This is so funny for me to write. I've always been the "anti-drug" person. But at this point, I've got so many chemicals running through my body, I figure..... what the hell?
On my third day of Lexapro for depression and tolerating it well. A bit of drowsiness in the morning seems to have gone away as well as a slight headache. So I think I'll be staying on this med. No benefits yet, but I understand it takes a few weeks.
Until then, I'm also taking Xanax (usually a 1/2 pill during the day, a whole one before bed) to help with panic attacks.
What I can't do is sleep. I'm working on 4-5 hours of interrupted sleep. Sleep an hour, wake up and panic for an hour.... that kind of thing.
I'm also going to start having to take Decadron once a week before my Taxol treatments starting on Wednesday which I KNOW will mess up my sleep.
So.... long story short, I'm going to call my onc. and ask for a sleeping pill.
Ambien and Lunesta seem to be the most popular. Any suggestions?
Abbi
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shrink Joined: Jun 2007 Posts: 929 |
Sep 17, 2007 10:12 am
shrink wrote:
My experience with Lunesta is that it works for 6 hours or so but the metallic taste made me discontinue. Ambien worked great in terms of falling asleep quickly but lasted about 5 hours. Also, I had many nightmares when taking Ambien and short term memory problems. So, I take Ativan .5 or 1 mg at night which also lasts for about 5 hours although I wake up numerous times with head sweats. Sometimes I grab a nap during the day. You're right, antidepressants take several weeks to be fully effective. Hope you're feeling and sleeping better soon. |
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TenderIsOur
Joined: May 2007 Posts: 4,340 |
Sep 17, 2007 10:46 am, edited Mar 19, 2008 12:49 PM
by TenderIsOurMight
TenderIsOurMight wrote:
Hi Abbi,
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FitChik Joined: Sep 2005 Posts: 4,817 |
Sep 17, 2007 11:28 am, edited Sep 17, 2007 11:30 AM
by FitChik
FitChik wrote:
I have tried them all and can only tell you of my experiences. I become addicted very easily and so, for many, these will not apply. Both Xanax and Valium worked well for me, but only for 3-4 hours at a time. I eventually became addicted to each of them (at different times) and had to increase the dosages until I needed way too much around the clock and needed to detox and get off of them. Not a pleasant experience. During bc tx and following, when I started an AI, I again had sleeping problems (I had none during chemo and slept really well throughout that time). My onc prescribed regular Ambien and it wasn't long-acting enough, so I tried Lunesta. It worked a bit better, but I had headaches the next day and also experienced the bad taste in my mouth. Again though, after a time, I needed more and didn't want to go that route. So she prescribed Ambien CR and that did the trick. I again had a tendency to become physically addicted and if I took it for several nights in a row, I'd have actual physical withdrawal symptoms by late afternoon. So I was very careful about taking it and actually found that alternating it with nights of taking 2 Benadryl worked well. Eventually, I adjusted so well to the Aromasin, that my insomnia seemed to almost disappear. Recently, my doctor prescribed Lexapro and that has made me sleep even sounder at night. I still take the Benadryl though and it hasn't presented any problems. So....maybe you can get something useful from my story. I hope that you find your answer and can certainly empathize with your sleep issue. If there's one thing we'd like for respite from this bc nightmare, it's the bliss of sleep! ~Marin "The challenge is in the moment, the time is always now." ~ James Baldwin
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Harley44 Joined: Jul 2007 Posts: 4,181 |
Sep 17, 2007 12:01 pm
Harley44 wrote:
Abbi, Years ago, I took Ambien, and it helped me. I was afraid to take too much, so I only took 1/2 tablet, and I only used it occasionally, but it really did seem to help. Let me know which one you use, and let me know how you do with it... Good luck! Hugs, Harley |
