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Forum IndexForum: Just Diagnosed → Topic: DCIS
« Forum: Just Diagnosed: Discuss next steps, options, and resources.
Joined: Feb 2008
Posts: 19
  • Posted on: Feb 4, 2008 10:06 pm
gigiola wrote:

Ok .. here we go.  I have a diagnoses of dcis which they kindly grade as "0" and call "precancerous".   Thing is, it IS cancer and will be treated as such.

I'll be having surgery on 2/13 .. a lumpectomy, and if all goes well, followed by Mammosite radiation therapy, if not, accelerated radiation for 16 days.

I'm another one who seems to be shopping rather a lot lately!  It's almost like I'm challenging the universe, saying . hey, I AM going to be around to enjoy this stuff!

I'm already a survivor of cervical cancer (9 years).

Ummm .. what else?  ... I'm an expat Brit who lived in Spain for 30 years and has been in Indiana for the past 3 years.  I know how to hug but can be a bit like "House"  !!!

Oh .. and the past months have been a tad hectic because my 86 years old mum was diagnosed with bowel and liver cancer in August and was operated on in October.   She is doing incredibly well but it's been hard not being there as much as I would have liked.

If it don't rain .. it freaking pours!

Gigi

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crazydaisy
Joined: Jan 2008
Posts: 1158
Feb 4, 2008 10:28 pm crazydaisy wrote:

Hi Gigi, welcome to the boards,sorry you had to come here but it is a good place to be in a time like this! Hugs go a long way so just keep taking and giving them......ohhaahh...gently tho. I have DCIS too. There is lots of info here if you follow the dcis threads. Post any questions you have as well, there are always people here to answer you. Good luck with your mom, it's hard to be that far apart when you want to help. I've had lots of wonderful ladies to talk to here so stay on board! Viv

Viv
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, / nodes, ER-/PR-
gigiola
Joined: Feb 2008
Posts: 19
Feb 5, 2008 07:38 am gigiola wrote:

Many thanks for the warm welcome, Viv.

Your handle could be refering to our dog!  She's called Daisy and certainly has her crazy moments!

For today I'm going to settle into reading mode.   I have pre-op tests on Thursday.  Everything starting to move quickly now.  Hubby seems to be dealing with this pretty well which is making it easier for me too.

Thanks again, Gigi

Catherine
Joined: Jun 2003
Posts: 5233
Feb 5, 2008 04:48 pm Catherine wrote:

Hello, sorry you had to join us but welcome.  Sorry to hear about the additional illness in your family.  That is a lot for anyone to bear.  Hang in there!

I was diagnosed with DCIS in May 2003 and I'm doing fine.  At the time I felt like I was living at the hospital with all the tests and procedures.  Now it all seems like a bad dream.

Catherine

Honey831
Joined: Feb 2008
Posts: 20
Feb 6, 2008 01:31 pm Honey831 wrote:

Hi i was just diagnosed with ductal carcinoma and im so confused about everything thats happening. i've had so many tests. and im finding it so hard to deal with.Im not sure what is the right thing to do.

Locks08
Joined: Feb 2008
Posts: 17
Feb 6, 2008 01:37 pm Locks08 wrote:

i am so sorry to hear your news... it is a whirlwind at first. one day at a time. do you know your next steps.


Dx 6/21/2006, IDC, 2cm, Stage , Grade 3, 0/13 nodes, ER-, HER2+
Honey831
Joined: Feb 2008
Posts: 20
Feb 6, 2008 02:07 pm Honey831 wrote:

ty for answering me .... all i know is im seeing a surgeon on the 14th of Feb. i guess to discuss my options. so im just being hopful right now

lvtwoqlt
Joined: May 2007
Posts: 2390
Feb 6, 2008 02:31 pm lvtwoqlt wrote:

Honey, It is a whirlwind going through the tests and trying to decide what is the best way for you to go. You need to look at the whole picture before making any decisions and weigh all the options available with what you emotionally are able to deal with.

I have a strong family history of breast and ovarian cancer and also had 2 previous abnormal biopsies for b-9 conditions that weighed heavily in my decision for bilat mast with reconstruction with implants.

When you go to your surgeon, take someone with you, have questions written down and make sure that your questions are answered. Also, ask for a copy of your pathology report. It will help in making the decisions.

Sheila

We are like tea bags, we don't know how strong we are until we were thrown into hot water. Eleanore Roosevelt
crazydaisy
Joined: Jan 2008
Posts: 1158
Feb 6, 2008 11:54 pm crazydaisy wrote:

Honey....we're all in this together. The decisions are the toughest part. Please don't rush into things to fast until you are sure about what you want to do. It's a headspinning time so find out all you can first and ask alot of questions. Shelia has great advice to about writing it all down and getting your own copies of reports. Come back and ask all you need to here too. We'll be thinking of you. Viv

Viv
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, / nodes, ER-/PR-
determinedm…
Joined: Jun 2007
Posts: 240
Feb 7, 2008 08:19 am determinedmom wrote:

Gigi, yes you will be around for a while. I also was diagnosed w/ DCIS, 2 areas. And yes, it is cancer, very early, but cancer that can be treated. I also had cervical carcinoma in situ (again very early) about 18 yrs. ago w/ no further complications. You will get a tremendous support and encouragement here. Come back often and let us know what your path report says. There are a lot of women here who are very knowledgeable and very helpful.

