I had my 3rd (and final surgical) follow up with my surgeon for an excisional biopsy (found typical and atypical ductal hyperplasias) and I asked her about genetic counseling (because I'm only 24 years old). She said it seemed like a good idea and thought that the BRCA test might be especially smart given that my father's side of the family has no women in it aside from my grandmother (who is alive and well), my sister (age 27) and I, so the genes could easily be hiding there.
But, she also said that there are almost no genetic counselors in town, so I'm kind of stuck. Does anyone know a good place I can search for one? We are still rebuilding much of the medical community here, but if there's someone in Baton Rouge or somewhere else nearby, it might be workable. It's not really urgent, but it's something I'd rather have done sooner than later. If nothing else than just to know. I can deal with information, even bad news, but I can't deal with what feels like a lifetime now of not knowing.
Kat
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wishiwere Joined: Dec 2007 Posts: 1849 |
May 14, 2008 11:12 pm, edited May 14, 2008 11:16 PM
by wishiwere
wishiwere wrote:
This link will take you to a site that you can search for one by zip code. hope it helps. http://www.nsgc.org/resourcelink.cfm When I entered Baton Rouge, 2 came up, but I had to enter 100 miles radius. It was same for me in my area. Both were about and hour and half from here :( wishiwere
Dx 9/21/2007, ILC, 1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2- |
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Msklapkin Joined: Aug 2005 Posts: 195 |
May 15, 2008 10:50 am
Msklapkin wrote:
Hi Wish You can also try website-facingourrisk.org It is a webiste specifically to deal with BRCA- you may find women in your area who can help. My oncologist worked with a genetic cousellor and she was quite helpful, so an oncologist may be another source. Good luck- I wish more BS would discuss genetic testing BEFORE our surgeries. I did mine before my axillary node dissection and chose double mastectomy with reconstruction all at the same time Susan Dx 8/8/2005, IDC, , Stage IIb, Grade 2, 1/8 nodes, ER-/PR-, HER2- |
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