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LottaQuilts
Joined: Jul 2007 Posts: 208 |
Sep 17, 2007 12:52 pm
LottaQuilts wrote:
I have .25 mg Xanax. I've been taking 1/2 during the day and a whole one at night. I don't have trouble falling asleep, it's the staying asleep and then I wake up in a panic, even though I'm still "under the influence". Maybe I'll try 2 at night. I just started taking the Lexapro 3 days ago. No real terrible side effects (slight headache and a little drowsiness during the morning). No real benefits yet either (I understand it'll take a couple weeks). Talked to my onc. this a.m. and she wants me to just hang in there a few more days before I take a sleeping pill. She doesn't want to introduce too many new drugs at a time, which I can understand. She also said that the Lexpro should help with my sleep problems as well.... maybe I just need time to let it kick in. In the mean time, I'll be thinking of you, Harley....I have the same sleep problems. When I'm lying there awake in the middle of the night I'll think of you.... probably doing the same thing! Abbi dx 3/15/07, lump. 5/15, 1.4 cm; ER+; 1 of 3 nodes+; A/Cx4; Taxol x12; 3rd gen survivor but BRCA neg (go figure)
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Harley44 Joined: Jul 2007 Posts: 4,181 |
Sep 17, 2007 05:08 pm
Harley44 wrote:
Abbi, It makes sense that you should not add too many Rx's at once. I have been taking Effexor XR for abut 2 months, so maybe I could add the sleeping meds. without too much trouble. I was told to take Effexor XR during the day, not before bedtime. My dr said it might keep me up at night. I don't know if he even knew what he was talking about, though. The Effexor XR does seem to help my moods, though. The only thing it didn't help with was the hair loss. I was SO depressed from the hair loss!! After my mast., I was taking percoset, and it made me feel drowsy, but I would just nod off, and wake up a few minutes later. I finally stopped taking it, since it wasn't really helping that much. I'll be checking to see how you are doing... Hugs, Harley |
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LottaQuilts
Joined: Jul 2007 Posts: 208 |
Sep 18, 2007 08:20 am
LottaQuilts wrote:
((Tender))..... thank you sooooo much. Took 2 Xanax (.5 mg) at 10:00 last night and crawled in with my book. By 10:30 my eyes were heavy. Slept until 3:00, woke up feeling calm and went right back to sleep until 5:00 when DH gets up. Felt GREAT to finally get some rest. Funny, I figured out on my own that 1/2 a pill during the day took the edge off but allowed me to function (drive a car safely, etc.) Never occurred to me to take 2 at night - DUH! I'll probably still get the Rx for a sleeping pill from my onc. just in case I need it, but for now the Xanax routine seems to be the answer! dx 3/15/07, lump. 5/15, 1.4 cm; ER+; 1 of 3 nodes+; A/Cx4; Taxol x12; 3rd gen survivor but BRCA neg (go figure)
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Harley44 Joined: Jul 2007 Posts: 4,181 |
Sep 18, 2007 05:15 pm
Harley44 wrote:
Abbi, Glad to hear that the Xanax is working for you. I had my 3rd TC tx today. I guess my onc was in a good mood, so maybe he's taking his medicine today... Anyway, he gave me a Rx for Ambien, just the regular Ambien. I guess it worked ok, but I took it MANY YEARS AGO, so I am not sure how well it will work. I'll try it and see. The newer Ambien CR is supposed to help you get to sleep and stay asleep... Well, I'll be thinking of you, and praying that we can sleep better. Hugs, Harley |
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b445 Joined: Nov 2005 Posts: 2,395 |
Sep 18, 2007 10:30 pm
b445 wrote:
I've been taking the ambian sin dx in 10/05. some nights it worked better than others. I've also tried benadryl. it worked for a while then did just the opposite, it wired me! I know take the ambien, gabapentin and oxycodone and sleep most of the night. However I told my hubby that I am not responsable for anything I say after I take them! Guess I've had many a conversation with him that I simple do not remember! Good luck and I hope you get some sleep Smile you will surely make someone day!