Sorry to hear of your mom, but glad she's doing well. Hey, if she's doing that well with bowel and liver ca, just think how you'll do.

Best wishes,
Jeanne


Dx 5/26/2007, DCIS, , Stage 0, 0/4 nodes, ER-/PR-
louishenry
Joined: Aug 2007
Posts: 206
Feb 7, 2008 08:29 am louishenry wrote:

Hi Gigi, The beginning is the worst part. All the questions, anxiety over doing the right thing. It's awful. But, every day gets better. I'm sorry about your mom. It's hard when everything falls apart at once. I had DCIS last May and am on tamox right now. It's not a problem at all, other than I don't menstruate. If you need anything, just ask. Nada

Dcis May 2007, 4mm, low to intermediate grade, no rads er / pr +. Tamoxifen September 2007
crazydaisy
Joined: Jan 2008
Posts: 1158
Feb 7, 2008 11:29 pm crazydaisy wrote:

Feeling very down tonight, don't really know why. So far I've been able to keep a strong face and felt pretty good. I feel so alone tonight and for the first time this is really getting to me. Just being teary-eyed, I guess the wait and stress of it is catching up. I don't have anyone in this town to talk with in similar circumstances, just the silence of written words to cyber space........

Viv
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, / nodes, ER-/PR-
Nantotwo
Joined: Sep 2007
Posts: 11
Feb 7, 2008 11:58 pm Nantotwo wrote:

Hi Gigi,

Welcome, and good luck with everything coming up, especially the mammosite.  I really wanted to try that but its not too common up here in Canada and my dcis area was too big and margins too close anyway, so I went the six week route with radiation.  Keep in touch and the dcis thread has great ladies on it too.  ALL the ladies on this board are helpful and really free with their stories, it helped me so much in the early days.

Viv, whats going on with you?  What is your time line like?  Do you have a date for surgery yet?  My wait for radiation was horrendous, the only complaint I have so far for OHIP.  Hope you have a faster team!

Nan

Jan 07, DCIS 9x7x3 cm, Nuclear Grade 3, Comedonecrosis, lousy margin at chest wall 0.2mm, 25 rads, 5 boosts
crazydaisy
Joined: Jan 2008
Posts: 1158
Feb 8, 2008 12:59 am, edited Feb 8, 2008 07:25 AM by crazydaisy crazydaisy wrote:
This Post was deleted by crazydaisy.
otter
Joined: Jan 2008
Posts: 1866
Feb 8, 2008 07:15 pm otter wrote:

Hey, Viv/crazydaisy--

Are you feeling any better today?  I pm'd you last night when you said you were feeling stressed.

otter 


Dx 1/14/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR-, HER2-
crazydaisy
Joined: Jan 2008
Posts: 1158
Feb 8, 2008 10:35 pm crazydaisy wrote:

Hi Nan and Otter, kinda fell into an abyss. I've since hauled my butt back out. I've left an explanation on my flippin out thread. Going away this weekend to a friends cottage on beautiful Georgian Bay, it will do me good. Talk to you all when I get back. Thanks for being there......Hugs Viv

Viv
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, / nodes, ER-/PR-
Honey831
Joined: Feb 2008
Posts: 20
Feb 12, 2008 01:15 pm Honey831 wrote:

Hi all..... im seeing the surgeon for the first time on Thursday the 14th.. im so nervous. I have no clue what shes going to or if shes going to tell me anything. Im not sure how it works if she needs time to read all the tests slides and film  or will she be able to tell me anything on Thursday.. i guess the unknown is the most frighting thing of all..im just trying to prepare myself..Does anyone know what they tell you on the first visit to see your surgeon?

Honey831
Joined: Feb 2008
Posts: 20
Feb 15, 2008 11:51 am Honey831 wrote:

ok so i went to see the surgeon yesterday and im going to need a double lumpectomy and radiation 5 days a week for 6 weeks. Im glad i got some answers to so many questions it made me feel a little better then i have been for the past month..So at least i will be on th road to recovery.Im just going to take 1 day at a time and get through this..There is 1 question i forgotto ask and im hoping someone here has the answer and please don't think im silly for asking this but..when they do the lumpectomy are there something called drains that are put there?

lvtwoqlt
Joined: May 2007
Posts: 2390
Feb 15, 2008 12:07 pm lvtwoqlt wrote:

Honey, Sorry no one responded to your first post. Your idea of taking it one day at a time is the way to do it. If you try to look down the road you can get frustrated in all that lies ahead. I have had 2 separate lumpectomies and did not have drains put in for them. It does depend on how much tissue that they remove and if they take any lymph nodes.

