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Topic: June 08 Reconstruction

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Joined: Jul 2005
Posts: 173
  • Posted on: May 15, 2008 08:55 pm, edited May 15, 2008 08:56 PM by marejo
marejo wrote:

Hello everyone,

Well my DIEP date is fast approaching.  I made the decision to go ahead with the DIEP in February so I've had WAYYYY too much time to think on this.  I feel as if I know about as much as my plastic surgeon by this time.Wink  I waited till June because I am off for the summer beginning June 12th.

My DIEP is scheduled for June 17 and I am getting very anxious to get this going.  I seem to be getting less nervous as the date gets closer but yet there are days I feel as if I just might cancel it.  Less of those days though as it gets closer.

Who of you is having reconstruction in June?  What kind?  Immediate or delayed?  Where?  By who?

As I said, mine is schedule for June 17th.  I am having bilateral DIEP and by the time I have the surgery I will be 6 weeks shy of being a 3 year survivor.  My surgery will be at Froedtert and the Medical College in Milwaukee, WI by Dr. John Hijjawi. 

I'll be anxious to hear from you who will be sharing the month of June with me in having reconstruction.  I'd also like to hear from those of you who waiting a long time for reconstruction (like me) and what brought you to this point now.

Love & Blessings to each of you,

Mary Jo


Dx 6/24/2005, IDC, 4cm, Stage IIb, Grade 3, 1/2 nodes, ER-/PR-, HER2+

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hcmatlin
Joined: Feb 2008
Posts: 22
May 15, 2008 11:45 pm hcmatlin wrote:

   I am having a bilateral GAP on June 16/19. I am very very very very nervous too. My ca was in 2001 and I have had implants since then that I really never liked. They move when I flex my muscles. I look freaky. I have thought about it for years but last year my youngest son had more medical problems than usual. We met our out of pocket max quickly and my husband said, " honey, you know that surgery you talked about? Well now would be a good time to get it done as we have maxed the out of pocket for the year." Just like a guy huh!!!  So although we are into a new insurance year he still supports me getting it done. My son's health has stablized ( knock on wood) so we can afford it now. This is most of the issue but I do also have pain on the radiated side. Not severe but annoying.

  My biggest issue right now is I feel so torn between having a diep and have size B breasts or a GAP and have size C breasts. I think I would like C breasts. I kind of miss my old ones. But then remember I would have enough for bilateral B cups on my tummy with C cups on the chest. Worried that I will be front heavy. !!!

  I am also scared that my GAP will turn out saggy like my natural breasts were. I am going to tell him again.....no saggy boobs!!!

   I hope I remember right that women with GAP's recovver faster than those with dieps too. I have a 16y/o and two 5 y.o boys who need Momma. I think one of the boys will do fine but the younger one has delays and he might not understand I can't lift him for several months.

   I am not so scared of the surgery but am a little freaked out that this is the final option I will have. When I had the implant I knew there was another option. What if I hate them? OK now I am getting anxious. I must remember the doc is great and I trust him.

Stay well and look forward to hearing from you

susan

butterfly8
Joined: May 2008
Posts: 6
May 16, 2008 08:49 am butterfly8 wrote:

I'm not having recon next month, but Susan's comments caught my eye.  I apologize for going a bit off topic here.  Susan, I'm kind of in the same boat as you.  I have implants, they look fine but I suspect they are encapsulating a bit because they feel tight and hurt sometimes.  Also, the fact that they move when I flex my arms is really bugging me.  So I am considering the SGAP.  Who is doing your surgery?  I've also heard that the recovery from the SGAP is not as tough as the recovery from the DIEP.  Thanks in advance for your help & good luck! 


Dx 10/5/2006, DCIS, 1cm, Stage 0, Grade 2, 0/1 nodes, ER+/PR+
krissdani
Joined: Dec 2007
Posts: 6
May 16, 2008 03:43 pm krissdani wrote:

HI, I'm June 18 - expanders coming out and getting 410's (gummies)... Ironcially I think in the 410 size.

Soo excited.. Want boobies!

Anyone else on the 18th?

hcmatlin
Joined: Feb 2008
Posts: 22
May 17, 2008 06:35 pm hcmatlin wrote:

This is going to sound crazy but I consulted 4 PS's prior to deciding one one. I even went to SC to meet Kline. I had a SGAP scheduled with Dr. Kline/Allen in SC in Aug. but then my insurance raised it's out of pocket by many thousand dollars and the market has been poor. Sooooo canceled that surgery and started looking more locally.

