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Topic: mass grew so fast!

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Choctaw, OK
Joined: May 2008
Posts: 164
  • Posted on: May 17, 2008 08:10 am
gramma23 wrote:

I have my mamograms regularly and I went because I felt a lump in 2007 but they said they did not see anything and so they did an ultra sound, still nothing. They said it was mucus membrane so I figured they were right since I have fibromyalgia. Then just after Christmas 2007 I felt another one in a different place but it was already big. I thought it was just hardening membrane again so I waited and went in for a mamogram in May after my armpit got sore and swollen. It was a mass and they did an ultra sound and of course you can see it real good. I had a needle biopsy and it showed cancer but now I have to wait until the 23rd of May for an MRI. If it grew that fast why are we waiting? It is not growing as fast but this morning I noticed it does feel bigger and firmer. It hurts now where it didn't before but I am still bruised from the needle.

Has anyone else had one come up this fast before?

gramma23

Posts 1 - 15 (15 total)
NancyD
New City, NY
Joined: Feb 2008
Posts: 1213
May 17, 2008 09:04 am, edited May 17, 2008 08:44 PM by NancyD NancyD wrote:

I went for my semiannual gyn exam in early December and my dr did a manual exam, didn't feel anything out of the ordinary, and gave me a script for my regular screening mammo. I waited until after the holidays to make the appt. and right after I did, I felt a thicknening over my nipple and something firmer under that righ tbehind the nipple.

The process of biopsying it took a month because they went from screening mammo to ultrasound and diagnostic mammo, and finally suggested it be biopsied, which needed another script. Every thing took a week to do or wait for results or an appt.

The biopsy in February diagnosed it as IDC and measured it at 3.4 cm. Moving forward, I had a PET scan in March just before starting neoadjuvant chemo which measured it at 6.4 cm. Either it had almost doubled in size in a month, or the ultrasound measurement was way off. 

Aggressive breast cancer is usually found in younger patients, but I guess my "young at heart" attitude bought me more touble than I wanted. The upside is that this cancer seems to be very responsive to the chemo. I've had three doses and the tumor has virtually disappeared. An MRI I had last week did not find it visible anymore. Still, I'm having surgery to remove what tissue is left to forestall a recurrence.

AnneW
Boulder, CO
Joined: Oct 2002
Posts: 2103
May 17, 2008 09:15 am AnneW wrote:

gramma,

I'm sorry you're going through this. It's really scary.

HealtherBLocklear will surely post here for you. She's busy gathering up her pre-cancer life in North Africa, where she was working when her breast cancer grew to "alien" proportions in a very short period of time. It was what we call "triple negative" cancer--hormone and Her2 negative.

Do you know anything about hormone receptors on your cancer yet?

I imagine they want the MRI to determine the extent of the cancer, and to see if it's in the other breast anywhere, too. But I share your concern about the growth rate and the time involved. However, not all tumors that grow fast are more dangerous than others.

Hang in there. Consider getting a surgery date while you're waiting for the MRI. At least you'll feel like you're doing something proactive.

Hugs,

Anne

2002 IDC stage 1, grade 1, rads & AI
Dx 9/18/2007, ILC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-
HeatherBLoc…
Joined: Dec 2007
Posts: 1070
May 17, 2008 09:25 am HeatherBLocklear wrote:

Hi Gamma,

As AnnW says above, your story sounds a lot like mine. If you want to go check out the triple negative board, you'll find tales galore of women whose lumps grew overnight, taking them (and their doctors!) completely by surprise.

Mine was misdiagnosed as a benign condition at Christmas, and it wasn't until I developed a very swollen and painful lymph node in my armpit that I grew alarmed enough to fly home for a second opinion. It was cancer, and I'm now undergoing chemotherapy to shrink the tumor and disarm any floating cancer cells in the lymphatic and circulatory systems.

The bottom line is that although one can wait a bit for a definite diagnosis and the beginning of treatment, the quicker one starts chemo (if that's what your medical team decides to do first), the better it is. I imagine they'll either start you on chemo or schedule surgery the moment the MRI results are in. If you can get your doctor to commit to a course of action as soon as he's got your results in hand, you should be fine with this timeline. However, don't let them jerk you around beyond the end of the month.

Keep us posted; we all care. If there's anything else we can do, just ask.

Love,

Annie

PS: Great big camel smooches to AnnW!

maggie23
Joined: May 2008
Posts: 5
May 17, 2008 09:41 am, edited May 17, 2008 09:43 AM by maggie23 maggie23 wrote:

I can't tell you how happy I am to have found this thread. I met with my surgeon yesterday. Mine also appeared out of nowhere and seemed to grow so fast!