Sheila

We are like tea bags, we don't know how strong we are until we were thrown into hot water. Eleanore Roosevelt
Honey831
Joined: Feb 2008
Posts: 20
Feb 15, 2008 01:26 pm Honey831 wrote:

Thank you so much for answering me Sheila what you said put my mind at rest i was getting so worried about that question to i just wanna say Thank you again

crazydaisy
Joined: Jan 2008
Posts: 1158
Feb 15, 2008 01:58 pm crazydaisy wrote:

Honey.....good luck with the lumpectomies. I only had one but it was a fair size and all went really well. No drain. No pain after 1st day. Took 3 days of work with the weekend added on so 5 days to recoup because I have a heavy job. Best bet is to keep yourself wrapped tight to prevent to much jostling if you are tender, feels better that way. Let us know how it goes. Viv

Viv
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, / nodes, ER-/PR-
lvtwoqlt
Joined: May 2007
Posts: 2390
Feb 15, 2008 02:09 pm lvtwoqlt wrote:

My doctor put me in heavy-duty surgical bras after my surgery (think double layer sports bras) that helped keep me from jiggling. I had my surgeries on Fridays and was back at work on Monday (desk job). You could also use the front hook sports bras if they don't use the surgi bras for extra support. Icing the area also helps with the discomfort and swelling.

Sheila

We are like tea bags, we don't know how strong we are until we were thrown into hot water. Eleanore Roosevelt
Honey831
Joined: Feb 2008
Posts: 20
Feb 17, 2008 10:28 pm Honey831 wrote:

I can't thank you ladies enough for being here to answer my questions and making me feel so much better ...it has helped me so much just knowing there are people that are going through the same thing.Since i found out about this cancer thingy sometimes i feel like im all alone.. i have alot of family support and my husband is great but i just feel alone. it makes me feel so much better to see you respond to me with your comforting words and to share your stories with me  so thank you thank you thank you

                                                                        Honey

crazydaisy
Joined: Jan 2008
Posts: 1158
Feb 17, 2008 11:22 pm crazydaisy wrote:

Your welcome Honey, I know how you feel. This is were I come to talk about it. Your not alone....you've got all your cyber sisters. Keep in touch, we'll be listening. I have my surgery march 18......when do you go? Good luck. Viv

Viv
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, / nodes, ER-/PR-
Honey831
Joined: Feb 2008
Posts: 20
Feb 19, 2008 12:08 pm Honey831 wrote:

Hi all.... i hope this question doesn't sound retarded but here goes...Can anyone tell me the difference between chemo & radiation?

lvtwoqlt
Joined: May 2007
Posts: 2390
Feb 19, 2008 01:08 pm lvtwoqlt wrote:

Honey, this site has a series of pages that describe the treatments of radiation and chemo. http://www.breastcancer.org/treatment/  Start at this page and go to the pages you have questions about.

Basically chemo treats the whole body and radiation is targeted to a specific area.

Sheila

We are like tea bags, we don't know how strong we are until we were thrown into hot water. Eleanore Roosevelt
Honey831
Joined: Feb 2008
Posts: 20
Feb 20, 2008 11:35 am Honey831 wrote:

Thanks Sheila... i looked up site you left me and it gave me the answers i was looking for.. My surgery date is March 10th and after thats im going to need chemo and radiation so im a little scared of the unknown so im just going to have to take 1 step at a time to get better with all my family support and the support of all of you and God i have faith i will be ok..

                                                   Honey

crazydaisy
Joined: Jan 2008
Posts: 1158
Feb 20, 2008 10:39 pm crazydaisy wrote:

Goodluck Honey......I will be joining you in march for surgery.

Viv
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, / nodes, ER-/PR-
Honey831
Joined: Feb 2008
Posts: 20
Feb 21, 2008 09:56 am Honey831 wrote:

Thank you crazy daisy.. good luck to you to.. i know we will both be ok. and will be here sharing our stories with other women.. My thoughts and prayers are with you and with all of you. Please keep me posted on whats going on with you and i will do the same.Smile

Ladies keep the FaithInnocent

miracle
Joined: Feb 2008
Posts: 17
Feb 24, 2008 06:13 pm miracle wrote:

Hi All,

I'm glad I found this thread because it's relevant to what I'm going through. I was also diagnosed with DCIS is Dec. (after being on Tamoxifen for almost 5 years!). My family history is extremely strong for breast cancer which is why I was on the Tamoxifen. Anyway, I have decided to do the bi-lateral mastectomy which is scheduled for 2 weeks from tomorrow (March 10th). I can't live with this worry anymore because I have 2 kids & want to be around for a long time.

Has anyone else made this same choice with this diagnosis? It seems like most of you have opted for the lumectomy & radiation route.

I'd appreciate your feedback.

Thanks,

Miracle

crazydaisy
Joined: Jan 2008
Posts: 1158
Feb 24, 2008 09:22 pm crazydaisy wrote:

Miracle.......your not the only one who has chosen that route....there has been quite a number of ladies who have done the same. I am scheduled for a single right mast. on march 18 due to DCIS, no family history on my side. Wishing you well, we will have our surgeries 8 days apart, keep in touch.

Viv
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, / nodes, ER-/PR-

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