Dx 4/24/2007, Stage IV, Grade 3, 0/2 nodes, mets, ER-/PR-, HER- |
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peachy49 Joined: Jul 2006 Posts: 575 |
Sep 19, 2007 07:40 pm
peachy49 wrote:
Abbi, I have had extensive experience with the anti-panic meds. In my 30's (now 50), I started getting true up panic attax. I didnt know what they were, and my doc just blew me off. One day I went to his office in the middle of the episode and wouldn't leave until he saw me. Finally he prescribed Xanax 0.25mg and I worked up to 0.5mg 2x a day. I have been on Xanax at bedtime since at 1mg. It still takes the edge off the stress and helps me sleep. What I will not take is Ambien or other sleep aids. Years ago there was a drug called Halcion for sleep. Well, withdrawal from that was a nightmare, and I have never been comfortable taking sleep aids again. JMHO. On Ambien, I found myself getting up at night and not recalling it. My husband does the same (he takes Ambien regular 10mgs). He even cooks and doesn't remember it!!. I think its different for everyone, but if your severly lacking sleep, its worth a try for a few days or wks. I do take antihistamines for allergies, so if your taking those, you have to be careful with other things that can add to drowsiness. In the meantime, I will wish you sweet sleep.. Blessings.. ¤PeachyMarie§¤
Dx 8/31/2006, IDC, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER- |
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LottaQuilts
Joined: Jul 2007 Posts: 208 |
Sep 20, 2007 03:51 pm
LottaQuilts wrote:
Back from a tx today.. Onc. gave me something called Restoril. Said it'll work just as well but is not as expensive since it's not "sexy" with all the nice TV commercials and all. Anyone ever try it? Only thing I need to worry about is addiction to the stuff which he says is a problem with all sleep aids, so I'll be using it sparingly. Abbi dx 3/15/07, lump. 5/15, 1.4 cm; ER+; 1 of 3 nodes+; A/Cx4; Taxol x12; 3rd gen survivor but BRCA neg (go figure)
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Harley44 Joined: Jul 2007 Posts: 4,181 |
Sep 20, 2007 04:57 pm
Harley44 wrote:
Abbi, I have never heard of Restoril... I'll look it up later...
I haven't used the Ambien yet, even though I had trouble getting to sleep last night. Once I got to sleep, I seemed to stay asleep ok. Also, I didn't want to take something that may interfere with my regular bathroom breaks, since I just had the chemo on Tuesday, and I want to get it out of my system as soon as I can... Please post and let me know how well that works! Sweet dreams! Harley |
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LottaQuilts
Joined: Jul 2007 Posts: 208 |
Sep 21, 2007 09:13 am
LottaQuilts wrote:
Well, I didn't take my sleeping pill yet either. I decided to try last night w/o since I just had chemo yesterday and had all kinds of chemicals floating around in me already. Plus a friend of mine warned me that the Restoril is an old tried-and-true sleeping pill but that it'll probably give me a "hangover" kind of effect in the morning. She said Ambien and the like let you wake up "clean" but, in her experience, people and still drowsy on the Restoril. I have kids to get up and off to school and things to do....and I'm tired enough during the day w/o adding to it. Typical of this particular doctor (who I don't like too much), he doesn't give you what you ask for. Abbi dx 3/15/07, lump. 5/15, 1.4 cm; ER+; 1 of 3 nodes+; A/Cx4; Taxol x12; 3rd gen survivor but BRCA neg (go figure)
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Harley44 Joined: Jul 2007 Posts: 4,181 |
Sep 21, 2007 11:09 am
Harley44 wrote:
Abbi, I guess we'll be suffering a little longer... I remember when I tried Ambien several years ago... I was so afraid, I only took 1/2 pill... and I only used it a few nights! Funny, now look at all the drugs that are in my system! lol Well, I am sure we can compare notes when and if we take the sleep aids! Sweet dreams! Harley |
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sue_blue Joined: Sep 2007 Posts: 272 |
Sep 22, 2007 02:36 pm
sue_blue wrote:
I've used Restoril and it works the best for me. Gives me 6-7 hours of sleep. Ambien only gives me 2-3 and I have reactions to the ant-depressants. Of the different meds for sleep that I have tried, Restoril gives me the best results. Susan
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LottaQuilts
Joined: Jul 2007 Posts: 208 |
Sep 24, 2007 07:29 am
LottaQuilts wrote:
Well, I broke down last night and tried the Restoril. Took it about 9:00 and fell asleep sometime before 9:30. I was awake several times during the night, but was able to quickly fall back asleep. Finally was awake a bit before 5:00, so that was pretty good. No "hang-over" effects this morning, which I was afraid of. Now to not get dependent on this stuff. It felt really good to sleep well.... haven't done that in ages! dx 3/15/07, lump. 5/15, 1.4 cm; ER+; 1 of 3 nodes+; A/Cx4; Taxol x12; 3rd gen survivor but BRCA neg (go figure)
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Harley44 Joined: Jul 2007 Posts: 4,181 |
Sep 24, 2007 04:55 pm
Harley44 wrote:
Abbi,
I woke up a couple of times, but slept mostly through the night. It was SO nice to be able to sleep again! I also worry about becoming dependent to sleep aids, so I will try to go without it tonight, and I'm hoping that I'll sleep through the night. Glad that the Restoril worked for you.... It is SO good to sleep at night! I know that the steroids I'm taking with the chemo have affected my sleep patterns... Although, I have been having trouble sleeping on and off. Wishing you a good night's sleep tonight, Harley |
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LottaQuilts
Joined: Jul 2007 Posts: 208 |
Sep 25, 2007 07:44 am
LottaQuilts wrote:
So, Harley.... how'd it go w/o last night? I tried to go w/o last night and was awake, awake, awake. Finally took a Xanax at 1:30 and that gave me about 3 hours. I WAS thinking about you while I was lying awake wondering if you were too! How long to you think the steroids effect your sleep patterns. My treatment day is on Thursday. I take mega-dose of Decadron on Wednesday night and Thursday morning and they give me some Thursday by IV as well. Could it still be messing me up on Monday? If I don't have any Taxol reaction this week (I didn't last week) the onc said I won't have to take the Decadron pills before chemo.... that will possibly help. If there's one thing I need, it's a few blessed hours of sleep to escape from this nightmare..... I'm not too happy about 3 hours! Abbi dx 3/15/07, lump. 5/15, 1.4 cm; ER+; 1 of 3 nodes+; A/Cx4; Taxol x12; 3rd gen survivor but BRCA neg (go figure)
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Harley44 Joined: Jul 2007 Posts: 4,181 |
Sep 25, 2007 04:27 pm
Harley44 wrote:
Abbi, I didn't do very well last night. I was having some terrible lower back pain from the Neulasta shot, and I tossed and turned, and thought about YOU, too. lol I took 3 Ibuprofen finally, and they eased the pain somewhat, so I was able to sleep. I don't know how long the steroids will affect us, but I spoke to someone who has stopped txs to have her mast. She said that she still had trouble sleeping until about 4 days after her next tx would have been, if she was continuing them. So I still won't be sleeping right and I will have to start taking the steroids again. Ugh... That is good, if you don't need to take the steroids before every tx of Taxol, you may start to sleep again! Oh, well... I only have ONE more tx of TC to go, so maybe the Ambien will get me through til then. I will have to remember, though to take something for the back pain before going to bed. Harley |
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LottaQuilts
Joined: Jul 2007 Posts: 208 |
Sep 25, 2007 05:27 pm
LottaQuilts wrote:
How nice to only have one more tx to go! I bet you're looking forward to that! I don't get a Neulasta shot, so I don't have the pain to deal with. Tonight I'm taking my sleeper.... I'm going to take it every night through the weekend and see if I can get my clock "reset". At this point, I'm less afraid of getting addicted to the darn sleeping pill then being awake all night, every night. Funny we were thinking about each other! Have you tried a Tylenol or Advil PM? That might kill both birds with one stone, so to speak..... I have no experience with them, just got a free pack of Advil PM in the mail the other day... made me think about it. Get a good, pain-free night's rest, girlfriend! dx 3/15/07, lump. 5/15, 1.4 cm; ER+; 1 of 3 nodes+; A/Cx4; Taxol x12; 3rd gen survivor but BRCA neg (go figure)
