants (I don't have the right body type for trans flap.)
I want to know how they feel or more to the point if they feel? I am having a hard time imagining these new additions to my body and Im concerned about the loss of sensitivity, numbness, tingling sensation I keep hearing about. Do they feel heavy? Will I be able to run/ work out? Any thoughts on saline versus silicone? I heard silicone is still considered the more risky of the two but I can see, after feeling the bags, that it is also the more natural feeling. I'd be interested to hear from anyone who has had nipple reconstruction or tattooing and how they feel about the results.
I'm sorry, I know thats a lot of questions but Im a little confused and am still a little shocked that at 41 Im even having to make this decision.
Any info or thoughts would be very welcome.
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jezza Joined: Jun 2006 Posts: 278 |
May 14, 2008 04:31 am
jezza wrote:
There is a discussion on Longetivity of saline implants going on right now in the breast reconstruction section that you might like to read. Mine (saline) don't feel heavy.I sleep on my stomach,used to go to gym a lot but just walk for excercise now. They DO feel different of course but I am happy with the result. I have very little feeling in mine. Good luck jezza |
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jade Joined: Sep 2007 Posts: 564 |
May 14, 2008 06:59 am
jade wrote:
Hi chilidog I am 37 and I love to work out. I also had a bilat mast with delayed recon (b/c of troulbe with my bleeding). My saline high profile mentors implants are soft and plyable:<}. I have about 6 more weeks before I can start running again. I am going to make sure I am heavily supported when I do start to jog again. I dont want my foobs going south. I am getting used to my new foobs. They are different (dah) then my naturals. So, now I have to learn to dress them different. They also have ripples. Ripples happens (most the time) because the skin of a bilat women is very thin and does not have fat to cover some of the "flaws". You can only see the ripples when I am naked and my husband can care less about them....he is a GREAT man. When I have a bra on they go away. Ask your Drs ALOT of questions. Ask your surg to give you (if he can) a skin saving mast.....my surg is known as a the "hoover" b/c his first priority is getting ALL the breast tissue gone. j Dx 9/4/2007, DCIS, 2cm, Stage 0, Grade 2, 0/1 nodes, ER+/PR+, HER2+ |
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jade Joined: Sep 2007 Posts: 564 |
May 14, 2008 07:04 am
jade wrote:
ps as for numbness....yes my foobs are numb. Some women get some feeling back. I dont have any tingling either. I am only about 2 months out of my exchange surg......and I am doing well wish you all the best j Dx 9/4/2007, DCIS, 2cm, Stage 0, Grade 2, 0/1 nodes, ER+/PR+, HER2+ |
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JustTurnedF
Joined: Mar 2007 Posts: 190 |
May 14, 2008 08:55 am
JustTurnedForty wrote:
Chilidog- I was in the same boat as you last year at this time. I opted for skin & nipple sparing bilateral mastectomies with lat flap reconstruction with expanders and then silicone tear drop implants. My results are awesome--you would never know I had surgery from looking at me from the front (incisions are under my breasts). My back does have 2 long scars, by they are thin & fading & are hidden by all clothes--tanks, swimsuit, etc. I walk 4 miles daily & jog some. The lat muscle does get tight when I exercise, but it is doing it's job by holding the implant in place. If you have any questions, feel free to ask. Good luck to you! Janine, who is now 41
Dx 1/15/2007, DCIS, Stage 0, 0/3 nodes |
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chilidog25 Joined: Apr 2008 Posts: 33 |
May 14, 2008 01:39 pm, edited May 14, 2008 01:43 PM
by chilidog25
chilidog25 wrote:
Thanks Ladies, So just to clarify. Am I going to be able to forget they are there or will I always have an awareness of them? I dont know why this is so important to me. My husband and I love the beach and I would like to be able to still wear a bikini so I think Im worried about feeling self conscious. JustTurnedForty. Im interested to read that you had incisions under your breast. In the pictures Ive seen the incision goes right through the middle across the nipple. When I saw the plastic surgeon, he talked about tattooing the nipples which makes me think he can not save them but I will ask at our next meeting. Can you tell me more about "skin saving"? chili
Dx 3/5/2008, DCIS, <1cm, Stage 0, Grade 2, / nodes, ER+/PR+ |
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JustTurnedF
Joined: Mar 2007 Posts: 190 |
May 14, 2008 03:04 pm
JustTurnedForty wrote:
You will still feel the pressure of the implants, so you will feel like you have breasts, you just won't have the sensation on your skin when you lightly touch them. You can feel the pressure (on the nerves under your implant) of harder touch/squeeze. Depending on how close your DCIS is to your nipple is the factor of if you can save them. Many people think it is too risky, because the nipple is essentially breast tissue. During my surgery my dr. checked for abnormal cells up to the nipple, and if there were any, she would not have let me keep them. I felt that the wonderful physical outcome I received was worth the risk of leaving the nipple. This is a very personal decision. If I were you, I would get a couple of opinions from surgeons on if you're a candidate. I will say that I didn't go through the emotional hell that I read about from people waking up after a mastectomy to no breasts. Mine looked exactly the same since I had expanders in place with some saline and with swelling, they were about the same size as before. I'm very thankful for that. Janine, who is now 41
Dx 1/15/2007, DCIS, Stage 0, 0/3 nodes |
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jade Joined: Sep 2007 Posts: 564 |
May 14, 2008 06:39 pm
jade wrote:
Chilidog I too love the beach, and I love my bikini too. You can see some of my scars when I ware a bikini. I figure one day I will over hear some ignorent soul saying "gee I am glad I didnt get her ps". I am getting used to the difference in my body and I try HARD not to dwell on it. I am 37 and still look good in a bikini......someone will always look better,yet, someone will always look worse:<}. My husband has rose colored glasses that see me as beautiful:<} j Dx 9/4/2007, DCIS, 2cm, Stage 0, Grade 2, 0/1 nodes, ER+/PR+, HER2+ |
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rubytuesday
Joined: May 2006 Posts: 2159 |
May 14, 2008 08:14 pm, edited May 14, 2008 08:25 PM
by rubytuesday
rubytuesday wrote:
chilidog25, I had a skin sparing unilateral mast with an expander placed at the time of my surgery. I woke up with a 'breastlet', only had 30cc put in the expander but it was enough that I never really felt like I had lost a breast....denial at its finest. With the skin sparing, I have nearly total sensation. My numbness (which is a risk with any surgery) is down on the side under my arm. My arm is also numb down the inside due to auxillary node dissection. I have cohesive gel silicone and they aren't heavy at all even though I went from a barely B to a small D. I am aware of them (in a good way....LOL). They feel very natural to me. They are firmer and perkier than the originals....more like when I was 16. I've had them for 1 1/2 years. I do yoga and Pilates and lift moderate weights. I think the more that you treat them like they are yours, the more they become a part of you. I personally feel more confident in a swimsuit now than I did before with my somewhat deflated (from nursing) boobs. I have cleavage for the first time in my life and they look great with or without a bra. Best wishes
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jezza Joined: Jun 2006 Posts: 278 |
May 14, 2008 10:45 pm
jezza wrote:
I have heard the skin sparing mastectomy gives fantastic results. Unfortunately they are not suitable for everybody. I have had my implants since 1992. I guess my breasts feel a little "tighter". As if I have a bra on even when I haven't. I sometimes have to reach up and feel whether I have one on or not cos I often go without! (One of the benefits.) Another benefit is....like you Ruby...I went a little larger of course...why not!!! jezza jezza |
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VBG Joined: Jan 2008 Posts: 184 |
May 15, 2008 01:25 am
VBG wrote:
Chilidog, I just had bi lat skin/nipple sparing surgery with expanders and my incision is just above my areola. So far so good! I had rads from my prior dx so we are in a wait and see mode to determine if my skin will "stretch" through the expansion. I plan to do silicon implants, the new silicon implants do not have the leaking problems of older versions. I like to feel of the silicon better than the saline. Do consults with a few PSs in order to determine what the best surgery option is for you. Best of luck! Valerie recurrence 12/07 ILC stage 1 grade 1 6mm; 4/29/08 bilat/recon/ooph
Dx 5/21/2006, ILC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
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chilidog25 Joined: Apr 2008 Posts: 33 |
May 15, 2008 03:45 am, edited May 15, 2008 03:50 AM
by chilidog25
chilidog25 wrote:
All this positive advice has made me re examine my fear of a bilat mx. My first surgeon had recommended it along with my oncologist but I have been resistant and have been pushing to have the option of a lumpectomy with rads to save my breasts. I had an independent surgeons opinion who agreed that it was a reasonable request but I know given my age that the greatest possibility of moving on from this permanently is to have the mx. Jeeza - just read the saline/silicone discussion. Wow, thats a hot topic !!! The part thats impressing me a little is that you all seem pretty happy with your decision and thats what I want. To go into these surgeries knowing I made the right choice.......bigger boobs, albeit Foobs, sounds like a pretty good consolation prize too. Still hoping to hear from someone with "fipples" or tats but thanks again ladies. Ill be following the rest of these discussions with anticipation. chili