  I found a surgeon in St. Cloud who does lots of DIEP's but has only done a handful of GAPs. His bedside manner, length of conversation and caring personality far outweighed all the others combined. Including the famous Dr. Kline. I have seen photoos of a woman he worked on locally and he did a smashing job. So I am at piece with the surgeon finally.

  Now my big delema is diep or gap. I bet I will go with gap, this is what's scheduled but my husband and I are going to talk with him again on the 30th.

Stay well

 Susan

lewisfamily…
Joined: Oct 2007
Posts: 420
May 17, 2008 08:41 pm lewisfamily503 wrote:

Yep! My exchange will be in June--June 12 to be exact. VERY EXCITED to be done with my turtle shell expanders. Just got yet another fill yesterday and it didn't go very well. I had a spasm in my back, I involuntarily jerked and the Physician's Asst. doing the filling jerked, thereby tearing my skin and causing bleeding and now, a doozy of a bruise. Luckily, I got some more percocet 'cause boy did I need that last night! I REALLY want to be done with the fillings and these expanders! Just one more fill to go and then, bye bye expanders! At this point, they are planning on this as an out patient procedure. I sure hope it goes that way, but I don't really do well with general anesthesia (vomiting afterward!) do I guess we will see!

Good luck to all of you June girls!
Anne

Anne
Dx 10/19/2007, DCIS, <1cm, Stage 0, Grade 2, 0/2 nodes, ER+/PR+
Noni
Joined: Jan 2008
Posts: 132
May 17, 2008 10:32 pm Noni wrote:

I'm going in for stage II DIEP on June 24th.  I had the first part in January and am looking forward to getting this second phase over with.

My PS told me to expect to be out of work for a week but I am taking two, just to be sure.

Good luck with your surgery.   As I'm sure you've read on the board, the first week is hell but it's totally worth it. 

bilateral mastectomy with immediate diep on 1/21/08
Dx 12/5/2007, DCIS, <1cm, Stage 0, Grade 3, 0/6 nodes
Wren
Joined: Sep 2007
Posts: 207
May 18, 2008 09:40 am Wren wrote:

I'm having surgery to exchange the expanders for silicone implants on June 11th!  I am also very excited to be so close to this next step in the reconstruction process.

Iamblessed
Joined: Mar 2008
Posts: 163
May 18, 2008 11:55 am Iamblessed wrote:

Hi girls!

I am scheduled for my surgery June 4th at NOLA, bi-lateral with immediate reconstruction, DIEP flap (God willing).

Have a good day, take care and God Bless.

Warmly, Dottie
Dx 4/7/2008, DCIS, Stage 0, Grade 1, ER+/PR+
cheryl66
Joined: Jun 2006
Posts: 190
May 18, 2008 05:11 pm cheryl66 wrote:

Guess I need to join this topic.  I am having an expander exchanged for implant and lift/reduction/augment on other side on June 2nd.  Seemed like forever ago it was scheduled, now it is fast approaching !!!  Can't wait.  One thing I am worried about is PS said with my good side having to have a lift so high up, I might necrose my nipple because blood supply might be compromised. Surprised YUCK !  Praying that isn't the case.

Cheryl 

Iamblessed
Joined: Mar 2008
Posts: 163
May 20, 2008 08:23 pm Iamblessed wrote:

bumping to top:)

Warmly, Dottie
Dx 4/7/2008, DCIS, Stage 0, Grade 1, ER+/PR+
ehall
Joined: Apr 2008
Posts: 267
May 20, 2008 10:22 pm ehall wrote:

Just had my exchange--8 days ago.  Was so excited and of course, nervous.  Couldn't wait to get the bandages off.  Spent the first few days feeling sore and tired and emotionally spent!  Its been a long 10 months.  The emotions seemed to come pouring out on day 2 and 3.

Am pleased with my new boobies....they are a huge improvement over the expanders.  Lighter, softer, fuller, and way more comfortable.

Can't wait for my final steps....nipples and tatoos!  God bless and above all be patience...its a process :-)

ehall
Joined: Apr 2008
Posts: 267
May 20, 2008 10:22 pm ehall wrote:

Just had my exchange--8 days ago.  Was so excited and of course, nervous.  Couldn't wait to get the bandages off.  Spent the first few days feeling sore and tired and emotionally spent!  Its been a long 10 months.  The emotions seemed to come pouring out on day 2 and 3.

