I was just diagnosed with dcis grade 3. I was going to have lumpectumy with radiation for the treatment but am going to talk to the doctor about a mastectomy. I also have a kidney dieses called mpgn that is very bad. It has been in remission for ten years but am scarred that if I have radiation it could come back. It makes the treatment choice very hard. I am scarred to have a mastectomy but do not want to hurt my kidneys. I think the peace of mind having a mastectomy over lumpectomy and radiation will eventully help with the anxiety at every doctors appointment that I have for my kidneys.Has any one had a mastectomy that could put my mind at ease?
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rockwell_gi… Joined: Mar 2008 Posts: 230 |
Apr 27, 2008 12:03 am
rockwell_girl wrote:
I had a mastectomy the end of Feb due to DCIS in half my breast which than during surgery found IDC also. I don't reget getting the mastecomy doing the tissue expander at the same time has helped me I almost look like my old self again. Fom me I love going to the pool and running so I knew that would be something I wanted. A friend sent me a link showing me the process of tissue expander send me a PM if you want it. Sandy/Sunshine : )
Dx 3/4/2008, IDC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
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tidepool Joined: Feb 2006 Posts: 9 |
Apr 27, 2008 12:14 am
tidepool wrote:
Hi there..I had a mastectomy seven years ago after first having a lumpectomy...I am glad I did..now I wish I had started with it the first time.But that is my case.you simply must do what you feel most comfortable with and I know that the deciding time is the hardest...once you have a treatment plan and start it, things will fall into place...we are all holding your hand. Please don't feel all alone.. |
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crazydaisy Joined: Jan 2008 Posts: 1198 |
Apr 27, 2008 12:19 am
crazydaisy wrote:
Hi Aurora I had a single mastectomy fro DCIS March 18. I don't regret it but also didn't have much choice anyway. The surgery wasn't as terrible or difficult as I imagined before hand and recovery has gone better than I expected. I have not done recon and don't know if I ever will. I can see how your decision is a difficult one but there are many options when considering mastectomy, you can have a new breast made if you choose that but kidney health and function are something that are going to affect your entire wellbeing. Something to discuss thoroughly with your Doc. Together you should know what the best approach is for you to retain optimum health overall for the longterm. Viv " The way I see it, if you want the rainbow, you gotta put up with the rain"
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, 0/1 nodes, ER-/PR- |
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auroravtj Joined: Apr 2008 Posts: 27 |
Apr 27, 2008 12:50 am
auroravtj wrote:
thank you for the responses you all have written to me already. I have a wonderfull family and great friends but talking to woman who have gone through this is so special. It helps so much. |
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Sassa Joined: Jan 2008 Posts: 363 |
Apr 27, 2008 09:37 am
Sassa wrote:
I have had bilateral mastectomies (one for cancer in breast, the other to even me out). I have no regrets. Just a note, if you have a lumpectomy, and if you have a recurrence in the breast that turns out to be invasive, you may have to have chemo. Some of the chemo drugs are not kind to kidneys. By having a mastectomy, you are reducing the chance of a recurrence in the breast. {{{Hugs}}} Dx 12/6/2006, IDC, 1cm, Stage I, Grade 3, 0/9 nodes, ER-/PR-, HER2+ |
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priz47 Joined: Apr 2008 Posts: 113 |
Apr 27, 2008 12:24 pm
priz47 wrote:
Could you post that site for others of us considering mastectomy? I would like as much info as I can get before i make a decision. D |
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rockwell_gi… Joined: Mar 2008 Posts: 230 |
Apr 27, 2008 12:47 pm
rockwell_girl wrote:
if your talking about the link I mentioned here it is: http://myselftogetheragain.org/process.htm I did also just post it on the reconsruction site earlier. Sandy/Sunshine : )
Dx 3/4/2008, IDC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
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auroravtj Joined: Apr 2008 Posts: 27 |
Apr 27, 2008 06:50 pm
auroravtj wrote:
it is unreal how this (dcis diagnoses) consumes my thoughts. I was trying to take a nap this afternoon(did not sleep good last night) and all I did was lay there and think about it...am I making the right treatment choice? Whats easiest on my body(kidneys included)?. I asked my kidney doctor (he called me) and the telephone conservation lasted about 1 min. Not alot of information there.Very frustrating. Am going to try and talk to my surgon tomarrow.Alot of questions going on in my mind and its hard to have the doctors not make you feel like they are short on time.(and I'm sure they really are)oh well... thanks for the comments and encouragement! |
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Shirlann Joined: Feb 2002 Posts: 6501 |
Apr 27, 2008 08:59 pm
Shirlann wrote:
Hi honey, why don't you get some anti-depressants? They will help you with this ruminating thinking. They are not addictive, although you need to get off them slooowly. I am sure you have been told that you are in no danger of dying. This is the winning lottery ticket of diagnoses. If you want more info, get Dr. Susan Love's Breast Book, read only the parts about DCIS, the other chapters might scare you. Knowledge is power. Gentle hugs, Shirlann |
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auroravtj Joined: Apr 2008 Posts: 27 |
Apr 27, 2008 09:10 pm, edited Apr 29, 2008 08:02 PM
by auroravtj
auroravtj wrote:
This Post was deleted by auroravtj.
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auroravtj Joined: Apr 2008 Posts: 27 |
May 15, 2008 10:26 pm
auroravtj wrote:
well, just waiting for the surgery date. Talked to my surgen and had explained what to somewhat expect with a mastectomy.Will be glad to be on the other side. The waiting is hard. |
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