Dx 3/5/2008, DCIS, <1cm, Stage 0, Grade 2, / nodes, ER+/PR+ |
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lilith Joined: Sep 2007 Posts: 180 |
May 15, 2008 08:02 am
lilith wrote:
:)) you see, Chili... for some bigger boobs are a consolation. for me, the consolation price is going SMALLER :)) from a DD all my life I'll be a B once done... I plan never to wear a bra again, other than for exercise or after surgery... ;))Can't wait for my big day. Dx 7/4/2007, IDC, 2cm, Stage II, 1/8 nodes, ER+/PR-, HER2+ |
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lvtwoqlt Joined: May 2007 Posts: 2390 |
May 15, 2008 08:55 am
lvtwoqlt wrote:
Chili, I went for the bilat mast with implants. I went to the PS and told him that I just wanted something that matched. Prior to my bilat, because of previous biopsies for ADH, I had an a-cup and a c-cup. I am now a happy B-cup with 580cc saline implants. Like Ruby, I came out of the surgery June 1, 2007 with some saline in my expanders (200cc) so I woke up with 'breastlets'. My PS had said that he would try to put in 100cc but had more room and doubled that amount. I had the 'fipples' done in December (I got my nipples for Christmas) and the tattoos done in Feb and touched up in April. I am happy with my decsion. The 'fipples' are just big enough to notice when I go braless in a t-shirt, however I went a little dark on the tattoos to allow for fading and the color does show through when I wear light colored t-shirts. My hubby is a trucker and when he comes home he huggs me to feel my back and see if I am wearing a bra just by looking he cannot tell. I usually go braless on the weekends and after work. Sheila We are like tea bags, we don't know how strong we are until we were thrown into hot water. Eleanore Roosevelt
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jdash Joined: Sep 2006 Posts: 897 |
May 15, 2008 09:03 am
jdash wrote:
i had skin sparing nipple sparing surgery with silicone they call them gummy bear high profile tear shape in a bra and bathing suit my cleavage is awesome one side the scar is actually not even visible much anymore - the other side it is more pink so i may have it lasered there are many days that i am aware they are there- it comes and goes- i think its alot of nerve endings they cut and they seem to come back- at first i was totally numb which i guess is good now i can feel when they are touched but the nipple has no sensation so they look great but i miss the feeling in them any questions just ask i went from a tiny b to a full c they dont look big at all just perky and fit my frame life is not measured by the breaths we take but the moments that take our breath away....
Dx 4/22/2006, IDC, , Stage IIIb, Grade 3, ER-/PR-, HER2- |
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Kerry1000 Joined: Feb 2006 Posts: 117 |
May 15, 2008 09:31 am
Kerry1000 wrote:
I had a skinsparing mast. w/immed. reconstruction - not expander, the PS used Alloderm. Not sure how he managed this - I went slightly smaller on one breast but the other stayead the same size (I was a little uneven before). I have silicone implants, not sure what kind. Now I'm in the middle of nipple reconstruction. I'm very happy with the results. My breasts feel very slightly heavier than before, but I don't notice it at all. I did regain a good amount of sensation in both breasts. There was some occasional tingling feelings the first few months but it went away. My incision is over the breast, but my understanding is that it's possible to do it under the breast. Few surgeons do it, I don't know why. I have to say that after 18 months, the scar is almost un-noticable though. Also, few surgeons do the immediate implant w/Alloderm (skipping the expanders), even my surgeon has mostly stopped as he wasn't happy with the results - lots of infections, etc. So I was one of the lucky ones. He was more willing to do it with me as I'm in good shape (not overweight, never smoke, exercise) with good circulation. Re the bilateral part - do you need to make that decision now? - do both breasts have cancer or only one breast? I had a unilateral mastectomy at first; I knew I might want a bilateral but wasn't ready to make that decision at the time. Over a year later, after treatment was completed and after thinking about it for a year, I had the second mastectomy. My advice is that if you're not ready to make the decision, don't be pushed into it. Yes it could mean another surgery, but I was very surprised how relatively easy the surgery was compared to others I've had in the past. The second was even "easier" (I mean this all relatively) as I knew what to expect. And recovery from a bilateral seems like it's a fair bit harder than recovery from a uni, so in the end I think it more or less evens out. Hope this helps. Feel free to PM me if you like. Kerry Dx 4/19/2006, IDC, <1cm, Stage IIa, Grade 3, 1/5 nodes, ER-/PR-, HER2+ |
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Kerry1000 Joined: Feb 2006 Posts: 117 |
May 15, 2008 09:42 am
