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Topic: Mastectomy meltdown

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  • Posted on: Oct 9, 2007 11:24 am, edited Oct 9, 2007 11:24 AM by chemomom
NY
Joined: Aug 2007
Posts: 168
chemomom wrote:

I just heard from my surgeon's office.  I am confirmed for a bilateral mastectomy on 10/25.  I have just had my last of 4 neoadjuvant TCH to shrink my tumor.  I knew surgery was next, but I am now a MESS.  I have been trying to stay working and keep up with family and just stay normal thru all of this and now here I am melting down over a date being set. 

I feel like I owe myself some time to be catatonic, but I have a husband and 2 kids and a whole life that needs to continue.  What worked for you?  What is "normal" in all of this?  I have been taking about a week off from work after each chemo since my mind & body are useless for at least that time.  Have i tried to do too much?  Should I let myself get put out of work before surgery & just sulk for a bit before taking the plunge?  or do you think that will just make things worse? 

I know this has to be different for everyone, but I am feeling so lost right now that I could just use any help you can think of.  Thanks.  Angie


Dx 7/16/2007, IDC, Grade 3, ER-/PR-, HER2+
Posts 1 - 17 (17 total)
bomber410
Ipswich, MA
Joined: Apr 2007
Posts: 562
Oct 9, 2007 11:32 am, edited Oct 9, 2007 11:32 AM by bomber410 bomber410 wrote:

Angie, it sounds like you are answering the questions for yourself.  It seems to me you do need the time to regroup.  The answers will be different for everyone and there are no wrong answers. 

Do you have family/friends you can call on to help with the household?  Don't be afraid to ask.  People want to help but don't always know what that can mean for you.  They are waiting to be asked.  And we cannot expect them to be mind readers either since this is probably new territory for them as much as it is for you.  You will also find out that help comes from the strangest corners and the best friend we thought we could count on just cannot seem to handle what you are going through. 

You have a lot going on.  You need time to digest.  I don't know if they offer any support groups local to you.  I know our clinic offers two groups - one for those just diagnosed and going through all that you are experiencing and one for those who've completed treatments.  As you can imagine, each group is experiencing very different feelings.

Also contact the social worker at your hospital/clinic.  That's what they are there for.  Leave no resource untapped.  You need to surround yourself with a support group.  It will be good for you and your family.

You already show you know how to do this because you reached out to us, your BC sisters.  Good job!

Debbie 

You can visit my CaringBridge site at http://www.caringbridge.org/visit/debbiecole
Dx 3/29/2007, IDC, Stage II, Grade 2, 1/10 nodes, ER+/PR+, HER2-
neeliecar
CT
Joined: Jul 2007
Posts: 61
Oct 9, 2007 02:21 pm neeliecar wrote:

Angie, I know exactly how you feel.  The week before my double mas, I felt like I was crashing.  I found that working up until the day of surgery kept my mind busy so that I didn't think about it.  I just wanted that black mold (cancer) out of me.  I was scared, and cried a few times (that does help to let it out) and needed hubby to hug me more often than usual but I felt so much better after the mas.  I bounced back quickly and felt better about being cancer free.  Everyone goes through this crashing period, but everyone has to handle it in a different way.  I can not sit around and think about it or I would go crazy.  You may need time just for you to go through the acceptance/attack stage so that you are emotionally ready to go through with your surgery.  I promise, it does get better as time goes on.  I still have to go through chemo and that scares the hell out of me so I am living one day at a time right now.  I am 1 1/2 weeks out of my mas surgery.  Still in a lot of pain, but lessening every day.  The worst of it is these damn drains.  The actual surgery wasn't as bad as I had expected.  Sorry, I am rambling.  Just take time for yourself if you need it.  Your family must know what you are going through and are hopefully supportive enough to understand how you are feeling right now.  Stick together as a family and you will all get through this.  Eileen Carnein

chemomom
NY
Joined: Aug 2007
Posts: 168
Oct 9, 2007 02:44 pm, edited Oct 9, 2007 02:44 PM by chemomom chemomom wrote:

I have been hanging here for your every words. Thanks for your input and I hope there is more to come.  I think we ladies try to do too much, in general.  At 32, I am supposed to be loving wife, fun mom, sister, daughter, friend, and hard-working mom with a full time job outside of the home.  Somewhere in there, I need to fit in breast cancer?!? 

Maybe there's just too much on my plate right now.  Maybe it's time to take a bit of a leave from work so I can call doctors when i need to, write thank you notes promptly, and make memories with my kids whenever I can.  Work is almost always still there when one gets back to one's desk...    Maybe I am allowed to "grieve" over this situation for a while.  Maybe I need to take time for me.  Does that really get to happen?

