Topic: to scared mom of 2

Hi there,

I just read your post in another section about your treatment plan  -- lumpectomy May 15, chemo, then rads.  I live in Toronto and just wanted to say that I am in the midst of a very similar treatment and I'm really sorry you have to join the club.  I had my lumpectomy on Dec. 18, started chemo in Feb.  I did 4 A/C and have done 1 out of 4 Taxol.  I started Herceptin with the first Taxol and will continue that for a yr.  After the 4th Taxol is done, I get 21 blasts of radiation.  I lost my hair about 14 days after the first chemo.  So far, that's the worst part for me.  I find the daily reminder of looking in the mirror and seeing a bald head upsetting.  But I wear my wig and try to get on with it.  I also try to remember the hair loss is only temporary.  I also have two sons, ages 6 and 8.  It is a very scary time, filled with uncertainty.  But you will get through it.  Re: what to tell the kids - because of their ages, we decided to avoid using the c-word when telling them about my illness.  We told them I had something growing inside me that I had to have taken out in an operation.  For chemo, we told them I had to take some very strong medicine to make sure the growth wouldn't come back and that the medicine would make me very tired and it would also make my hair fall out.  We assured them that it would grow back, and tried to make it seem as normal as possible.  They seemed to take it well.  Every once in a while they ask me when my hair will start growing back.  I sure wish I knew!

In terms of coping, try to take it really easy after your lumpectomy, do the exercises they give you to avoid lymphedema and get some comfy sports bras to wear.  For chemo, take all the anti-nausea meds they give you - don't try to tough it out.  Accept the fact that you will likely not have your usual energy and just do what you can.  Also, keep on this site for advice.  There are lots of wise women here who can help.

All the best,

Lisa