Kerry1000 wrote:
I forgot to add that my boobs look great, even better than before (perky not droopy) so that wearing a bathing suit is no problem. I don't need a bra now except when I run; before I always wore one (I was/am a C cup). Re looks...if you're having radiaiton it's possible that your skin will become 'dotted' and/or very brown, this will go away eventually though it took over a year for me. Best of luck, K. Dx 4/19/2006, IDC, <1cm, Stage IIa, Grade 3, 1/5 nodes, ER-/PR-, HER2+ |
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chilidog25 Joined: Apr 2008 Posts: 33 |
May 15, 2008 01:48 pm, edited May 15, 2008 01:50 PM
by chilidog25
chilidog25 wrote:
I have dcis in one breast and dcis and adh in the other so double trouble. I was diagnosed March 5th so I really want to set a date for surgery and Im actually waiting for my surgeon to call as I write. I asked my gut this morning what I should do and it replied mx so thanks to this discussion Ive come to a place of acceptance. Phewwwww! One question I forgot to ask was how long you guys took off to recover from surgery? I have a business and if I don't work I don't get paid so I need to know how many weeks Im potentially looking at. Ivtwoqlt - Glad to hear you were pleased with you nipple recon.Would you mind telling how your nipples were made. I heard that the skin was taken from the inside of the labia(sp?) Tell me that isnt true! Lilith - your comment made me laugh. I forget that there are women out there who actually have too much boob. As a 34A I find that difficult to imagine but its cool that we will probably end around the same size. Someone mentioned in a different thread that rippling is often a result of using textured implants over smooth. Has anyone had this problem? chili
Dx 3/5/2008, DCIS, <1cm, Stage 0, Grade 2, / nodes, ER+/PR+ |
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caitb Joined: Jan 2008 Posts: 23 |
May 15, 2008 02:03 pm
caitb wrote:
Chili I completed a trans flap in February - but before that I had an implant. My original implant was saline and I hated it (done badly by Kaiser). My second implant was a Becker silicone and it was so real that no one could tell (not done by Kaiser). I just noticed that you are from my hometown - not sure if you have chosen your PS yet but there is an artist of a PS right where you are - Dr. Loren Eskanazi. Look at her web page and her book called "Reconstructing Aphrodite" for what the possibilities can be. I went from a 34A to a large C just for the sheer fun of it! Once you can accept the universe as being something expanding into an infinite nothing which is something, wearing stripes with plaid is easy. Albert Einstein
Dx 10/19/2006, ILC, 5cm, Stage IIIb, Grade 3, ER+/PR+, HER2+ |
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rubytuesday
Joined: May 2006 Posts: 2159 |
May 15, 2008 06:42 pm
rubytuesday wrote:
Chili, I had a fipple created using the C-V flap method. It is made from an incision on your foob that looks like <C>, except the C is turned sideways. The Vs are then wrapped around the C to fashion the fipple. My PS wanted to graft but I said NO so fast, I'm not even sure WHERE the graft was coming from....LOL. I had the areola tattooed about 3 months later. The nips really are the icing on the cake. I REALLY didn't care about getting one but decided to go ahead because I had a natural side to match. IF I had had bilats, I don't think I would have done nips BUT I do think I would have missed out on 'the look' because they REALLY make it look like a BREAST. I am still wowed by mine when I catch a glimse in the mirror. Best wishes |
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PhyllisCC Joined: Nov 2007 Posts: 135 |
May 15, 2008 07:12 pm
PhyllisCC wrote:
Chili, I had a rt. mast last November, with immediate reconstruction - expander placed. I also had a SNB. My doctor recommended for me to stay off work for three weeks. I probably could have gone back after two, but my employer has been great so I took the full three. Due to that I was not exhausted when I returned. I think a lot depends on what you do. I do quite a bit of walking at work, but also spend a lot of time at my desk. My hardest adjustment was trying to sleep. I'm a right sided sleeper and couldn't sleep on that side. So, even now, I don't sleep too well. But I'm looking forward to my exchange, finally, on May 29th. I will be getting cohesive silicone implant and maybe a slight lift on the "good" breast. My PS always makes me laugh when she says I have such "young looking breasts" (I'm 57) I'm just trying to match my good one which is a "B", so I may not even need the lift. We'll see. She plans to take several different implants into the OR and give me the best match. Do you need a Bi-lateral? I must have missed that. Good luck on your decision. Everything is so individual for all of us. I've been happy so far. And hope that continues. Take care. Phyllis |
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carolsd Joined: Sep 2007 Posts: 207 |
May 15, 2008 11:33 pm
carolsd wrote:
Hi chilidog -- I too was not a candidate for TRAM flap, though it was the surgery of choice for my p.s. I did bilateral with tissue expanders and eventually saline implants. My implants are small, 330cc, giving me a B cup (I was an A before). At first I felt they were too noticeable, and I was aware of them often. If I went out into the cold my muscles constricted and my chest felt tight. But I found that wearing a snug supportive bra helped. I had cancer in the left breast, and I think they take more nerves on that side. So my left foob is quite a bit thinner skinned and more numb than my right. I can still feel the pressure of the implant against my chest wall. But the outer skin is kind of numb-ish. But the right side has more sensation and a more natural look. I lost my nipples in the mast so of course that element is gone. That said, I'm 3 years out and I rarely think about my implants. I put on a bra in the morning, get dressed, and go about my way. You may find you're self-conscious about your foobs at first. But after some time passes, I'm betting you'll be as able to disregard yours as much as I. Dx 9/22/2004, IDC, <1cm, Stage I, Grade 2, /0 nodes, ER+/PR+, HER2- |
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lilith Joined: Sep 2007 Posts: 180 |
May 16, 2008 02:11 am
lilith wrote:
Hey Chili. My PS mentioned that using now the textured silicones she doesn't see more than 1% of capsular contracture, and very little rippling - and that both are anyway quite rare IF the implant is behind the chest muscle. Dx 7/4/2007, IDC, 2cm, Stage II, 1/8 nodes, ER+/PR-, HER2+ |
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jezza Joined: Jun 2006 Posts: 278 |
May 16, 2008 02:25 am
jezza wrote:
Chili I had skin taken from the continuation of my caesarean scar for my nipple recon.....can't see it at all now. So I guess this is a common thing..if you have another scar they can just take a little from the same place?? Shelia..good idea to go darker on the tatts as they do fade. Also the nipples shrink incredibly...anyone mention that yet? You have to remember I'm 16 years out but while the nipple was huge at first..it is now small. I have my original nipple on my prophylactic side. jezza |
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chilidog25 Joined: Apr 2008 Posts: 33 |
May 16, 2008 01:08 pm
chilidog25 wrote:
Hey everyone, Caitb - I too am with Kaiser and a little concerned about the surgeon I choose because so many of them are specialists in other fields who do breast surgery on the side, it seems. The surgeon Im going with is considered the most experienced in this field but Im not sure about the PS. I will look into your recommendation. I also wrote down 'becker'. Im leaning towards silicone because they do seem more natural feeling although Im still researching the problems that are associated with them. chili
Dx 3/5/2008, DCIS, <1cm, Stage 0, Grade 2, / nodes, ER+/PR+ |
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AnnNYC Joined: Aug 2007 Posts: 1567 |
May 16, 2008 01:21 pm
AnnNYC wrote:
Hi chilidog, I had a left mastectomy last April because of invasive ductal carcinoma that involved my nipple and areola. My breast surgeon (who is great -- I love her) said that in my case a lumpectomy would be "the worst of both worlds" because the whole point of going through radiation and a somewhat higher risk of recurrence with lumpectomy would be to have a cosmetically acceptable breast -- which wouldn't have been possible for me, since it was nipple and areola that had to be removed. So, I had left mastectomy with immediate placement of tissue expander (TE) in April 07. Exchange surgery to replace TE with silicon implant on December 27. Creation of nipple yesterday (!) by C-V flap method described by RubyTuesday. So, I can't yet report on what the "fipple" looks like -- but I'm very happy with the silicon implant. I have a lot of sensation in the skin of my left breast -- I guess I'm somewhat unusual in that regard, but not unique. The tissue expander felt fake, hard and uncomfortable -- but with my silicon implant, I'm really starting to feel like it's "me." I am aware of my left breast, and it doesn't feel strange to me. Wishing you the best, Ann Dx 3/9/2007, IDC, <1cm, Stage I, Grade 2, 0/5 nodes, ER+/PR+, HER2- |
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VBG Joined: Jan 2008 Posts: 184 |
May 16, 2008 04:30 pm
VBG wrote:
Hi Chili, Another thought, I saw Dr Eskenazi and she is an artist but a friend that had surgery with her had a number of follow up surgeries due to necrosis. She also does not accept insurance and will expect you to pay the full amount and she will bill your insurance which would pay her a much smaller amount. I went to UCSF for my third opnion and was glad I did! Their breast center there is one of the best and the Drs are fabulous! Can you go to another Kaiser facility, I heard there are some great Docs at the Walnut Creek Kaiser. Valerie recurrence 12/07 ILC stage 1 grade 1 6mm; 4/29/08 bilat/recon/ooph
Dx 5/21/2006, ILC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
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