Keep the opinions coming, ladies.  I am hopefully getting somewhere.  Angie


Dx 7/16/2007, IDC, Grade 3, ER-/PR-, HER2+
Shirlann
Joined: Feb 2002
Posts: 7,043
Oct 9, 2007 06:50 pm, edited Oct 9, 2007 06:52 PM by Shirlann Shirlann wrote:

Hi gals, I am beginning to sound like a drug pusher, and I know that one size does not fit all.  Some people do not like to take anything, and that is a perfectly legitimate stance, others can't take things.

BUT, if you are able and willing, I strongly advise for the long term, considering anti-depressives, I don't know how I would have survived without them.  They are not addictive, they don't work for everyone, but if they do, they are a miracle.  They take 3 to 6 weeks to become fully effective, in most cases.  When you get your confidence back and your feet back under you and stop being scared half to death, you can slooowly get off them. 

Then, for the "break through" or for right now, consider Ativan, Zanax or Valium (generic is Diazepam).  These "short term" things work well for surgery night before, test days, etc.  Or, until the anti-deps kick in.

I swear gals, I do not have any investment in the pharmaceuticals!

I just think so many gals do not realize how long this journey is so many of us have to take.  The toll this disease, or rather the length of the treatment, takes on jobs and families is huge.  I say, anything you can do to get through this makes sense.

This is totally my opinion, and believe me, I know there are many cases where this approach, either for ethical, moral or medical reasons is not a good idea.  But when you see a fire, get out the fire extinguisher.

Gentle hugs, Shirlann 

roseg
DC Area
Joined: Sep 2004
Posts: 8,487
Oct 9, 2007 07:02 pm roseg wrote:

If your job will let you do that without bad effects it sounds OK.

I kind of liked going to work because it was something else to think about, but everybody is different.

Are you set with leave or FMLA? 

Rose
lori5
Joined: Jun 2007
Posts: 77
Oct 9, 2007 07:39 pm lori5 wrote:

chemomom

 remember to take one day at a time.  I had a bilateral mastomey in June it really wasn't that bad I hated the drain tubes the most.  If you go to a specialty bra store and get a cami with inserts in it to but your drain tubes it feels alot better.  I will be thinking of you.

hugs and prays

lori

l82jem
Charlotte, NC
Joined: Nov 2006
Posts: 996
Oct 9, 2007 09:33 pm l82jem wrote:

Take a deep breath and try to relax a bit (easier said than done - I know). Chemo is mentally and physically exhausting. Your hormones have been doing crazy things and that has an emotional impact. I think it's completely normal to have a meltdown every now and then. I worked a similar schedule to the one you described and I think having work as a distraction helped. Take some time off after surgery and really try to rest, rest, rest. Believe me if you can get through chemo you can surely make it through surgery - I know it's scarry. Best wishes to you.

- Jan ("When you are going through Hell, keep going." - Winston Churchill)
Dx 11/11/2006, IDC, 2cm, Stage I, Grade 3, 0/4 nodes, ER+/PR+, HER2-
twink
Joined: Feb 2007
Posts: 1,596
Oct 10, 2007 12:15 am twink wrote:

Hi Angie,

I understand what you're coping with.  I had a bilateral mastectomy in June.  I also had neoadjuvant chemo (4 DD AC and 4 DD Taxotere) before surgery.  I was shooting for a lumpectomy option then changed my mind midstream...just had to go to the extreme for my own personal peace of mind (not that I have really found it).  I did take Ativan for sleep for several months and Lexapro for one month.  I think both helped me keep my head above water as surgery approached and as I coped with news of positive nodes following the bilat surgery.  I worked throughout, taking only the minimum amount of time off for recovery from surgery and the odd day following chemo.  I found that staying at home was worse for me.  My kids are a little older so I wasn't occupied with tending to them and I found I just moped about the house.  I was better off at work where I could at least be distracted for chunks of time.  Everybody is different but that's what worked for me.  As I approached my surgery I did go into a mourning period...grieving the loss of my breasts (that's a whole 'nother post) but I never rethought my decision even though, by the time of surgery, the tumor was small enough to permit a lumpectomy.  I've never looked back.  I'm glad I did it.  I'm 4 months out now and feeling pretty good.  It's amazing really...once the chemo is out of your system and the physical discomfort from surgery has passed, the mind comes around and you start to heal mentally.  I have to say I was feeling pretty good within 8 weeks of surgery (could've been sooner but I had to go back for the nodes within one month of the bilat).

There's a balance for me...doing too much and not doing enough...  Too much and I'm wiped out physically and emotionally.  Too little and I spend all my time thinking about BC.  I'm trying to find the happy medium but I lean toward doing too much... keeps me distracted.