Am pleased with my new boobies....they are a huge improvement over the expanders.  Lighter, softer, fuller, and way more comfortable.

Can't wait for my final steps....nipples and tatoos!  God bless and above all be patience...its a process :-)

ehall
Joined: Apr 2008
Posts: 267
May 20, 2008 10:22 pm ehall wrote:

Just had my exchange--8 days ago.  Was so excited and of course, nervous.  Couldn't wait to get the bandages off.  Spent the first few days feeling sore and tired and emotionally spent!  Its been a long 10 months.  The emotions seemed to come pouring out on day 2 and 3.

Am pleased with my new boobies....they are a huge improvement over the expanders.  Lighter, softer, fuller, and way more comfortable.

Can't wait for my final steps....nipples and tatoos!  God bless and above all be patience...its a process :-)

Deen
Joined: Mar 2008
Posts: 76
May 21, 2008 03:05 am, edited May 21, 2008 03:06 AM by Deen Deen wrote:

Hi All,

I'm signing up.  I'm having expanders swapped for silicone implants on June 24th.

ehall - how are you doing?  Would love to hear which kind of implants you have and what they are like.

hope everyone's having a decent day!

D.


Dx 1/2008, 1cm, Stage I, Grade 1, 0/35 nodes, ER+/PR+, HER2-
lilith
Joined: Sep 2007
Posts: 191
May 21, 2008 04:04 am lilith wrote:

Yay!

I am signing up on this thread!!!

I had right side mastectomy in July 2007, then chemo, no rads.

I am going in the 2nd of June, for a preventive left side, plus recon. Will do small gummy bears, one step. no need for expanders (surgeon left enough skin on right side... :) ) and I'm getting B size. I am happy with that, as I had a life-time of DD, and hated every moment... last thing I want now at 44 is big boobs!!! Hopefully, by July (my one year cancerversary) I will be in a bikini... with a glass of champagne in my hands.


Dx 7/4/2007, IDC, 2cm, Stage II, 1/8 nodes, ER+/PR-, HER2+
luckymel
Joined: Oct 2006
Posts: 621
May 21, 2008 11:21 am luckymel wrote:

I am having a bilateral DIEP on June 2, so I will be at the head of the parade for June.  I was originally scheduled for June 5 of 2007, but because I was in rough shape from chemo I just had the bilateral skin-sparing mastectomy then, with the DIEP to follow in a couple weeks.  Then positive nodes were found during the mastectomy, so I signed up for radiation, and finished that in September, and finally, one year later, I am getting my DIEP!  I am not looking forward to another surgery, but will be glad to have this behind me, and I do feel so lucky to have such a miraculous surgery available to me.  My surgeon is Dr. Aldona Spiegel,  Director of the Center for Breast Restoration at Methodist Hospital in Houston.  She does incredible work - I have seen several of her patients up close and personal - so I am confident that she will do a good job for me. 

Good luck to everyone.

Mel
Dx 10/10/2006, IDC, 3cm, Stage II, Grade 2, 4/17 nodes, ER-/PR-, HER2-
gk2bc0
Joined: May 2008
Posts: 12
May 21, 2008 05:11 pm gk2bc0 wrote:

So glad to find you all!  I am having a mastectomy and tram reconstruction on June 2nd after a diagnosis of recurrent IDC this month. My original diagnosis was in Jan 05 and I had a lumpectomy and radiation.  This recurrence is in the same side, so there are few options for me. I am small breasted and on the thin side, so I am "lucky" to have enough of a belly to make a breast mound to match what I have. From what i've read about expanders and implants and multiple surgeries, I decided this was the best way to go for me. I will have another Sentinel Lymph Node biopsy at the time of the surgery and the nuclear injections were so painful last time, that is what frightens me...oh and some of the complications I've read about. I am not looking forward to pain, but after three children by natural childbirth (granted the last was 18 years ago when people still did such things!) I know I am a strong person, but the one lesson I learned through my last diagnosis was to let people help you.  It makes everyone feel better. I'm glad I won't be in this alone.  Good luck to you all. 

dhettish
Joined: Mar 2008
Posts: 351
May 22, 2008 09:43 am dhettish wrote:

Hi All,

It has been 9 weeks since my last chemo. I am getting expanders put in on 6/10/08. Can't wait. Last Thursday, I got home and was taking off my bra and realized one prosthesis was missing? Thought I had lost it until I saw it sitting on my dresser. Realized I only went out with one! I then decided it was time to start reconstruction. I am still really tired from the chemo and still have some residual legs pains but can't wait any longer.