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Harley44 Joined: Jul 2007 Posts: 4,181 |
Sep 25, 2007 06:01 pm, edited Sep 25, 2007 06:14 PM
by Harley44
Harley44 wrote:
Abbi, Yes, I am SO glad to be almost finished with my TC tx! Oct 9th is my last one! YAY! How many more txs of Taxol do you have? I didn't think about buying one of those pain/sleep meds when I was out at the store... DUH... very stupid of me... The pain seems to be getting better, so maybe I'll just take the sleep med to help me sleep. I am also not as worried about becoming addicted to the sleep aids, since I feel like a Zombie most of the time, when I can't sleep at night... Happy ZZZZZ's, Harley |
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LottaQuilts
Joined: Jul 2007 Posts: 208 |
Sep 26, 2007 07:51 am
LottaQuilts wrote:
I'll be doing 11 more Taxols - every Thursday through Dec 9 (assuming I don't get bumped back for anything). That seems like such a long way away at this point. Based on my first one, the Taxol itself doesn't bother me. I had no nausea, bone pain, neuropathy, etc. Just "loopy" from the Benedryl during tx and the darn insomnia. Also have lost all my appetite - not a good thing as I'm a little too thin already. If I could just get the sleeping/eating under control, the Taxol itself would be very tolerable. Got 6-1/2 hours last night! Yippee! dx 3/15/07, lump. 5/15, 1.4 cm; ER+; 1 of 3 nodes+; A/Cx4; Taxol x12; 3rd gen survivor but BRCA neg (go figure)
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Harley44 Joined: Jul 2007 Posts: 4,181 |
Sep 26, 2007 11:40 pm
Harley44 wrote:
Abbi, Wow! That is alot of Taxols! But, someone told me that if you get weekly treatments, you have less se's than if you get a treatment every 3 weeks, like I am. Most of the other se's I have been having have come from the Neulasta shot. Lower back pain, and just achey, and felt feverish one night. I hope you get your appetite back! I have been hungry most of the time, because of the Decadron! I am eating more than ever, and have gained some weight, which is ok, since I lost about 20 lbs from all the stress and worrying, when I was dx'd. The Benedryl must be what makes me kind of dizzy, and when I get up to walk after the tx, I look like I'm drunk! lol It's great that you are sleeping again! I slept about 7 hours, but not straight through. I have two cats, who wake me up around 5:30AM for their breakfast. After I feed them, I go back to sleep for a few hours. Until I started taking the Ambien, this has been the best sleep of the night. It is so good to be able to sleep again!! |
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LottaQuilts
Joined: Jul 2007 Posts: 208 |
Sep 27, 2007 07:43 am, edited Sep 27, 2007 07:43 AM
by LottaQuilts
LottaQuilts wrote:
Found out last night that the Decadron out does the sleeping pill. But hopefully this will be that last time I take it at night (assuming no reaction from the Taxol today.) About 1:00 I took a Benedryl (thanks FitChik for THAT tip) and that did the trick. So at least I got 4 hours. Based on my 1 Taxol treatment, I got no real SEs at all.... just the insomnia from the darn Decadron. My appetite and mood have improved, so if I could just get the darn insomnia under control I could sail throught the next 10 weeks. Glad to hear you got some rest! dx 3/15/07, lump. 5/15, 1.4 cm; ER+; 1 of 3 nodes+; A/Cx4; Taxol x12; 3rd gen survivor but BRCA neg (go figure)
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Harley44 Joined: Jul 2007 Posts: 4,181 |
Sep 27, 2007 11:27 am
Harley44 wrote:
Abbi, Sorry about the Decadron, but at least you won't have to take it for the rest of your treatments. If you have no other side effects, it will go quickly! I can't believe that I am near the end of my TC treatments! Glad that the Benedryl helped you to get some sleep. It's great that your appetite is back! The Lexapro must be working, that is wonderful! I don't like to tak a lot of medications, either, but sometimes we need a little help. I'm glad to say the the Effexor seems to be working for me. I'll see if it helps with the hot flashes, when I start taking the Tamoxifen. Seems the fun never ends! Harley |
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LottaQuilts
Joined: Jul 2007 Posts: 208 |
Oct 1, 2007 08:46 am, edited Oct 1, 2007 08:46 AM
by LottaQuilts
LottaQuilts wrote:
If I could just get this sleep thing figured out..... I've been taking my sleeping pills for about 5 days now, so I decided last night to try w/o. I have literally been awake all night. At 12:30, I took a Benedryl figuring it would make me drowsy. Nope. Nothing. Nada. I was really trying to avoid getting addicted to sleeping pills, but I can't function without sleep, for heaven's sake. This has got to be chemical from the Decadron they give me once a week. I'm not even lying awake in a panic or anything..... I'm just wide awake. Frustrated and just needed to vent..... Abbi dx 3/15/07, lump. 5/15, 1.4 cm; ER+; 1 of 3 nodes+; A/Cx4; Taxol x12; 3rd gen survivor but BRCA neg (go figure)
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Harley44 Joined: Jul 2007 Posts: 4,181 |
Oct 1, 2007 04:29 pm, edited Oct 2, 2007 10:54 PM
by Harley44
Harley44 wrote:
Abbi,
Have they stopped your Decadron? I think you said that you wouldn't have to take that steroid after the first few txs... If so, did it help... no? Good Luck! I hope you find something that helps! Harley |
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Sadie-Rose Joined: Sep 2007 Posts: 218 |
Oct 2, 2007 05:18 pm, edited Oct 2, 2007 05:18 PM
by Sadie-Rose
Sadie-Rose wrote:
Hi Everybody, I just wanted to offer another path. There has been a lot of research about light therapy and sleep. A light therapy box can help you regulate your sleep cycle. Typically, you sit in the light for 20-30 min. in the morning. Some people like to repeat the cycle in the afternoon. The theory is that the light regulates melatonin production. It is helpful not to have bright lights on at night. Some people add melatonin tablets if needed. It's a natural way to boost mood and help sleep. Sadie Dx 9/2003, IDC, Stage II, Grade 3, 1/14 nodes, ER-/PR-, HER2- |
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Harley44 Joined: Jul 2007 Posts: 4,181 |
Oct 2, 2007 05:26 pm
Harley44 wrote:
Sadie,
I DID have some issues in the winter, when I lived in Maryland, since there was not much sun, and the days are shorter in the winter. So, even though the sun is setting earlier, I don't think that is my problem now. Harley |
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ShirleyHugh
Joined: Jul 2005 Posts: 4,289 |
Oct 2, 2007 06:11 pm, edited Oct 2, 2007 06:11 PM
by ShirleyHughes
ShirleyHughes wrote:
Sleeping...oh WOW, do I remember those nights of staying awake. I had dose dense AC/Taxol. I had so much trouble sleeping no matter how tired I was. I also take Xanax (Alprazalom), and have been for many years. I used to take 3 - 4 mg a day, gradually cut down to .5 thee times a day, and then .5 once a day. Well, when bc hit I asked my pcp if I could up my dose by .5 mg. My onc knew I was taking Xanax, but also prescribed me Ativan for nausea. When I could not sleep I'd take one little .5 mg of Ativan at night OUT OF DESPERATION! It helped a little. Then, about four days before my next treatment I would sleep somewhat better..THEN WHAM! I started the vicious cycle all over again. All I can say is hang in there. I knew so little about this sleep stuff from chemo and/or steroids. All I knew was my onc said I may crash about the fifth day after treatment. HA! I crashed ALL the time. LOL Good luck. Talk to your onc about this since you are going through the weekly treatments. Twelve weeks of no sleep is just too much. Shirley God, grant me the serenity to accept the things I cannot change; the courage to change the things I can; and the wisdom to know the difference
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