Why limit happy to an hour?
iodine
TN
Joined: Oct 2002
Posts: 7,682
Oct 10, 2007 12:58 am iodine wrote:

Well, Kiddo, I've never heard of anyone saying, Gee, I wish I'd spent more time at work.!

When I counseled people who were newly diagnosed, I told them that they had a rare opportunity to make people they knew to feel really GOOD!  And to do that all they had to do was give them something to DO: take the kids to ball or dance practice, make supper tues or sat. , do the sheets and towels laundry twice one week, stuff like that.  I gave them one of those free calendars from the florists (funeral homes are a no-no) and told them to pencil in people's names and their "good deed" on the date indicated. 

So, when people call and say"please let me know what I can do to help" --- have a list made out, and offer them a couple of dates to do what ever and make them feel wonderful! 

Wouldn't it  make you feel great if one of your friends asked you to take their kids somewhere or set up a play date on a Sat?  You know it would.

Now, about taking time off from work to wrap your head around the fact that your have freeking breast cancer?  Hmmmm, well, -----, I'll tell you what, I sure didn't do that and I was Miss Pollyanna, and smiled and told my family all was just great.  I kept working and told my adult kids : no reason to come home, I'll be fine.  And they believed me.  I was absolutely STUPID.  Worst mistake I've ever made.  I have promised myself and my kids I will never do that to us again. 

You can do what you feel is right for you, but as for me, I'm going to be completely honest with my dh and kids from now on.  I'm allowed to be a whimp.  I am not superwoman and do not have to be.  There is absolutely no reason in this world for me to try to do that.  No extra points are scored, or even offered. 

Dotti---BE NOT AFRAID, Pope John Paul
bosombuddyb…
Joined: Oct 2007
Posts: 12
Oct 10, 2007 12:20 pm bosombuddybeck wrote:

Hi chemomom,

I, too, had a double mastectomy.  The surgery, itself, is not bad as I had very little pain.  I hated the drains the most, but bounced back quickly.  What worked for me was gaining knowledge about BC.  I read everything that i could get my hands on and talked to a lot of people who had been through it.  I felt like my life was out of control, so gaining knowledge was the only control I felt I had.  I also asked my doctors tons of questions and transformed from a passive patient to an informed confident patient.  I found that talking to others was very helpful.  You need to do what you feel is best for you whether it is working or staying at home.  I tried to stay busy by cleaning, cooking, etc. as I was not working when all of this happened.  I did go back to work a year after my chemo and surgeries.  My church family was a tremendous source of comfort for me and I bonded with several women who had been through BC.  Good luck to you!

Harley44
Carolina Shores, NC
Joined: Jul 2007
Posts: 4,181
Oct 10, 2007 01:21 pm, edited Oct 10, 2007 01:24 PM by Harley44 Harley44 wrote:

Angie,

Last year, I just moved to North Carolina from Maryland.  My dh was still active duty Navy, stationed in DC, so I didnt' see him a lot...  Work wasn't an issue, since I quit my job, to move here, and didn't want to start another new job, with all the unpacking and other stuff I had to do...  I wanted to meet new friends here at the resort beach area... 


Well, this is just some background info., but I was dx'd with bc in March 2207, and on May 2nd, I had a bi-lateral mast.  I was here in this new area, with really NO ONE I KNEW...   I

Sometimes, I thought I had too much time to think, but mostly, I was glad for the time to reflect, and rest, and think... I had lots of decisions to make, about chemo, and reconstruction...  

But, I also didn't have this site to go for support...

So, do what YOU feel is best, and I really AM glad that I had some time to just VEG... and NO RESPONSIBILITIES... 


The advice the others gave is really VERY GOOD!  Enlist your friends to help, and just try to get some rest, because this is the time to pamper yourself, not be a hero.  Just be kind to yourself!  We will also be here to lend emotional support. 

Good Luck!


Hugs,

Harley 

chemomom
NY
Joined: Aug 2007
Posts: 168
Oct 11, 2007 03:21 pm chemomom wrote:

Thanks for the input everyone.  After my meltdown on Monday, i have been feeling much better.  There is so much to think about and do, I have taken all week off and I think it has helped.  Of course, this last chemo seems to have knocked a lot out of me, so it was a good idea to be out for physical AND emotional reasons. 

i really liked what Dottie said:  "I am not superwoman and do not have to be....No extra points are scored, or even offered."  That is so true, what a way to look at things!  I hope you don't mind if I add that quote to my bag of tricks. :)

I will see my surgeon tomorrow and ask tons of questions.  And I am sure i will melt-down again before surgery comes.  Right now, i want to write my 2 boys a letter, "just in case."  One task at a time, one day at a time, and I'll get thru this.  Thanks again everyone.  Angie


Dx 7/16/2007, IDC, 6cm+, Grade 3, ER-/PR-, HER2+
lvtwoqlt
FOOTHILLS OF, NC
Joined: May 2007
Posts: 4,533
Oct 11, 2007 04:13 pm lvtwoqlt wrote:

Angie, I had several meltdowns prior to my bilat surgery June. I actually had a melt down on the phone with my husband the night before my surgery. He is a long haul trucker and was delayed arriving home until 2:00 am the morning of my surgery. It is normal but as shirlann said ask for some medicines to help you emotionally get through this trying time.