My girlfriend had the same plastic surgeon for her boobs 10 years ago and they look pretty good. I have heard my surgeon is a really good one, so I hope I get good results.

Debbie 

Debbie...Chemo's a bitch and then you live
Dx 8/6/2007, IDC, 2cm, Stage II, Grade 3, 1/23 nodes, ER-/PR-, HER2-
cheryl66
Joined: Jun 2006
Posts: 190
May 25, 2008 05:13 pm cheryl66 wrote:

there are several of us that are having June 2nd surgeries (myself included) - that is only a week away !!!   I am getting anxious to get my expander replaced with implant and will also be getting a lift/reduction/augment on right side.  Hope I heal as well as I did with mast. 2 summers ago .

Cheryl 

ehall
Joined: Apr 2008
Posts: 267
May 25, 2008 08:02 pm ehall wrote:

Hi Deen--I'm doing pretty good--expander exchange was 2 weeks ago tomorrow.  The first week--was emotional--had lots of expectations and a bit disappointed.  But the breasts have finally filled out or as some call it "fluffed".  Your first impression may be like mine--they resembled swelled hamburger buns. I was expanded to 800 cc and had 700 cc high profile silicone implants. I wanted to return to pre-bc size--full c--still not sure I achived this.

Pain was minimal--just taking tylenol.  I drove by the weekend--about 5 days after the exchange.  I have full range of motion....just some weird lingering pain.  My PS did some minor lipo under my left arm--that hurt like heck for about 4 days--it also turned all colors of the rainbow.  I've been massaging my breasts--as directed by PS--gently but firming pushing--never to the outside.  Still can't lift anything over 5 lbs.  The swelling was very slight and I took the bandages off by the following day and showered.

The holiday weekend--involved lots of indoor activities.  No swimmming and limited sun.

Am scheduled first thing on Tuesday morning to have my stitches removed...can't wait.  Then I'm headed to My Intimacy to be fitted for some pretty new bras :-).  Good luck and feel free to email me anytime-- swanhall@bellsouth.net

Erin

lynn08
Joined: May 2008
Posts: 17
May 26, 2008 12:35 pm lynn08 wrote:

hi ehall,i two just had my exchange 2 weeks ago and my left side seems much different then my right its like you said a flathamburger buns.my right side looks much better still swollen and i two had lipo and surgury under my arms they were very painful i still am taking pain meds and wonder how you are doing now and what they look like

catbert4209…
Joined: Dec 2007
Posts: 323
May 26, 2008 12:59 pm, edited May 26, 2008 09:32 PM by catbert4209 catbert4209 wrote:

I'm here, too!!  I've had my expanders in since January, and my surgery will be either on the 9th or 11th of this month!!  I cannot wait!!  One of my expanders developed a leak about a month ago, and I'm lopsided!! 

I'm having silicon breast implants put in rather than doing the DIEP.  I'm going to see how they look and hope for the best!

Take care, everyone!  Keep in touch!!

Cat 

Catbert--A positive attitude may not solve all your problems, but it will irritate enough people to make it worth the effort! (^..^)
Dx 8/20/2007, DCIS, 2cm, Stage I, Grade 1, 0/17 nodes, ER+/PR+, HER2+
lynn08
Joined: May 2008
Posts: 17
May 26, 2008 01:22 pm lynn08 wrote:

hi all, i have another question since it looks like i will have to get my l implant switched i was thinking about having lipo in my stomach done anyone has had that i would like to know how it went how much pain and if you were happy thanks lynn

catbert4209…
Joined: Dec 2007
Posts: 323
May 26, 2008 09:31 pm catbert4209 wrote:

Anne:

I think my exchange will be either the 9th or the 11th, so we should be getting this done the same week.  I hope to hear the final date tomorrow when I go back to work.

I'm actually planning on resigning following my surgery and taking the rest of the summer to get myself back in shape mentally, emotionally and physically!  This has been quite a year for all of us, and I'm giving myself a "time-out."

Please keep in contact and let me know how you're feeling!