The lump is between 4 - 5 cm, and I was so surprised to hear that she is recommending chemo first, then surgery. I was terribly worried, but now I read, from you all, that this is a good choice of treatment, and successful. Thanks!

I see an oncologist Wednesday, now I just want to get this treatment started.

Shirlann
Joined: Feb 2002
Posts: 6681
May 17, 2008 06:37 pm Shirlann wrote:

Hi Maggie and Gramma, welcome to this site.  There are wonderful women here who will help you on this journey.  Keep in mind that the large majority of us will be just fine.  I am 9 years post treatment and okay.  Chances are excellent, you will both be okay too. Chemo first is not unusual, it shrinks the tumor and also lets them know what combo of drugs works best for your particular case.

Post often, we are your new best friends!

Gentle hugs, Shirlann

maggie23
Joined: May 2008
Posts: 5
May 18, 2008 08:26 am maggie23 wrote:

Thank you Shirlann. Yesterday after my post we went to my four year old grandaughter's birthday party, and had a great time! My husband and I also spent time tending to our 9 week old grandson so his mom and dad could concentrate on the party. After the party I told our three kids (adults) and daughter in law. I hated doing it right after the party, but wanted to tell them together and in person. Our youngest lives across the country, so this was the best opportunity since she was home for the birthday and to meet her new nephew. They were great, and very supportive. I'm lucky because although my daughter is so far away my daughter in law is the very best!

Anyway, it all reminds me to stay focused and positive- I have a lot to be thankful for and look forward to.

As a social worker I work with social workers, psychologists etc., so the support at work will be constant and welcome, but I already know that the support I get from this site will be my lifeline.

HeatherBLoc…
Joined: Dec 2007
Posts: 1070
May 18, 2008 08:57 am, edited May 18, 2008 09:12 AM by HeatherBLocklear HeatherBLocklear wrote:

Hi Maggie and Gramma,

Just checking in to see how you're both doing while I'm between packing boxes and paying overdue bills here in North Africa. We'll be out of here Wednesday; whew!

Maggie, I'm glad to hear you've informed your family, and that you're being surrounded by lots of support and love. Even so, what you say about our site here is true. What's especially good about BC.org is that we not only get support, encouragement, and tons of affection from one another, but also the very best in advice and practical tips on everything from how to deal with treatment to which options to choose. We have some very knowledgeable women who post here frequently, people who have done extensive research on every possible topic connected to breast cancer, and who are willing to share what they've learned with the rest of us.

You are safe among us, and we really care about you.

Love,

Annie Camel Feet

jdash
long island, NY
Joined: Sep 2006
Posts: 937
May 18, 2008 09:04 am jdash wrote:

i had the fastest growing tumor or someone missed it the year before with my mammo sono

i had gone for my yearly mammo and sono- the mammo picks up NOTHING! SAID MY BREAST WAS CLEAR  the sono sees something (now i was well able to feel it)  it says it was like 4 cm

now the MRI they gave me after that shows a tumor way bigger than that !!! how could it grow so fast in a year and how could a mammo miss it  they say i had dense breast tissue but thats ridiculous! it is also triple negative so i am seeing the common thread here.......  i dont believe that the year before there was nothing there   i believe the screening and the doctor MISSED something 

life is not measured by the breaths we take but the moments that take our breath away....
Dx 4/22/2006, IDC, , Stage IIIb, Grade 3, ER-/PR-, HER2-
HeatherBLoc…
Joined: Dec 2007
Posts: 1070
May 18, 2008 09:09 am HeatherBLocklear wrote:

Hi Julie,

I don't think anything was missed. I'm convinced these monsters really do grow overnight. One day they're not there; the next day they have taken over your boob. You'll notice that the triple negative women whose cancers were diagnosed early were all diagnosed by a stroke of incredible luck.

Annie Triple Camel

formygirls
San Diego, CA
Joined: Mar 2008
Posts: 224
May 18, 2008 09:46 am formygirls wrote:

Maggie,

Welcome. My onc also said to me she never saw a tumor grow so fast. Mine was misdiagnosed twice as a benign condition last year at 1cm. This Feb finally diagnosed as cancer at 2 cms by 2 u/s. Two weeks had a biopsy and the surgeon took out a 7 cms lump and left a lot of cancer inside because it had spread extensively. The MRI three days later showed cancer upto the skin and the chest. I am young and the dr keeps saying it is because I am triple negative and only 36. I am also getting neo adj chemo and so far the remaining tumor has only shrunk by 2/3. It has not gone into remission yet. I think my case is unusual though--my k67? factor in the biopsy was 60% which again is super high.