As you said take it one day at a time and you can make it.

Sheila

We are like tea bags, we don't know how strong we are until we were thrown into hot water. Eleanore Roosevelt
DGHoff
Minneapolis, MN
Joined: Sep 2007
Posts: 325
Oct 12, 2007 02:51 pm DGHoff wrote:

Angie,

I remember that my last round of AC chemo kicked my butt in a wicked way and I would cry at the drop of the hat for a couple of weeks.  So much of the depression we feel can come from hormones being suppressed and altered by the chemotherapy. Then to add in an upcoming mastectomy surgery is just more rotten icing on an already crumbly cake.  I hope that as the effects of the chemo tx wears off, you'll start to feel better. 

I only had a right breast mastectomy, but I thought surgery was pretty easy. I agree that the drain was one of the worst parts, with the other part being that I had to keep telling my four-year-old son that he couldn't really sit it my lap so that he wouldn't bump into me too hard. I feel for you with two kids. Even with one, I feel like I'm just not able to give him everything he needs right now. First, he couldn't sit on my right side of my lap because of the surgery. Then when that healed, I got my port on the left side, so now he can't sit there. Poor guy is so confused about what he can or can't do with me. I know I get frustrated that I can't just pick him up and give him a hug without worrying about him smashing into my port. 

For me, work was a lifesaver because it kept me from dwelling on things, but for you, it might be just what you need to take some time. Right now, this is the time to take care of YOU and if you do that, the other things will fall into place. Listen to what your body and mind says you need. I agree there are no points scored or given in this realm. 


Hang in there, Angie, and I'll see you on the Aug 07 chemo girls board! Let us know how you're doing.

DeAnn  


Dx 6/14/2007, IDC, 6cm+, Stage IIIa, Grade 3, 7/8 nodes, ER+/PR+, HER2+
chemomom
NY
Joined: Aug 2007
Posts: 168
Nov 4, 2007 08:18 am chemomom wrote:

Well, In case anyone was still checking this thread, I had my bilateral mastectomy over a week ago.  I am pleased to say things went well and the pathology was also pretty good.  No positive nodes!  And only slight traces of any tumor was left.  And the margins were clear.

I am finding recovery to be more than what I could have imagined.  My incisions are much longer (wrap around my sides) and I wasn't expecting that.  Of course, I was cursed with big boobs, so I expect that may be why that had to happen.  And I snuck a peek at my chest when I had one of my drains removed.  I was even going to try to change my dressing the other day.  that's when I saw how extensive the incisions were and I couldn't handle it.  So I don't know what I will do.  And i am still having a lot of "discomfort"-- I can't explain it.  Not extreme pain, more like constant discomfort.  Ibuprofen hasn't been effective.  I am now rationing my percocet until I can see if the doc will let me have more.  What we chicks have to go thru.  Don't even get me started on how I hate the drains! 

But anyway... I came thru surgery alright and the rest will somehow fall into place.  Thanks to everyone who helped me thru that pre-surgery phase.....  Angie


Dx 7/16/2007, IDC, 6cm+, Stage IIIa, Grade 3, 0/3 nodes, ER-/PR-, HER2+
mrs_X_Sunne…
ut
Joined: Apr 2007
Posts: 535
Nov 4, 2007 12:05 pm mrs_X_Sunneedazee wrote:

Hi Angie,
I had a single mastectomy on Oct 25th... I too am rationing my percocets until Tuesday, and I laughed when I read you were doing the same. I am young like you also, 29 years old. I have 5 kids, and all the help I have received is truly a blessing. Hopefully you are receiving help as well. I was shocked by the size of my incisions also. I had my drains removed on Friday, thank heavens, but now the fluid is accumulating under the tissue, and it looks like my boob is growing back. LOL! I will probably need it drained. I am glad that your nodes came back negative. That is encouraging news. Wishing you lots of TLC and a speedy recovery.

My picture is me and my husband and 21 month old son.
Dx 5/10/2007, IBC, 6cm+, Stage IV, Grade 3, 3/5 nodes, mets, ER+/PR+, HER2+
iodine
TN
Joined: Oct 2002
Posts: 7,682
Nov 4, 2007 05:43 pm iodine wrote:

Glad to hear from you gals!  One day at a time, and good luck at your appts.

Dotti---BE NOT AFRAID, Pope John Paul

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