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Topic: Husband wants to stop Tamoxifen

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Joined: May 2007
Posts: 11
  • Posted on: Jun 14, 2007 08:18 am
tammy1964 wrote:
It' been two months since Donald started his Tamoxifen and the mood swings are getting too much. Being crusty is one thing but the depression is overwhelming. We know it's the pills and he doesnt want to take antidepressants. He knows the cancer will spread if he stops the tamoxifen. We go see the Oncologist in two weeks to see if it's even working. Knowing that we are only at the beginning of our journey and he needs the tamoxifen for five years just makes it harder. Ladies I know you all chuckle and say now men know what we go through but it's not his fault or choice. Were just haveing a bad day.
Posts 1 - 13 (13 total)
sschmidt
Joined: Oct 2006
Posts: 160
Jun 14, 2007 08:29 am sschmidt wrote: Would he rather take a chance on his health rather than take antidepressants? I am taking 10mg Paxil and it has made all the difference in depression. Is it the sexual side effects that he is not wanting? There are different types that don't effect the sexuality.
tammy1964
Joined: May 2007
Posts: 11
Jun 14, 2007 08:40 am tammy1964 wrote: Thanks for your quick response, the tamoxifen took care of his sexual feelings. We think the traumatic stress of it all killed his sex drive too(thank god our relationship will survive that)He doesn't want to take one pill to take care of the other. I will talk to him about the Pixel. I know deep down he doesn't really want to stop the pills, he loves life too much. Thank you for your suport, It is hard being strong for both of us when he is so down.
tammy1964
Joined: May 2007
Posts: 11
Jun 14, 2007 09:45 am tammy1964 wrote: I just finished looking up side effects on Effexor and Paxil, WOW!!!! Talk about a whole new ball game! I'm afraid for both of us.
momto4girls…
Joined: Feb 2007
Posts: 166
Jun 14, 2007 01:50 pm momto4girls wrote: My onc put me on Effexor for hot flashes. Not only did it help with those, the mood swings went away also. Within 2 weeks, DH said "welcome back wife"
LisaAlissa
Joined: May 2007
Posts: 193
Jun 14, 2007 02:45 pm LisaAlissa wrote: Tammy,

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<font class="small">Quote:</font>

We know it's the pills and he doesnt want to take antidepressants.


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Do you know why he doesn't want to take anti-depressants? Essentially, as you know, tamoxifen has affected his neurochemical balance (along w/ a number of other symptoms).

If Donald wasn't depressed before he got BC (and started taking Tamoxifen), he shouldn't think of any medication he needs to take as an "anti-depressant" (since it isn't to deal with a primary depression)...rather (in context) it is "side-effect controller." And BTW, be sure to ID all of the adverse side effects he is dealing with...it is possible that his oncologist may be able to balance the effects of the side-effect control medication to control all (or at least several) of the side-effects he is experiencing. I'd like to think that you and Donald don't need to wait out the 5 years before you can be close again...

HTH,

LisaAlissa
Kmb50
Joined: Jul 2006
Posts: 958
Jun 19, 2007 03:57 pm Kmb50 wrote: He can not take Paxil when on Tamox. It interfers with the metabolism. Beth
SandyAust
Joined: May 2005
Posts: 423
Jun 20, 2007 12:29 am SandyAust wrote: Hi Tammy,

I am so sorry that you and your husband Donald are going through this. It is bad enough having cancer, let alone cancer that mainly effects women. Our emotions can be so raw at this time and it must be difficult to be the butt of jokes when you are asking for help.

A litte about me. I am 39 and was diagnosed with node negative breast cancer 3 years ago. I am taking tamoxifen. My mother also had breast cancer 14 years ago. Unfortunately she just passed away from melanoma. I think this is why I am on this forum as I am worried about my sons given the family history.

In answer to your question yes I think tamoxifen does affect you mentally. I don't feel as sharp as I used to. However I also think stress, PTSD and depression would also lead to difficulty in making decisions. Yes Paxil does not mix well with breast cancer but other anti-depressants do. I personally take Celexa.

I so sorry you were both having a bad day. Although it is perfectly understandable.

Take care. I am thinking of you both.