Cat 

Catbert--A positive attitude may not solve all your problems, but it will irritate enough people to make it worth the effort! (^..^)
Dx 8/20/2007, DCIS, 2cm, Stage I, Grade 1, 0/17 nodes, ER+/PR+, HER2+
ehall
Joined: Apr 2008
Posts: 267
May 26, 2008 10:17 pm ehall wrote:

Hi Lynn--yup..my right side is perfect.  Unfortunately, my left side is still painful--a bit fuller & firmer, with some weird pains--not severe..but kinda burning & stinging sensations.  The lipo--is still painful.  I have this kinda "cord" shaped bump under my arm--which is sensitive.  I'm heading to the PS tomorrow to have my stitches removed.  I plan to discuss this with him and should know more then.  I'll let you know what I find out.  My sense is that my left side is where my lymph nodes were removed and an earlier infection caused me to have my expander removed in December and then replaced in February.  I'm hoping its just "trama" pains and will go away in time.

Other than that--I feel pretty good--a few tylenol and I'm fine.  I did put on a bathing suit today and went to the pool.  Of course, I didn't go swimming and wore lots of sunscreen...but it was nice.  I also surprised myself as to how comfortable I was with my new foobs.  My 16 year--couldn't stop telling me how great I looked ;-)

Hope things are going well for you---

Erin

lynn08
Joined: May 2008
Posts: 17
May 26, 2008 11:13 pm lynn08 wrote:

hi erin,i wanted to ask you when you had your implants but in and also if you took pain meds and how long. I take 5 vicioion a day and motrin and still have alot of tightness and weird feeling. how long did that last for you.i am glad I  found you cause it seems everyone i talk to tells me there implants never hurt and didnt have any problems, thanks again lynn

Wren
Joined: Sep 2007
Posts: 207
May 27, 2008 12:36 am Wren wrote:

Cat,

I'm having my exchange on June 11th! I am sooo excited. My pre-op is tomorrow, so I'll find out all the details (I hope) then.

I've had these expanders since last October so I am really looking forward to soft squishy boobs.

We will have to check in and say hello after our exchange!

kes
Joined: Feb 2008
Posts: 408
May 27, 2008 05:51 pm kes wrote:

Hi Ladies,

I am having my exchange surgery on June 6/08 if my Hg is high enough. I am ready to get rid of "the hard ones" and go for something soft. Nervous and excited at the same time and worried about being disappointed about the size of the new foobs. I have gotten used to these expanders and they are about a C cup. Good luck to all the June surgeries.

Kerry

ehall
Joined: Apr 2008
Posts: 267
May 27, 2008 07:54 pm ehall wrote:

Hi Lynn and others--yesterday marks two weeks since my expander exchange.  I can't tell you how excited I was...and then how disappointed I was for about 3 days.  I think the initial shock, elevated expectations, and the past year just caught up with me. My doctor warned me this morning that the breasts will change shape in the comign months (in a good way).  He showed me some massages and compression exercises--that seem to help with some of the discomfort--especially on the left side. 

As for meds...I stayed in Robaxin for about 3-4 days and then switched to tylenol.  I wanted to drive and get out & about---and couldn't do it while taking Robaxin. 

In retrospect...the implants are much more comfortable than the expanders...I am sleeping on my stomach--something I haven't done since last fall.  But they are far from comfortable.  I know time will increase the comfort.  Sports bras help...with compression and support (I even wear them to bed).

Whatever your goals--if you desire certain size--then insist on it.  I wanted to be back where I started--a full C.  I was scheduled for my exchange in early April at 650 cc.  My PS thought he could put in 550 or 600 expanders and "possibly achieve a C cup".  I fretted over the weekend and to make sure I had no regrets---I postponed my surgery for 6 weeks until mid-may.  I then went on to get 2 more fills to a very full 800 ccs.  The implants he inserted were 700 high profile--which achieved my desired results.

Today my stitches came out and I got the green light to begin walkign again---went straight to the track and almost danced around it for 3 miles.  It was a fabulous feeling!

After your exchange...if your doctor recommends it....massage, compress, and take the meds that make you feel better :-)

kt56
Joined: Apr 2008
Posts: 24
May 29, 2008 11:13 am kt56 wrote:

I was sched. for expander exchange tomorrow but PS rescheduled me to June 11th. I've read this thread and all your comments are so helpful in preparing mentally and having an idea what I can expect. I had bilateral mastectomy in Jan. 08 after receiving 2nd diag. of DCIS in right breast. (First DCIS diag. in Dec 06 with lumpectomy, SNB, radiation, Femara/Aromasin). I'm hoping I'm going to match since the radiated side has not expanded as well as the other side. So I'm looking forward to getting rid of these hard, goofy looking expanders but kinda apprehensive about the outcome.

Katie

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