Dx 2/22/2008, IDC, 6cm+, Stage IIIb, Grade 3, ER-/PR-, HER2-
msphil
Philadelphia, Pa
Joined: Apr 2007
Posts: 90
May 18, 2008 08:58 pm msphil wrote:

Hello sweetie, I went through a mass growing really fast also, I was planning my wedding to my loving husband and I felt a lump one morning while showering, call fiancee at the time he came home and when he and I felt it again we agreed it came up really fast for when making love he didn,t feel it either. I has a L mastectomy, but the good news is i,m 15 yrs this December cancer free Praise the Lord, pray to God and command the cancer to leave your body in Jesus name as i did, God will see U through if U believe and call on HIM, stay Positive, and always have HOPE. I will pray for U and for us all. msphil

msphil
Philadelphia, Pa
Joined: Apr 2007
Posts: 90
May 18, 2008 08:59 pm msphil wrote:

Hello sweetie, I went through a mass growing really fast also, I was planning my wedding to my loving husband and I felt a lump one morning while showering, call fiancee at the time he came home and when he and I felt it again we agreed it came up really fast for when making love he didn,t feel it either. I has a L mastectomy, but the good news is i,m 15 yrs this December cancer free Praise the Lord, pray to God and command the cancer to leave your body in Jesus name as i did, God will see U through if U believe and call on HIM, stay Positive, and always have HOPE. I will pray for U and for us all. msphil

gramma23
Choctaw, OK
Joined: May 2008
Posts: 164
May 19, 2008 07:36 am gramma23 wrote:

Well this has been a crazy week and weekend. We lost a friend with a heart attack and now a brother in law also heart. We had a grandchild stranded in a town a ways away with a blow out on our trailer no spare. He called after midnight and finally got my son there to help the next day but the grandson had an asthma attack and had to go to the hospital emergency because the pharmacy would not fill his meds since he had never gotten them in that town. He is better and I have to go get his meds filled today. I swear if it is not one thing is another around here. I still have not told the kids because of another grandson's graduation this Thursday and after that I will. I just won't know much until I have the MRI and I want to know some course of action so they will feel like we are in control. My daughter is in the process of building a house and that has taken them all winter to get started but at least are making some progress. I worry about her handling it most because she has so much going on in her life. Also the only girl of the family so the doc said she needed to be on the watch for it too. I keep thinking what could have caused this to come so fast. Is it my microwave? It is old or is it something else. I do feel better knowing I am not the only one whose came up so fast. I guess I just thought mine was not normal. I am ready to get this started for sure. No one in my family has had cancer but now my brother has had throat/tongue cancer and is cancer free now but still having side effects from radiation. I will certainly keep posting because I need all of your info about this.

gramma23

AnneW
Boulder, CO
Joined: Oct 2002
Posts: 2103
May 19, 2008 10:50 am AnneW wrote:

gramma,

Whew, what a weekend! With stuff like that going on, it certainly was a distraction from cancer! You'll find the right time to tell your family. There is no "perfect time" so just do it once you know more from the MRI.

We're here to guide you through this, every step of the way, and beyond.

anne

2002 IDC stage 1, grade 1, rads & AI
Dx 9/18/2007, ILC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-
leaf
Joined: Dec 2005
Posts: 3188
May 19, 2008 12:16 pm, edited May 19, 2008 12:19 PM by leaf leaf wrote:

Hi gramma23- I'm so sorry you are going through this. What a mess!

Most (about 70%) of women who get breast cancer have *no* obvious reasons to get breast cancer (besides being a woman).

I know you are in shock, and want to find a reason why this happened to you. Many women here have lead very healthy lives, yet get breast cancer.

Many women go through shock when they are first diagnosed.


If you are really interested in microwaves or other environmental factors, here are some links on this site. http://www.breastcancer.org/risk/environmental/ask_expert/2005_08/index.jsp

Heating plastics may be an issue, but there is NO human data. The vast majority of people in
the US have eaten food microwaved in plastic, and not all of these people have breast cancer. But we do not know the risk data.

http://med.stanford.edu/news_releases/2008/april/feldman.html http://www.breastcancer.org/risk/environmental/ask_expert/2005_08/question_15.jsp

You will have cyber companions all the way through this journey.

If you're going through hell, keep going-Winston Churchill

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