Sandy
Peter
Joined: Jun 2007
Posts: 1119
Jun 20, 2007 03:10 am Peter wrote: Post deleted by Peterj
badbabe56
Joined: Aug 2005
Posts: 99
Jun 23, 2007 08:54 pm badbabe56 wrote: whether it be male or female side effects can be horrid. It was suggested I went on effexor and I too researched it, I did not like the side effects but I had to do something re the mood swings and night sweats, effexor has worked for me, and it is obvious when I forget to take it. I wish Donald well, life with bc just vacumns as our darling gary would say lol, peter seeing the koala made me homesick. Hugs to everyone suffering xoxoxoxo
betsy43
Joined: Mar 2007
Posts: 126
Jun 24, 2007 11:49 am betsy43 wrote: Tammi,

As I just started my Tamoxofen yesterday, just wanted to touch base and send my best wishes to Donald. It is hard
for women with breast cancer, but it must be even harder for men. Please tell him that anti-depressants can be a real boost for different health problems and as such should not be shyed away from. If he was suffering from diabetes, for instance, he shouldn't refuse insulin. The Tamoxofen can alter many things in his system. I don't know how my taking it will affect me with SE's but if I
get bad reactions there are medicines for that and I will
relie on them. Please tell Donald to HANG IN THERE, you will both be in my prayers. Please keep us posted. We care.

Hugs,
Betsy43
ozzie2
Joined: Jan 2007
Posts: 921
Jun 24, 2008 08:26 am, edited Jun 24, 2008 08:28 AM by ozzie2 ozzie2 wrote:

Tammy how about asking the Onc if he can take Arimidex or Aromasin ? no harm in asking, or Femera also..

good luck

oz

DCIS and IDC 96. ER/PR + HER2- bone skin mets06 ,Lung mets May08
Westie
Joined: May 2008
Posts: 39
Jun 25, 2008 11:07 am Westie wrote:

Hi, I'm here to say that I have been on 80mg Paxil for 10 years.  It saved my life and took away my depression.  Any se last about a week then go away.  I am on dose dense AC right now, followed by 4 rounds Taxol, then Tamoxofen.  I fully intend to remain on Paxil, unless Dr. advises against.  Than I shall switch to another antidepressant.  Do not fool around with depression.  Untreated, it has a 15% mortality rate.  There is no shame in taking pills for a chemical imbalance, no matter what caused it.  Having cancer is bad enough without beating ourselves up for being depressed.  If this were an illness where people could just 'pull up their socks', they would.  But it isn't and it responds well to medication.  Positive thoughts to you and yours, Tammy. 


Dx 3/22/2008, IDC, 2cm, Stage IIIb, Grade 2, 0/17 nodes, ER+/PR+, HER2-
Larry63
Joined: Dec 2004
Posts: 189
Jun 25, 2008 12:57 pm Larry63 wrote:

Dear Tammy,

I've been taking tamoxifen since Dec. 2004. The first couple of months were pretty tough but then the side effects gradually eased. There was no one day when I felt better but I did notice gradual reduction in side effects by the end of the fourth month of taking tamoxifen. I don't like the side effects but I feel I need to continue taking tamoxifen for the recommended 5 years to obtain the reduction in possibility that tamoxifen provides of getting a life threatening recurrence of breast cancer.

I'm taking tamoxifen as adjuvant therapy which means that is there is no detectable breast cancer in my body but tamoxifen is recommended as a preventative therapy. You say that you are expecting your husband's oncologist to tell him if it is working. I'm assuming that your husband is taking tamoxifen as adjuvant therapy too, in which case there is no way that any doctor could tell you that it is working other than not finding evidence of active breast cancer. If I never have another occurrence of breast cancer, I won't know if that is due to the chemo, the radiation, the tamoxifen or that I would not have had breast cancer again without any of these treatments. I decided to take all recommended treatments to give myself the best possible chance of not having another occurrence of breast cancer which could be a lot harder to treat than the first occurrence.

4 year male breast cancer survivor, formerly Gary224
Dx 4/30/2004, IDC, 2cm, Stage II, Grade 2, 1/8 nodes, ER+/PR+, HER2-

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